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Clonazepam
just been put on clonazepam 500mcg per day. this seems to help with RLS but does not keep me asleep all night I tried taking 2 tablets but side effects next day were terrible. i was prev on Zolpidem which were brilliant for sleep but not good for RLs so ended up on other medication for RLS. Still gtting
just been put on clonazepam 500mcg per day. this seems to help with RLS but does not keep me asleep all night I tried taking 2 tablets but side effects next day were terrible. i was prev on Zolpidem which were brilliant for sleep but not good for RLs so ended up on other medication for RLS. Still gtting
Mike-tyson
in
Restless Legs Syndrome
4 years ago
Any studies on longterm effects of live shingles vaccine and PMR
I was wondering if anyone knows of any studies that have been done about those of us that contracted PMR after taking the live shingles vaccine. I wonder if PMR will last as long in our system as the shingles vaccine antibodies are active in our system? The pharmacist says the antibodies last 5+years
I was wondering if anyone knows of any studies that have been done about those of us that contracted PMR after taking the live shingles vaccine. I wonder if PMR will last as long in our system as the shingles vaccine antibodies are active in our system? The pharmacist says the antibodies last 5+years
Linny3
in
PMRGCAuk
4 years ago
No sleep RLS
I'm going to sleep Dr. tomorrow, thank goodness. I am up all night no sleep, leg pain and itching. I have RLS and PLMD, Gabapenten does not work for me it makes me feel like I'm a zombie all day and ropinirole doesn't do anything anymore. I have taken some hydrcodonne, but it doesn't really work either
I'm going to sleep Dr. tomorrow, thank goodness. I am up all night no sleep, leg pain and itching. I have RLS and PLMD, Gabapenten does not work for me it makes me feel like I'm a zombie all day and ropinirole doesn't do anything anymore. I have taken some hydrcodonne, but it doesn't really work either
Seehowyour
in
Restless Legs Syndrome
4 years ago
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Opinions please on whether anyone would increase their Ropinirole dose?
Hello everyone, Can I ask what you would all do in my situation as I am in a real dilemma.? I had been taking Ropinirole for a number of years before it started not to work and I couldn’t tolerate the extra dose (became agitated and panicked) I was then prescribed Pramipexole which worked for quite a
Hello everyone, Can I ask what you would all do in my situation as I am in a real dilemma.? I had been taking Ropinirole for a number of years before it started not to work and I couldn’t tolerate the extra dose (became agitated and panicked) I was then prescribed Pramipexole which worked for quite a
21years
in
Restless Legs Syndrome
4 years ago
I'm having a restful time
I cant believe I've been rls free for the last maybe 7days.my husband says he notices that this does seem to happen like a cycle, I'm trying to sort out my diet ie. Gluten, alcohol, white bread etc. It's hard to do because I need to find alternatives but I'm gonna keep on with this trial, also I didnt
I cant believe I've been rls free for the last maybe 7days.my husband says he notices that this does seem to happen like a cycle, I'm trying to sort out my diet ie. Gluten, alcohol, white bread etc. It's hard to do because I need to find alternatives but I'm gonna keep on with this trial, also I didnt
Whymelord
in
Restless Legs Syndrome
4 years ago
Lyme Disease and hypothyroid?
Hello all As well as being hypothyroid I have sevear Chronic Fatigue. Just to cross things off the list I am working through all the possibilities that might be underpinning my CF. So I had a Lymes (elissa test) and the results state that I have been in contact with the Borrelia Burgdorferi bacterium
Hello all As well as being hypothyroid I have sevear Chronic Fatigue. Just to cross things off the list I am working through all the possibilities that might be underpinning my CF. So I had a Lymes (elissa test) and the results state that I have been in contact with the Borrelia Burgdorferi bacterium
smilingjane
in
Thyroid UK
4 years ago
UK RLS sufferers this is for you.
