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Giant axonal neuropathy
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Help with diagnosis please.
I'm guessing fibromyalgia is going to be my company for the coming years unfortunately but is for thr doctors to decide that of course. How yours was diagnosed? Was your GP helpful? Did they send you for what tests? Did they make a referral to a rheumatologist? Any advice is more than welcome. I've
I'm guessing fibromyalgia is going to be my company for the coming years unfortunately but is for thr doctors to decide that of course. How yours was diagnosed? Was your GP helpful? Did they send you for what tests? Did they make a referral to a rheumatologist? Any advice is more than welcome. I've
ANMRED
in
Fibromyalgia Action UK
2 years ago
Calquence and mouth issues?
I’m wondering if anyone taking Calquence has experienced white patches in their mouth? My dentist noticed I have one on my tongue side of gums. It doesn’t hurt and can’t be scraped off (fits the description of leukoplakia when I Google). My dentist thought it looked like trauma and said to call if it
I’m wondering if anyone taking Calquence has experienced white patches in their mouth? My dentist noticed I have one on my tongue side of gums. It doesn’t hurt and can’t be scraped off (fits the description of leukoplakia when I Google). My dentist thought it looked like trauma and said to call if it
CoCoLuna11
in
CLL Support
2 years ago
Appointment to try again at 8:30
So I'm siting here thinking if I want to do this for another round then take a break the gonal f and trigger and timed intercourse if I do would it be rude to ask my nurse for progesterone? My body feels like it's getting out under pressure with TTC wish it could be easier:/ xxxxxx
So I'm siting here thinking if I want to do this for another round then take a break the gonal f and trigger and timed intercourse if I do would it be rude to ask my nurse for progesterone? My body feels like it's getting out under pressure with TTC wish it could be easier:/ xxxxxx
Dashound1
in
Fertility Network UK
2 years ago
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Hello everyone, not sure if this helps... I went through genetic testing and they found my KMT2B gene activated. This is odd due to my age and how aggresive it is. My Dr has never seen this happen before. In actuality, there is nothing in written human history (as far as I know) that shows late stage
Hello everyone, not sure if this helps... I went through genetic testing and they found my KMT2B gene activated. This is odd due to my age and how aggresive it is. My Dr has never seen this happen before. In actuality, there is nothing in written human history (as far as I know) that shows late stage
Hidden
in
Functional Neurological Disorder - FND Hope
2 years ago
Big, big trouble Houston
I’m 60 now but a guy so I’m still prone to daft things like buying Microsoft Flight Simulator. I flew a 747 the other day and blimey did it let me know when I tried a questionable manoeuvre. Red lights, Commercial Airliner Crash Warning sirens etc. Well it’s sort of a metaphor for me currently. Some
I’m 60 now but a guy so I’m still prone to daft things like buying Microsoft Flight Simulator. I flew a 747 the other day and blimey did it let me know when I tried a questionable manoeuvre. Red lights, Commercial Airliner Crash Warning sirens etc. Well it’s sort of a metaphor for me currently. Some
jeeves19
in
Cure Parkinson's
2 years ago
raynauds pain 🥶
Hi all , This condition is slowly making everyday life quite difficult 😞 I have tried all the handwarmers in the world and some medication and nifedipine- but can’t cope with the side effects . As soon as I get a little cold my hands ‘go’ and the only thing that helps is running under the warm
Hi all , This condition is slowly making everyday life quite difficult 😞 I have tried all the handwarmers in the world and some medication and nifedipine- but can’t cope with the side effects . As soon as I get a little cold my hands ‘go’ and the only thing that helps is running under the warm
PBMB
in
Scleroderma & Raynaud's UK (SRUK)
2 years ago
NAD injections? What if anything can this so for PA?
