Elacestrant/Orserdu: Has anyone had any... - SHARE Metastatic ...

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Elacestrant/Orserdu

DinNorCal profile image
13 Replies

Has anyone had any experience with Elacestrant? It appears this will be my next line of treatment. Xeloda has stopped working. I know this is a newly approved drug.

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DinNorCal
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13 Replies
NShaft profile image
NShaft

There is a group on Facebook that offers lots of advice for Orserdu. I have been on it since March and it is any easy med for me.

DinNorCal profile image
DinNorCal in reply to NShaft

Thanks, I’ll try to check that out.

1glajon profile image
1glajon

Yes I’ve been on it for 2 months and so far so good!! Tumor markers dropped from 148 to 78. No side effects!!

DinNorCal profile image
DinNorCal in reply to 1glajon

Thank you. The responses are easing my stress a bit

Flavia100 profile image
Flavia100

Just finished my first bottle…so far very easy

DinNorCal profile image
DinNorCal in reply to Flavia100

Great news!

Blondslovelife profile image
Blondslovelife

Just finished my first bottle and have not had any problems. Will get a CT in January.

DinNorCal profile image
DinNorCal in reply to Blondslovelife

Thanks for your response. Hoping your scan reveals the treatment is doing its job, and side effects remain low

Blondslovelife profile image
Blondslovelife in reply to DinNorCal

Thank you. I forgot to add that I take 258 mg a day. It's 3-86mg pills .

1glajon profile image
1glajon in reply to Blondslovelife

Me too!!

Blondslovelife profile image
Blondslovelife in reply to 1glajon

I will post the results of my scan in January.

DinNorCal profile image
DinNorCal in reply to Blondslovelife

Great, hope you have no progression on your next scan😀

NPmary profile image
NPmary

Thanks for posting and thanks to everyone who responded. I am waiting to find out if I have the mutation and can take the med. Wish you the very best, Mary. 🌺

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