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Neurology appointment- after ICU stay
okay long one I’m sorry. so I was recently in hospital for 2 weeks following an increase in tonic clonic seizures, as they were usually at night but suddenly started happening during the day time(My seizures only started in May last year for reference and in 27)The day I got admitted I’d fallen during
okay long one I’m sorry. so I was recently in hospital for 2 weeks following an increase in tonic clonic seizures, as they were usually at night but suddenly started happening during the day time(My seizures only started in May last year for reference and in 27)The day I got admitted I’d fallen during
Beyouandonlyyou
in
Epilepsy Action
1 year ago
Restless leg syndrome
Rls started when I was 7 months pregnant with my first child and has been rearing it’s head since 1973, 50 years. The past few months I have been taking 3gr of red vein kratom and it was helping. Lately it doesn’t seem to control it at bedtime. I spend a couple of hours exercising, stretching and
Rls started when I was 7 months pregnant with my first child and has been rearing it’s head since 1973, 50 years. The past few months I have been taking 3gr of red vein kratom and it was helping. Lately it doesn’t seem to control it at bedtime. I spend a couple of hours exercising, stretching and
Texas71
in
Restless Legs Syndrome
11 months ago
Clonazepam instead of Pregabalin?
I have just had a telephone appointment with a Neurologist which lasted all of 90 seconds, part of which he spent looking through my notes and came to the conclusion that I should try Clonazepam instead of Pregabalin for 6 months. He wasn't interested in listening to anything I had to say about iron
I have just had a telephone appointment with a Neurologist which lasted all of 90 seconds, part of which he spent looking through my notes and came to the conclusion that I should try Clonazepam instead of Pregabalin for 6 months. He wasn't interested in listening to anything I had to say about iron
oldfidgetlegs
in
Restless Legs Syndrome
11 months ago
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Restless Legs Syndrome
Is anyone else experiencing a shortage of Ropinirole for restless legs? Yet again my usual pharmacy has run out of this drug and it’s the only drug I’ve found so far, that works for me. I can’t work out if it’s my pharmacy not ordering in enough or whether the pharmaceutical company isn’t manufacturing
Is anyone else experiencing a shortage of Ropinirole for restless legs? Yet again my usual pharmacy has run out of this drug and it’s the only drug I’ve found so far, that works for me. I can’t work out if it’s my pharmacy not ordering in enough or whether the pharmaceutical company isn’t manufacturing
Titbit
in
Restless Legs Syndrome
11 months ago
Trouble transitioning to Gabapentin
Due to augmentation, I switched from Ropinirole to Gabapentin about 6 weeks ago. I did it in about a month (a bit too quick, I realize now, and suffered because of it), so I've been off Ropinirole for over two weeks. Unfortunately, Gabapentin has yet to do anything for me. I'm up to 900 miligrams a day
Due to augmentation, I switched from Ropinirole to Gabapentin about 6 weeks ago. I did it in about a month (a bit too quick, I realize now, and suffered because of it), so I've been off Ropinirole for over two weeks. Unfortunately, Gabapentin has yet to do anything for me. I'm up to 900 miligrams a day
Scottmiles
in
Restless Legs Syndrome
11 months ago
Update on my wife
Hello everyone, my wife (Jackie) was diagnosed with MSA after an initial diagnosis of PSP on 29th Jan 2023. Now the Neurologist is trying to say her condition is Perplexed and that Wilsons disease is a possibility. She's been to have her eyes tested at Vision Express and after a thorough (90mins) examination
Hello everyone, my wife (Jackie) was diagnosed with MSA after an initial diagnosis of PSP on 29th Jan 2023. Now the Neurologist is trying to say her condition is Perplexed and that Wilsons disease is a possibility. She's been to have her eyes tested at Vision Express and after a thorough (90mins) examination
Derek1uk
in
Multiple System Atrophy Trust
1 year ago
insomnia in middle of night
my husband is weaning down. His ropinirole from eight mg. He is currently on 6 1/2 mg and just has a slight amount of RLS coming through mostly around 10 o’clock at night. The worst part is he wakes up at 3 o’clock in the morning and cannot get back to sleep, he does not have a RLS at that time just
my husband is weaning down. His ropinirole from eight mg. He is currently on 6 1/2 mg and just has a slight amount of RLS coming through mostly around 10 o’clock at night. The worst part is he wakes up at 3 o’clock in the morning and cannot get back to sleep, he does not have a RLS at that time just
Sandalsforever
in
Restless Legs Syndrome
11 months ago
3 years later
I know it's 3 years later but I wanted to write this in case someone needed to see. This thread helped me so much when my dad was in the ICU on a ventilator. When they took my dad off of sedation he didn't wake up right away. He is a peritoneal dialysis patient and drugs leave his system much slower.
