Neuropathy foot and hands

[Colorpurple521]

Wow i currently have neuropathy in both of my feet when i asked about this with my oncologist i was informed oh it will go away on its own.

its a side effect of the chemotherapy i had

1st it was the hands which was pretty bad fingernails turned black and blue and hands were numb all the time. went on line to try to figure out if there was something i could use of help with the tingling numbness but nothing really helped. i used vitamin E oil and vitamin biotin and other supplements that help with hair nails and skin. by the end of my chemo treatment my toes nails were also discolored and had broken and i didnt even know until i went to get my feet done and the nail tech told me that he had to take the nails off.

i no longer have it in my hands only my fingertips

but still i have it in my feet it is sooo annoying.

[Kerryd22]

I had a neuropathic result from Abraxane but it wasn’t as bad as yours. My fingers remained numb for around two years and suddenly were back to normal but my feet are still numb mainly on the ball of the feet and the toes but it’s not severe or really painful. I don’t like to wear heels any more but I don’t notice it very much now. I had Abraxane in 2015/2016 so I doubt my feet will ever be normal again although doctors believed that once I stopped the treatment that the tingling would go away and it basically did but was replaced by numbness. Only time will tell what your outcome will be but hopefully whatever happens it’s manageable.

All the best!

Kerry

[Northcarolinafighter]

Good morning color purple. Yes, I too had same regimen as u. I had chemo in 2015. I have neuropathy in both of my feet and just in the past year or so, if my hands get too cold either from handling frozen meat, or cold stores or outside, my fingertips turn blue and purple and it’s painful. I don’t know why all of the sudden my fingers, but not surprised I guess. My toe nails don’t grow right, and when my big toe nails get to be a certain size, they like turn color then get loose and fall off. So for me, it never went away. Just seems to have gotten worse. I do, do pot to help with my feet, and it does keep the pain at bay. But if I skip a night, I know it cause my feet will be painful the whole day. There is some kind of antidepressant that works. I used it, but I got brain zaps from it, so I stopped taking it. Those zaps, I call it that, are scary. I stopped getting my nails done, cause they r so bad. Best of luck to u.

[Iwasborntodothis]

My doc had me buy L-glutamine drink mix and take it 2xs a day - he swears by it and my neuropathy has been minimal - just in my toes. I got mine online and though it says it is flavorless, it is not - I add MIO sugar free drink flavor to it.

[Split in reply to Iwasborntodothis]

Can you please let us know Which potency drink mix? I can see they come in 300mg up to 5000mg per sachet? Did you take it only for the duration of your particular therapy or you continued later as well? Thank you!

[Iwasborntodothis in reply to Split]

Yes sorry not on internet much. 5g per serving - I did 2 scoops - so double - 2 times a day. I stopped with new treatment but he said to take it again if things changed.

[Split in reply to Iwasborntodothis]

Thank you so much!

[Fiercefighter13]

Hi there! I have been having some problems with hand/foot and neuropathy from Xeloda (chemo). It was recommended to try to take Gabapentin, or Neurontin, if those did no good, then Cymbalta (anti-depressant and pain reliever) or several of the anti-depressants from the tricycic group. I can't take the first two because they tank my blood pressure for some reason. Cymbalta raised my liver values so I stopped that one. Tricyclics also tank my blood pressure......not great. I use CBD lotion with active THC on my feet and that does o.k. for me, but not the best. If you find any good alternatives, please share them on this site, as I have been looking for something to help now since January. Hope you find a good solution, as many of us are still looking.

[RLN-overcomer]

Greetings Sister/Warrior: 😇 Years ago when I attended a breast cancer support group we had 2 people in the group who had painful foot Neuropathy. Both told me that Icy Hot along with Nerve Cream combined stopped the pain/discomfort of neuropathy😀. They told me it didn't work unless Icy Hot, and Nerve cream were combined, and applied together. I didn't realize for years that, I had Neuropathy in my legs beneath my knees, and on the bottom of my feet (no Pain), but more intensely on the bottom of my feet, (no Pain)🤔🧐. It felt like restless leg syndrome. It felt like little bugs traveling between my muscles, and my skin. I did some research, and ALA works for me . I no longer have restless leg rumbling. Only when I wear heels, for a long period of time, or workout hard doing jumping jacks, and running do I then have bottom of my foot restless rumblings🧐🤔. I am thinking of a way to make a cream/ointment from the ALA capsules. I have done this to make Benadryl ointment/cream. I bascily make Benadry ointment/cream for pennies on the dollar. Thank GOD for the Dollar stores. 😇I have also done the same thing with Claritin. I know how to dilute it down with a carrier oil, or hydrocortisone cream.😇 Why take a pill that will absorb into the entire body, when you need it to go to a smaller specific area. I believe there are many of GOD'S Garden of Eden herbs that can cure many ailments. Annie Appleseed here I come.🙃

[DianaTrapani]

I developed PN in hands and feet, mostly feet. Five years later, I still have it in both. I take gabapentin, which helps with the occasional sharp shooting pains and the constant pins and needles. It includes sensitivity to hot and cold. I do acupuncture which helps a lot. Movement, keeping feet warm also help. It will never go away.

[Oberammergaux2]

try “Wisemen” frankincense and myrrh balm. It’s available on Amazon. I had miserable neuropathy and it’s been an amazing help. I apply once or twice a day.

I’ve also found relief with acupuncture for both the neuropathy and it was the only thing to resolve lymphedema!

Hang in there