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Am I on the right track?
Hi - I only found out that I had a thyroid problem by chance - despite having all the symptoms - unexplained weight gain, no energy, acid reflux, brain fog, skin tags, ridged & splitting nails, constipation, etc. The worst part has been that I get terrible headaches for two or three days sometimes if
Hi - I only found out that I had a thyroid problem by chance - despite having all the symptoms - unexplained weight gain, no energy, acid reflux, brain fog, skin tags, ridged & splitting nails, constipation, etc. The worst part has been that I get terrible headaches for two or three days sometimes if
Bluemaxx
in
Thyroid UK
8 years ago
Botox for salivary glands
Has anyone had botox injected into the salivary glands to assist with reducing excessive saliva? My husband is having a difficult time with excessive saliva and almost seems to be drowning at times. We are also planning on seeing a movement disorder clinic about the possibility of DBS, and had heard
Has anyone had botox injected into the salivary glands to assist with reducing excessive saliva? My husband is having a difficult time with excessive saliva and almost seems to be drowning at times. We are also planning on seeing a movement disorder clinic about the possibility of DBS, and had heard
cflloyd
in
Cure Parkinson's
8 years ago
NEED DEEP HEAT!!
In hindsight, maybe I shouldn't have done my W2R2 after my hours dynamic hot yoga session… I thought it would be a good warm up to warm my muscles right through. I was also very diligent with my post run warm down and stretch but I could hardly walk yesterday! A touch better today but I'm supposed to
In hindsight, maybe I shouldn't have done my W2R2 after my hours dynamic hot yoga session… I thought it would be a good warm up to warm my muscles right through. I was also very diligent with my post run warm down and stretch but I could hardly walk yesterday! A touch better today but I'm supposed to
hannah141
Graduate
in
Couch to 5K
8 years ago
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Brain implants or standard DBS
Brain implants because brains move slightly during physical activity and as we breathe and our heart beats, rigid implants rub and damage tissue overcome these problems using a fine, flexible mesh. In 2012 the team showed that cells could be grown around such a mesh, but that left the problem of how
Brain implants because brains move slightly during physical activity and as we breathe and our heart beats, rigid implants rub and damage tissue overcome these problems using a fine, flexible mesh. In 2012 the team showed that cells could be grown around such a mesh, but that left the problem of how
Hidden
in
Cure Parkinson's
8 years ago
Daughter needing to go gluten free?
Hi I'm wondering if someone can help me out. My daughter has just turned 6 and is suffering terribly with lethargy and emotional outbursts, headaches, feeling sick, 'stinging' tummy aches which are usually relieved one she has been to the loo. She often has wind. she has some days where she experiences
Hi I'm wondering if someone can help me out. My daughter has just turned 6 and is suffering terribly with lethargy and emotional outbursts, headaches, feeling sick, 'stinging' tummy aches which are usually relieved one she has been to the loo. She often has wind. she has some days where she experiences
donc123
in
Gluten Free Guerrillas
8 years ago
Hi to all
Hi all just started a gluten free diet having had 2 years of problems which all relate to celiac ie gas joint pain weigjt loss depression dizzeness etc after going gluten free most of problems have cleared howevet some still apparrent have kept food diary and finding that oats and rice flour are a problem
Hi all just started a gluten free diet having had 2 years of problems which all relate to celiac ie gas joint pain weigjt loss depression dizzeness etc after going gluten free most of problems have cleared howevet some still apparrent have kept food diary and finding that oats and rice flour are a problem
trelleborg
in
Gluten Free Guerrillas
8 years ago
Have you considered DBS? It is recommended for people with midstage PD who for whom meds are no longer working well!
Don't wait too long to get DBS--' if you're Parkinson's gets too severe it won't work as well . Also you might not get accepted into a program - if Sinemet stops working entirely you won't be able to find a program that will take you! There are surgeons around that can do DBS on you when you are asleep
Don't wait too long to get DBS--' if you're Parkinson's gets too severe it won't work as well . Also you might not get accepted into a program - if Sinemet stops working entirely you won't be able to find a program that will take you! There are surgeons around that can do DBS on you when you are asleep
sdekozan
in
Cure Parkinson's
8 years ago
Sore shoulder
Hi everyone not been on for a good while I just wondering dose any body know if you can take cosdine and iburofen its my daughter she has had a sore neck and shoulder for about 3days now s he's tried deep heat spray a few times and iburofen and paracetamol tablets and nothing has worked for her she is
Hi everyone not been on for a good while I just wondering dose any body know if you can take cosdine and iburofen its my daughter she has had a sore neck and shoulder for about 3days now s he's tried deep heat spray a few times and iburofen and paracetamol tablets and nothing has worked for her she is
molly40
in
Pain Concern
8 years ago
Ian Senior Keelings fish bar Barnsley Southyorkshire
I am a coeliac on a gluten free diet who cooks gluten free fish & chips for people who suffer the same symptoms as me but who can enjoy a treat total gluten free frying.
I am a coeliac on a gluten free diet who cooks gluten free fish & chips for people who suffer the same symptoms as me but who can enjoy a treat total gluten free frying.
Ianbsenior26041968
in
Gluten Free Guerrillas
8 years ago
Been on Gluten Free diet!
