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Giant axonal neuropathy
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One last Attack at this
Plan of attack Just ordered Hemorrhoids Suppository Stool Softener Coconut Oil (gonna start cooking with this) 2l Water jug Got confirmation I'm back to work in 3 weeks so going to give this one last attack haven't tried stool softener before but anything I've read it should be like toothpaste consistency
Plan of attack Just ordered Hemorrhoids Suppository Stool Softener Coconut Oil (gonna start cooking with this) 2l Water jug Got confirmation I'm back to work in 3 weeks so going to give this one last attack haven't tried stool softener before but anything I've read it should be like toothpaste consistency
Hidden
in
IBS Network
4 years ago
Excited.....even tho I know it's a while off because of Coronavirus.
I came home to a letter today as they have reviewed my cycle that failed. My 1st cycle I used Buserelin and Gonal-F for stimulation. My AMH was 15.0pmol/L, 13 eggs were collected, 9 fertilised. A good quality embryo (48b) was transferred but unfortunately got a negative result. I had none suitable for
I came home to a letter today as they have reviewed my cycle that failed. My 1st cycle I used Buserelin and Gonal-F for stimulation. My AMH was 15.0pmol/L, 13 eggs were collected, 9 fertilised. A good quality embryo (48b) was transferred but unfortunately got a negative result. I had none suitable for
Cheeky_84
in
Fertility Network UK
4 years ago
Prudandal nerve pain
Hi all! I’ve suffered with prudandal nerve pain for over 2 years now. I’m on gabapentin codeine paracetamol and duloxetine Yet I am still having lots of problems. I’m 28 I feel I have no quality of life. Can anyone recommend anything at all?
Hi all! I’ve suffered with prudandal nerve pain for over 2 years now. I’m on gabapentin codeine paracetamol and duloxetine Yet I am still having lots of problems. I’m 28 I feel I have no quality of life. Can anyone recommend anything at all?
Scfx
in
Pelvic Pain Support Network
4 years ago
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Weird white feet feet! (Sorry about the picture)
Hi guys! Hope everyone is well during this time. I just wondered if anyone knew anything about what’s going on here? I know obviously what it looks like; but don’t want to jump to conclusions as I know no one that has similar symptoms so cannot ask them. Alongside the colour, I get to tingling and
Hi guys! Hope everyone is well during this time. I just wondered if anyone knew anything about what’s going on here? I know obviously what it looks like; but don’t want to jump to conclusions as I know no one that has similar symptoms so cannot ask them. Alongside the colour, I get to tingling and
kateclowe
in
LUPUS UK
5 years ago
Neuropathy- consider acupuncture
I had pretty significant neuropathy in my feet after Taxotere. Nothing was really working, tried some supplements that one PA recommended to no avail. I finally tried acupuncture on a recommendation- it took about 4 or 5 visits, but it started getting better. Pretty much gone now. It could of been a
I had pretty significant neuropathy in my feet after Taxotere. Nothing was really working, tried some supplements that one PA recommended to no avail. I finally tried acupuncture on a recommendation- it took about 4 or 5 visits, but it started getting better. Pretty much gone now. It could of been a
Chugach
in
Advanced Prostate Cancer
5 years ago
Anal Fissure the cause?
26 Year Old otherwise healthy Currently being treated for a skin fungal infection around groin /bum area. Thankfully starting to settle and going away. Though this has exposed a cut that is vertical in nature running north of my anus and continues up a few cm up. Sometimes a sharp feeling when passing
26 Year Old otherwise healthy Currently being treated for a skin fungal infection around groin /bum area. Thankfully starting to settle and going away. Though this has exposed a cut that is vertical in nature running north of my anus and continues up a few cm up. Sometimes a sharp feeling when passing
Hidden
in
IBS Network
4 years ago
Hi all, I hope you're managing to keep yourself safe and well during these worrying times. Bits of my face keep going numb.
