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Face rash/spots and cold sores
Morning all, I have had a 8 week course of Prednisone and now stopped. My face is covered in rash and spots thats really affecting my self esteem and now started with cold sores in corner of my mouth. I don’t want anymore preds due to moon face etc. Can I ask what creams, wash etc you all use to help
Morning all, I have had a 8 week course of Prednisone and now stopped. My face is covered in rash and spots thats really affecting my self esteem and now started with cold sores in corner of my mouth. I don’t want anymore preds due to moon face etc. Can I ask what creams, wash etc you all use to help
LSurtees
in
LUPUS UK
2 years ago
ICU with intellectual disability
Hi all, I have a loved one who has several disabilities (one being an intellectual disability) who has now been in ICU for 10 days. He was brought in as he had suddenly taken very unwell over the duration of the day. He was unable to walk/balance, couldn’t support his weight and his breathing was laboured
Hi all, I have a loved one who has several disabilities (one being an intellectual disability) who has now been in ICU for 10 days. He was brought in as he had suddenly taken very unwell over the duration of the day. He was unable to walk/balance, couldn’t support his weight and his breathing was laboured
abhil
in
ICUsteps
2 years ago
constipation
Hi folks Taking Levodopa Gabapentin and Tramadol for Parkinson and Restless legs and get bad constipation can you suggest any good things to take to help this .
Hi folks Taking Levodopa Gabapentin and Tramadol for Parkinson and Restless legs and get bad constipation can you suggest any good things to take to help this .
auldreekie18
in
Restless Legs Syndrome
2 years ago
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alternative to sertraline due to restless legs
I have suffered restless legs all my life. A few years ago my dr checked my ferritin level. It was very low and I took iron. My legs got better and I was elated. No one had ever told me there was such a simple solution in all my 71 years. I have also taken sertraline in the past but never associated
I have suffered restless legs all my life. A few years ago my dr checked my ferritin level. It was very low and I took iron. My legs got better and I was elated. No one had ever told me there was such a simple solution in all my 71 years. I have also taken sertraline in the past but never associated
NJB71
in
Restless Legs Syndrome
2 years ago
Shingles Vaccine
There has been a lot of advertising on Classic FM that older people with immune deficiency diseases should get the anti shingles vaccine. I asked the question a few years ago and it was stated by Prof Harrison that this was a live vaccine and was therefore dangerous to us with ET/PV especially if we
There has been a lot of advertising on Classic FM that older people with immune deficiency diseases should get the anti shingles vaccine. I asked the question a few years ago and it was stated by Prof Harrison that this was a live vaccine and was therefore dangerous to us with ET/PV especially if we
catkinspolymer
in
MPN Voice
2 years ago
Very high IgE levels
Does anyone else with autoimmune PA have a sky high IgE level as I do? Since diagnosis mine has been around 2000 KIU/L (normal range <20). I don’t suffer from any of the conditions usually associated with very high serum IgE such as aspergillosis, Hodgkin’s Disease etc, so whatever has caused it is
Does anyone else with autoimmune PA have a sky high IgE level as I do? Since diagnosis mine has been around 2000 KIU/L (normal range <20). I don’t suffer from any of the conditions usually associated with very high serum IgE such as aspergillosis, Hodgkin’s Disease etc, so whatever has caused it is
summersj
in
Pernicious Anaemia Society
2 years ago
Tonsillitis question and mtx
Hi. My 3 year old granddaughter has just got back from A&E and she has tonsillitis and has been given antibiotics. I’m due my MTX jab tomorrow and as it’s bank holiday I can’t get hold of Rheumy nurse. On the internet the NHS says it not contagious but the bacterial or viral infection that causes tonsillitis
Hi. My 3 year old granddaughter has just got back from A&E and she has tonsillitis and has been given antibiotics. I’m due my MTX jab tomorrow and as it’s bank holiday I can’t get hold of Rheumy nurse. On the internet the NHS says it not contagious but the bacterial or viral infection that causes tonsillitis
