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Giant axonal neuropathy
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Advice please, on two cancelled cycles
Thanks to everyone on here, would appreciate any advice.I have cancelled my second IVF cycle due to poor response to meds. First cycle was short protocol, Menopur and Cyclogest resulted in two follicles of required size. As I am 40 consultant suggested to cancel and try again on what I thought would
Thanks to everyone on here, would appreciate any advice.I have cancelled my second IVF cycle due to poor response to meds. First cycle was short protocol, Menopur and Cyclogest resulted in two follicles of required size. As I am 40 consultant suggested to cancel and try again on what I thought would
Queg
in
Fertility Network UK
1 year ago
sacral implant site pain for pelvic floor dysfuntion
I am on second site sacral medtronic implant after one year I have severe stabbing pain in back and front of thigh,have had si injection but made it worse,did pt, made it worse are there any thoughts out there that may help
I am on second site sacral medtronic implant after one year I have severe stabbing pain in back and front of thigh,have had si injection but made it worse,did pt, made it worse are there any thoughts out there that may help
razzle51
in
Pelvic Pain Support Network
1 year ago
How to pass the day
Eternities Day
Dawn whispers to your sleepy ears as nature awakens to herald daybreak. Quiet colours will bless your eyes, as suns soft rays do gently entice those leaden lids to rise and see the glory of my being. Stay with me awhile and see that glowing orb in haloed radiance
Eternities Day
Dawn whispers to your sleepy ears as nature awakens to herald daybreak. Quiet colours will bless your eyes, as suns soft rays do gently entice those leaden lids to rise and see the glory of my being. Stay with me awhile and see that glowing orb in haloed radiance
cycli
in
PMRGCAuk
1 year ago
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HDR BT Salvage Therapy
Hello All I just completed the second BT procedure at MSK. Pain level was maybe 3 but mostly gone the next morning with some soreness. My next step I’m told is bloodwork in 3 months which I’m not concerned about. I am concerned about the 6 month MRI which could show if any cancer still remains. When
Hello All I just completed the second BT procedure at MSK. Pain level was maybe 3 but mostly gone the next morning with some soreness. My next step I’m told is bloodwork in 3 months which I’m not concerned about. I am concerned about the 6 month MRI which could show if any cancer still remains. When
Trying-Times
in
Advanced Prostate Cancer
1 year ago
Pelvic Muscle Spasms
Ive been just diagnosed and my VJ is constantly throbbing. Using suppositories and AZO products but I dont know how to relax these muscles. Anyone else? HELP it HURTS
Ive been just diagnosed and my VJ is constantly throbbing. Using suppositories and AZO products but I dont know how to relax these muscles. Anyone else? HELP it HURTS
QueenVic1952
in
Pelvic Pain Support Network
1 year ago
Head pins and needles
Hi all, I hope you're all hanging on in there. I am newly diagnose and wanted to ask if anyone has pins and needles, especially in the head. I am having these weird sensations all over my body, difficulty walking with balance issues, plus vision problems too. Any advice greatly appreciated. Thank
Hi all, I hope you're all hanging on in there. I am newly diagnose and wanted to ask if anyone has pins and needles, especially in the head. I am having these weird sensations all over my body, difficulty walking with balance issues, plus vision problems too. Any advice greatly appreciated. Thank
bubbatetley
in
LUPUS UK
1 year ago
Rectal fissure - healed!
I'm not sure if this is the correct group to post in as I do not have IBS, however for 10+ years, I had a rectal fissure that just wouldn’t go away. I live in the Caribbean, have a healthy lifestyle and diet. Years ago, when first diagnosed with the fissure, I was prescribed Lidoprocto suppositories
I'm not sure if this is the correct group to post in as I do not have IBS, however for 10+ years, I had a rectal fissure that just wouldn’t go away. I live in the Caribbean, have a healthy lifestyle and diet. Years ago, when first diagnosed with the fissure, I was prescribed Lidoprocto suppositories
StogStog
in
IBS Network
10 months ago
I’m thinking about Benfotiamine.