I know it's 3 years later but I wanted to write this in case someone needed to see. This thread helped me so much when my dad was in the ICU on a ventilator. When they took my dad off of sedation he didn't wake up right away. He is a peritoneal dialysis patient and drugs leave his system much slower.
Sandwichesandchips
in
ICUsteps
1 year ago
RLS and Parkinsons
A relative has Parkinsons disease. She has had some treatment that has improved her condition in the very short term, she is just two weeks since the treatment. She has been on pramipexole for a long time. Some of the parkinsons symptoms have significantly decreased but she still has RLS all
A relative has Parkinsons disease. She has had some treatment that has improved her condition in the very short term, she is just two weeks since the treatment. She has been on pramipexole for a long time. Some of the parkinsons symptoms have significantly decreased but she still has RLS all
Graham3196
in
Restless Legs Syndrome
1 year ago
Severe RLS for 40 years
I am a 75 year old woman who has experienced RLS since the late 1970's. I have been prescribed Requip until it didnt work, Pramipexole (Mirapex) up to 4 mg daily and worked great until augmentation. Since then I have been on Klonopin, Pregablin (Lyrica) Carbidopa/Levidopa, medicinal Marijuana vape pen
I am a 75 year old woman who has experienced RLS since the late 1970's. I have been prescribed Requip until it didnt work, Pramipexole (Mirapex) up to 4 mg daily and worked great until augmentation. Since then I have been on Klonopin, Pregablin (Lyrica) Carbidopa/Levidopa, medicinal Marijuana vape pen
Happygrandmother
in
Restless Legs Syndrome
1 year ago
severe restless legs. Awake most of the night.
Been recently diagnosed with severe restless legs ,Been awake most of the night in pain and having spasms, painkillers have helped, but not enough and probably /hopefully temporary. Anybody else had this problem or any advice when I speak to a doctor?
Been recently diagnosed with severe restless legs ,Been awake most of the night in pain and having spasms, painkillers have helped, but not enough and probably /hopefully temporary. Anybody else had this problem or any advice when I speak to a doctor?
carol31271
in
Ataxia UK
1 year ago
Sore, dry mouth
Hi, I have Fibromyalgia and ME/CFS and I suffer terribly with sore mouth, tongue and also dry mouth and throat. I’ve just been putting up with it for ages but it seems to be more constant now. I also have no idea what toothpaste or toothbrush to use as they keep making my sores worse. If anyone has
Hi, I have Fibromyalgia and ME/CFS and I suffer terribly with sore mouth, tongue and also dry mouth and throat. I’ve just been putting up with it for ages but it seems to be more constant now. I also have no idea what toothpaste or toothbrush to use as they keep making my sores worse. If anyone has
Keswick73
in
Fibromyalgia Action UK
1 year ago
RLS nightmare
I have had Rls for about 10 years now and am currently on Ropinirole 4mg. Nights are ok but it’s the daytime attacks that are becoming a nightmare now. I just did a 4 hour flight to Europe and despite being early morning, within half an hour my legs were going ballistic. I spent the next 3 1/2 hours
I have had Rls for about 10 years now and am currently on Ropinirole 4mg. Nights are ok but it’s the daytime attacks that are becoming a nightmare now. I just did a 4 hour flight to Europe and despite being early morning, within half an hour my legs were going ballistic. I spent the next 3 1/2 hours
Jimbartlett
in
Restless Legs Syndrome
1 year ago
Homeopathic treatment
I've lived with ataxia for around ten years and its grown progressively worse. Contemporary straightforward here's your prescription' medicine seems to have no place in its treatment. What about homeopathic medicine? Has anyone out there found a homeopathic treatment which has any effect on this debilitating
I've lived with ataxia for around ten years and its grown progressively worse. Contemporary straightforward here's your prescription' medicine seems to have no place in its treatment. What about homeopathic medicine? Has anyone out there found a homeopathic treatment which has any effect on this debilitating
Piero
in
Ataxia UK
1 year ago
buprenorphine patch - any advice?