Bits of my face keep going numb randomly and I get an electric shock feeling in my top lip, I've watched it go to and fro in the mirror. It's all remarkably annoying frankly. I have fibromyalgia and neuropathy in my hands. Recently my left shoulder has been really painful and causing my left arm and
Bits of my face keep going numb randomly and I get an electric shock feeling in my top lip, I've watched it go to and fro in the mirror. It's all remarkably annoying frankly. I have fibromyalgia and neuropathy in my hands. Recently my left shoulder has been really painful and causing my left arm and
Sazzer01
in
Pain Concern
5 years ago
Low FODMAP and Food combining may help IBS
I have never been properly tested for IBS but a nurse at my GP surgery said she thought I had IBS and advised me to go on a low FODMAP diet. She also prescribed Mebeverine, to be taken 20 minutes before each meal. I followed her advice for 3 months but still suffered quite bad belly aches sometimes -
I have never been properly tested for IBS but a nurse at my GP surgery said she thought I had IBS and advised me to go on a low FODMAP diet. She also prescribed Mebeverine, to be taken 20 minutes before each meal. I followed her advice for 3 months but still suffered quite bad belly aches sometimes -
oldfog
in
IBS Network
4 years ago
PA and palms of hands
This is probably going to be one of the stranger questions asked on this forum, however, seeing as I've read on this site about sensations and symptoms I didn't even know to attribute to PA, I thought I'd reach out to the group to see if anyone else experiences this. I was diagnosed a couple months
This is probably going to be one of the stranger questions asked on this forum, however, seeing as I've read on this site about sensations and symptoms I didn't even know to attribute to PA, I thought I'd reach out to the group to see if anyone else experiences this. I was diagnosed a couple months
RLG99
in
Pernicious Anaemia Society
5 years ago
Pacemaker battery change due now
Hi all. Hope you are well and not stir crazy. I have sick sinus syndrome tachy/brady variety. 20 years. 3 ablations. Last one partially effective. Prof Schilling reluctant to do more. Anyway I am on the list at Barts for an update as my current (2nd) pacemaker has a few months battery left. Had
Hi all. Hope you are well and not stir crazy. I have sick sinus syndrome tachy/brady variety. 20 years. 3 ablations. Last one partially effective. Prof Schilling reluctant to do more. Anyway I am on the list at Barts for an update as my current (2nd) pacemaker has a few months battery left. Had
Icenae
in
Atrial Fibrillation Support
5 years ago
First time order for B12
Hi, After a nerve conduction study last week (following a clear MRI) the doctor said my neuro symptoms couldn't be B12 related as I don't have any nerve damage. Considering I've had the symptoms (continuously) for only a year, I know it can take a long time for any damage to occur. This is just one
Hi, After a nerve conduction study last week (following a clear MRI) the doctor said my neuro symptoms couldn't be B12 related as I don't have any nerve damage. Considering I've had the symptoms (continuously) for only a year, I know it can take a long time for any damage to occur. This is just one
Hidden
in
Pernicious Anaemia Society
5 years ago
STILL NEED HELP
I'm wondering if I have DAWS( dopamine agonist withdrawal syndrome ) I started my tapering from requip the first of Feb. and finished the end of the month. Now I find I'm having terrifying dreams. heavy sweating. roaring in my head, lots more physical discomforts . Has anyone experienced this and if
I'm wondering if I have DAWS( dopamine agonist withdrawal syndrome ) I started my tapering from requip the first of Feb. and finished the end of the month. Now I find I'm having terrifying dreams. heavy sweating. roaring in my head, lots more physical discomforts . Has anyone experienced this and if
sweetiepye
in
Restless Legs Syndrome
5 years ago
Hi, has anyone had a rectovaginal fistula? If so how was it diagnosed and treated?
