Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

6,607 members • 8,142 posts

All posts for November 2023

UTI relief

I've had UTI's since my 30's ... I'll be 70 next year. I am used to the 10 days of antibiotics (I hate them they make me feel ill) and I do not miss that one...

I've had UTI's since my 30's ... I'll be 70 next year. I am used to the 10 days...

Godbeforme

•6 months ago

31 Replies

City of Hope MAST Trail

Hello everyone, I was very encouraged by the impressive results from this novel cancer-killing virus CF33-hNIS (VAXINIA) clinical trial....

Hello everyone, I was very encouraged by the impressive results from this novel...

hopeoflife

•6 months ago

18 Replies

I have 3 weeks worth of Verzenio to give away

Unopened, of course. I am changing to Orserdu. Contact me if you want the Verzenio.

Unopened, of course. I am changing to Orserdu. Contact me if you want the Ver...

SMPG

•6 months ago

4 Replies

Want to take advantage of all our features? Just log in!

Anaemia

Hello gorgeous women. Photo is just for the cuteness level. My little girl, Stevie. NOTE: THIS POST IS FROM FRIDAY 17TH NOVEMBER. I’M GETTING ASSESSED FOR...

Hello gorgeous women. Photo is just for the cuteness level. My little girl, Ste...

Timtam56

•6 months ago

71 Replies

Progression

Hello ThriversI was diagnosed last year stage 4 de-nova at 49. Er,pr + her 2 negative, pik3ca mutation. I started on Tamoxifin, Riboclicib and Lextrozle with...

Hello ThriversI was diagnosed last year stage 4 de-nova at 49. Er,pr + her 2 neg...

Cherry38

•6 months ago

8 Replies

First line of treatment

Well, I finally got to see my oncologist at Fred Hutchinson cancer center today. And finally a treatment plan! This all took time because I moved from South...

Well, I finally got to see my oncologist at Fred Hutchinson cancer center today....

monkeygirl62

•6 months ago

17 Replies

Has anyone experienced low blood glucose on Enhertu/trastuzamab?

I have a rare condition that affects my blood glucose. Its called Reactive hypoglycemia. Enhertu contains trastuzamab and I've found an article linking it...

I have a rare condition that affects my blood glucose. Its called Reactive hypo...

Andersl

•6 months ago

Be the first to reply

orserdu experiences

i am soon to start on this med since apparently Verzenio failed. Anybody has any experience with this?

i am soon to start on this med since apparently Verzenio failed. Anybody has a...

SMPG

•6 months ago

6 Replies

Xeloda and Zoladex?

Hi everyone, hoping someone can help clear this up for me. Last week I shifted to Xeloda from Piqray. I asked my oncologist about whether I continue with...

Hi everyone, hoping someone can help clear this up for me. Last week I shifted t...

GollyG

•6 months ago

22 Replies

Elacestrant/Orserdu

Has anyone had any experience with Elacestrant? It appears this will be my next line of treatment. Xeloda has stopped working. I know this is a newly approved...

Has anyone had any experience with Elacestrant? It appears this will be my next ...

DinNorCal

•6 months ago

13 Replies

the latest from Dana-Farber

Dana-Farber just had their 2023-24 virtual forum on metastatic breast cancer. There’s a lot of good information here. They also have separate sessions on...

Dana-Farber just had their 2023-24 virtual forum on metastatic breast cancer. T...

HelenWi

•6 months ago

8 Replies

chest pain

hello warriors, I have a mass in my chest wall and lungs, diagnosed with MBC on Jan 2021 and on ibrance and anastrozole. Scans thus far have shown no further...

hello warriors, I have a mass in my chest wall and lungs, diagnosed with MBC on ...

bockiee

•6 months ago

5 Replies

Gama Knife

Any experiences to share regarding experience and side effects? Chemo has been stopped and waiting for GK treatment to get a little pest under control that’s...

Any experiences to share regarding experience and side effects? Chemo has been ...

Ntash01

•6 months ago

4 Replies

If the metastasis is not severe (ie widespread) why not surgery first?

Hi All, I was just wondering why surgery is not more a conventional method in stage 4 metastatic breast cancer? If one has a breast tumor, and only a few...

Hi All, I was just wondering why surgery is not more a conventional method in...

JustFoundOut51

•6 months ago

17 Replies

Decision time!

After finding out I had progression to my liver in July and acute side effects to Everolimus after only 6 weeks, I have been advised there is further...

After finding out I had progression to my liver in July and acute side effects t...

Rafflesbabe

•6 months ago

13 Replies

Varying side effects or formulations?

I started on exemestane in September. Since then, the side effects keep morphing. The first month it was pretty good. My mouth was really dry, odd. I had some...

I started on exemestane in September. Since then, the side effects keep morphing...

TammyCross

•6 months ago

17 Replies

Spare/leftover/unopened drugs on offer for free

Hello all you beautiful people. Because my oncologist is taking me off the regime I’ve been on for the last five years, I have two packets of medication that...

Hello all you beautiful people. Because my oncologist is taking me off the regi...

