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I am - 54 year old post-menopausal woman who has have been suffering from RLS for approximately 18 months and it is becoming more severe. I weaned myself off of Lexapro, exercise daily, have almost eliminated caffeine and sugar, take magnesium and soak my feet in a magnesium salt bath at bedtime. Most
I am - 54 year old post-menopausal woman who has have been suffering from RLS for approximately 18 months and it is becoming more severe. I weaned myself off of Lexapro, exercise daily, have almost eliminated caffeine and sugar, take magnesium and soak my feet in a magnesium salt bath at bedtime. Most
Lluvinlife
in
Restless Legs Syndrome
11 months ago
2 year old Toddler with RLS
Hi there! Came here out of desperation. My soon to be 2 year old has had terrible sleep since day 1. He is extremely hyperactive, and would be up in the middle of the night for hours. We tried every natural syrup or solution recommended by doctors. Finally saw a neurologist and he suggested RLS. We are
Hi there! Came here out of desperation. My soon to be 2 year old has had terrible sleep since day 1. He is extremely hyperactive, and would be up in the middle of the night for hours. We tried every natural syrup or solution recommended by doctors. Finally saw a neurologist and he suggested RLS. We are
OrangeDino
in
Restless Legs Syndrome
1 year ago
Buprenorphine
see a neurologist Wednesday and I'm going to talk about this medication currently I'm on 150mg pregabalin and 30mg codeine phosphate at lunch time and 300mgs plus 2 x 30mgs of codeine phosphate at bed time if the neurologist agrees has any one got thoughts on dates I should be dropping etc
see a neurologist Wednesday and I'm going to talk about this medication currently I'm on 150mg pregabalin and 30mg codeine phosphate at lunch time and 300mgs plus 2 x 30mgs of codeine phosphate at bed time if the neurologist agrees has any one got thoughts on dates I should be dropping etc
nick-the-turk
in
Restless Legs Syndrome
11 months ago
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behcets, mouth ulcers and gum disease
has anyone here with behcets experienced poor oral health? i found it was never an issue for me until recently, i went to the dentist and she said that i had gingivitis. ive yet to go back as it was a bit traumatic, but has anyone had experience with "poor oral health" being linked to behcets i.e your
has anyone here with behcets experienced poor oral health? i found it was never an issue for me until recently, i went to the dentist and she said that i had gingivitis. ive yet to go back as it was a bit traumatic, but has anyone had experience with "poor oral health" being linked to behcets i.e your
jaquarius
in
Behçet's UK
1 year ago
Cognitive behavioural therapy
Hi, I've posted here before so just a quick update - RLS for 47 years, tried DAs, Gabapentin, Pregabalin and on Tramadol at the moment. I've been through augmentation. Tramadol is helping a bit but my sleep pattern is all over the place and I keep falling asleep in the afternoon. My daughter has had
Hi, I've posted here before so just a quick update - RLS for 47 years, tried DAs, Gabapentin, Pregabalin and on Tramadol at the moment. I've been through augmentation. Tramadol is helping a bit but my sleep pattern is all over the place and I keep falling asleep in the afternoon. My daughter has had
restlessinlondon
in
Restless Legs Syndrome
11 months ago
does an rls friendly diuretic exist?
I have bad swollen legs which my GP thinks is caused by excess fluid It probably comes from a combination of my RLS medicines ( Pregabalin 250 mg and 2mg Neupro patch) plus a recent knee replacement operation. To get rid of this excess fluid my GP upped my normal 50mg Spironolactone dose to 75 mg.
I have bad swollen legs which my GP thinks is caused by excess fluid It probably comes from a combination of my RLS medicines ( Pregabalin 250 mg and 2mg Neupro patch) plus a recent knee replacement operation. To get rid of this excess fluid my GP upped my normal 50mg Spironolactone dose to 75 mg.
thorp
in
Restless Legs Syndrome
11 months ago
Shingles
Hi all, My friend has Shingles. With PMR is it advisable to stay away until after breakout. Reading conflicting advice. Much appreciated yet again!! Thank you.
Hi all, My friend has Shingles. With PMR is it advisable to stay away until after breakout. Reading conflicting advice. Much appreciated yet again!! Thank you.