Pretty sure I have a a fistula and worried about what comes next. I have an appt next month with the consultant
Pretty sure I have a a fistula and worried about what comes next. I have an appt next month with the consultant
Winnie78
in
IBS Network
4 years ago
Blurred vision - alternatives to Tocilizumab
One of our PMRGCAuk members has sent the following question: "My mother has GCA which unfortunately resulted in 50% sight loss across both eyes. She has been on Tocilizumab for about 8 months now, and her steroids have been gradually reduced to now nil. Initially, she was happy to be off the steroids
One of our PMRGCAuk members has sent the following question: "My mother has GCA which unfortunately resulted in 50% sight loss across both eyes. She has been on Tocilizumab for about 8 months now, and her steroids have been gradually reduced to now nil. Initially, she was happy to be off the steroids
Skinnyjonny
in
PMRGCAuk
5 years ago
Cll UK conflicting advice
Ok as I understand it the UK government has asked us with cll on chemo or inhibitors or stem cell ,BMT to self isolate for 12:weeks and have seen this as advice given in bloodwise . But thought I would phone my own hospital James Paget and my consultant secretary to see what there advice is and they
Ok as I understand it the UK government has asked us with cll on chemo or inhibitors or stem cell ,BMT to self isolate for 12:weeks and have seen this as advice given in bloodwise . But thought I would phone my own hospital James Paget and my consultant secretary to see what there advice is and they
cartwheels
in
CLL Support
5 years ago
Preservatives and other ingredients in injections
Hi! I'm wondering if anyone has opinions about or has researched preferable preservatives/ingredients in injections. In the US, benzyl alcohol seems to be the primary preservative in my cyano injections (other ingredients NaCl, hydrochloric acid, sodium hydroxide, "no more than 625 mcg aluminum"). The
Hi! I'm wondering if anyone has opinions about or has researched preferable preservatives/ingredients in injections. In the US, benzyl alcohol seems to be the primary preservative in my cyano injections (other ingredients NaCl, hydrochloric acid, sodium hydroxide, "no more than 625 mcg aluminum"). The
lynxis
in
Pernicious Anaemia Society
5 years ago
Phase 2 Trial - Exenatide Treatment in Parkinson's Disease
The aim of this trial is to investigate the effect of Exenatide, 2 mg, subcutaneous injection, once weekly on disease progression represented by the change in longitudinal Positron emission tomography with 2-deoxy-2-[fluorine-18]fluoro- D-glucose (FDG-PET) in individual PD subjects, and to identify an
The aim of this trial is to investigate the effect of Exenatide, 2 mg, subcutaneous injection, once weekly on disease progression represented by the change in longitudinal Positron emission tomography with 2-deoxy-2-[fluorine-18]fluoro- D-glucose (FDG-PET) in individual PD subjects, and to identify an
Farooqji
in
Cure Parkinson's
5 years ago
Quercetin & pca & coronavirus
I have been taking quercetin /bromelian 500/250, twice per day. There is strong evidence that this natural supplement will fight prostate cancer cells and also increase your immunity to the Coronavirus. A canadian research institution and two renowned Drs. have been invited to start clinical trials
I have been taking quercetin /bromelian 500/250, twice per day. There is strong evidence that this natural supplement will fight prostate cancer cells and also increase your immunity to the Coronavirus. A canadian research institution and two renowned Drs. have been invited to start clinical trials
Drphil1938
in
Advanced Prostate Cancer
5 years ago
Follow up on Coconut oil- MCT?
Hi fwes- I was reading some old posts on coconut oil and you were very positive about it- are you still taking it? How are you doing in general? Can anyone else comment as I am starting to take the oil... I was recently diagnosed with Parkinson's I'm 53... thanks
Hi fwes- I was reading some old posts on coconut oil and you were very positive about it- are you still taking it? How are you doing in general? Can anyone else comment as I am starting to take the oil... I was recently diagnosed with Parkinson's I'm 53... thanks
gginto
in
Cure Parkinson's
5 years ago
Numbness
Recently been diagnosed having knee numbness and lower back pain is this a symptom or something else???
Recently been diagnosed having knee numbness and lower back pain is this a symptom or something else???
Texasanne
in
Fibromyalgia Action UK
5 years ago
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