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Giant axonal neuropathy
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Is B12 261 pmol/L while doing SI OK?
I was diagnosed low B12 last year Jan (68 pmol/L; adequacy >221). Symptoms = tiredness, peripheral neuropathy. Started SI and over the year the symptoms got better (it took until around November to feel 100% myself again). I tested again in Jan19 with result 261 pmol/L (adequacy >221), having last done
I was diagnosed low B12 last year Jan (68 pmol/L; adequacy >221). Symptoms = tiredness, peripheral neuropathy. Started SI and over the year the symptoms got better (it took until around November to feel 100% myself again). I tested again in Jan19 with result 261 pmol/L (adequacy >221), having last done
Katherine_dT
in
Pernicious Anaemia Society
5 years ago
First Post Part 5
A standard muscle consists of many fibres. These fibres have contractile units known as sarcomeres. Muscle fibres are composed of many sarcomere units. The length of the sarcomeres dictates the overall length of a muscle fibre. There is a relationship between the length of a sarcomere and the force
A standard muscle consists of many fibres. These fibres have contractile units known as sarcomeres. Muscle fibres are composed of many sarcomere units. The length of the sarcomeres dictates the overall length of a muscle fibre. There is a relationship between the length of a sarcomere and the force
johnsmith
in
Pain Concern
5 years ago
Not a bad appointment
I attend my rheumy appointment today and it went quite well. She’s put me back on my leflunomide and 2 weekly blood monitoring. If my liver goes up again she’ll send me for a scan to have a look. She’s going to push my physio referral again as I’m still waiting. She’s given me nifedipine to try and
I attend my rheumy appointment today and it went quite well. She’s put me back on my leflunomide and 2 weekly blood monitoring. If my liver goes up again she’ll send me for a scan to have a look. She’s going to push my physio referral again as I’m still waiting. She’s given me nifedipine to try and
LouLamb
in
LUPUS UK
5 years ago
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auto injector
I am looking for a device that helps with self-injection. Something like an auto injecting device. BD 3 cc syringe.
I am looking for a device that helps with self-injection. Something like an auto injecting device. BD 3 cc syringe.
garretttimson
in
Pernicious Anaemia Society
5 years ago
Dihydroergocryptine
Dihydroergocryptine (DHEC, trade names Almirid, Cripar) is a dopamine agonist of the ergoline chemical class that is used as an antiparkinson agent.[1] Dihydroergocryptine has been shown to be particularly effective as monotherapy in the early stages of Parkinson's disease. Initial monotherapy with a
Dihydroergocryptine (DHEC, trade names Almirid, Cripar) is a dopamine agonist of the ergoline chemical class that is used as an antiparkinson agent.[1] Dihydroergocryptine has been shown to be particularly effective as monotherapy in the early stages of Parkinson's disease. Initial monotherapy with a
Farooqji
in
Cure Parkinson's
5 years ago
Neuropathy and MGUS
Hi all I was diagnosed with neuropathy over a year ago although they couldn't find what is causing the problem. From one of the blood tests it was discovered I have MGUS. Haematologist doesn't think it is connected but I'm wondering if anyone else has this. Thanks for any help in advance.
Hi all I was diagnosed with neuropathy over a year ago although they couldn't find what is causing the problem. From one of the blood tests it was discovered I have MGUS. Haematologist doesn't think it is connected but I'm wondering if anyone else has this. Thanks for any help in advance.
