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Experiences with
Giant axonal neuropathy
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Surgery and anesthesia with FND?
Have any of you undergone surgery with FND? I need to have a hysterectomy that would put me under for at least two hours and I’m scared how my brain is gonna react. Will I wake up worse? Please share your experiences with your types of surgery and anesthesia used and how it affected your FND symptoms
Have any of you undergone surgery with FND? I need to have a hysterectomy that would put me under for at least two hours and I’m scared how my brain is gonna react. Will I wake up worse? Please share your experiences with your types of surgery and anesthesia used and how it affected your FND symptoms
AjaStar
in
Functional Neurological Disorder - FND Hope
5 years ago
T4 conversion problem
A specialist has recommended to take the following to try to help with conversion after blood tests showed as deficiency in magnesium and selenium. i) Women’s multi essentials multivitamin – take one daily ii) T-convert, take 2 capsules daily iii) 25-Vitamin D3, 5000 units once daily iv) Magnesium
A specialist has recommended to take the following to try to help with conversion after blood tests showed as deficiency in magnesium and selenium. i) Women’s multi essentials multivitamin – take one daily ii) T-convert, take 2 capsules daily iii) 25-Vitamin D3, 5000 units once daily iv) Magnesium
Lynny66
in
Thyroid UK
5 years ago
Suffering in inspiration
I’ve been struggling for the last several weeks like many of you on here and your strength and your support really makes a difference in my life as I hope my strength and my support makes a difference in your lives. My blood sugar‘s are 6.9 to rap salute Lee normal it took me about six months because
I’ve been struggling for the last several weeks like many of you on here and your strength and your support really makes a difference in my life as I hope my strength and my support makes a difference in your lives. My blood sugar‘s are 6.9 to rap salute Lee normal it took me about six months because
franklin1970
in
Neuropathy Support
5 years ago
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The power of visualization
Fascinating study - this is just an excerpt, but here is the link to full article: https://saveourbones.com/how-to-harness-the-power-of-your-brain-to-improve-your-health/?ck_subscriber_id=154798765 "A study published in the Journal of Neurophysiology tested the impact of visualization on muscle strength
Fascinating study - this is just an excerpt, but here is the link to full article: https://saveourbones.com/how-to-harness-the-power-of-your-brain-to-improve-your-health/?ck_subscriber_id=154798765 "A study published in the Journal of Neurophysiology tested the impact of visualization on muscle strength
faridaro
in
Cure Parkinson's
5 years ago
Epsom Salts?
Hello - I was wondering if you could help me! I suffer from IBS C (constipation). To cut a long story short, 4yrs ago I went to my GP as my constipation had gotten worse. He basically told me about this FODMAP diet, gave me some leaflets and some sites to look at. Initially he said follow it for 3months
Hello - I was wondering if you could help me! I suffer from IBS C (constipation). To cut a long story short, 4yrs ago I went to my GP as my constipation had gotten worse. He basically told me about this FODMAP diet, gave me some leaflets and some sites to look at. Initially he said follow it for 3months
Ms1991
in
IBS Network
5 years ago
Peripheral neuropathy in legs
Want to hear from people with bad peripheral neuropathy in legs from this. How bad is your neuropathy? How long did you have it before you got treatment? Did the treatment help with the pain? Do you have trouble walking?
Want to hear from people with bad peripheral neuropathy in legs from this. How bad is your neuropathy? How long did you have it before you got treatment? Did the treatment help with the pain? Do you have trouble walking?
Meblue
in
Pernicious Anaemia Society
5 years ago
Pregabalin
Recently started taking Pregabalin for Peripheral Neuropathy pain and at first I didn't notice any concerning side effects but, over the past few days, I've been experiencing stomach discomfort, I have suffered with IBS but had it under control. It seems to be returning and I 'm unsure if Pregabalin
Recently started taking Pregabalin for Peripheral Neuropathy pain and at first I didn't notice any concerning side effects but, over the past few days, I've been experiencing stomach discomfort, I have suffered with IBS but had it under control. It seems to be returning and I 'm unsure if Pregabalin
K2box
in
Pain Concern
5 years ago
Pregabalin
Recently started taking Pregabalin for Peripheral Neuropathy pain and at first I didn't notice any concerning side effects but, over the past few days, I've been experiencing stomach discomfort, I have suffered with IBS but had it under control. It seems to be returning and I 'm unsure if Pregabalin
Recently started taking Pregabalin for Peripheral Neuropathy pain and at first I didn't notice any concerning side effects but, over the past few days, I've been experiencing stomach discomfort, I have suffered with IBS but had it under control. It seems to be returning and I 'm unsure if Pregabalin
K2box
in
Pain Concern
5 years ago
Has anyone done docetaxel with ADT as a first line treatment?
My husband was diagnosed in the last month and has only has a Firmagon shot and ~10 days of Casodex. We know he has a high volume of mets. Curious if anyone else has gone right to chemo instead of Zytiga/Xtandi or used it in conjunction as a first-line treatment? Also, are there any trials or studies
My husband was diagnosed in the last month and has only has a Firmagon shot and ~10 days of Casodex. We know he has a high volume of mets. Curious if anyone else has gone right to chemo instead of Zytiga/Xtandi or used it in conjunction as a first-line treatment? Also, are there any trials or studies
CantChoose
in
Advanced Prostate Cancer
5 years ago
Venetoclax and Swelling
I was on Venetoclax for 12 days late in March. My legs and feet began to swell and my oncologist took me off the medication on April 1. The edema has continued to this day. My cardiologist put me on 80 mg of Lasik twice a day and 25 mg of a diuretic once a day two weeks ago. The swelling has continued
I was on Venetoclax for 12 days late in March. My legs and feet began to swell and my oncologist took me off the medication on April 1. The edema has continued to this day. My cardiologist put me on 80 mg of Lasik twice a day and 25 mg of a diuretic once a day two weeks ago. The swelling has continued
umpireman
in
CLL Support
5 years ago
Update situation IBS,internal hemorrhoids, anal fissure still searching for what i have..
