Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

6,607 members • 8,142 posts

All posts for August 2023

Protocol List of meds/treatments for Oncology???

Does anyone know about a list of oncology medications and treatments per prognosis that are followed by Oncologists/Insurances in the US? In trying to get...

Does anyone know about a list of oncology medications and treatments per prognos...

SpicyChick

•9 months ago

9 Replies

Trodelvy dosage

Hello! I was wondering if anyone knew anything about Trodelvy dosages. I have had it 4 times at 100 percent dosage. 3 times have been very rough. The last...

Hello! I was wondering if anyone knew anything about Trodelvy dosages. I have ...

Ticket123

•9 months ago

5 Replies

Ibrance and Letrezole

I have been on Ibrance and Letrezole since January of 2023. I have mets to my liver. The mets have shrunk and there are no new lesions, I am afraid the...

I have been on Ibrance and Letrezole since January of 2023. I have mets to my li...

Frenchgirl69

•9 months ago

17 Replies

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preparing for surgery next week

Next Tuesday I'm having a procedure that may relieve the hand coordination issues I have. the various hand outs I got about preparing for it were...

Next Tuesday I'm having a procedure that may relieve the hand coordination issue...

PJBinMI

•9 months ago

13 Replies

Not well!!

I guess I just need to vent. I had 4 infusions of Enhertu and then a pet scan. The scan showed lung inflammation and tracheomalacia. My doc said no more chemo....

I guess I just need to vent. I had 4 infusions of Enhertu and then a pet scan. T...

Jhshl512

•9 months ago

56 Replies

Having a rough day!!!

I woke up early this morning and got up, feeling pretty good physically! But when I started opening e-mail I got so frustrated.... First, problems signingin...

I woke up early this morning and got up, feeling pretty good physically! But wh...

PJBinMI

•9 months ago

59 Replies

everolimus and Exemestane.

after taking letroazole and ibrance for 17 months , I had to stop because I had progression in my liver mets and sternum I have started taking everolimus and...

after taking letroazole and ibrance for 17 months , I had to stop because I had ...

Jenhood

•9 months ago

16 Replies

Piqray fail-only Fulvestrant now?

Hello all. As a follow up to my original post, I finally got an answer today from my oncologist that because of my Piqray fail due to the extreme hyperglycemia...

Hello all. As a follow up to my original post, I finally got an answer today fro...

Saltandlight

•9 months ago

18 Replies

Experiences w/ radiation for hip pain?

Hi, just wanted to hear some feedback on your experiences with radiation to the hip. I’ve had radiation on my hip twice before but really didn’t have much...

Hi, just wanted to hear some feedback on your experiences with radiation to the ...

Verbena1

•9 months ago

5 Replies

shaking/tremors

good morning I have been on Ibrance almost 5 years and have been on multiples of the Hormone blockers. I was just wondering if anyone has developed any kind...

good morning I have been on Ibrance almost 5 years and have been on multiples o...

Normalee1965

•9 months ago

16 Replies

Liver Mets

ok so I've started the Piqray and so far I feel pretty amazing! Not too many side effects ( taste buds are off) but I feel so much better than on Verzenio! I...

ok so I've started the Piqray and so far I feel pretty amazing! Not too many sid...

DianaSav

•9 months ago

7 Replies

California

Good morning community. I was wondering anyone lives in the Bay Area and would like to meet for tea/coffee? I just moved here and trying to build an in...

Good morning community. I was wondering anyone lives in the Bay Area and would ...

Gypsypublisher

•9 months ago

7 Replies

Enhertu

Hi all. Wondering if anyone is using enhertu? And if so, your experience. I’m scheduled to start on August 21st. This will be my 6th treatment in 5 years...

Hi all. Wondering if anyone is using enhertu? And if so, your experience. I’m ...

Gypsypublisher

•9 months ago

20 Replies

Xeloda

I was on ibrance 100 mg and anastrozel for 3.5 years. Starting Xeloda 1500 morning and 1500 night. Took me off ibrance and anastrozel because not working. I...

I was on ibrance 100 mg and anastrozel for 3.5 years. Starting Xeloda 1500 morni...

1glajon

•9 months ago

26 Replies

PET SCAN

I have never had a PET scan. Onc just says it is not necessary Any Canadians with same experience?

I have never had a PET scan. Onc just says it is not necessary Any Canadians w...

Onedayatatime60

•9 months ago

22 Replies

New MRI finding

Yesterday I had an MRI due to some back pain. I had an MRI, pet scan in February and clean CAT scan in June. Plus all of my labs have been perfect. Now...

Yesterday I had an MRI due to some back pain. I had an MRI, pet scan in Februar...

Flavia100

•9 months ago

19 Replies

Hopeful News out of Cardiff U in UK

https://www.sciencealert.com/newly-discovered-t-cells-could-rid-late-stage-cancer-patients-of-tumors

https://www.sciencealert.com/newly-discovered-t-cells-could-rid-late-stage-cance...