De8813
in
Foggy's "Invisible Illness" Support
5 years ago
2nd Ivf attempt day 9 stim
Hi, I am in my 2nd Ivf cycly. First was a BFN. In first cycly i was on menopur and had very low count of follicles. Only 5 on day 9, they could retrieve 4 healthy eggs only 1 was fertilized. But could not implant. Now in second attempt i was on gonal f 300 for past 9 days. On day 5 scan there were 11
Hi, I am in my 2nd Ivf cycly. First was a BFN. In first cycly i was on menopur and had very low count of follicles. Only 5 on day 9, they could retrieve 4 healthy eggs only 1 was fertilized. But could not implant. Now in second attempt i was on gonal f 300 for past 9 days. On day 5 scan there were 11
Mwaqarkhan
in
Fertility Network UK
5 years ago
Bleed during down reg...will this effect things
Hi ladies. Currently on cycle day 27 down regging and 2moro last day of my tablets (norithesrone...prob not spelt right). We are on short flare protocol and supposed to stop tablets 2moro, have a bleed 2 to 3 days later have appointment next week on Thursday for prostap injection b4 starting gonal f
Hi ladies. Currently on cycle day 27 down regging and 2moro last day of my tablets (norithesrone...prob not spelt right). We are on short flare protocol and supposed to stop tablets 2moro, have a bleed 2 to 3 days later have appointment next week on Thursday for prostap injection b4 starting gonal f
Nobabyyet
in
Fertility Network UK
5 years ago
Change of medication
Hi everyone I am currently on my 2nd round of icsi, I’ve been taking buserelin for a week and started with my stimulation medication yesterday but my consultant has decided to change me to gonal F rather than menopour that I used through the first round. It seems a lot easier rather than mixing up the
Hi everyone I am currently on my 2nd round of icsi, I’ve been taking buserelin for a week and started with my stimulation medication yesterday but my consultant has decided to change me to gonal F rather than menopour that I used through the first round. It seems a lot easier rather than mixing up the
staceymac83
in
Fertility Network UK
5 years ago
Vitamin Deficiencies and Peripheral Neuropathy
Hi there! I feel like collapsing writing this. I'm 18 years old. Initially I was on a diet plan to reduce my weight. Then after one month I had pain in my lower spine region but i didn't cared much.. I jogged daily. After some days, the pain was unbearable and I had to leave all these. On 16th January
Hi there! I feel like collapsing writing this. I'm 18 years old. Initially I was on a diet plan to reduce my weight. Then after one month I had pain in my lower spine region but i didn't cared much.. I jogged daily. After some days, the pain was unbearable and I had to leave all these. On 16th January
RitikKumar1818
in
Pernicious Anaemia Society
5 years ago
To go private or not to go private....
Hi ladies, I need to make some important decisions and I cannot get my head round that. I had 8 unsuccessful cycles of Clomid. Now 3 cycles of Gonal-F in which I nicely ovulated but no pregnancy. We are mentally prepared for IVF and happy to go private in the NHS waiting time. The problem is that in
Hi ladies, I need to make some important decisions and I cannot get my head round that. I had 8 unsuccessful cycles of Clomid. Now 3 cycles of Gonal-F in which I nicely ovulated but no pregnancy. We are mentally prepared for IVF and happy to go private in the NHS waiting time. The problem is that in
sarahharas
in
Fertility Network UK
5 years ago
Acute Morphine Treatments Alleviate Tremor
Morphine can be endogenously synthesized and can increase DA firing rate through disinhibition. In addition, upregulation of neuronal endogenous morphine-like compound immunoreactivity was found in human PD. These facts suggest morphine may have potential therapeutic relevance in PD treatment as dopaminergic
Morphine can be endogenously synthesized and can increase DA firing rate through disinhibition. In addition, upregulation of neuronal endogenous morphine-like compound immunoreactivity was found in human PD. These facts suggest morphine may have potential therapeutic relevance in PD treatment as dopaminergic
Farooqji
in
Cure Parkinson's
5 years ago
Gonal f - follicle size ?
Can anyone advise what is the ideal amount of follicles to have and what size ?? I’m on Gonal f 225 daily and have been for 5 days ? Scanned today and I have 6 follicles the largest being 14.3mm ! I have been told to continue with injections and rescan on Friday . Xxx
Can anyone advise what is the ideal amount of follicles to have and what size ?? I’m on Gonal f 225 daily and have been for 5 days ? Scanned today and I have 6 follicles the largest being 14.3mm ! I have been told to continue with injections and rescan on Friday . Xxx
Hidden
in
Fertility Network UK
5 years ago
Unused meds
Hi all Some of you may have read my last post where I said basically I have just found out there is a risk of Huntington’s disease in my family (a rare generic condition). I have just started a cycle of ICSI so my fridge is stocked up with Gonal F and ovitrelle plus menopur, cyclogest and Buserelin
Hi all Some of you may have read my last post where I said basically I have just found out there is a risk of Huntington’s disease in my family (a rare generic condition). I have just started a cycle of ICSI so my fridge is stocked up with Gonal F and ovitrelle plus menopur, cyclogest and Buserelin
Franco81
in
Fertility Network UK
5 years ago
Hemorrhoids?
