Search
Search
About
Log in
Join
Experiences with
Leg or foot ulcers
Posts
Communities
3,471 public posts
Filter results
PIP assessment good or bad?
Hi, my first post on here. I just had my PIP assessment and it went on for about an hour, the assessor was a nice guy and I gave him a hospital discharge letter (I had just been in hospital due to multiple seizures) and also a results letter from an EEG (stating that that there is a lot wrong with my
Hi, my first post on here. I just had my PIP assessment and it went on for about an hour, the assessor was a nice guy and I gave him a hospital discharge letter (I had just been in hospital due to multiple seizures) and also a results letter from an EEG (stating that that there is a lot wrong with my
RandomMishaps
in
Epilepsy Action
6 years ago
Has anyone tried Magnesium Chloride foot baths?
My Dr recommended MC foot soaks for 30 minutes per soak. Along with 10 mg ER Oxycodon at night I am no longer having episodes!
My Dr recommended MC foot soaks for 30 minutes per soak. Along with 10 mg ER Oxycodon at night I am no longer having episodes!
Hidden
in
Restless Legs Syndrome
6 years ago
Ropinirole for long airplane flights?
My daughter, aged 44, also suffers from restless leg syndrome. She manages her condition without medication. However, she finds long flights miserable and her primary care physician has scripted her ropinirole and suggests starting a couple of weeks before the next long flight. I am questioning staying
My daughter, aged 44, also suffers from restless leg syndrome. She manages her condition without medication. However, she finds long flights miserable and her primary care physician has scripted her ropinirole and suggests starting a couple of weeks before the next long flight. I am questioning staying
whiteleye
in
Restless Legs Syndrome
6 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Levetiracetam (Keppra) to help in some cases of RLS.
Tim61, I posted recently about withdrawing from Pramipexole, which I’m doing at the moment, not very nice. My GP eventually discovered I was suffering with myoclonic jerks, not restless leg syndrome. I saw him yesterday’ & he has agreed to try keppra ( levetiracetam) 250mg at night. I took the first
Tim61, I posted recently about withdrawing from Pramipexole, which I’m doing at the moment, not very nice. My GP eventually discovered I was suffering with myoclonic jerks, not restless leg syndrome. I saw him yesterday’ & he has agreed to try keppra ( levetiracetam) 250mg at night. I took the first
Tim61
in
Restless Legs Syndrome
6 years ago
Just started Medical Cannabis for RLS and Sleep
I have been prescribed medical cannabis for my RLS - I live in NSW Australia. It is the best thing I have ever had to help. This is a 2 part CBD 1 part THC mix. I only take 1/2 ml or 1/10th of a teaspoon per night but it gives me the best sleep ever - from waking up 3 - 4 times a night with full on
I have been prescribed medical cannabis for my RLS - I live in NSW Australia. It is the best thing I have ever had to help. This is a 2 part CBD 1 part THC mix. I only take 1/2 ml or 1/10th of a teaspoon per night but it gives me the best sleep ever - from waking up 3 - 4 times a night with full on
Goldy700
in
Restless Legs Syndrome
6 years ago
Post Viral Meningitis - Depression?
Hi. I was diagnosed with Viral Meningitis end August. Was in Hospital for 2 weeks. I was discharged and spent 3 days home resting. For 2 days I went to work only half day. The 3rd day I was back full time. Unfortunately I had no choice but to work as my sick leave was already exhausted. I was now
Hi. I was diagnosed with Viral Meningitis end August. Was in Hospital for 2 weeks. I was discharged and spent 3 days home resting. For 2 days I went to work only half day. The 3rd day I was back full time. Unfortunately I had no choice but to work as my sick leave was already exhausted. I was now
Shermel
in
Meningitis Now
6 years ago
Post Viral Meningitis
Hi There 1st post. I was hospitalised with viral meningitis for a fortnight Sept-Oct. Since being home I am still experiencing constant headaches, dizziness and nausea. I have seen my gp who said this is normal and It can take alot of time to get back to normal. My question is... Is there any hints or
Hi There 1st post. I was hospitalised with viral meningitis for a fortnight Sept-Oct. Since being home I am still experiencing constant headaches, dizziness and nausea. I have seen my gp who said this is normal and It can take alot of time to get back to normal. My question is... Is there any hints or
Hardy150612
in
Meningitis Now
6 years ago
Is it safe for me if my wife has the live shingles vaccine?