Fredddie
in
PMRGCAuk
1 year ago
More Methadone?
I have had RLS for decades with real relief pretty well only from the now - forbidden Pramipexole. I have been on Methadone 15 mg at bedtime for about 2 years now which has been pretty good, allowing me approximately 5 hours of sleep some nights. Recently it has worked less well. I’ve been up frequently
I have had RLS for decades with real relief pretty well only from the now - forbidden Pramipexole. I have been on Methadone 15 mg at bedtime for about 2 years now which has been pretty good, allowing me approximately 5 hours of sleep some nights. Recently it has worked less well. I’ve been up frequently
wairoa36
in
Restless Legs Syndrome
11 months ago
NEUROFEEDBACK DEVICE HELPS PTSD SUFFERERS REGAIN CONTROL OVER EMOTIONS
By learning how to get agitated avatars to sit down in a virtual office, people with PTSD can regain control over their emotions and lower biomarkers associated with the condition. June is Post-Traumatic Stress Disorder Awareness Month, a fitting time for the soft launch in the United States of
By learning how to get agitated avatars to sit down in a virtual office, people with PTSD can regain control over their emotions and lower biomarkers associated with the condition. June is Post-Traumatic Stress Disorder Awareness Month, a fitting time for the soft launch in the United States of
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
1 year ago
Advice required
I had I seizure in 2010 and my MRI was clear, and I’m pretty sure I didn’t have an EEG. I was put on Epilim chrono 1200 mg and have been seizure free since. I went privately so looks like they just signed me off and I never got any NHS follow ups. About a year ago I went back to my GP and asked due
I had I seizure in 2010 and my MRI was clear, and I’m pretty sure I didn’t have an EEG. I was put on Epilim chrono 1200 mg and have been seizure free since. I went privately so looks like they just signed me off and I never got any NHS follow ups. About a year ago I went back to my GP and asked due
Halloumilover
in
Epilepsy Action
1 year ago
How Long Does it Take to Regain a Full State of Consciousness After a Medically Induced Coma?
Hello, My dad (aged 64) was recently admitted to the ICU on June 3rd. When he first arrived at the ER after suffering aphasia and impaired memory, the doctors found a lesion on his temporal lobe. Shortly thereafter he suffered a grand mal seizure. After the seizure the doctors were having difficulty
Hello, My dad (aged 64) was recently admitted to the ICU on June 3rd. When he first arrived at the ER after suffering aphasia and impaired memory, the doctors found a lesion on his temporal lobe. Shortly thereafter he suffered a grand mal seizure. After the seizure the doctors were having difficulty
natalierosejerome
in
ICUsteps
1 year ago
Methadone withdrawal?
I am asking for a member on the fb page i am co-admin of. This lady is having a methadone drug holiday as instructed by her doctor. Her methadone isn’t working after being on it for several years. She is weaning off it but nothing she has tried to help with withdrawals is helping including medicinal
I am asking for a member on the fb page i am co-admin of. This lady is having a methadone drug holiday as instructed by her doctor. Her methadone isn’t working after being on it for several years. She is weaning off it but nothing she has tried to help with withdrawals is helping including medicinal
Hidden
in
Restless Legs Syndrome
1 year ago
Help with blood test interpretation for my daughter
Hello Everyone, I'm new here and asking for my 18 year old daughter. I've come over from the Thyroid UK forum at their suggestion. She's been quite unwell for about 3-4 years slowly getting worse. We've been stuck with unhelpful medics both private and NHS who have not got anywhere with her symptoms
Hello Everyone, I'm new here and asking for my 18 year old daughter. I've come over from the Thyroid UK forum at their suggestion. She's been quite unwell for about 3-4 years slowly getting worse. We've been stuck with unhelpful medics both private and NHS who have not got anywhere with her symptoms
Sneedle
in
Pernicious Anaemia Society
1 year ago
Viral Meningitis
Dear all,I am from Germany but I did not find any useful forums where I can read about similar syptoms and post meningitis peoblems! I had meningitis and was brought in hospital on 16.3 with a painful headache and fever.luckily the next day a doctor said he wants to do a „puncture“ to be sure it is not
