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Giant axonal neuropathy
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Right side of body tingling?
Hi all, I wondered if I could ask advice. I’ve been having three monthly injections for 9 years. Usually if I’m a couple days out my hands and feet start to tingle. I have been so busy lately, and somehow realised my injection was three weeks overdue!!! I had it on Wednesday, but I don’t feel any better
Hi all, I wondered if I could ask advice. I’ve been having three monthly injections for 9 years. Usually if I’m a couple days out my hands and feet start to tingle. I have been so busy lately, and somehow realised my injection was three weeks overdue!!! I had it on Wednesday, but I don’t feel any better
katied2490
in
Pernicious Anaemia Society
5 years ago
First round fun
Hi all I have been coming on this site for a long time reading all your posts and scouting for information! Now after a long old NHS wait we are 26 days into Synarel sniffing and 5days in to 375iu Gonal F injections. I’ve had lots of headaches, mood swings and hot flushes throughout but... oh my!
Hi all I have been coming on this site for a long time reading all your posts and scouting for information! Now after a long old NHS wait we are 26 days into Synarel sniffing and 5days in to 375iu Gonal F injections. I’ve had lots of headaches, mood swings and hot flushes throughout but... oh my!
margaret89
in
Fertility Network UK
5 years ago
First Monitoring Scan - Great results 👌🏻
Over the moon to find out today,right ovary showing 6 measurable follicles and left ovary showing 1 measurable. I have been anxious all week as my last cycle only had 2 measurable follicles using Menopur. This time with Gonal F stimming only 6 days and 3 days buserelin - well to get these results
Over the moon to find out today,right ovary showing 6 measurable follicles and left ovary showing 1 measurable. I have been anxious all week as my last cycle only had 2 measurable follicles using Menopur. This time with Gonal F stimming only 6 days and 3 days buserelin - well to get these results
Hope76
in
Fertility Network UK
5 years ago
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Pins & needles in my skull,
Dear All, Wondering if anyone else has experienced waking up with pins and needles in your skull it’s the same feeling when you have pins and needles in your hands & legs. However I went to my doctors yesterday and explained it is happening very frequently & it goes after a good few minutes but it’
Dear All, Wondering if anyone else has experienced waking up with pins and needles in your skull it’s the same feeling when you have pins and needles in your hands & legs. However I went to my doctors yesterday and explained it is happening very frequently & it goes after a good few minutes but it’
Nannyfibro
in
Fibromyalgia Action UK
5 years ago
Neuropathy from high para p[roteins
Does anyone have neuropathy from high para proteins due go B Cell cancer? I am having more tests done to determine if this is my problem. It's just awful.
Does anyone have neuropathy from high para proteins due go B Cell cancer? I am having more tests done to determine if this is my problem. It's just awful.
SusanJM
in
CLL Support
5 years ago
Feeling disheartened
Went for first baseline scan yesterday and my womb lining is too thick. Was supposed to start gonal f today but instead I'm too continue on burserelin and have another scan on 26th. Feeling worried because hospital said if lining does not thin out we will have to abandon cycle and start again. But I
Went for first baseline scan yesterday and my womb lining is too thick. Was supposed to start gonal f today but instead I'm too continue on burserelin and have another scan on 26th. Feeling worried because hospital said if lining does not thin out we will have to abandon cycle and start again. But I
Sambab
in
Fertility Network UK
5 years ago
Burning hot hands and feet,ike got water filling them... 2/3 times a day?
I am having lots episode's of my hands and feet, often more the right, feel hot and like filling up with water... My hands feel tight.. Can't see anything, but wi der what it is.. Also get Terri le pins and needles ery easily, even holding a phone.!
I am having lots episode's of my hands and feet, often more the right, feel hot and like filling up with water... My hands feel tight.. Can't see anything, but wi der what it is.. Also get Terri le pins and needles ery easily, even holding a phone.!
Luppykate
in
LUPUS UK
5 years ago
Lyrica update
Maybe some folks will find this helpful. After stopping mirapexin due to augmentation (again) and going through hell, I started lyrica, which did nothing for 3 weeks and I was up to 300mgs. Thanks to great advice from you guys I decided to reduce it, so I reintroduced mirapexin at 0.45mgs + 150mgs lyrica
Maybe some folks will find this helpful. After stopping mirapexin due to augmentation (again) and going through hell, I started lyrica, which did nothing for 3 weeks and I was up to 300mgs. Thanks to great advice from you guys I decided to reduce it, so I reintroduced mirapexin at 0.45mgs + 150mgs lyrica
Memmy
in
Restless Legs Syndrome
5 years ago
help has anyone found a particular medication that helped relieve nerve pain besides pregabalin and amitriptyline
nerve pain
nerve pain
stenosis49
in
Pain Concern
5 years ago
Devastated IVF cycle cancelled 😢
Didn’t think this bit of the journey would be this hard, I prepared myself more that the egg collection / seeing how many / fertilizing and transfer back would be the challenging bits. No one really prepared me that after 14 days of stims 6 scans my cycle is cancelled due to poor reaction from stims.
Didn’t think this bit of the journey would be this hard, I prepared myself more that the egg collection / seeing how many / fertilizing and transfer back would be the challenging bits. No one really prepared me that after 14 days of stims 6 scans my cycle is cancelled due to poor reaction from stims.
amandac84
in
Fertility Network UK
5 years ago
Acupuncture for Hypo
Can anyone advise if they have used acupuncture therapy in place of meds for their hypo diagnosis? Have symptoms subsided?
