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ICUsteps

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No sleep in hospital

So my dad is currently weaning down with trach on and he’s breathing on his own ...

Covid hair loss

Hello! New to the group and I spent time in ICU in December 2020 with covid, I w...

Wife delirium post icu

Hi, I’m wondering if anyone can help. My wife was admitted to Leicester glenfie...

Dad in icu with covid 8 weeks. Doctor talking about end of life care

Hi all my dad has been in intensive care for 8 weeks during this time he had bip...

Physical Therapy once off of vent

Hey guys, it’s me again. I know we’ve talked some on this but how long did it ta...

Post Covid Depression or the current situation of my life?

Hi! It's my first post here. I've had a moderate to serious case of Covid; 52 p...

Medications given for agitation/anxiety during ICU.

The doctor has prescribed my dad Seroquel back on the 4th or 5th. I can’t rememb...

Speech and standing after vent

I know we’ve spoke a little on this, or atleast a couple people have said. But h...

Hi everyone does anyone have advice on after care for icu flashbacks and help with piecing things together?

Hi everyone , I was wondering if anyone had any advice , to make a long story sh...

Need help knowing how to talk to my brother in ICU

Hi community, my brother Michael is in icu and has severe brain damage however w...

Back on vent

Hey guys, my dad has had to go back on the vent due to being septic. He had been...

Advice... Will it ever come back?

I'm really worried. Since my I.C.U experience (Close to death) I'm still very w...

Trach was successful

Today was the day my dad had his tracheotomy. Everything went well and the dr sa...

Physical Therapy

Hey guys, is it possible to do physical therapy while having a trach? Dads getti...

Pneumonia

About a week ago, dad started running a fever. They did some cultures and a sput...

Hello world from newbie Kit

Hi. Posting from a hospital bed where I am very frustratingly slowly recovering ...

Heartbroken update

Today is my beloved sister's funeral. She passed away 2 days ago. After 3 month...

Very tired

Hey guys, so I know we’ve talked about how weak you guys are when coming off of ...

Recovering slowly.

Hi everyone, I am recovering from 8 weeks in icu. Somewhere I'm sure none of us...

Cuffed vs uncuffed trachy - can anyone explain?

In my memories of being in ICU sometimes I could speak with difficulty and somet...

Seeing double?uble?

In ICU and for a while after I had double vision. It faded and is OK now. Is tha...

Elevated Co2

Hey guys, has anyone experienced or had a loved one experience a rise in CO2 lev...

Hair Loss

Hello I am new here. I was in the ICU in February and am still recovering. I hav...

My episodes

While in ICU I had very bad disturbances I was in a cave part of the time and bu...

Father on full oxygen. Doc says no hope, wants to disconnect. COVID-19

My father is now on day 18 on a ventilator. He was put down to 70% but then a we...

I overdosed and now my feet are in constant pain, why?

I overdosed on benadryl for the second time in my life in October of last year, ...

Question - might lost memories return

I have a 3week gap in my memories before I was brought to a&e, including no memo...

surviving day 2 day

out now 3 months but it all seems slow esp mood swings and breathing and walking...

Peg tube

Did anyone have a peg tube placed and your NG tube removed? They’re going to put...

Living on Trach

What are the odds that someone would have to live on a trach once off of the ven...
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About us

ICUsteps (the Intensive Care Unit Support Teams for Ex-Patients) was founded in 2005 by ex-patients, their rel...

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ICUsteps is run entirely by volunteers so all the money we raise goes straight to helping meet our goals of supporting patients and relatives