Dear all,I am from Germany but I did not find any useful forums where I can read about similar syptoms and post meningitis peoblems! I had meningitis and was brought in hospital on 16.3 with a painful headache and fever.luckily the next day a doctor said he wants to do a „puncture“ to be sure it is not
Walkingintheforest
in
Meningitis Now
1 year ago
Coming off Pramipexole
I'm a 65 year old female in Norfolk in the UK, with hereditary RLS for which I was prescribed X1 every evening 0.088mg Pramipexole some 10 (possibly?) years ago. A year ago I had a single mastectomy, am on Anastrazole oestrogen suppressant hormone treatment and a Calcium/D3 supplement for that, along
I'm a 65 year old female in Norfolk in the UK, with hereditary RLS for which I was prescribed X1 every evening 0.088mg Pramipexole some 10 (possibly?) years ago. A year ago I had a single mastectomy, am on Anastrazole oestrogen suppressant hormone treatment and a Calcium/D3 supplement for that, along
GreyMaus
in
Restless Legs Syndrome
1 year ago
Dopamine Agonist withdrawal syndrome
On what would have been Robin Williams' 72nd birthday, a reminder of how dangerous dopamine agonists can be. If you mention DAWS to a UK doctor, they have no idea what we are talking about. They mistakenly say it only happens if the patient had Impulse Control Disorder. It can affect anyone taking these
On what would have been Robin Williams' 72nd birthday, a reminder of how dangerous dopamine agonists can be. If you mention DAWS to a UK doctor, they have no idea what we are talking about. They mistakenly say it only happens if the patient had Impulse Control Disorder. It can affect anyone taking these
Joolsg
in
Restless Legs Syndrome
1 year ago
RLS Ropinirole withrawl
My husband who is 79 yrs old is suffering from RLS and has all his life. The last 10 yrs have been almost unbearable. Ropinirole 8mg @ day is the only drug that gave him some relief but they have stopped making them and we have been weaning off of them for 2 mos now, are down to 2mg a day for 7 more
My husband who is 79 yrs old is suffering from RLS and has all his life. The last 10 yrs have been almost unbearable. Ropinirole 8mg @ day is the only drug that gave him some relief but they have stopped making them and we have been weaning off of them for 2 mos now, are down to 2mg a day for 7 more
Nahfranz
in
Restless Legs Syndrome
1 year ago
Tingling sensation in my fingers and hands. Is it caused by augmentation ?
Hello everyone my RLS is getting worse. I live in Mexico. I wanted everyone to know before I got started because there are certain drugs like buprenorphine I can’t get here. I’m finding that my arms and hands have this funny tingling in them when I go to bed. No jumping like my legs. It’s just a tingling
Hello everyone my RLS is getting worse. I live in Mexico. I wanted everyone to know before I got started because there are certain drugs like buprenorphine I can’t get here. I’m finding that my arms and hands have this funny tingling in them when I go to bed. No jumping like my legs. It’s just a tingling
Jrskyhook32
in
Restless Legs Syndrome
1 year ago
Tortuous
I'm now in my 4th week (feels like years!) of reducing Ropinirole and taking Pregabalin. GP prescribed 50mg which I quickly increased to 100 and I am now taking that with 0.5mg Ropinirole instead of 0.15mg. The moment I sit and 'settle' (no chance!)for the evening off go the legs. I'm already very low
I'm now in my 4th week (feels like years!) of reducing Ropinirole and taking Pregabalin. GP prescribed 50mg which I quickly increased to 100 and I am now taking that with 0.5mg Ropinirole instead of 0.15mg. The moment I sit and 'settle' (no chance!)for the evening off go the legs. I'm already very low
Firenze1
in
Restless Legs Syndrome
1 year ago
Advice on codeine v tramadol
I'm hoping for some advice because my doctor and the neurologists have been no help. For the past few years I have been taking 50mg tramadol, 300mg Gabapentin and 50mg sertraline. Prior to this I managed to wean off Pramipexole. I haven't increased the dosage of any of my current meds because I had hoped
I'm hoping for some advice because my doctor and the neurologists have been no help. For the past few years I have been taking 50mg tramadol, 300mg Gabapentin and 50mg sertraline. Prior to this I managed to wean off Pramipexole. I haven't increased the dosage of any of my current meds because I had hoped
Night_raven
in
Restless Legs Syndrome
1 year ago
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