Hello all - I am 38 years old. I have been having symptoms , intermittently, for over a year now (might be earlier, but were mild and infrequent to pay attention). For the last 1 week I have not had any sleep in the night (I fall asleep usually after 3:30 am in the morning for 2-3 hrs).
I am so glad I came across this forum, to be able to learn from the experiences of those battling this condition for long.
I gather the key aspect to manage is to calibrate the treatment (drugs) and thus having a neurologist who has had success in treating the symptoms in the long term without causing augmentation would be key.
Hoping there are people in London on this forum who could share their experiences with their neurologist and recommend one?
many thanks for your support!
Written by
MrNigam
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Sorry to hear about your issues l.I had seen Mr Muza Rexford at London Bridge hospital regarding RLS through NHS. This was pure luck though as I had seen him for another reason ( he is also a lung specialist) when I found out he specialises in Sleep distinction and RLS. He did prescribe me medication to try but I was managing my RLS through other means ( compression calf socks and a calf massager ) and given what I read about side effects I did not take medicine. Personally, I thought of him being great but I did not follow up on my RLS as I did not want medicine. I hope this helps. He did send me a PPT with information about RLS and different routes of treatment which I could post here if I found out how.
You find info on the calf massager in my previous posts if you click my name. For calf compression I found this company be good buy they don't make them anymore. You should find similar on eBay and can try different brands. Some are tighter than others. Usually runners use these: m.moremile.co.uk/more-mile-...
The socks reduce the discomfort in the calfs which is my main problem. The discomfort starts a short while after I lay down to bed and I then have to twist and turn until I fall asleep after a few houes. I also found other type of pressure helps. I usually push my legs against a firm pillow ( any other hard object helps too. Sometimes I use the mattress border) which reduces the discomfort. You may want to try that first to see if it helps.
I had RLS that prevented me from having ANY sleep( not as some posting indicaing not until 3AM). I contacted a psychiatrist his treatment gives me more than enough sleep with the medication he prescribed. Still no restless leg and perhaps too much sleep is better than before
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neurologist is recommending Clonazepam??
Should I cancel my neurologist appointment?
Great description of RLS by a neurologist in 1685, from London- Sir Thomas Willis
RLS doctors in/near London, UK?
Neurologist in South of England