This week I received an Email from Professor David Nutt also from our Manerva ;] Buprenorphine in the form of TEMGESIC 200mcg is available from your GP also I suspect Norspan patches which is buprenorphine dosing starting at 5mg. Buprenorphine is a very superior drug it hangs onto very few receptors
This week I received an Email from Professor David Nutt also from our Manerva ;] Buprenorphine in the form of TEMGESIC 200mcg is available from your GP also I suspect Norspan patches which is buprenorphine dosing starting at 5mg. Buprenorphine is a very superior drug it hangs onto very few receptors
Shumbah
in
Restless Legs Syndrome
4 years ago
Shingles vaccine
Shingles vaccine. Hi am am ETJak2+, I am unable to have the live shingles vaccine with nhs, but I have read that there is an inert vaccine available. Has anyone had this on the nhs and if so how did you achieve it. Thank you in advance.
Shingles vaccine. Hi am am ETJak2+, I am unable to have the live shingles vaccine with nhs, but I have read that there is an inert vaccine available. Has anyone had this on the nhs and if so how did you achieve it. Thank you in advance.
Hydrox
in
MPN Voice
4 years ago
Has anyone augmented on Tramadol
I’ve read that augmentation on Tramadol is rare but I think I may be augmenting already. Did so on Recuip after about 8 months now after only 2 months same appears to be happening on Tramadol. I was so happy thinking I found something to help me. 50mg Tramadol and some THC Edibles and I was doing pretty
I’ve read that augmentation on Tramadol is rare but I think I may be augmenting already. Did so on Recuip after about 8 months now after only 2 months same appears to be happening on Tramadol. I was so happy thinking I found something to help me. 50mg Tramadol and some THC Edibles and I was doing pretty
mmb8083
in
Restless Legs Syndrome
4 years ago
Should I be taking this.
Hi everyone I’ve had loads of advice from this site and I’m still seeking it. I’ll give you a quick synopsis of what I’ve been going through and where I am now. I have had RLS what seems like forever. I took Ropinirole for 10 years, went through augmentation, developed a gambling problem and managed
Hi everyone I’ve had loads of advice from this site and I’m still seeking it. I’ll give you a quick synopsis of what I’ve been going through and where I am now. I have had RLS what seems like forever. I took Ropinirole for 10 years, went through augmentation, developed a gambling problem and managed
Scattypatty
in
Restless Legs Syndrome
4 years ago
Increase in steroids?
I have upped my steroids from 2 to 3 with Docs permission. Now I am thinking of taking a bit more ! My John is now terminal with metastasised lung cancer to the brain and now spine. He is in a hospice for pain relief but I think when that is sorted he will have to leave. I would like him to come home
I have upped my steroids from 2 to 3 with Docs permission. Now I am thinking of taking a bit more ! My John is now terminal with metastasised lung cancer to the brain and now spine. He is in a hospice for pain relief but I think when that is sorted he will have to leave. I would like him to come home
5lupins
in
PMRGCAuk
4 years ago
Bad nails
Does anyone have problems with their nails? The white part of the nails are getting bigger where the nail is not attached to my finger. The nails are also very thin and brittle so I can’t grow them long I just have to hide it with nail varnish as they look awful.
Does anyone have problems with their nails? The white part of the nails are getting bigger where the nail is not attached to my finger. The nails are also very thin and brittle so I can’t grow them long I just have to hide it with nail varnish as they look awful.