Can anyone advise if they have used acupuncture therapy in place of meds for their hypo diagnosis? Have symptoms subsided?
HashiDaz
in
Thyroid UK
5 years ago
First Round of IVF
I’m day 7 of my first round of IVF. I went for an ultrasound today and had 4 follicles, all on the left. I had a cyst removed from the right ovary just over a year ago and have had 6 unsuccessful IUIs since then. I think I was expecting more than 4 follicles and felt quite down afterwards. Hubby keeps
I’m day 7 of my first round of IVF. I went for an ultrasound today and had 4 follicles, all on the left. I had a cyst removed from the right ovary just over a year ago and have had 6 unsuccessful IUIs since then. I think I was expecting more than 4 follicles and felt quite down afterwards. Hubby keeps
Crafti
in
Fertility Network UK
5 years ago
Neuritis
I have been diagnosed with neuropathy both motor and peripheral there is constant pain to all areas of my body. Can anyone offer any advice on pain relief please. Thank you
I have been diagnosed with neuropathy both motor and peripheral there is constant pain to all areas of my body. Can anyone offer any advice on pain relief please. Thank you
ceedy
in
Fibromyalgia Action UK
5 years ago
social anxiety /phobia
I am five years on c/l I wonder what's causing social phobia to get worse as time passes on c/l or pd any suggestions any natural remedies ? thanks
I am five years on c/l I wonder what's causing social phobia to get worse as time passes on c/l or pd any suggestions any natural remedies ? thanks
Yhae
in
Cure Parkinson's
5 years ago
Pregabalin
Well its 4.39 in the morning and Ive decided that lyrica is not working for me. Its just over 3 weeks and it still doesnt work. Im exhausted. Hardly any sleep. My question is , Is horizant the same.as lyrica. Has anyone had good results with it.
Well its 4.39 in the morning and Ive decided that lyrica is not working for me. Its just over 3 weeks and it still doesnt work. Im exhausted. Hardly any sleep. My question is , Is horizant the same.as lyrica. Has anyone had good results with it.
Memmy
in
Restless Legs Syndrome
5 years ago
Could my pain be attributed to Fybromyalgia?
Hello. I'm Philip For many years, I have suffered with diabetic peripheral neuropathy. Lately it has spread throughout my limbs from originally feet to lower limbs and now as far as my hips. I was diagnosed with sciatica, then trochanteric pain syndrome. I have never had faith in these diagnosis and
Hello. I'm Philip For many years, I have suffered with diabetic peripheral neuropathy. Lately it has spread throughout my limbs from originally feet to lower limbs and now as far as my hips. I was diagnosed with sciatica, then trochanteric pain syndrome. I have never had faith in these diagnosis and
Touchthewild
in
Fibromyalgia Action UK
5 years ago
New Hope For Darvon / Co-proxamol Prescribing
Manufacture and sale of Dextropropoxyphene based products. (Darvon / Co-proxamol) was banned in India during 2013 by the Drugs Technical Advisory Board (DTAB). The UK 'Named Patient' facility relied on imports from India from 2008. In order for the 'Named Patient' scheme to continue the NHS had to
Manufacture and sale of Dextropropoxyphene based products. (Darvon / Co-proxamol) was banned in India during 2013 by the Drugs Technical Advisory Board (DTAB). The UK 'Named Patient' facility relied on imports from India from 2008. In order for the 'Named Patient' scheme to continue the NHS had to
Whowillgiveastuff
in
Pain Concern
5 years ago
Relief finally?
Hi everyone I am fairly new to the group, and this is my first post. I am 60 and have suffered with this insidious , cruel, merciless disease ever since I can remember. However the past year or so it has become so bad that it is affecting every aspect of my life. Morning, afternoon, night it doesn’t
Hi everyone I am fairly new to the group, and this is my first post. I am 60 and have suffered with this insidious , cruel, merciless disease ever since I can remember. However the past year or so it has become so bad that it is affecting every aspect of my life. Morning, afternoon, night it doesn’t
Restlesssufferer
in
Restless Legs Syndrome
5 years ago
MGUS and thyroid
Has anyone e been diagnosed with MGUS . I had raised m protein 20 years ago which went down. Now it is raised again. I wonder if any relation to under active thyroid Thanks Johan
Has anyone e been diagnosed with MGUS . I had raised m protein 20 years ago which went down. Now it is raised again. I wonder if any relation to under active thyroid Thanks Johan
jojomac23
in
Thyroid UK
5 years ago
Neurotransmitter changes in rat brain regions following glyphosate exposure.
Glyphosate is the "active" ingredient in Roundup. It is toxic to neurotransmitters. This includes dopamine. [i]The present findings indicate that glyphosate significantly altered central nervous system (CNS) monoaminergic neurotransmitters in a brain regional- and dose-related manner, effects that
Glyphosate is the "active" ingredient in Roundup. It is toxic to neurotransmitters. This includes dopamine. [i]The present findings indicate that glyphosate significantly altered central nervous system (CNS) monoaminergic neurotransmitters in a brain regional- and dose-related manner, effects that
SilentEchoes
in
Cure Parkinson's
5 years ago
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