Hi guys,quick story..1 year ago i've had a bad stomach pain,diarrhoea,blood with stool and when to GP and been diagnosed with IBS,then an specialist said i have internal hemorrhoids with anal fissure (they go hand in hand,he said)did treatment 2 months all good until now,stool looks good,peeing looks
Hi guys,quick story..1 year ago i've had a bad stomach pain,diarrhoea,blood with stool and when to GP and been diagnosed with IBS,then an specialist said i have internal hemorrhoids with anal fissure (they go hand in hand,he said)did treatment 2 months all good until now,stool looks good,peeing looks
Razvan_Catalin
in
IBS Network
5 years ago
How to define PA?
I don't even know if I've got pa, I'm getting the B12 injections on a 3 monthly cycle, and had a course of folic acid tablets for 2 months, then was told I was no longer required to take them anymore, however recently had a lot more different symptoms my tongue is constantly tingling and have a constant
I don't even know if I've got pa, I'm getting the B12 injections on a 3 monthly cycle, and had a course of folic acid tablets for 2 months, then was told I was no longer required to take them anymore, however recently had a lot more different symptoms my tongue is constantly tingling and have a constant
Cb1963
in
Pernicious Anaemia Society
5 years ago
Numb toe
Hi I have secondary Raynauds the other day thr toe next to my big toe one my right foot went numb for ages then it came back to life but it began to be painful not tingling or anything just pain has any one els have this problem thanks
Hi I have secondary Raynauds the other day thr toe next to my big toe one my right foot went numb for ages then it came back to life but it began to be painful not tingling or anything just pain has any one els have this problem thanks
160376
in
Scleroderma & Raynaud's UK (SRUK)
5 years ago
pain after surgery for primary peritoneal carcinoma
I had where the omentum was removed. I had quite a bit of pain near the lowest portion of my last rib. What could this mean? I still have that pain 12 months later.
I had where the omentum was removed. I had quite a bit of pain near the lowest portion of my last rib. What could this mean? I still have that pain 12 months later.
purfekt10
in
My Ovacome
5 years ago
Help I'm getting desperate!
I was diagnosed with ibs when I was 14 and diverticular disease when I was 29. In april I thought I had piles as I was getting a lot of pain up inside my rectum so started using anusol, it didn't clear up so tried scheriproct which has worked before but not this time. My bowels are all over the place
I was diagnosed with ibs when I was 14 and diverticular disease when I was 29. In april I thought I had piles as I was getting a lot of pain up inside my rectum so started using anusol, it didn't clear up so tried scheriproct which has worked before but not this time. My bowels are all over the place
chubbylover78
in
IBS Network
5 years ago
Normal EMG but numbness and burning?
Im a 25 year old male, healthy, and clean medical history. I was at work at the beginning of the year and a had two incidents pretty close together with something heavy falling on my right foot. It bruised up good and had some swelling for a couple weeks. After the swelling went down and it was still
Im a 25 year old male, healthy, and clean medical history. I was at work at the beginning of the year and a had two incidents pretty close together with something heavy falling on my right foot. It bruised up good and had some swelling for a couple weeks. After the swelling went down and it was still
Ccruise199
in
Pain Concern
5 years ago
Has anyone been prescibed levoquin during chemo? And how do you watch your loved one go through all this pain with advanced PC?
My father is on hospice for stage 4 pc as well as aortic dissection with anyursym. He has lots of mets to spine to the point of a comlression fracture. I believe levoquin caused his heart issue. The fda just released this medicine can cause this rare issue. When i got up this morning my father asked
My father is on hospice for stage 4 pc as well as aortic dissection with anyursym. He has lots of mets to spine to the point of a comlression fracture. I believe levoquin caused his heart issue. The fda just released this medicine can cause this rare issue. When i got up this morning my father asked
Tua32427
in
Advanced Prostate Cancer
5 years ago
Query re B12 supplementation
I suffer from idiopathic peripheral neuropathy and it has been getting worse over the past few months. When it started a few years back, I did take Solgar, Sublingual Methylcobalamin for about a year or so and then stopped because I read that too much B12 can be bad for you. I was reading about it yesterday
I suffer from idiopathic peripheral neuropathy and it has been getting worse over the past few months. When it started a few years back, I did take Solgar, Sublingual Methylcobalamin for about a year or so and then stopped because I read that too much B12 can be bad for you. I was reading about it yesterday
Twitchen
in
Foggy's "Invisible Illness" Support
5 years ago
What to do next..
Hello. So our one and only frozen embryo didn’t work 😢 we found out a couple of weeks ago now but i am still really struggling. It was our only nhs funded round and I just don’t know where we go from here. I just feel like we are never going to afford to another go. We had our follow up appointment
Hello. So our one and only frozen embryo didn’t work 😢 we found out a couple of weeks ago now but i am still really struggling. It was our only nhs funded round and I just don’t know where we go from here. I just feel like we are never going to afford to another go. We had our follow up appointment
sophierob94
in
Fertility Network UK
5 years ago
T weeks post ablation
Hi all. I have had pain in hip since ablation. Rwcently i developed pain in geoin that runs down to my knee.. Very painful. Anyo e have this happen?
Hi all. I have had pain in hip since ablation. Rwcently i developed pain in geoin that runs down to my knee.. Very painful. Anyo e have this happen?
NicGia2
in
AF Association
5 years ago
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