Posts - Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

21,626 members • 15,339 posts

All posts for August 2023

US Disability

I have recently contacted a legal firm to apply officially for disability due to RLS. I also have chronic pain due to degenerative disc disease in my neck, so...

I have recently contacted a legal firm to apply officially for disability due t...

Marlayna67

•10 months ago

8 Replies

REFERRAL TO NEUROLOGIST

Good morning, I've been on Ropinirole for several years and am experiencing symptoms of augmentation and obsessive behaviour patterns. I'm up to the maximum...

Good morning, I've been on Ropinirole for several years and am experiencing sym...

albax

•10 months ago

8 Replies

Losing Hope of a good life

Sitting here jerking away, feels like someone has a cattle prod stuck in my thigh and sending shocks down my leg..my foot is twisting up....I'm about done with...

Sitting here jerking away, feels like someone has a cattle prod stuck in my thig...

Hidden

•10 months ago

45 Replies

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More Methadone?

I have had RLS for decades with real relief pretty well only from the now - forbidden Pramipexole. I have been on Methadone 15 mg at bedtime for about 2 years...

I have had RLS for decades with real relief pretty well only from the now - forb...

wairoa36

•10 months ago

18 Replies

Osteoporosis meds

I've been taking a weekly Alendronic acid tablet plus daily calcium and vit D with no affect on my RLS.

I've been taking a weekly Alendronic acid tablet plus daily calcium and vit D wi...

Allyp69

•10 months ago

1 Reply

Quinine

Anyone ever hear about drinking tonic water before bedtime that contains quinine??

Anyone ever hear about drinking tonic water before bedtime that contains quinine...

Woody4

•10 months ago

3 Replies

RLS the saga continues

Hi fellow survivors As suspected, my GP refused to refer me for I/V iron suggesting that I persevere with the oral supplements for another few months. He...

Hi fellow survivors As suspected, my GP refused to refer me for I/V iron sugge...

careerSquirrel

•10 months ago

5 Replies

any success with clonidine

Has anyone had any success with clonidine for their restless legs?

Hidden

•10 months ago

4 Replies

Advice please

Following previous posts on this forum I have now, over a few months, decreased my Ropinirole from 8 tablets per day to 1 1/2 and will be decreasing to 1 per...

Following previous posts on this forum I have now, over a few months, decreased ...

milly-22

•10 months ago

4 Replies

Bone strengthening meds

I see my GP next month and I am going to discuss taking medication to protect and strengthen my bones. I was wondering if this type of medication will...

I see my GP next month and I am going to discuss taking medication to protect an...

Merny5

•10 months ago

11 Replies

RSL & surgery

Hi all Will be having surgery in a few weeks time and wondered which anti-sickness medication is best to have after GA? I know that the UK medication list...

Hi all Will be having surgery in a few weeks time and wondered which anti-sickn...

samd5555

•10 months ago

20 Replies

Advice please

Hi All. I’ve been suffering with RLS for 19 years since my first pregnancy. It’s got worse and worse over the years and the last 6 months have been awful. Not...

Hi All. I’ve been suffering with RLS for 19 years since my first pregnancy. It’s...

Somebody77

•10 months ago

32 Replies

Magnesium Glycinate

Good evening/afternoon/morning, I have decided to try magnesium glycinate for my rls. Can somebody advise the best dosage please? Thanks

Good evening/afternoon/morning, I have decided to try magnesium glycinate for ...

21years

•10 months ago

6 Replies

Pregabalin

I am currently coming of Pexola and been prescribed 25mg of Pregabalin to be taken before bed. I have also been prescribed 10mg Trepiline to be taken with the...

I am currently coming of Pexola and been prescribed 25mg of Pregabalin to be tak...

SurvivorD

•10 months ago

21 Replies

Anyone tried this?

I was just at my sleep specialist and she showed me a new device and I am just curious if anyone has tried it works by sending signals to your spine I believe...

I was just at my sleep specialist and she showed me a new device and I am just c...

Aujamw

•10 months ago

5 Replies

Kidney disease

Hi everyone,I recently had to obtain my medical records from my gp,at the very top of the list I read with horror that I have Chronic kidney disease stage 3...

Hi everyone,I recently had to obtain my medical records from my gp,at the very ...

Whymelord

•10 months ago

31 Replies

RLS and caffeine diet Pepsi

I have had RLS for years. My Mom, sister and two of my sons have it also. Most of us take Mirapex at night which works well most of the time but lately I feel...

I have had RLS for years. My Mom, sister and two of my sons have it also. Most ...

