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Giant axonal neuropathy
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Bleeding after Gonal-F
I have started with Gonal-F three days ago. My period was already finished, but today I started bleeding. I don't understand why. Did anyone experienced something similar?
I have started with Gonal-F three days ago. My period was already finished, but today I started bleeding. I don't understand why. Did anyone experienced something similar?
WaitingforGabriel
in
Fertility Network UK
6 months ago
Apomorphine
Has anyone here, particularly with drug resistant tremor, been put on apomorphine? It sounds like a nightmare; a drug that has no relation to morphine, that's meant for dogs, makes you incredibly nauseous and sick, needs to be administered via a pump or injection and would be given during off periods
Has anyone here, particularly with drug resistant tremor, been put on apomorphine? It sounds like a nightmare; a drug that has no relation to morphine, that's meant for dogs, makes you incredibly nauseous and sick, needs to be administered via a pump or injection and would be given during off periods
mach262
in
Cure Parkinson's
10 months ago
Question about mood
does anyone else get depression like symptoms, anxiety like symptoms and just an overall flat affect as you wait the month out for your next injection? I was self injecting in between but the needle jabs are starting to really hurt now so I stopped.
does anyone else get depression like symptoms, anxiety like symptoms and just an overall flat affect as you wait the month out for your next injection? I was self injecting in between but the needle jabs are starting to really hurt now so I stopped.
Schpsych2414
in
Pernicious Anaemia Society
10 months ago
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Spinal injection
Hi everyone how are we all today ? Well I've now asked Painmanagement for a spinal injection physio just not helping and I cant cope with anymore piriformis and sciatica so speak to them in 2 weeks. I had one in 2014 but it wasnt very successful but that was then this is now. What is your thought on
Hi everyone how are we all today ? Well I've now asked Painmanagement for a spinal injection physio just not helping and I cant cope with anymore piriformis and sciatica so speak to them in 2 weeks. I had one in 2014 but it wasnt very successful but that was then this is now. What is your thought on
Betsy50
in
Pain Concern
10 months ago
Gonal-F and fyremadel experiences??
Hi everyone! We have our treatment plan and it’s proposed that I take gonal-f and fyremadel - Does anyone have experience of these, how did you manage, was there side effects, did it impact your mood?? I’m wondering if some time off work would be beneficial. Thank you in advance ☺️
Hi everyone! We have our treatment plan and it’s proposed that I take gonal-f and fyremadel - Does anyone have experience of these, how did you manage, was there side effects, did it impact your mood?? I’m wondering if some time off work would be beneficial. Thank you in advance ☺️
Pinklily2
in
Fertility Network UK
6 months ago
Charity request for help: GCA patients in England
Dear members with GCA, as you may be aware, NICE and NHS England don't currently allow repeat treatment with tocilizumab for GCA patients who relapse. This means that if you live in England and you've had a year's treatment with tocilizumab, you won't be prescribed it again. However, a recent study
Dear members with GCA, as you may be aware, NICE and NHS England don't currently allow repeat treatment with tocilizumab for GCA patients who relapse. This means that if you live in England and you've had a year's treatment with tocilizumab, you won't be prescribed it again. However, a recent study
Fran_Benson
Partner
in
PMRGCAuk
8 months ago
What could be causing pain in the testicle?