Someone sent me info on NAD injections and how it can restore nerves and brain fog and all sorts of symptoms we experience with b12d, but doesn't claim to help PA or b12d. Does anyone know more about this? Online info is confusing too me. We make NAD. But it declines as we age. So injecting it is supposed
Someone sent me info on NAD injections and how it can restore nerves and brain fog and all sorts of symptoms we experience with b12d, but doesn't claim to help PA or b12d. Does anyone know more about this? Online info is confusing too me. We make NAD. But it declines as we age. So injecting it is supposed
EllaNore
in
Pernicious Anaemia Society
2 years ago
Why we add an AART drug to ADT?
In response to a post asking if adding enzalutamide to ADT is beneficial: Xtandi would increase T levels if not simultaneously using an LHRH ADT. It blocks AR in hypothalamus leading to perception of deficit and increased LH and testicular testosterone. So enzalutamide or apalutamide used without ADT
In response to a post asking if adding enzalutamide to ADT is beneficial: Xtandi would increase T levels if not simultaneously using an LHRH ADT. It blocks AR in hypothalamus leading to perception of deficit and increased LH and testicular testosterone. So enzalutamide or apalutamide used without ADT
MateoBeach
in
Fight Prostate Cancer
2 years ago
Have you found a way to cure/improve your peripheral neuropathy?
Hello ladies, I previously posted a message asking about foot massagers or foot spas - best ones to use? I see that some people have also mentioned that acupuncture helped to relieve the pain and others have said that acupuncture did not work for them. Others have said Vitamin B/B12. I do use cream
Hello ladies, I previously posted a message asking about foot massagers or foot spas - best ones to use? I see that some people have also mentioned that acupuncture helped to relieve the pain and others have said that acupuncture did not work for them. Others have said Vitamin B/B12. I do use cream
Meridian14
in
My Ovacome
2 years ago
Here we go again!
GCA/PMR for over 5 years. Pred down to 6mg . Been taken off Tocilizumab but can’t tolerate other steroid sparers. Had appointment with Rheumie and blood test. CRP high so PET scan arranged. She has put me back up to 40mg as inflammation showing in all usual places. It feels like back to square 1. Has
GCA/PMR for over 5 years. Pred down to 6mg . Been taken off Tocilizumab but can’t tolerate other steroid sparers. Had appointment with Rheumie and blood test. CRP high so PET scan arranged. She has put me back up to 40mg as inflammation showing in all usual places. It feels like back to square 1. Has
broomfield28
in
PMRGCAuk
2 years ago
Helpful ways to relieve peripheral neuropathy. Ideas welcome please.
Hello lovely ladies, For the past 6 weeks I have been having terrible neuropathy in my feet and hands. I have been prescribed Pregabalin and i'm having to build up my tolerance of it so currently only on 150mg per day. It looks like the neuropathy is going to be with me for a while before I can get
Hello lovely ladies, For the past 6 weeks I have been having terrible neuropathy in my feet and hands. I have been prescribed Pregabalin and i'm having to build up my tolerance of it so currently only on 150mg per day. It looks like the neuropathy is going to be with me for a while before I can get
Meridian14
in
My Ovacome
2 years ago
Is Xtandi necessary or even helping me?
This may be a stupid question but it's been on my mind for a while. I started on Prostap (Lupron) last July and my testosterone dropped to less than 1.0 by October while on just that. My PSA was also below 1.0 by then. My MO started me on Xtandi towards the end of October and my T and PSA appear to
This may be a stupid question but it's been on my mind for a while. I started on Prostap (Lupron) last July and my testosterone dropped to less than 1.0 by October while on just that. My PSA was also below 1.0 by then. My MO started me on Xtandi towards the end of October and my T and PSA appear to
Benkaymel
in
Fight Prostate Cancer
2 years ago
How do they manage Peripheral neuropathy induced by docetaxel?