Haz58
in
NRAS
2 years ago
chicken pox
I would appreciate advice on chicken pox I had chicken pox as an adult when my children got it. I have also had a shingles vaccine. My grandson is just recovering and we’re waiting to see if his sister catches it. I’m on 5mg prednisone and we’re wondering if I should still be careful and stay clear
I would appreciate advice on chicken pox I had chicken pox as an adult when my children got it. I have also had a shingles vaccine. My grandson is just recovering and we’re waiting to see if his sister catches it. I’m on 5mg prednisone and we’re wondering if I should still be careful and stay clear
Ana-16
in
PMRGCAuk
2 years ago
Sore Tongue
I've had a sore tongue for 3 years since being diagnosed with pmr. My dentist just said its typical with autoimmune illness. I looked up Thrush but I didn't have white patches. My tongue always feels like I burnt the tip of it. Toothpaste irritates it. My n ew GP gave me oral dose of Nystatin for 2
I've had a sore tongue for 3 years since being diagnosed with pmr. My dentist just said its typical with autoimmune illness. I looked up Thrush but I didn't have white patches. My tongue always feels like I burnt the tip of it. Toothpaste irritates it. My n ew GP gave me oral dose of Nystatin for 2
Paperroses
in
PMRGCAuk
2 years ago
Erythema Migrans
I have CLL/SLL , diagnosed in 2010. Have been taking BTK inhibitors since 2017. First Imbruvica and the last two and a half years Calquence. A small reddish spot appeared on my arm in the middle of June. It started to spread. I did not pay much attention. End of July I showed it to my oncologist who
I have CLL/SLL , diagnosed in 2010. Have been taking BTK inhibitors since 2017. First Imbruvica and the last two and a half years Calquence. A small reddish spot appeared on my arm in the middle of June. It started to spread. I did not pay much attention. End of July I showed it to my oncologist who
zsuzsiB
in
CLL Support
2 years ago
RLS and THC oil
Hello everyone Im a 37 yo male who has suffered from RLS for around 9 years or so. During this time I have worked through every single possible treatment afforded to us such as iron supplements, less alcohol, no sugar dieting (ketogeneic diet), eating at varied times during the day - non of which changed
Hello everyone Im a 37 yo male who has suffered from RLS for around 9 years or so. During this time I have worked through every single possible treatment afforded to us such as iron supplements, less alcohol, no sugar dieting (ketogeneic diet), eating at varied times during the day - non of which changed
Geordie-sailor
in
Restless Legs Syndrome
2 years ago
no ppain.
Restless is not painful, it's an urge to keep moving, legs jump and junk impossible to sit or lie Down. you have no choice but To keep moving. My longest walkabout was from 6.30pm until 6 30am following morning. What is working for me now is tto Alternate between pramipexole
Restless is not painful, it's an urge to keep moving, legs jump and junk impossible to sit or lie Down. you have no choice but To keep moving. My longest walkabout was from 6.30pm until 6 30am following morning. What is working for me now is tto Alternate between pramipexole
cumoneileen
in
Restless Legs Syndrome
2 years ago
insomnia
I need some one who is taking CBD for insomnia with success to share the brand of CBD he is taking with me. From my past posts you may be familiar with my oxycodone-induced insomnia. The Hempland USA Cannabitol has lost effect after 7-8 months of daily dosage of 83.4 mg every night. I am now again
I need some one who is taking CBD for insomnia with success to share the brand of CBD he is taking with me. From my past posts you may be familiar with my oxycodone-induced insomnia. The Hempland USA Cannabitol has lost effect after 7-8 months of daily dosage of 83.4 mg every night. I am now again
halperinchen
in
Restless Legs Syndrome
2 years ago
Ropinirole
Hi there I am weaning down off Ropinirole and that is fine at the moment. Very gradual reduction However, I was started on Pregabalin about four months ago. I have suffered various side effects but most of them manageable until now. I take 2 tablets in the morning and was on 3 at night. I have