Share you with my opinions. There are many reasons for testicular pain, the most common reason is chronic prostatitis, epididymitis and varicocele. Testicular pain is one of the main symptoms of chronic prostatitis. The main symptom of acute epididymitis is also testicular pain. If not treated for a
Share you with my opinions. There are many reasons for testicular pain, the most common reason is chronic prostatitis, epididymitis and varicocele. Testicular pain is one of the main symptoms of chronic prostatitis. The main symptom of acute epididymitis is also testicular pain. If not treated for a
Henry0831
in
Pain Concern
10 months ago
Too much Gonal F
Hi everyone I was due to take 375ml of Gonal F. I had 75ml left in one epipen so took this and then stupidly set the second pen to 375ml, not realising until too late. I’m due for another scan tomorrow to see whether I’m ready for my trigger shot and am terrified I have messed this up. Has anyone
Hi everyone I was due to take 375ml of Gonal F. I had 75ml left in one epipen so took this and then stupidly set the second pen to 375ml, not realising until too late. I’m due for another scan tomorrow to see whether I’m ready for my trigger shot and am terrified I have messed this up. Has anyone
Blush06
in
Fertility Network UK
6 months ago
40 years of RLS
I started with RLS about 40 years ago. Over the past 15 years, it has been diagnosed as severe.I have tried all of the dopamine drugs, none worked except for pramipexol, I have augmented and spent the past year still trying to get off this. I am under a sleep specialist and on 50mg of oxycodone per
I started with RLS about 40 years ago. Over the past 15 years, it has been diagnosed as severe.I have tried all of the dopamine drugs, none worked except for pramipexol, I have augmented and spent the past year still trying to get off this. I am under a sleep specialist and on 50mg of oxycodone per
Trish8433
in
Restless Legs Syndrome
10 months ago
Nortiplyine if affects heart what other medication found useful for neuropathic neuropathy pain already on lyrica ........
Hi Just wondering if had heart problems with nortiplyine what other medication useful for neuropathy neuropathic pain Should I stay off all saris? Many thanks
Hi Just wondering if had heart problems with nortiplyine what other medication useful for neuropathy neuropathic pain Should I stay off all saris? Many thanks
Cookingcookie
in
Cure Parkinson's
10 months ago
Round 2 is over, looking for hope
Hi all, I have DOR as well as dealing with a male factor. I’m 31 and just come off my second round failing feeling so heartbroken. The first round we managed to retrieve 4 eggs and got to two embryos although they were low grade and neither stuck. This time round, drugs were changed and instead of just
Hi all, I have DOR as well as dealing with a male factor. I’m 31 and just come off my second round failing feeling so heartbroken. The first round we managed to retrieve 4 eggs and got to two embryos although they were low grade and neither stuck. This time round, drugs were changed and instead of just
cp92
in
Fertility Network UK
6 months ago
Tonsil Stones from IVF Treatment - Anyone Else?
I began my first cycle of IVF back in the summer of 2020. Whilst in treatment and injecting Gonal F, I started having tonsil stones. These are debris that builds up and sit in your tonsils causing some discomfort. I ended up doing 4 rounds of IVF so obviously the drugs/hormones messed up my body somewhat
I began my first cycle of IVF back in the summer of 2020. Whilst in treatment and injecting Gonal F, I started having tonsil stones. These are debris that builds up and sit in your tonsils causing some discomfort. I ended up doing 4 rounds of IVF so obviously the drugs/hormones messed up my body somewhat
anz07
in
Fertility Network UK
7 months ago
Supplements that improve brain health
Declining brain health (cognition et al) is a possible SE of LT ADT. I am on a 2 year ADT plan. Here are some supplements I take for various reasons that also are said to have brain-on-LT-ADT health benefits. (Per Dr. Google) Creatine Taurine L Theanine HMB (long chemical name) Exercise (you
Declining brain health (cognition et al) is a possible SE of LT ADT. I am on a 2 year ADT plan. Here are some supplements I take for various reasons that also are said to have brain-on-LT-ADT health benefits. (Per Dr. Google) Creatine Taurine L Theanine HMB (long chemical name) Exercise (you
Derf4223
in
Advanced Prostate Cancer
10 months ago
Excess Vit. B
Good morning everyone, I have a vit. B6 level of 56.8, much higher than the maximum reference level of 18.0. I didn't take a specific supplement but only complex B. We all know that vit.B6 negatively interferes with the proper functioning of Levodopa, so it is necessary for me to drastically reduce
Good morning everyone, I have a vit. B6 level of 56.8, much higher than the maximum reference level of 18.0. I didn't take a specific supplement but only complex B. We all know that vit.B6 negatively interferes with the proper functioning of Levodopa, so it is necessary for me to drastically reduce
Fed1000
in
Cure Parkinson's
10 months ago
Weak legs numbness and pins and needles
Hi I keep getting pins and needles in my legs then they go numb and just give out and I fall over has anyone else suffered with these symptoms I have been diagnosed with fibromalarga sometimes my legs feel so week I feel real dizzy dreadful feeling.
