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Giant axonal neuropathy
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Leeches
Leeches - Has anyone had any experience with Parkinson's? Here a naturopath describes the therapy: About leeches The healing powers of leeches were already known and used in ancient times. Famous doctors such as Galen and Avicenna, later Hufeland, Morawitz, Bottenberg and many others used the
Leeches - Has anyone had any experience with Parkinson's? Here a naturopath describes the therapy: About leeches The healing powers of leeches were already known and used in ancient times. Famous doctors such as Galen and Avicenna, later Hufeland, Morawitz, Bottenberg and many others used the
PDTom
in
Cure Parkinson's
1 month ago
self inject query
Am ordering needles/ syringes from medisave. How do I know which are compatible with each other? looking at; Medisave 2ml unification reduced dead space syringe 30g 1/2 ‘’ (13mm) needle yellow uni sharp BD micro lance 3 needle green 21g x 1.5’’ thanks for your insight all. X
Am ordering needles/ syringes from medisave. How do I know which are compatible with each other? looking at; Medisave 2ml unification reduced dead space syringe 30g 1/2 ‘’ (13mm) needle yellow uni sharp BD micro lance 3 needle green 21g x 1.5’’ thanks for your insight all. X
Bacca
in
Pernicious Anaemia Society
1 day ago
Fibromyalgia, Long Covid and hypnotherapy
I have been attending long covid course and some links provided by visiting GP was to this Dr. Howard Schubinerwebsite who said after reading his own book many people recovered if it’s all in our head but if real pain and it’s just a case of us learning to deal and cope with it can hypnotherapy help
I have been attending long covid course and some links provided by visiting GP was to this Dr. Howard Schubinerwebsite who said after reading his own book many people recovered if it’s all in our head but if real pain and it’s just a case of us learning to deal and cope with it can hypnotherapy help
Geeforce99
in
Fibromyalgia Action UK
3 days ago
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Sotalol
Has anyone changed their dose instructions ? I was originally prescribed Sotalol 40mg in morning and 40mg in evening. It's making me feel like a tired, worn out old zombie from the land of the living dead, on the other hand BP and HR are brilliant. Am planning to speak to my Surgery Pharmacist about
Has anyone changed their dose instructions ? I was originally prescribed Sotalol 40mg in morning and 40mg in evening. It's making me feel like a tired, worn out old zombie from the land of the living dead, on the other hand BP and HR are brilliant. Am planning to speak to my Surgery Pharmacist about
BenHall1
in
Atrial Fibrillation Support
4 days ago
Lyrica (pregabalin).RLS
Il started to take Lyrica. The objective it to stop to take Neupro because I have skin Allergy. With Lyrica, I'm Little depressive and increase m'y appetive. Should continue to take Lyrica?
Il started to take Lyrica. The objective it to stop to take Neupro because I have skin Allergy. With Lyrica, I'm Little depressive and increase m'y appetive. Should continue to take Lyrica?
MARISEGATIEN
in
Restless Legs Syndrome
6 days ago
self inject journey
Hi all So have ordered B12 from Versandepo.de. (I think - bad brain fog at mo) I need to order needles etc from medisave, as recommended on here, any one advise list of what to order, going to do subcut as not good with needles….🤢 (horrible childhood exp). IM Injection at Gp Monday but not going to
Hi all So have ordered B12 from Versandepo.de. (I think - bad brain fog at mo) I need to order needles etc from medisave, as recommended on here, any one advise list of what to order, going to do subcut as not good with needles….🤢 (horrible childhood exp). IM Injection at Gp Monday but not going to
Bacca
in
Pernicious Anaemia Society
7 days ago
Chemotherapy Induced Peripheral Neuropathy
If you develop CIPN during chemotherapy, and it becomes permanent, can you subsequently find it has progressed to another site some years after the original diagnosis? I finished 6 cycles of Docetaxel in October 2019. Once the stabbing pains and feeling of being electrocuted had worn off, I was left
If you develop CIPN during chemotherapy, and it becomes permanent, can you subsequently find it has progressed to another site some years after the original diagnosis? I finished 6 cycles of Docetaxel in October 2019. Once the stabbing pains and feeling of being electrocuted had worn off, I was left
Dastardly
in
Advanced Prostate Cancer
12 days ago
Tryptophan vs L-tryptophan, which is best?