Hi there I am weaning down off Ropinirole and that is fine at the moment. Very gradual reduction However, I was started on Pregabalin about four months ago. I have suffered various side effects but most of them manageable until now. I take 2 tablets in the morning and was on 3 at night. I have
SilverEvie
in
Restless Legs Syndrome
2 years ago
Restless Legs Medication - Ropinirole and Gabapentin
I was diagnosed with Restless legs syndrome around 2012 and was prescribed ropinirole. I started on 0.5 mg increasing to 1 mg, and this worked for a while. A couple of years ago, my symptoms were getting worse and I was experiencing augmentation. I get the sensation in my wrists now, and my symptoms
I was diagnosed with Restless legs syndrome around 2012 and was prescribed ropinirole. I started on 0.5 mg increasing to 1 mg, and this worked for a while. A couple of years ago, my symptoms were getting worse and I was experiencing augmentation. I get the sensation in my wrists now, and my symptoms
Kissfan
in
Restless Legs Syndrome
2 years ago
Restless leg syndrome
Having suffered from RLS on and off since childhood it now starts in the morning and continues all day until I can take Ropinirole at nighttime. It seems little research is being done what can we do to persuade some scientist somewhere to take this on and relieve the pain and distress experienced
Having suffered from RLS on and off since childhood it now starts in the morning and continues all day until I can take Ropinirole at nighttime. It seems little research is being done what can we do to persuade some scientist somewhere to take this on and relieve the pain and distress experienced
Titbit
in
Restless Legs Syndrome
2 years ago
Parkinson
I now have Parkinson as well as restless legs ,am on Levodopa 100mg/5Omg at 11.OO am -3.00pm -7.OOpm -11.OOpm capsules only last 3-4 hours waken at 3.OOam in morning with restless legs on and off till getting up at 8.OOam for breakfast . Consultant phoning this week to see how I am getting on she will
I now have Parkinson as well as restless legs ,am on Levodopa 100mg/5Omg at 11.OO am -3.00pm -7.OOpm -11.OOpm capsules only last 3-4 hours waken at 3.OOam in morning with restless legs on and off till getting up at 8.OOam for breakfast . Consultant phoning this week to see how I am getting on she will
auldreekie18
in
Restless Legs Syndrome
2 years ago
experience with Buprenorphine
Greetings, I have been taking Buprenorphine for 5 weeks now and I am not exaggerating when I say it has changed my life. I have dealt with restless legs all my life. Everyone in my family had it, one of my brothers gave up on life because of it. I was taking Cabaser to treat it since about 2000.
Greetings, I have been taking Buprenorphine for 5 weeks now and I am not exaggerating when I say it has changed my life. I have dealt with restless legs all my life. Everyone in my family had it, one of my brothers gave up on life because of it. I was taking Cabaser to treat it since about 2000.
Nycsyd
in
Restless Legs Syndrome
2 years ago
New to ropinirole
My first time at a new neurologist. He started me on ropinirole 0.25mg 1/day at 7pm. I take 600mg gabapentin at 5pm and 9pm. He convinced me that I don't have CMT but have RLS. My feet are rather numb, and my ankles and shins hurt occasionally. I believe this is peripheral neuropathy, but he did not
My first time at a new neurologist. He started me on ropinirole 0.25mg 1/day at 7pm. I take 600mg gabapentin at 5pm and 9pm. He convinced me that I don't have CMT but have RLS. My feet are rather numb, and my ankles and shins hurt occasionally. I believe this is peripheral neuropathy, but he did not
fishinphil1946
in
Restless Legs Syndrome
2 years ago
Percocet during Pramipexole Withdrawal
On Percocet 10mg at night to deal with augmentation from Pramipexole while waiting to get in to see a neurologist. What dose seems to work for people? Does it make you tired if you take it during the day? I’m experiencing Withdrawal during day now too.
On Percocet 10mg at night to deal with augmentation from Pramipexole while waiting to get in to see a neurologist. What dose seems to work for people? Does it make you tired if you take it during the day? I’m experiencing Withdrawal during day now too.
kturenne
in
Restless Legs Syndrome
2 years ago
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