Jolevans
in
LUPUS UK
4 years ago
Update to current status
Hi everyone, Since joining this group I have learned a great deal about this debilitating condition that has been a part of my life for the best part of 20 years- thanks to all contributors. As an update, I thought I would share my current status. I was on 2mg’s ropinirole with very variable results
Hi everyone, Since joining this group I have learned a great deal about this debilitating condition that has been a part of my life for the best part of 20 years- thanks to all contributors. As an update, I thought I would share my current status. I was on 2mg’s ropinirole with very variable results
Earlyriser13
in
Restless Legs Syndrome
4 years ago
Viral meningitis last month
Last month, July 2020, I was diagnosed with viral meningitis after being misdiagnosed with covid (by two different md). So it went on for about 11 days before being diagnosed at the tail end of it. Now, a month later I am still having grogginess and eye spots, major fatigue. Several other lingering symptoms
Last month, July 2020, I was diagnosed with viral meningitis after being misdiagnosed with covid (by two different md). So it went on for about 11 days before being diagnosed at the tail end of it. Now, a month later I am still having grogginess and eye spots, major fatigue. Several other lingering symptoms
MrsMagu
in
Meningitis Now
4 years ago
14 week old with restless legs
Hi all. I'm hoping somebody might be able to help me on this. I have a 14 week old and for the past two months,she has been waking at around 4am and cycling her legs back and forth. It seems that she gets woke up,tries to go back to sleep and can't and the legs start cycling. She then gets more upset
Hi all. I'm hoping somebody might be able to help me on this. I have a 14 week old and for the past two months,she has been waking at around 4am and cycling her legs back and forth. It seems that she gets woke up,tries to go back to sleep and can't and the legs start cycling. She then gets more upset
giddyg2001
in
Restless Legs Syndrome
4 years ago
Buprenorphine.....I slept through the night.
Last night I commenced Buprenorphine 200 micrograms (As hydrochloride) In Western Australia it is sold under the label Temgesic Sublingual Tablets. It is a controlled Drug here in Western Australia so possession without Authority is illegal. My Doctor went through the appropriate channels to get
Last night I commenced Buprenorphine 200 micrograms (As hydrochloride) In Western Australia it is sold under the label Temgesic Sublingual Tablets. It is a controlled Drug here in Western Australia so possession without Authority is illegal. My Doctor went through the appropriate channels to get
Jules1953
in
Restless Legs Syndrome
4 years ago
RLS, tramadol and the opiate epidemic.
I wish we could start a movement promoting opiates for RLS. John Hopkins University states that "Dr. Willis (as in Willis-Ekbom diesease) in his description of this disease in 1685 also reported on the benefits of opiates for treating the symptoms. Thus for over 300 years opiates remained the only truly
I wish we could start a movement promoting opiates for RLS. John Hopkins University states that "Dr. Willis (as in Willis-Ekbom diesease) in his description of this disease in 1685 also reported on the benefits of opiates for treating the symptoms. Thus for over 300 years opiates remained the only truly
Stdorn
in
Restless Legs Syndrome
4 years ago
Epilepsy conditions
Morning, I am epileptic and I it all started when I was 17yrs old even my parents didn't know the cause of and I have done all the tests I have seen neurologists for 20yrs done EEG and the CT-scan and I'm told that all is normal they can't really pin point the cause of my condition, can anyone help
Morning, I am epileptic and I it all started when I was 17yrs old even my parents didn't know the cause of and I have done all the tests I have seen neurologists for 20yrs done EEG and the CT-scan and I'm told that all is normal they can't really pin point the cause of my condition, can anyone help
Titibabe
in
Epilepsy South Africa
4 years ago
Restless leg medication side effects
Had bad restless legs for few months now as have A/f so taking Amiodarone and Bisoprolol and 5mg Zoplicone to help me sleep. Have tried Ropinirole 0.25mg and Pramipexole 0.088mg and finally Gabapentin 100mg for my restless legs which all seem to work to a degree if helped by Restless leg calming cream
Had bad restless legs for few months now as have A/f so taking Amiodarone and Bisoprolol and 5mg Zoplicone to help me sleep. Have tried Ropinirole 0.25mg and Pramipexole 0.088mg and finally Gabapentin 100mg for my restless legs which all seem to work to a degree if helped by Restless leg calming cream
Mike-tyson
in
Restless Legs Syndrome
4 years ago
Nightwalkers Magazine from the RLS Foundation and opiates
There was a great article from the latest issue of Nightwalkers which is the quarterly journal from the Restless Legs Syndrome Foundation. They were describing some of the studies on opiates and RLS. There was lots of information on the ramifications of using opiates like oxycodone and methadone for
There was a great article from the latest issue of Nightwalkers which is the quarterly journal from the Restless Legs Syndrome Foundation. They were describing some of the studies on opiates and RLS. There was lots of information on the ramifications of using opiates like oxycodone and methadone for
Hidden
in
Restless Legs Syndrome
4 years ago
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