Peripheral neuropathy treatment in docetaxel for Ca prostate
Peripheral neuropathy treatment in docetaxel for Ca prostate
Igra
in
Advanced Prostate Cancer
2 years ago
Squalene Monooxygenase
New Australian study below [1]. When tumors outgrow their blood supply, they experience hypoxia (insufficient oxygen). The normal defence for any cell is the generation of hypoxia-inducible factors [HIFs]. HIFs have cell survival functions. In PCa, HIF-1alpha is the most studied. It triggers the
New Australian study below [1]. When tumors outgrow their blood supply, they experience hypoxia (insufficient oxygen). The normal defence for any cell is the generation of hypoxia-inducible factors [HIFs]. HIFs have cell survival functions. In PCa, HIF-1alpha is the most studied. It triggers the
pjoshea13
in
Fight Prostate Cancer
2 years ago
HCQ, Eye problem and eosinophillia
hello I have been diagnosed with lupus since 2004. Currently, i am using HCQ aand ahve been prescribed low dose steroids and blood thinners. I am facing few pbs. And am unable to comprehend either it is presntation of symptom or side effect of drugs. I face head aches, eye pbs., which are disabling
hello I have been diagnosed with lupus since 2004. Currently, i am using HCQ aand ahve been prescribed low dose steroids and blood thinners. I am facing few pbs. And am unable to comprehend either it is presntation of symptom or side effect of drugs. I face head aches, eye pbs., which are disabling
happine
in
LUPUS UK
2 years ago
Night Pain , Left -Flank
Hello All ,I have been on Eligard , Zytiga , pred since Feb. 2022 . I have this pain on left flank about 8 o'clock right below the rib cage for about 8 months . The pain is at night but hardly during the day .I had a CT scan , x-ray , MRi , and nothing shows . I e-mailed my MO at V.A. yesterday and she
Hello All ,I have been on Eligard , Zytiga , pred since Feb. 2022 . I have this pain on left flank about 8 o'clock right below the rib cage for about 8 months . The pain is at night but hardly during the day .I had a CT scan , x-ray , MRi , and nothing shows . I e-mailed my MO at V.A. yesterday and she
reconjj
in
Fight Prostate Cancer
2 years ago
Sedation--pregabalin to gabapentin
I switched from 150 mg. pregabalin to 900 mg. gabapentin about three weeks ago because I was hoping that maybe I wouldn't have the same daytime sedation side effect. At the very first I didn't but now in the last 10 days it has set in and feels very similar to what I experienced on pregabalin. Two
I switched from 150 mg. pregabalin to 900 mg. gabapentin about three weeks ago because I was hoping that maybe I wouldn't have the same daytime sedation side effect. At the very first I didn't but now in the last 10 days it has set in and feels very similar to what I experienced on pregabalin. Two
wantokporo
in
Restless Legs Syndrome
2 years ago
Kwells / Hyoscine Hydrobromide contraindication
Does anyone happen to know why those with thyroid problems or heart conditions and those over 60, (I have all three) should speak to their doctor before taking these for motion sickness. A pharmacist who was aware of my medical conditions suggested Kwells for me. Only just read the pil in full. I haven
Does anyone happen to know why those with thyroid problems or heart conditions and those over 60, (I have all three) should speak to their doctor before taking these for motion sickness. A pharmacist who was aware of my medical conditions suggested Kwells for me. Only just read the pil in full. I haven
Aurealis
in
Thyroid UK
2 years ago
Anal fissure
I was diagnosed with Hypothyroidism several years ago. I also suffer from a painful anal fissure. I see from my research that the 2 maybe connected. Can anyone shed any light on this? Much appreciated…,
I was diagnosed with Hypothyroidism several years ago. I also suffer from a painful anal fissure. I see from my research that the 2 maybe connected. Can anyone shed any light on this? Much appreciated…,
Whizzer2
in
Thyroid UK
2 years ago
eXroid treatment for Piles
For those who suffer in silence, are petrified of surgery or other invasive treatments for piles and are fed up with the horrible pain (like me) - look at eXroid treatment. The website is exroid.com
For those who suffer in silence, are petrified of surgery or other invasive treatments for piles and are fed up with the horrible pain (like me) - look at eXroid treatment. The website is exroid.com
Crazymouse
in
IBS Network
2 years ago
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