Trissh

•9 months ago

5 Replies

progression whilst on fulvestant and palbocilib

hi fellow warriors, hope you’re all well. Just had the results of my latest scans and they have seen some update in the T3 vertebrae. The other sites are T6...

hi fellow warriors, hope you’re all well. Just had the results of my latest sca...

BritSammy

•9 months ago

14 Replies

Orserdu

After almost 6 years of being stable on Ibrance and letrozole I now have some very small progression into both my hips. My initial metastatic disease was in...

After almost 6 years of being stable on Ibrance and letrozole I now have some ve...

HopeinNJ

•9 months ago

23 Replies

IBrance Vacation?

I’ve been on IBrance 100 and Anastrozole for three years and my scans so far have shown stable disease. I’ve tried to stay active with golf and walking. We...

I’ve been on IBrance 100 and Anastrozole for three years and my scans so far ha...

Dragonfly2

•9 months ago

59 Replies

Xeloda and Afinitor in lieu of Piqray

Hi everybody-had a horrible go with Piqray and the oncologist has taken me off but given me no alternative or solution. In seeking out a second opinion I’ve...

Hi everybody-had a horrible go with Piqray and the oncologist has taken me off b...

Saltandlight

•9 months ago

34 Replies

tumor markers with a fracture

Has anyone’s Tumor markers gone up with a fracture? Today was her third Doxil treatment and the markers went up 30 points since she fractured her vertebrae...

Has anyone’s Tumor markers gone up with a fracture? Today was her third Doxi...

Maraki

•9 months ago

5 Replies

zometa break after 6 years?

hello — anyone told its okay to take a break from quarterly zometa infusions (or any biophosphonates) after long time (over 5 years); my oncologist was certain...

hello — anyone told its okay to take a break from quarterly zometa infusions (or...

TwithBC

•9 months ago

29 Replies

Cancer breakthrough as groundbreaking pill found to ‘kill tumours’

Scientists at a leading US hospital have developed a “cancer-killing pill” that kills solid tumours through “targeted chemotherapy.” Likened to a “snowstorm...

Scientists at a leading US hospital have developed a “cancer-killing pill” that ...

Kerryd22

•9 months ago

9 Replies

Nausea on Enhurtu

HiI've had two cycles of Enhertu. One week after the first dose I suffered abdominal pain, severe headache and fatigue on days 7. I was in bed for 3 days....

HiI've had two cycles of Enhertu. One week after the first dose I suffered abdo...

Andersl

•9 months ago

12 Replies

Suggestions for pain and exhaustion 2 weeks after radiation to C3?

Hi, I had 5 radiotherapy sessions with cyberknife on the C3 about 2 weeks ago. I noticed after the 1st session that the pain on the right side of my neck got...

Hi, I had 5 radiotherapy sessions with cyberknife on the C3 about 2 weeks ago. I...

Verbena1

•9 months ago

14 Replies

Ibrance v. Kisqali

Good afternoon! Looking for information to compare Ibrance and Kiqali myself, I came across this discussion. I took Ibrance for a year and really struggled...

Good afternoon! Looking for information to compare Ibrance and Kiqali myself, I ...

Fiercelypink

•9 months ago

4 Replies

Neuropathy foot and hands

Wow i currently have neuropathy in both of my feet when i asked about this with my oncologist i was informed oh it will go away on its own. its a side...

Wow i currently have neuropathy in both of my feet when i asked about this with ...

Colorpurple521

•9 months ago

9 Replies

PET scans to CT scans

Hi! I moved recently which of course means new oncologist — I have been NED with bone only Mets since 2017 and have had PET scans only; my new oncologist is...

Hi! I moved recently which of course means new oncologist — I have been NED with...

TwithBC

•9 months ago

49 Replies

Must manage your own healthcare

Hi everyone! I’m Jennifer. Found my breast cancer because God gave me an itch right on top of my tumor. It was 26mm and not seen on the 3D mammogram. I now...

Hi everyone! I’m Jennifer. Found my breast cancer because God gave me an itch ri...

B17865

•9 months ago

9 Replies

Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

All posts for August 2023

Protocol List of meds/treatments for Oncology???

Trodelvy dosage

Ibrance and Letrezole

preparing for surgery next week

Not well!!

Having a rough day!!!

everolimus and Exemestane.

Piqray fail-only Fulvestrant now?

Experiences w/ radiation for hip pain?

shaking/tremors

Liver Mets

California

Enhertu

Xeloda

PET SCAN

New MRI finding

Hopeful News out of Cardiff U in UK

progression whilst on fulvestant and palbocilib

Orserdu

IBrance Vacation?

Xeloda and Afinitor in lieu of Piqray

tumor markers with a fracture

zometa break after 6 years?

Cancer breakthrough as groundbreaking pill found to ‘kill tumours’

Nausea on Enhurtu

Suggestions for pain and exhaustion 2 weeks after radiation to C3?

Ibrance v. Kisqali

Neuropathy foot and hands

PET scans to CT scans

Must manage your own healthcare

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