I'm 72 and on W&W for 5 years. My wife is 71 and has low immunities and wants to have the live shingles vaccine available here in the UK. Her nurse says that Public Health England says she can have it and I'll be safe. If she gets a rash after the vaccination, which happens sometimes, she should
I'm 72 and on W&W for 5 years. My wife is 71 and has low immunities and wants to have the live shingles vaccine available here in the UK. Her nurse says that Public Health England says she can have it and I'll be safe. If she gets a rash after the vaccination, which happens sometimes, she should
carnvellan
in
CLL Support
6 years ago
Chickenpox in pregnancy
Hi, I’m 20 weeks pregnant and not immune to chickenpox. I have unfortunately been close to a kid who’se been suspicious having chickenpox. What shall I do now? Any advice please? Has anyone have the same experience? X
Hi, I’m 20 weeks pregnant and not immune to chickenpox. I have unfortunately been close to a kid who’se been suspicious having chickenpox. What shall I do now? Any advice please? Has anyone have the same experience? X
Sherry07
in
Pregnancy and Parenting Support
6 years ago
My fight against augumentation
Hi all just thought id let you know about my last 5 weeks fighting above, ive been on parpeximole for 5 yrs starting with one then reaching 6, far too many, so in last 12mths my rls has increased to the point if not sleeping at all some nights, so i decided i would come off parpeximole as i thought i
Hi all just thought id let you know about my last 5 weeks fighting above, ive been on parpeximole for 5 yrs starting with one then reaching 6, far too many, so in last 12mths my rls has increased to the point if not sleeping at all some nights, so i decided i would come off parpeximole as i thought i
BLUES60
in
Restless Legs Syndrome
6 years ago
Neurologist appointment
So...today I returned to King's College hospital for what I thought would be my final appointment with the neurologist i've been seeing since my TBI in 2015. Seems it's not quite over yet. When she asked how I have been I told her about 2 episodes of feeling spaced out at work I've had in April and then
So...today I returned to King's College hospital for what I thought would be my final appointment with the neurologist i've been seeing since my TBI in 2015. Seems it's not quite over yet. When she asked how I have been I told her about 2 episodes of feeling spaced out at work I've had in April and then
Ro_76
in
Headway
6 years ago
Recent Lupus Diagnosis
Hi. After suffering with seizures, and quite a few of them, my consultant neurologist has ordered some tests, ie, MRI, EEG and also various blood tests. I was admitted into hospital last week after suffering another 2 seizures, and one of the doctors told me that I have tested positive for Lupus. Is
Hi. After suffering with seizures, and quite a few of them, my consultant neurologist has ordered some tests, ie, MRI, EEG and also various blood tests. I was admitted into hospital last week after suffering another 2 seizures, and one of the doctors told me that I have tested positive for Lupus. Is
Smy74
in
LUPUS UK
6 years ago
Endometriosis & Seizures
I’m an endo warrior and have recently started having seizures for the first time. I have daily headaches, and I have lost full mobility of my left side since the first cluster of seizures. I am awaiting an MRI and an EEG, but a neurologist has dismissed my questions about endo on the brain and told me
I’m an endo warrior and have recently started having seizures for the first time. I have daily headaches, and I have lost full mobility of my left side since the first cluster of seizures. I am awaiting an MRI and an EEG, but a neurologist has dismissed my questions about endo on the brain and told me
JessieWilde
in
Endometriosis UK
6 years ago
Nail removal on affected lymphedema leg
So I have lymphedema in my leg, had cellulitis, and took 2 weeks antibiotics and now on 8 weeks prophylactic antibiotics. I also have a fungal nail infection on two toes on the foot of the affected leg. My leg was originally swollen, now my ankle and foot after EVLA surgery, but not toes. I am in a
So I have lymphedema in my leg, had cellulitis, and took 2 weeks antibiotics and now on 8 weeks prophylactic antibiotics. I also have a fungal nail infection on two toes on the foot of the affected leg. My leg was originally swollen, now my ankle and foot after EVLA surgery, but not toes. I am in a
Blade1
in
LSN
6 years ago
Flying after viral meningitis
Hello all, I’m currently in hospital with viral meningitis and chronic back pain from lumbar and I’m due to go to Budapest on a hen weekend in 2 weeks does anyone know if I’ll be allowed to fly? Thanks xx
Hello all, I’m currently in hospital with viral meningitis and chronic back pain from lumbar and I’m due to go to Budapest on a hen weekend in 2 weeks does anyone know if I’ll be allowed to fly? Thanks xx
Nicolao
in
Meningitis Now
6 years ago
simple/complex focal/partial seizures - epilepsy. Every scan known to man with no positive proof.