Hello all of you HU people ~ I am the wife of a PwP, dx 12/29/2020. Our history ( very briefly) ~ left sides tremors and anxiety, mostly. We tried B1 HCL ~ didn’t work. Tried Thiamine mononitrate and that seemed to work for a while Recently I took hubby off all B1. None of them seemed to work
Hello all of you HU people ~ I am the wife of a PwP, dx 12/29/2020. Our history ( very briefly) ~ left sides tremors and anxiety, mostly. We tried B1 HCL ~ didn’t work. Tried Thiamine mononitrate and that seemed to work for a while Recently I took hubby off all B1. None of them seemed to work
Lizzy9
in
Cure Parkinson's
1 year ago
Hi. Mebeverine 200mg
Hi. I have been to the doctors again as really struggling again. My grandma has been diagnosed with lung cancer. And my symptoms have got worse. Im scared to eat as i need to work and colleagues making comments about my leaving due to my stomach. One day i only had two breakfast bars all day. Im having
Hi. I have been to the doctors again as really struggling again. My grandma has been diagnosed with lung cancer. And my symptoms have got worse. Im scared to eat as i need to work and colleagues making comments about my leaving due to my stomach. One day i only had two breakfast bars all day. Im having
Glutenlover
in
IBS Network
10 months ago
Homeopathic treatment
I've lived with ataxia for around ten years and its grown progressively worse. Contemporary straightforward here's your prescription' medicine seems to have no place in its treatment. What about homeopathic medicine? Has anyone out there found a homeopathic treatment which has any effect on this debilitating
I've lived with ataxia for around ten years and its grown progressively worse. Contemporary straightforward here's your prescription' medicine seems to have no place in its treatment. What about homeopathic medicine? Has anyone out there found a homeopathic treatment which has any effect on this debilitating
Piero
in
Ataxia UK
1 year ago
Pycnogenol® supplementation alleviates symptoms of Parkinson's disease with mild cognitive impairment
Recent article 2022. Not sure if it was posted. I was going to take it to lower my BP which has started to creep up. I worried because I had read [i]Their pharmacodynamic action primarily consists of antioxidant properties and possible anti-inflammatory effects. Pycnogenol may also influence the release
Recent article 2022. Not sure if it was posted. I was going to take it to lower my BP which has started to creep up. I worried because I had read [i]Their pharmacodynamic action primarily consists of antioxidant properties and possible anti-inflammatory effects. Pycnogenol may also influence the release
Sydney75
in
Cure Parkinson's
1 year ago
Auto injector advice please
I SI B12, but my daughter is needle phobic so I have to do her injections regularly for her. She would like to try an auto injector... Where do I begin? Any advice welcome as to where to purchase and tips on how to use (especially if you are needle phobic). How did you find it? Did it help? is it painless
I SI B12, but my daughter is needle phobic so I have to do her injections regularly for her. She would like to try an auto injector... Where do I begin? Any advice welcome as to where to purchase and tips on how to use (especially if you are needle phobic). How did you find it? Did it help? is it painless
Hidden
in
Pernicious Anaemia Society
1 year ago
Caffeine and progression of Parkinson’s disease: A deleterious interaction with Creatine
So I was thinking of adding Creatine to my stack based on a VERY positive video I watched from a "doctor" who it turns out graduated from an unimpressive medical school within the last 10 years and has already surrendered his license. So then I thought I should research his claims about Creatine and
So I was thinking of adding Creatine to my stack based on a VERY positive video I watched from a "doctor" who it turns out graduated from an unimpressive medical school within the last 10 years and has already surrendered his license. So then I thought I should research his claims about Creatine and
Bolt_Upright
in
Cure Parkinson's
1 year ago
Fissure or fistula
For the last few weeks I have been getting stabbing pains up the rear exit. Like I sat on a needle!! I used to suffer a lot with piles but not bled for about a year now. But today after large bm I bled! What concerns me is I should be having a camera look at my bladder on Saturday under local anaesthetic
For the last few weeks I have been getting stabbing pains up the rear exit. Like I sat on a needle!! I used to suffer a lot with piles but not bled for about a year now. But today after large bm I bled! What concerns me is I should be having a camera look at my bladder on Saturday under local anaesthetic
Edgar77
in
IBS Network
11 months ago
menopur vs Gonal F?