I have long had a sneaky suspicion that serotonin is more important for me than dopamine. So now I am moving my focus to boosting those levels. I am completely confused about the difference between straight tryptophan, and the "L" kind. Anyone able to enlighten me?
I have long had a sneaky suspicion that serotonin is more important for me than dopamine. So now I am moving my focus to boosting those levels. I am completely confused about the difference between straight tryptophan, and the "L" kind. Anyone able to enlighten me?
gomelgo
in
Cure Parkinson's
20 days ago
Appointment with Robin Fackrell
I have an appointment with Dr Robin Fackrell at the beginning of October. I am hoping that he will be able to assist with my restless legs, and with the peripheral neuropathy too. I am having problems with needing more ropinirol to keep the restlessness at a bay. I have had no success with Gabapentin
I have an appointment with Dr Robin Fackrell at the beginning of October. I am hoping that he will be able to assist with my restless legs, and with the peripheral neuropathy too. I am having problems with needing more ropinirol to keep the restlessness at a bay. I have had no success with Gabapentin
Faith_Hope_1
in
Restless Legs Syndrome
21 days ago
Ringing in Ear
Hi, I read this forum every day, and always have a takeaway from it about something I didn't know, so I'm hoping the group can help me with this new, delightful (ha!) ringing in my left ear that started about six weeks ago. I saw an ENT on Tuesday, and was diagnosed with Tinnitus. I had an audiogram
Hi, I read this forum every day, and always have a takeaway from it about something I didn't know, so I'm hoping the group can help me with this new, delightful (ha!) ringing in my left ear that started about six weeks ago. I saw an ENT on Tuesday, and was diagnosed with Tinnitus. I had an audiogram
Dottie44
in
Thyroid UK
22 days ago
side effects of Sotalol
I had cardiac ablation for AFib and was put on Sotalol to help keep my heart in normal sinus rhythm. I have had unpleasant side effects, one of which was numbness in my feet, legs and tingling in my fingers. I also have nausea almost all the time. I told by the medical community that numbness isn’
I had cardiac ablation for AFib and was put on Sotalol to help keep my heart in normal sinus rhythm. I have had unpleasant side effects, one of which was numbness in my feet, legs and tingling in my fingers. I also have nausea almost all the time. I told by the medical community that numbness isn’
Elvislover1935
in
Atrial Fibrillation Support
25 days ago
neuropathy source
hi all, Does anyone else on here have Sjögren’s as well as PA? I am experiencing constant tingling and occasional burning/numbness in my fingers and toes. (specific fingers and toes, not all)….It got worse when I did a reloading series of dosages of B12. I’m curious - does neuropathy usually flow from
hi all, Does anyone else on here have Sjögren’s as well as PA? I am experiencing constant tingling and occasional burning/numbness in my fingers and toes. (specific fingers and toes, not all)….It got worse when I did a reloading series of dosages of B12. I’m curious - does neuropathy usually flow from
Lhood08
in
Pernicious Anaemia Society
25 days ago
For a Strong Body, You Need Strong Feet
https://www.nytimes.com/2024/07/18/well/move/foot-strength-toes-fitness.html “These three simple tests could save you a lot of pain in the long run. …….Building long-term strength means training all parts of your body: your legs, your arms and your core. But what about your feet? Your feet are
https://www.nytimes.com/2024/07/18/well/move/foot-strength-toes-fitness.html “These three simple tests could save you a lot of pain in the long run. …….Building long-term strength means training all parts of your body: your legs, your arms and your core. But what about your feet? Your feet are
LAJ12345
in
Cure Parkinson's
27 days ago
Parathesia
Hi everyone, could the vitamin B6 in a Vitamin B complex tablet (Thorne Basic B Complex to be specific) cause parathesia symptoms and are there any vitamin B complex tablets which do not contain B6? Thanks in advance
Hi everyone, could the vitamin B6 in a Vitamin B complex tablet (Thorne Basic B Complex to be specific) cause parathesia symptoms and are there any vitamin B complex tablets which do not contain B6? Thanks in advance
Pinkisland
in
Pernicious Anaemia Society
1 month ago
What you can do.