DJDeniseDJDJoe22

•10 months ago

18 Replies

difference between augmentation and rebound?

hello everyone, are these two different phenomena? My mom seems to suffer from rebound then. Still can’t figure out how to change her medications, because she...

hello everyone, are these two different phenomena? My mom seems to suffer from r...

daisydaisy26

•10 months ago

7 Replies

Pregabalin- Splitting the dose

Hi, I wondered if anyone has any advice or experience of splitting their Pregabalin dose before bedtime. I’ve had RLS for a few years, and the only...

Hi, I wondered if anyone has any advice or experience of splitting their Pregab...

Walrob66

•10 months ago

7 Replies

your help needed again.

I started pregabalin in May and the first time i took it at 150mg i started with hallucinations but slept well. I haven’t slept well on it since. I have been...

I started pregabalin in May and the first time i took it at 150mg i started with...

Jukebox55

•10 months ago

10 Replies

Buprenorphine tablets and tiredness.

I’ve been on Buprenorphine sublingual tablets at 0.6 mg for a little over 3 months. It’s difficult to trace exactly when it started, but within that time I’ve...

I’ve been on Buprenorphine sublingual tablets at 0.6 mg for a little over 3 mont...

dickJones

•10 months ago

14 Replies

Pregabalin augmentation

Ive been taking pregabalin for several years but in the last few months it doesn't seem to be so effective. Has anyone else found this?

Ive been taking pregabalin for several years but in the last few months it doesn...

gobojo

•10 months ago

2 Replies

Trialling magnesium

Been looking for an answer to RLS since my twenties. At one stage I thought the cause might be beer but managed to eliminate that as the prime suspect, thank...

Been looking for an answer to RLS since my twenties. At one stage I thought the ...

50568789

•10 months ago

13 Replies

Augmentation long term

) if I had RLS and augment on pramipexole but continued on a high dose of pramipexole what would happen to me. Could it be mistaken for dementia?...

) if I had RLS and augment on pramipexole but continued on a high dose of pramip...

Graham3196

•10 months ago

12 Replies

TARGIN NOT WORKING!!

I have been off sifrol for 6 weeks now and have been able to cope taking targin(10/5) at 9pm each night.I also take 75mg lyrica at 10 pm.I usually can go...

I have been off sifrol for 6 weeks now and have been able to cope taking targin(...

Retiredlady

•10 months ago

16 Replies

Anaesthetic and rls

Husband had a local anaesthetic for a shoulder ablation yesterday and his RLS has got worse. Can there be a connection??

Husband had a local anaesthetic for a shoulder ablation yesterday and his RLS ha...

Ephemera

•10 months ago

3 Replies

Iron infusions

I recently had the first of three iron infusions. At the time, aside from the fact the nurse had a terrible time getting a vein mothing remarkable happened....

I recently had the first of three iron infusions. At the time, aside from the f...

Truthsword

•10 months ago

2 Replies

RLS and PLMS

I find that my RLS is constantly on the way, and I have to change medicine several times a year. it has become hard to cope. so much so that I can no longer be...

I find that my RLS is constantly on the way, and I have to change medicine sever...

Johsschmidt

•10 months ago

15 Replies

Iron Levels

Hi RLS survivors So I mistakenly had my Ferratin and TST levels tested at the wrong time of the day but the readings were: Serum Ferratin level - 64ugl/L...

Hi RLS survivors So I mistakenly had my Ferratin and TST levels tested at the ...

careerSquirrel

•10 months ago

12 Replies

doctor who treats with i/v iron first?

Dear all, I remember one of the members mentioning here a doctor who uses i/v iron as first-line treatment, can you please remind me their name? Would be...

Dear all, I remember one of the members mentioning here a doctor who uses i/v ir...

daisydaisy26

•10 months ago

10 Replies

Posts - Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

All posts for August 2023

US Disability

REFERRAL TO NEUROLOGIST

Losing Hope of a good life

More Methadone?

Osteoporosis meds

Quinine

RLS the saga continues

any success with clonidine

Advice please

Bone strengthening meds

RSL & surgery

Advice please

Magnesium Glycinate

Pregabalin

Anyone tried this?

Kidney disease

RLS and caffeine diet Pepsi

difference between augmentation and rebound?

Pregabalin- Splitting the dose

your help needed again.

Buprenorphine tablets and tiredness.

Pregabalin augmentation

Trialling magnesium

Augmentation long term

TARGIN NOT WORKING!!

Anaesthetic and rls

Iron infusions

RLS and PLMS

Iron Levels

doctor who treats with i/v iron first?

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