Search
Search
About
Log in
Join
Experiences with
Giant axonal neuropathy
Posts
Communities
9 public communities
Neuropathy Support
1,658 members
We are a peer support community for people living with neuropathy. Here we share our experiences, ask questions and support each other!
PMRGCAuk
20,341 members
Polymyalgia Rheumatica and Giant Cell Arteritis UK (PMRGCAuk) is a UK-wide charity set up to provide information and support, raise awareness, and foster research into PMR and GCA. On this forum you can share your own experiences of dealing with these little-known and frightening conditions with others who know what you are talking about; and also gain ideas about ways to take care of yourself and help yourself on the road to recovery. Do discuss ideas you find on the forum with your doctor, especially if you are considering changing your level of medication Our website is http://www.pmrgca.org.uk.
Foggy's "Invisible Illness" Support
5,538 members
With charitable donations, we are able to provide 2 Hydrotherapy sessions per week, for our paid members. We are dedicated to providing support, raising awareness and promoting positivity, for invisible conditions primarily for: Arthritic Condition's Chronic Fatigue Syndrome Chronic Widespread Pain Fibromyalgia Giant Cell Arteritis Long Covid M. E. Myalgic Encephalopathy Myofascial Pain Polymyalgia Rheumatic Condition's
Neuro Support
1,948 members
Welcome to the Neuro Support Community. This community exists to improve the quality of life of people affected by any neurological condition, including: ALS, Alzheimer’s disease, Back pain, Bell's palsy, birth defects of the brain and spinal cord, brain aneurysm, brain injury, brain tumors, cerebral palsy, chronic fatigue syndrome, concussion, dementia, disk disease of neck and lower back, epilepsy, Guillain-Barré syndrome, migraine, multiple sclerosis, muscular dystrophy, neuralgia, neuropathy, neuromuscular and related diseases, Parkinson's disease, scoliosis, seizures, spinal cord injury, spinal deformity, spinal disorder, spine tumors and stroke. Whether you're affected directly, caring for someone or know someone affected, everyone is welcome. Join today to share your experiences, receive support and exchange advise in a community of people who truly understand. Introduce yourself today: https://healthunlocked.com/neuro-support/write
Charcot-Marie-Tooth UK
1,679 members
CMTUK provides support for people with Charcot-Marie-Tooth disease(CMT) and Hereditary Neuropathy with Pressure Palsy (HNPP). Our helpline is manned by experienced staff who can help with providing information and leaflets covering many subjects i.e. Claiming benefits, Anaesthetics. Orthotics, DVT, Exercise, updates on research and more. We have active Facebook groups, Regional support groups via Zoom and meetings in person and a comprehensive website providing information, awareness and CMTKIDS page. Events. CMTUK hold a regular Conference, Health and Wellness days, and more - giving you the tools to manage your CMT. CMTKIDS & Teens have chance to attend a long weekend with lots of activities and days out. Membership. Our Membership is £2.50 per month and this will give you access to concessions on the conference, health and wellbeing days, occasional free day out. The all important Alert card to keep with at all times and access to our ComMent magazine and news letter.
Fertility Network UK
52,775 members
Fertility Network UK is a registered charity supporting anyone who is affected by fertility problems. Whether you are just starting to have concerns about your fertility or are already having fertility treatment such as IUI, IVF, ICSI or donor treatment, we are here to support you. We aim to raise understanding of infertility, to improve fertility education and to push for fair provision of fertility treatment throughout the UK. We also work with employers to better support those with fertility problems in the workplace. Our HealthUnlocked community is a place for anyone trying to conceive (TTC) to find peer support and understanding.
Vasculitis UK
7,782 members
Vasculitis UK is the UK's number one Vasculitis charity, run by people with Vasculitis for people with Vasculitis. We promote a national network of support groups, have a website, social media resources and a near 24 hour helpline that all help the trust to achieve its aims; offering support to sufferers, their families and friends both at home and abroad by providing information, advice and the means to contact each other. We work with other organisations and medical professionals to improve the recognition, diagnosis and treatment of Vasculitis. We raise awareness of Vasculitis among medical professions and the general population. We encourage and support the formation and development of local independant Vasculitis support groups. We raise funds in order to support research into the causes and effects of vasculitis, into improvements in the diagnosis of vasculitis and into the treatment of people suffering from all the different types of vasculitis.
Pelvic Pain Support Network
19,423 members
This community is run by the Pelvic Pain Support Network, a registered charity. The community forum exists to support those who wish to share and learn from others who have abdominal and/or pelvic pain and to provide peer support in managing the pain. It is moderated by trustees and members of the charity who are volunteers with personal experience of pelvic pain. Pelvic pain can be caused by many conditions affecting the pelvis such as adenomyosis, adhesions, endometriosis, painful periods, bladder pain, pelvic nerve damage, pudendal neuralgia, irritable bowel syndrome. One or more of these may be present or the person may not have a diagnosis. Pain that exists for 6 months or more, either intermittently or constant, is a condition in its own right. This community forum exists to support those who have had pain in the abdomen/pelvis for 6 months or longer with or without a diagnosis.
IBS Network
47,600 members
The IBS Network is the national charity that helps people with Irritable Bowel Syndrome (IBS) and has provided support to those with the condition and to healthcare professionals for over 25 years. Funding for the charity is received from a number of sources, including: annual memberships, an online shop for purchasing the ‘Can’t Wait’ card, Radar keys and other useful aids, in addition to income from legacies.