Hello, my GP has agreed to prescribe me the buprenorphine patch 5mg starting from Monday. He will not prescribe tablets at this point - he feels the patch will give me better coverage for both the pain in my joints and also my chronic restless legs and will counter the continual withdrawal type issues
Hello, my GP has agreed to prescribe me the buprenorphine patch 5mg starting from Monday. He will not prescribe tablets at this point - he feels the patch will give me better coverage for both the pain in my joints and also my chronic restless legs and will counter the continual withdrawal type issues
Drls
in
Restless Legs Syndrome
1 year ago
Oxycodone, Pramipexole and Codeine.
I am now on oxycodone 20mg tablets, 20mg morning and 20mg at night. I was on 8 Codeine phosphate 30mg tablets a day and one Pramipexole 0.52mg modified release tablets at night. Now I am on the oxycodone I do not take the codeine phosphate tab or the Pramipexole tablet. I cannot take the pramipexol
I am now on oxycodone 20mg tablets, 20mg morning and 20mg at night. I was on 8 Codeine phosphate 30mg tablets a day and one Pramipexole 0.52mg modified release tablets at night. Now I am on the oxycodone I do not take the codeine phosphate tab or the Pramipexole tablet. I cannot take the pramipexol
JoeR
in
Restless Legs Syndrome
1 year ago
shingles
been to Aand E I’ve now got shingles in my hair and face 😱think someone dosent like me🥲
been to Aand E I’ve now got shingles in my hair and face 😱think someone dosent like me🥲
Shaza123
in
PMRGCAuk
1 year ago
Knee surgery
Hey guys! I am facing total knee replacement surgery (robotics) next month. I will be in the hospital overnight one night. I remember seeing a list in this forum of things to remember to look out for; i.e., nausea medicine the anesthesiologist might use, what I need to tell the doctor or nurses at
Hey guys! I am facing total knee replacement surgery (robotics) next month. I will be in the hospital overnight one night. I remember seeing a list in this forum of things to remember to look out for; i.e., nausea medicine the anesthesiologist might use, what I need to tell the doctor or nurses at
LanaCSR
in
Restless Legs Syndrome
1 year ago
RLS/BUPRENORPHINE/ BREATHING
I’m curious if anyone else has had sleep/breathing issues with buprenorphine. I use a sleep tracker and it started alerting me to a very serious sleep apnea problem which I have never had prior to buprenorphine. I have struggled with bup anyway. It helps the RLS for sure and it is the only thing that
I’m curious if anyone else has had sleep/breathing issues with buprenorphine. I use a sleep tracker and it started alerting me to a very serious sleep apnea problem which I have never had prior to buprenorphine. I have struggled with bup anyway. It helps the RLS for sure and it is the only thing that
erinjee
in
Restless Legs Syndrome
1 year ago
Lactulose
I have suffered badly with constipation due to taking codeine for my rls I have taking both for over a year however shying we to buy a new bottle at a chemist the pharmacist told me I shouldn’t take Lactulose for more than a week! Trying to contact my gp is out of the question I also take 250 mg pregabalin
I have suffered badly with constipation due to taking codeine for my rls I have taking both for over a year however shying we to buy a new bottle at a chemist the pharmacist told me I shouldn’t take Lactulose for more than a week! Trying to contact my gp is out of the question I also take 250 mg pregabalin
Hoochybaby
in
Restless Legs Syndrome
1 year ago
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