HI 1 make a tool box to hold your information. Buy a big book called Fibromyalgia & Chronic Myofascial Pain Syndrome a survival manual Devin Starlanyl M.D. Mary Ellen Copeland, M. S.,M.A This book will help you. Oh by the way the tool box you make is in the mind. I live in the US the last
HI 1 make a tool box to hold your information. Buy a big book called Fibromyalgia & Chronic Myofascial Pain Syndrome a survival manual Devin Starlanyl M.D. Mary Ellen Copeland, M. S.,M.A This book will help you. Oh by the way the tool box you make is in the mind. I live in the US the last
dellydog
in
Fibromyalgia Action UK
1 month ago
Am I wrong?,
My doctor is trying to make out I'm crazy. Please can people clarify if my understanding is correct or am I completely wrong?So August 2023 I pay for an active b12 test, cones back borderline low at 48. I supplemented with sublingual cyanocobalamin for 4 months. Then waited 3 months before having another
My doctor is trying to make out I'm crazy. Please can people clarify if my understanding is correct or am I completely wrong?So August 2023 I pay for an active b12 test, cones back borderline low at 48. I supplemented with sublingual cyanocobalamin for 4 months. Then waited 3 months before having another
Popcorn12345
in
Pernicious Anaemia Society
1 month ago
Nifedipine - how do YOU take it?
Hi! The rheumatologist I last saw has sent a vague instruction to my GP recommending that I take nifedipine “in the winter months”, but not specifying strength, frequency etc. This is to combat what I think is worsening Raynaud’s in my hands - permanently wrinkled fingertips as if I’ve just come out
Hi! The rheumatologist I last saw has sent a vague instruction to my GP recommending that I take nifedipine “in the winter months”, but not specifying strength, frequency etc. This is to combat what I think is worsening Raynaud’s in my hands - permanently wrinkled fingertips as if I’ve just come out
Purple_Badgers
in
Scleroderma & Raynaud's UK (SRUK)
1 month ago
Is neuropathy related to Thyroid? If so, what tests do I get?
I have periperal neuropathy primarily in my feet/shins. Is neuropathy related to thyroid issues? If so, is there anyrhing else to test except for a standard thyroid panel? I do currently take B12 injections every 4 days so I have that cause covered which has helped but wondering if something else is
I have periperal neuropathy primarily in my feet/shins. Is neuropathy related to thyroid issues? If so, is there anyrhing else to test except for a standard thyroid panel? I do currently take B12 injections every 4 days so I have that cause covered which has helped but wondering if something else is
SueK2
in
Thyroid UK
2 months ago
crazy or not?
I am in chronic pain in spine painkillers not helping. What I need help with is the way it all makes me feel I have no ffamily or friends . Isolated. I get panicky when pain is out of control, I feel freaked out and alone and am devoid of positive feelings everything everyday feels bleak no respite
I am in chronic pain in spine painkillers not helping. What I need help with is the way it all makes me feel I have no ffamily or friends . Isolated. I get panicky when pain is out of control, I feel freaked out and alone and am devoid of positive feelings everything everyday feels bleak no respite
faith12
in
Pain Concern
2 months ago
RLS or PN does it matter?
Is the treatment for peripheral neuropathy and painful restless legs syndrome the same? I don’t know which I have but if treatment is the same then I guess it doesn’t matter?
Is the treatment for peripheral neuropathy and painful restless legs syndrome the same? I don’t know which I have but if treatment is the same then I guess it doesn’t matter?
Highshot
in
Neuropathy Support
2 months ago
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