I'm new here. What kind of epilepsy is this? If it even is epilepsy. HELP. I know it's coming. My body slows down. My speech starts to slow until I can't get words out. I still see, hear and know everything that's going on around me but can't speak. BUT if asked a yes/no question I can nod/shake. If
I'm new here. What kind of epilepsy is this? If it even is epilepsy. HELP. I know it's coming. My body slows down. My speech starts to slow until I can't get words out. I still see, hear and know everything that's going on around me but can't speak. BUT if asked a yes/no question I can nod/shake. If
sjrw
in
Epilepsy Research Institute
6 years ago
Looking for various so called causes of RLS
Can anyone give me a list of ALL the 'causes' of RLS. There have been so many starting with lack of magnesium. I am not interested in the 'band aid' drugs we are all given but rather the suspected etiology (the cause) of RLS. Recently Johns Hopkins Hospital said it was too much glutamine in the brain
Can anyone give me a list of ALL the 'causes' of RLS. There have been so many starting with lack of magnesium. I am not interested in the 'band aid' drugs we are all given but rather the suspected etiology (the cause) of RLS. Recently Johns Hopkins Hospital said it was too much glutamine in the brain
auntiesioux
in
Restless Legs Syndrome
6 years ago
Mucuna Pruriens as a dopamine agonist and Aspartame
A few things I have read - I wonder if people have noticed a difference taking aspartame out of their diet and adding Mucuna Prurients. I personally avoid artificial sweeteners but have not tried Mucuna. "Aspartame is a synthetic, laboratory concocted, genetically modified, sugar-replacement nightmare
A few things I have read - I wonder if people have noticed a difference taking aspartame out of their diet and adding Mucuna Prurients. I personally avoid artificial sweeteners but have not tried Mucuna. "Aspartame is a synthetic, laboratory concocted, genetically modified, sugar-replacement nightmare
Goldy700
in
Restless Legs Syndrome
6 years ago
My experience with Ropinerole (Requip)
I have been on this drug since 2004. My mother, aunt and uncle have had it also, so runs in my family. About 1.5 years ago I mentioned to my doctor that the dose of .50 was no longer working, so he increased it to 1 mg. About a year ago, i noticed my RLS hitting earlier in the evening, so I started
I have been on this drug since 2004. My mother, aunt and uncle have had it also, so runs in my family. About 1.5 years ago I mentioned to my doctor that the dose of .50 was no longer working, so he increased it to 1 mg. About a year ago, i noticed my RLS hitting earlier in the evening, so I started
creepycrawly
in
Restless Legs Syndrome
6 years ago
side effects
It’s been a long year since I was diagnosed with ET + Jak 2 positive and already fought and battled my way through the side effects of Hydroxy, Anagrelide and Interferon. When I started Pegasys four weeks ago, I thought this may be the one. However I started it and I still had not recovered from the
It’s been a long year since I was diagnosed with ET + Jak 2 positive and already fought and battled my way through the side effects of Hydroxy, Anagrelide and Interferon. When I started Pegasys four weeks ago, I thought this may be the one. However I started it and I still had not recovered from the
MaggieMagpie49
in
MPN Voice
6 years ago
1
...
89
90
91
...
100
Next page
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Restless Legs Syndrome
1396 results
Meningitis Now
260 results
NRAS
236 results
View top 10 communities
Sort by
Most Relevant
Newest