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Giant axonal neuropathy
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Massaging RLS areas
Hi, When my husband massages whatever area on my legs are playing up with RLS the area is really painful when he massages it , Anyone know why this is ? as the same area is not painful if it is not affected by the RLS ,
Hi, When my husband massages whatever area on my legs are playing up with RLS the area is really painful when he massages it , Anyone know why this is ? as the same area is not painful if it is not affected by the RLS ,
Helengreenland
in
Restless Legs Syndrome
4 years ago
Very poor sleep. Suggestions?
PD symptoms first appeared about five years ago. Officially diagnosed last fall. Not taking any allopathic meds or mucuna so far. My sleep is terrible, typically 3-5 hours per night. The problem is not physical stiffness or pain. Just difficulty falling asleep and staying asleep. I am not particularly
PD symptoms first appeared about five years ago. Officially diagnosed last fall. Not taking any allopathic meds or mucuna so far. My sleep is terrible, typically 3-5 hours per night. The problem is not physical stiffness or pain. Just difficulty falling asleep and staying asleep. I am not particularly
Vt11
in
Cure Parkinson's
4 years ago
Peripheral neuropathy
Hello all! I have such a lot of health problems and here I am again. Besides my long list of pains I have Peripheral Neuropathy. I have a few questions to people here who also suffer from it. I am not a diabetic but I had cancer and my PN was caused by chemotherapy. I always say chemo destroyed me.
Hello all! I have such a lot of health problems and here I am again. Besides my long list of pains I have Peripheral Neuropathy. I have a few questions to people here who also suffer from it. I am not a diabetic but I had cancer and my PN was caused by chemotherapy. I always say chemo destroyed me.
Micafe
in
Neuropathy Support
4 years ago
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Looking for any advice!
Hi about 5 weeks ago I started with a change in my bowel habits, it could go from not being able to go to needing to get to the loo as fast as I can! It’s usually worse when I first wake up in the morning and then later at night! It’s driving me crazy! This probably all started when I was nearly due
Hi about 5 weeks ago I started with a change in my bowel habits, it could go from not being able to go to needing to get to the loo as fast as I can! It’s usually worse when I first wake up in the morning and then later at night! It’s driving me crazy! This probably all started when I was nearly due
Lisaworthy1981
in
IBS Network
4 years ago
1st monitoring scan - not great results 🙈
So just had my scan, had 1 huge follicle measuring at 17mm, a second at 12mm. They seemed quite surprised at the largest one, said much bigger than they would expect after 7 days. Unfortunately the other 3 follicles on my left follicle are not measurable. They took ages to find my right ovary and
So just had my scan, had 1 huge follicle measuring at 17mm, a second at 12mm. They seemed quite surprised at the largest one, said much bigger than they would expect after 7 days. Unfortunately the other 3 follicles on my left follicle are not measurable. They took ages to find my right ovary and
Hope76
in
Fertility Network UK
4 years ago
An update on my tocilizumab experience.