hey lovely people 👋🏼 quick question does anyone have any experience of switching from menopur to gonal F and it making any difference? Going for my 5th (and defo final) egg collection in august in hope for a sibling and consultant has given protocol for gonal F stims this time with a small amount
hey lovely people 👋🏼 quick question does anyone have any experience of switching from menopur to gonal F and it making any difference? Going for my 5th (and defo final) egg collection in august in hope for a sibling and consultant has given protocol for gonal F stims this time with a small amount
Twiglet2
in
Fertility Network UK
1 year ago
Hypothyroidism and Quercetin
Hello i've recently posted about my subclinical hypothyroidism results and i'm having some confirmatory tests next week. I've been looking at my supplement regime and i've been taking Quercetin with Bromelain regularly for about the last 15 years only 500mg a day. There have been a few papers recently
Hello i've recently posted about my subclinical hypothyroidism results and i'm having some confirmatory tests next week. I've been looking at my supplement regime and i've been taking Quercetin with Bromelain regularly for about the last 15 years only 500mg a day. There have been a few papers recently
ockerdoc
in
Thyroid UK
1 year ago
SIBO/IMO investigations
Hello, community. I have a putative diagnosis of SIBO-IMO and would like to know of other people's recent experience of SIBO testing /investigations. Thank you. I'm new to this forum but have been on HU for many years. I have Lupus, Raynaud's, Erythromelalgia; IBS-c and Muscular Dystrophy (FSHD-1
Hello, community. I have a putative diagnosis of SIBO-IMO and would like to know of other people's recent experience of SIBO testing /investigations. Thank you. I'm new to this forum but have been on HU for many years. I have Lupus, Raynaud's, Erythromelalgia; IBS-c and Muscular Dystrophy (FSHD-1
skylark15
in
IBS Network
11 months ago
Reducing Nifedipine dose for the warmer months?
I am on 20mg x 2 daily Nifedipine for secondary Raynauds, I started in the Autumn last year. I know I need to consult my Rheumatologist about this but wondered if others do the same ? Now the weather is warming up, I'm finding it's very easy to go into overheat mode, in that my hands start to swell
I am on 20mg x 2 daily Nifedipine for secondary Raynauds, I started in the Autumn last year. I know I need to consult my Rheumatologist about this but wondered if others do the same ? Now the weather is warming up, I'm finding it's very easy to go into overheat mode, in that my hands start to swell
andy7551
in
Scleroderma & Raynaud's UK (SRUK)
1 year ago
Clinical trial - Recorded hypnosis or relaxation reduced cancer pain and anxiety. Hypnosis also improved fatigue and sleep.
Hypnosis and relaxation interventions for chronic pain management in cancer survivors: a randomized controlled trial Linda H. Eaton, Min Kyeong Jang, Mark P. Jensen, Kenneth C. Pike, Margaret M. Heitkemper & Ardith Z. Doorenbos Supportive Care in Cancer volume 31, Article number: 50 (2023) Cite this
Hypnosis and relaxation interventions for chronic pain management in cancer survivors: a randomized controlled trial Linda H. Eaton, Min Kyeong Jang, Mark P. Jensen, Kenneth C. Pike, Margaret M. Heitkemper & Ardith Z. Doorenbos Supportive Care in Cancer volume 31, Article number: 50 (2023) Cite this
Graham49
in
Fight Prostate Cancer
11 months ago
Rough in heat
My Fibromyalgia and neuropathy has been crazy lately. That happens for me when it gets hot. The burning sensation is annoying. My meds do help. But, what things do you do to help with the pain from the flareups?
My Fibromyalgia and neuropathy has been crazy lately. That happens for me when it gets hot. The burning sensation is annoying. My meds do help. But, what things do you do to help with the pain from the flareups?
Cecethat
in
Neuropathy Support
1 year ago
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