Hi I keep getting pins and needles in my legs then they go numb and just give out and I fall over has anyone else suffered with these symptoms I have been diagnosed with fibromalarga sometimes my legs feel so week I feel real dizzy dreadful feeling.
shazzafloyd
in
Fibromyalgia Action UK
10 months ago
Altered sensation after Dilator exercises
Hi all,I would really appreciate some support and guidance as I have a hypertonic pelvic floor muscle (for about 8-9 years). I have tried many approaches over the years but recently return to focus on physiotherapy and dilator stretches - on an intensive approach this time- completing a passive stretch
Hi all,I would really appreciate some support and guidance as I have a hypertonic pelvic floor muscle (for about 8-9 years). I have tried many approaches over the years but recently return to focus on physiotherapy and dilator stretches - on an intensive approach this time- completing a passive stretch
HopefulOphelia
in
Pelvic Pain Support Network
10 months ago
Tocilizumab
I have had a BCC removed from the side of my nose. One of my rheumatology nurses told me that there is an incidence of Tocilizumab causing cancerous growths. It did pop up out of nowhere and I was shocked when the dermatologist told me that it was a slow growing cancer. Has anyone heard of this link?
I have had a BCC removed from the side of my nose. One of my rheumatology nurses told me that there is an incidence of Tocilizumab causing cancerous growths. It did pop up out of nowhere and I was shocked when the dermatologist told me that it was a slow growing cancer. Has anyone heard of this link?
Noni71
in
PMRGCAuk
9 months ago
Positive clonus and lupus
Hello :) I've recently been diagnosed with rheumatoid arthritis and a lupus overlap. I have now been told I have a positive clonus reflex. I don't know if I should be concerned that it is linked or the physio is just being thorough referring me to my GP for further investigation. If anyone has had
Hello :) I've recently been diagnosed with rheumatoid arthritis and a lupus overlap. I have now been told I have a positive clonus reflex. I don't know if I should be concerned that it is linked or the physio is just being thorough referring me to my GP for further investigation. If anyone has had
Sunshine634
in
LUPUS UK
11 months ago
Implant brand preferences?
Hello All, I'm 53 and had a radical prostatectomy in Feb 2023 for Gleason 5+5, stage 3, positive node=1, intraductal carcinoma. Surgeon was unable to spare any nerves and I've got nothing in the area of erections. All providers have agreed I will not regain erectile function on my own, although I'll
Hello All, I'm 53 and had a radical prostatectomy in Feb 2023 for Gleason 5+5, stage 3, positive node=1, intraductal carcinoma. Surgeon was unable to spare any nerves and I've got nothing in the area of erections. All providers have agreed I will not regain erectile function on my own, although I'll
Firstglantz
in
Prostate Cancer And Gay Men
11 months ago
Here's PROOF our VITAMINS are POISONING us!
If you've followed my "vitamin posts" the last 2 months you know that I'm involved with a Florida law firm which is preparing to file a lawsuit against several Amazon vitamin sellers for... FRAUDULENTLY claiming their supplements are: "MADE IN THE USA." TODAY I got this reply from one of the vitamin
If you've followed my "vitamin posts" the last 2 months you know that I'm involved with a Florida law firm which is preparing to file a lawsuit against several Amazon vitamin sellers for... FRAUDULENTLY claiming their supplements are: "MADE IN THE USA." TODAY I got this reply from one of the vitamin
PDWarrior1900
in
Cure Parkinson's
11 months ago
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