Just wondering if anyone has had a similar experience.. I've just been on holiday to Fuerteventura for just under a week, was 13 weeks when left and now returned 14 weeks. I've not suffered with any constipation and have been very careful with what I've eaten. On the 4th morning away following a bowel
Just wondering if anyone has had a similar experience.. I've just been on holiday to Fuerteventura for just under a week, was 13 weeks when left and now returned 14 weeks. I've not suffered with any constipation and have been very careful with what I've eaten. On the 4th morning away following a bowel
NewPharma
in
Pregnancy and Parenting Support
5 years ago
Hypo and eyes
Good morning All Have just been to Moorfields eye hospital. They have identified new blood vessels in the iris - rubeosis iridis. Has anyone else developed this? There wasn’t much explanation of possible outcomes or treatment, just said they needed to monitor and would see me again in 4-6 weeks. The
Good morning All Have just been to Moorfields eye hospital. They have identified new blood vessels in the iris - rubeosis iridis. Has anyone else developed this? There wasn’t much explanation of possible outcomes or treatment, just said they needed to monitor and would see me again in 4-6 weeks. The
Stumpy57
in
Thyroid UK
5 years ago
Short Flare protocol- just one scan scheduled for 6/7 days after taking gonal f injections-enough???
Hi all :) As above just one scan with view to collection 4/5 days later. Shouldn't there be more scans? Perhaps sooner to guage my bodys reaction? I have very low amh and on gonal f 350 mg injections. What if i'm over/under reacting and they miss it causing cycle to be a disaster? We paid a lot for this
Hi all :) As above just one scan with view to collection 4/5 days later. Shouldn't there be more scans? Perhaps sooner to guage my bodys reaction? I have very low amh and on gonal f 350 mg injections. What if i'm over/under reacting and they miss it causing cycle to be a disaster? We paid a lot for this
Nobabyyet
in
Fertility Network UK
5 years ago
alpha blocker success?
hello i would like to ask if anyone has tried an alpha blocker for perinal pain,cpps/cp and found any success? can alpha blockers ease pundendal inflammation? https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3602728/ i have pelvic pain,perineal pain due to finasteride use whichi is permanent atm... -my pain
hello i would like to ask if anyone has tried an alpha blocker for perinal pain,cpps/cp and found any success? can alpha blockers ease pundendal inflammation? https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3602728/ i have pelvic pain,perineal pain due to finasteride use whichi is permanent atm... -my pain
zadig777
in
Pelvic Pain Support Network
5 years ago
The pet whisperer
Being an animal trainer and behavior expert this condition "Non-Non-diabetic Peripheral Neuropathy has halted my life and career. Pain is unbearable without gabapentin yet I t puts me to sleep when I take it. Help1
Being an animal trainer and behavior expert this condition "Non-Non-diabetic Peripheral Neuropathy has halted my life and career. Pain is unbearable without gabapentin yet I t puts me to sleep when I take it. Help1
Crazycatlady64
in
Foggy's "Invisible Illness" Support
5 years ago
Anyone else have hoarseness and/or GORD with B12 neuropathy? Vagal nerve problems?
Around the same time my peripheral neuropathy started I developed a weakness in my voice and also reflux which I never had before. I was wondering if any of you have had the same problems? Strangely my right side improved with about 2 weeks of treatment, but my left side started to worsen after that
Around the same time my peripheral neuropathy started I developed a weakness in my voice and also reflux which I never had before. I was wondering if any of you have had the same problems? Strangely my right side improved with about 2 weeks of treatment, but my left side started to worsen after that
aksundell
in
Pernicious Anaemia Society
5 years ago
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