Hello Everyone, from Downunder, I have now had my 12th jab of tocilizumab and my inflammatory markers have reduced to “normal” levels. I feel strong, full of energy and mentally positive for the first time in some months. My pred is down to 6.5mgs, Rheumatologist thinks I could reduce more rapidly,
Hello Everyone, from Downunder, I have now had my 12th jab of tocilizumab and my inflammatory markers have reduced to “normal” levels. I feel strong, full of energy and mentally positive for the first time in some months. My pred is down to 6.5mgs, Rheumatologist thinks I could reduce more rapidly,
LemonZest11
in
PMRGCAuk
4 years ago
Docetaxel & Jevtana-induced peripheral neuropathy
Hello everyone. My father is dealing with peripheral neuropathy after having several rounds of docetaxel and jevtana. Hence, I would like to ask what can he take that would significantly improve this adverse effects from the chemotherapy agents? He is only taking 100 mg of gabapentin a day because
Hello everyone. My father is dealing with peripheral neuropathy after having several rounds of docetaxel and jevtana. Hence, I would like to ask what can he take that would significantly improve this adverse effects from the chemotherapy agents? He is only taking 100 mg of gabapentin a day because
AerospaceElectrical
in
Advanced Prostate Cancer
4 years ago
Painful feet
Hi. Do you think sore, painful feet with burning and tingling sensation is associated with Low thyroid? I used to have painful burning feet before I was diagnosed with hypothyroidism. A few months after taking Levothyroxine, it went away and I didn’t think much about it. Now, 5 years later, the painful
Hi. Do you think sore, painful feet with burning and tingling sensation is associated with Low thyroid? I used to have painful burning feet before I was diagnosed with hypothyroidism. A few months after taking Levothyroxine, it went away and I didn’t think much about it. Now, 5 years later, the painful
Hadia
in
Thyroid UK
4 years ago
Great pain killer
Not really a question but I've discovered AZO pain killer really works for urinary pain etc. within 20mminutes feel so much better. Not a cure of course but what a relief ! Doctor has me on 25mg nitrofurantoin for a month. The colour of my urine when taking AZO is bright red/orange. Doesnt interfere
Not really a question but I've discovered AZO pain killer really works for urinary pain etc. within 20mminutes feel so much better. Not a cure of course but what a relief ! Doctor has me on 25mg nitrofurantoin for a month. The colour of my urine when taking AZO is bright red/orange. Doesnt interfere
glenbanchor
in
Pelvic Pain Support Network
4 years ago
RLS or neuropathy?
Hello everyone, One day ,about 4 months ago ,when i woke up I had a strange feeling of of ants crawling/electricity going through my calves.It wasn't painful just very annoying.I didn't really notice it during the day ,because i was focusing on work but it was there.When the night came it kept me from
Hello everyone, One day ,about 4 months ago ,when i woke up I had a strange feeling of of ants crawling/electricity going through my calves.It wasn't painful just very annoying.I didn't really notice it during the day ,because i was focusing on work but it was there.When the night came it kept me from
Hidden
in
Restless Legs Syndrome
4 years ago
Small follicles on day 8
So ive been on gonal f (dose 375) for 8 days, i had another scan today and whilst I've got a quite a few follicles (10 left, 9 right) a lot of them are small and ive been pre warned they may cancel my cycle if they don't grow. They've upped my dose to 450 and I'm back in on Monday to see if there is
So ive been on gonal f (dose 375) for 8 days, i had another scan today and whilst I've got a quite a few follicles (10 left, 9 right) a lot of them are small and ive been pre warned they may cancel my cycle if they don't grow. They've upped my dose to 450 and I'm back in on Monday to see if there is
Clairelee86
in
Fertility Network UK
4 years ago
Baseline scan today 🤞🏼🙏🏻
So today was baseline scan day, I have 5 Antral follicles on my left ovary and only 1 on my right 🙈. Feeling a bit disappointed that there doesn’t appear to be much action on my right ovary as my last cycle I had 3 on my right and 4 on left. Guess being a year older now (age 44) makes a huge difference
So today was baseline scan day, I have 5 Antral follicles on my left ovary and only 1 on my right 🙈. Feeling a bit disappointed that there doesn’t appear to be much action on my right ovary as my last cycle I had 3 on my right and 4 on left. Guess being a year older now (age 44) makes a huge difference
Hope76
in
Fertility Network UK
4 years ago
oral mucositis prevention
had first chemo yesterday. did not realise that after cool cap, i would be sent home with soaking wet hair (with shampoo/conditioner in) to travel home in torrential rain. i would have brought a hat if i'd known. it was torrential rain outside when i left and i had no raingear, wearing sandals, got back
had first chemo yesterday. did not realise that after cool cap, i would be sent home with soaking wet hair (with shampoo/conditioner in) to travel home in torrential rain. i would have brought a hat if i'd known. it was torrential rain outside when i left and i had no raingear, wearing sandals, got back
candyapplegrey
in
My Ovacome
4 years ago
Flare?
Ridiculously tired and headaches, thought it was heatstroke but now my knees are throbbing and my hand joints hurt I’m thinking it’s a flare?! Anyone else get similar, only diagnosed in January..