Timtam56

•6 months ago

4 Replies

concerns about weakness and lack of coorination in left hand

I wrote a couple of days ago about "ups and downs' with this cancer. Today I saw my hand surgeon. It seemed like he was the dr. to start with. I really like...

I wrote a couple of days ago about "ups and downs' with this cancer. Today I sa...

PJBinMI

•6 months ago

14 Replies

May be deciding between Afinitor and Enhertu. Thoughts?

Hi! I had a mixd scan, so may be moving on from Orserdu. A shame as I feel great. I am on the fence between Afinitor and Enhertu. I am HER2Low. I know...

Hi! I had a mixd scan, so may be moving on from Orserdu. A shame as I feel gre...

Pbsoup

•6 months ago

27 Replies

CA 27.29 Blood Testl

My CA 27.29 has continued to rise. PET Scan showed nothing abnormal. I've been referred to Stanford Hospital and they will explore with more imagery. I am...

My CA 27.29 has continued to rise. PET Scan showed nothing abnormal. I've been ...

RedwoodLady

•6 months ago

16 Replies

Ups and Downs with this lousy cancer!

I've not posted here in awhile, not exactly sure why, but I've bad days thrown in with good day! Cancer is pretty much stable. My balance and gait are still...

I've not posted here in awhile, not exactly sure why, but I've bad days thrown i...

PJBinMI

•6 months ago

5 Replies

Tips for Xeloda

Mom is to start Xeloda next week . Looks like 1500 morning and 1500 night . I think that’s correct. She’s also on metformin right now from the anfintor and...

Mom is to start Xeloda next week . Looks like 1500 morning and 1500 night . I t...

Flower1513

•6 months ago

7 Replies

Eyebrows - what did you do for yours? (Vanity post)

Hi, wondering about your eyebrow journeys for anyone who lost some or all of yours while on chemo or other drugs? I’m 2 and a half weeks in from my first...

Hi, wondering about your eyebrow journeys for anyone who lost some or all of you...

Verbena1

•6 months ago

13 Replies

Sister who is 51, just found out she has stage 4 and we are now trying to find best path forward for her.

Hi everyone, My sister, who is 51, just found out she has stage 4 metastic breast cancer which has spread to her bone (pelvic bone and chest bone). She has...

Hi everyone, My sister, who is 51, just found out she has stage 4 metastic bre...

JustFoundOut51

•6 months ago

57 Replies

Bisphosphonate

I forgot to mention I have bone metastasis and I live in the US. Thank you.

JEE123

•6 months ago

1 Reply

Bisphosphonates

I was diagnosed with de novo metastic breast cancer about 9 months ago. I am currently on an aromatase inhibitor and Ibrance. Currently stable. I had a DEX...

I was diagnosed with de novo metastic breast cancer about 9 months ago. I am cur...

JEE123

•6 months ago

18 Replies

Article on the Author "How to Starve Cancer"

Not sure if any of you have read this book and/or implemented any of her protocols along with traditional treatments. I have followed a lot of her plan with...

Not sure if any of you have read this book and/or implemented any of her protoco...

ba5083

•6 months ago

1 Reply

Progression.

Hello all you beautiful people. I hope this finds you all doing a little better than I am today. Just please understand that I’m not devastated or shocked. I...

Hello all you beautiful people. I hope this finds you all doing a little bette...

Timtam56

•6 months ago

35 Replies

Repurpose

I cannot take that drug. Was on it 6 months and had to get off.

Burtie1

•6 months ago

2 Replies

Change to blood collection/Ibrance

3 month follow up visit with Oncologist. Oncologist advised that my bloodwork for the continuance of Ibrance is now changed to every 3 months from monthly...

3 month follow up visit with Oncologist. Oncologist advised that my bloodwork f...

Harley_31

•6 months ago

26 Replies

Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

All posts for November 2023

UTI relief

City of Hope MAST Trail

I have 3 weeks worth of Verzenio to give away

Anaemia

Progression

First line of treatment

Has anyone experienced low blood glucose on Enhertu/trastuzamab?

orserdu experiences

Xeloda and Zoladex?

Elacestrant/Orserdu

the latest from Dana-Farber

chest pain

Gama Knife

If the metastasis is not severe (ie widespread) why not surgery first?

Decision time!

Varying side effects or formulations?

Spare/leftover/unopened drugs on offer for free

concerns about weakness and lack of coorination in left hand

May be deciding between Afinitor and Enhertu. Thoughts?

CA 27.29 Blood Testl

Ups and Downs with this lousy cancer!

Tips for Xeloda

Eyebrows - what did you do for yours? (Vanity post)

Sister who is 51, just found out she has stage 4 and we are now trying to find best path forward for her.

Bisphosphonate

Bisphosphonates

Article on the Author "How to Starve Cancer"

Progression.

Repurpose

Change to blood collection/Ibrance

Search posts

Pinned Posts

Latest poll

Has this community positively impacted your breast cancer journey? If yes, please describe how in the replies below

Topics

Archive