I just want to say thank you to all of you with the wonderful info on being Gluten Free!!! I've been doing the GF DIET for a couple of weeks now and find a big difference! I always needed meds to help me go to the bathroom! Now I get up every morning and am able to go to the bathroom! No more constipation
I just want to say thank you to all of you with the wonderful info on being Gluten Free!!! I've been doing the GF DIET for a couple of weeks now and find a big difference! I always needed meds to help me go to the bathroom! Now I get up every morning and am able to go to the bathroom! No more constipation
Debbweb01
in
Hughes Syndrome APS Forum
8 years ago
Blood test results and feeling rubbish
Hello I have hashimoto's, am on 100mcg of levothyroxine and have some recent blood test results. I have an appointment with endocrinology next week as I'm increasingly very fatigued and getting more hypothyroid symptoms and my doctor is hoping they'll give me some T3. I 'm also on HRT (transdermal patches
Hello I have hashimoto's, am on 100mcg of levothyroxine and have some recent blood test results. I have an appointment with endocrinology next week as I'm increasingly very fatigued and getting more hypothyroid symptoms and my doctor is hoping they'll give me some T3. I 'm also on HRT (transdermal patches
helen_m
in
Thyroid UK
8 years ago
Dbs trouble shooting clinics
Anyone care to talk about the UF@Gainsville location? What about Denver? I had DBS surgery last May and am still not programmed correctly I do not believe.
Anyone care to talk about the UF@Gainsville location? What about Denver? I had DBS surgery last May and am still not programmed correctly I do not believe.
ddpd
in
Cure Parkinson's
8 years ago
Reducing madopar
For several years I have been taking madopar every three hours during the day, together with entacapone, rsagaline and rotigotine patches. I also top up with dispersible madopar. Increasingly I have been swinging violently between on and off periods every couple of hours As i start to wear off I have
For several years I have been taking madopar every three hours during the day, together with entacapone, rsagaline and rotigotine patches. I also top up with dispersible madopar. Increasingly I have been swinging violently between on and off periods every couple of hours As i start to wear off I have
pen1
in
Cure Parkinson's
8 years ago
Newly Diagnosed
Hello everyone, never thought I would be on a blog asking people for advice!! I had my laparoscopy in February this year and have been diagnosed with endometriosis and to be perfectly honest I am not coping very well with this at all. I have only very recently got married and did not expect this to happen
Hello everyone, never thought I would be on a blog asking people for advice!! I had my laparoscopy in February this year and have been diagnosed with endometriosis and to be perfectly honest I am not coping very well with this at all. I have only very recently got married and did not expect this to happen
Gail2016
in
Endometriosis UK
8 years ago
DBS
I had DBS this fall 9/2015 I had real positive 'improvement before it was turned on in Oct. I had less shaking, could roll over in bed had great stamina. Dr. turned it on and turned way up it contorted my face now I have trouble speaking clearly but have cut my sinemet in half. I have more shaking
I had DBS this fall 9/2015 I had real positive 'improvement before it was turned on in Oct. I had less shaking, could roll over in bed had great stamina. Dr. turned it on and turned way up it contorted my face now I have trouble speaking clearly but have cut my sinemet in half. I have more shaking
adkseaman
in
Cure Parkinson's
8 years ago
Not Pernicious Anaemia - Hemolytic Anaemia
To anyone who is struggling with finding a diagnosis for their symptoms, as I have for two years, and whose symptoms may not have been relieved by B12 injections - here is at least one possible diagnosis that is extremely similar in symptoms but very different in cause and treatment. I went for a scan
To anyone who is struggling with finding a diagnosis for their symptoms, as I have for two years, and whose symptoms may not have been relieved by B12 injections - here is at least one possible diagnosis that is extremely similar in symptoms but very different in cause and treatment. I went for a scan
Jus-tine
in
Pernicious Anaemia Society
8 years ago
DBS?
I am hoping to get the OK for DBS surgery soon. Would love to hear from anyone who has had this done. Good or bad, I need to know.
I am hoping to get the OK for DBS surgery soon. Would love to hear from anyone who has had this done. Good or bad, I need to know.
Kachimom
in
Cure Parkinson's
8 years ago
DBS adjustment/migraine
I had my DBS adjusted today. Now I'm battling a migraine. Unlike typical migraine onset, this one started within an hour of the adjustment. Nausea with vomiting came on fast too. Does anyone else experience this? This is the 3rd time it's happened to me. I've made my MDS aware and I took 800mg
I had my DBS adjusted today. Now I'm battling a migraine. Unlike typical migraine onset, this one started within an hour of the adjustment. Nausea with vomiting came on fast too. Does anyone else experience this? This is the 3rd time it's happened to me. I've made my MDS aware and I took 800mg
christymw
in
Cure Parkinson's
8 years ago
Nutritive values
I have autoimmune illness part of which is Hashimoto's, therefore I am on a gluten free diet, I am also a lifelong vegetarian, The thing that worries me is the lack of variety in basic carbs. ie bread pasta and breakfast cereals. Most seem to be a combination of rice and maize flour. Do these products
I have autoimmune illness part of which is Hashimoto's, therefore I am on a gluten free diet, I am also a lifelong vegetarian, The thing that worries me is the lack of variety in basic carbs. ie bread pasta and breakfast cereals. Most seem to be a combination of rice and maize flour. Do these products
beaton
in
Gluten Free Guerrillas
8 years ago
UPDATE: GP and Thyroid Antibodies
Hi, Some of you may have read my previous posts regarding hashimotos and trying to conceive. Well, I went to my GP today for one last time today regarding this and she spoke to the endocrinologist about this. The endo informed her NOT to give me thyroxine and that if she does give me it , it actually
Hi, Some of you may have read my previous posts regarding hashimotos and trying to conceive. Well, I went to my GP today for one last time today regarding this and she spoke to the endocrinologist about this. The endo informed her NOT to give me thyroxine and that if she does give me it , it actually
Hidden
in
Thyroid UK
8 years ago
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