Ridiculously tired and headaches, thought it was heatstroke but now my knees are throbbing and my hand joints hurt I’m thinking it’s a flare?! Anyone else get similar, only diagnosed in January..
LLH76
in
Fibromyalgia Action UK
4 years ago
Egg collection torture done ✅ and now we wait on our 2 eggs?!😫
2nd round cancelled in March and restarted end of June. So, we made it to our second ever egg collection today. Stims= Gonal f 375 this time. Same trigger - Ovitrelle 9 follicles on scans this time but on Monday the scan dude muttered about cysts and maybe hope the smaller one have eggs..... Fast
2nd round cancelled in March and restarted end of June. So, we made it to our second ever egg collection today. Stims= Gonal f 375 this time. Same trigger - Ovitrelle 9 follicles on scans this time but on Monday the scan dude muttered about cysts and maybe hope the smaller one have eggs..... Fast
RhinoCat
in
Fertility Network UK
4 years ago
first stim scan
So today was my first stim scan, tonight will be my 7th injection, im on Gonal F 375 My results are below: Lining 7cm 26 follicles -16 right 10 left 16mm x l 11mm x lll 10mm x ll 9mm x ll 8mm x ll 7mm x lll 6mm x l 12 x 5mm and under I'm hoping this is ok for this point, this is the furthest we have
So today was my first stim scan, tonight will be my 7th injection, im on Gonal F 375 My results are below: Lining 7cm 26 follicles -16 right 10 left 16mm x l 11mm x lll 10mm x ll 9mm x ll 8mm x ll 7mm x lll 6mm x l 12 x 5mm and under I'm hoping this is ok for this point, this is the furthest we have
Kbear83
in
Fertility Network UK
4 years ago
Diagnosed now
Hi everyone - I’ve finally been told I have palindromic rheumatism and fibromyalgia, prescribed Amitriptyline to take at bedtime. How have you found this as a treatment? ss
Hi everyone - I’ve finally been told I have palindromic rheumatism and fibromyalgia, prescribed Amitriptyline to take at bedtime. How have you found this as a treatment? ss
Sunnyseas
in
Fibromyalgia Action UK
4 years ago
Two years later from near death. PA, low B12.
Two years later after near death experience due to PA. Neuropathy still alive, but changing very SLOWLY and still making progression. I found out a website that sells ampules 5MG (5000ug A.K.A. micro grams) methylcobalamin the good stuff. http://balans-arnhem.ccvshop.nl/Webwinkel-Product-143400297
Two years later after near death experience due to PA. Neuropathy still alive, but changing very SLOWLY and still making progression. I found out a website that sells ampules 5MG (5000ug A.K.A. micro grams) methylcobalamin the good stuff. http://balans-arnhem.ccvshop.nl/Webwinkel-Product-143400297
Geckowacko
in
Pernicious Anaemia Society
4 years ago
Low AMH and risk of OHSS
Hi ladies, I'm currently in the middle of our 3rd icsi cycle. A little background...I have low amh for my age (11 at 33yrs), but our main issue is male factor. My first cycle I was on max dose of menopur and ended up in hospital with moderate ohss, 10 eggs, 1 fertilised, nothing to transfer. 2nd cycle
Hi ladies, I'm currently in the middle of our 3rd icsi cycle. A little background...I have low amh for my age (11 at 33yrs), but our main issue is male factor. My first cycle I was on max dose of menopur and ended up in hospital with moderate ohss, 10 eggs, 1 fertilised, nothing to transfer. 2nd cycle
Italy300618
in
Fertility Network UK
4 years ago
2nd round icsi
Hi guys ! Getting ready for our second round. This time instead of using Meriofert and fostimon I’m going to be starting menopur and gonal f. Fingers crossed baseline scan is ok. Before we where able to get 16 eggs but only 7 fertilised. We are going to use embroyscope. So hopefully that gives us
Hi guys ! Getting ready for our second round. This time instead of using Meriofert and fostimon I’m going to be starting menopur and gonal f. Fingers crossed baseline scan is ok. Before we where able to get 16 eggs but only 7 fertilised. We are going to use embroyscope. So hopefully that gives us
Annie1609
in
Fertility Network UK
4 years ago
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