Posts - NRAS | HealthUnlocked

NRAS

36,903 members • 45,607 posts

All posts for May 2024

Benepali: Stool side effects

Hi everyone hope your having a nice day, just a quick question if your taking Benepali. Is your stool dark the day after taking the injection? I have only...

Hi everyone hope your having a nice day, just a quick question if your taking B...

Frankiefocus

•2 months ago

9 Replies

vita health group physio? & Simponi question

Hi I have ankylosing spondylitis and inject 100ml of Simponi every 4 weeks, I just had MOHs surgery for skin cancer on my nose. I got an infection so this...

Hi I have ankylosing spondylitis and inject 100ml of Simponi every 4 weeks, I ...

Km27

•2 months ago

2 Replies

Brainfog while I wait for next rituximab infusion is bothering me. I feel unsteady and forgetful

It seems to be worse these days, even though I'm sleeping a bit better than have been. But while rituximab has been great for me, the irregularity of getting...

It seems to be worse these days, even though I'm sleeping a bit better than have...

cathie

•2 months ago

26 Replies

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change of medication and drug provider

hello my nhs trust is changing my medication from Hyrimoz to Yuflyma and provider from Sciensus to Personal Homecare Pharmacy Sciensus has worked well for me...

hello my nhs trust is changing my medication from Hyrimoz to Yuflyma and provide...

Knittinggirl

•2 months ago

25 Replies

Save the date: Friday 24th May, 'Wear Purple for JIA'

Children can get arthritis too... Wear Purple is our annual campaign dedicated to raising awareness and NRAS funds for the benefit of those living with...

Children can get arthritis too... Wear Purple is our annual campaign dedicated ...

Nicola-NRAS

Administrator•2 months ago

2 Replies

Acid reflux

Hello me again! Any one have experience of coping with acid reflux. Over time I have had more symptoms of acid indigestion/reflux. I don't know if this is...

Hello me again! Any one have experience of coping with acid reflux. Over time I ...

Mouseling

•2 months ago

13 Replies

Change to Biosimilar

Hello has any one had experience of their Biological drug being changed to a Biosimilar. My Tocilizimab has just been changed over. I have had two injections...

Hello has any one had experience of their Biological drug being changed to a Bio...

Mouseling

•2 months ago

10 Replies

covid booster (Maderna)

morning all!! I have RA and I’m booked in for my annual covid booster!my concern is that from day one I’ve always had Pfizer vaccine but apparently there not...

morning all!! I have RA and I’m booked in for my annual covid booster!my concer...

Mybirthday1975

•2 months ago

87 Replies

Prednisalone

Rheaumatolgist trying me on different meds for example hydroxychloroquine now sulfasalazine both making me sick and upset stomache ,I believe it is not them...

Rheaumatolgist trying me on different meds for example hydroxychloroquine now su...

Alice70

•2 months ago

8 Replies

Button -Free Methotrexate Pen

About to start with this style of pen.Any tips to make it as comfortable as possible??

About to start with this style of pen.Any tips to make it as comfortable as poss...

13Lab

•2 months ago

28 Replies

Mycophenalate mofetil side effect - leg and abdo pain?

Hi fellow travellers........ I have been on MMF for just over a year. I have constant leg pain that varies from mild to strong with abdominal pain that...

Hi fellow travellers........ I have been on MMF for just over a year. I have...

Autolupus

•3 months ago

6 Replies

Off Topic: Elbow Surgery Waiting List

I've been on the surgery waiting list as a P3 (should be 3 months but backlogs) for 21 weeks (since 12th December) for my left elbow replacement and listed for...

I've been on the surgery waiting list as a P3 (should be 3 months but backlogs) ...

BoneyC

•3 months ago

11 Replies

Thoughts on compression gloves please?

Had a review with my rheumy yesterday. She really is lovely and was most apologetic that, although she has my RA pretty much under control, she couldn't really...

Had a review with my rheumy yesterday. She really is lovely and was most apologe...

DoricQuine55

•3 months ago

40 Replies

Haz58

Hello Haz58, I’m sorry you are having such a rotten time in sorting out the medications which you can tolerate. I could not take Azapriothine or Methotrexate...

Hello Haz58, I’m sorry you are having such a rotten time in sorting out the med...

Katiecatweazel

•3 months ago

4 Replies

How much to wait until sulfazaline works

Hello, I’m starting a treatment with sulfazaline because after of 5 years or taking hidroxicloriquine, it wasn’t work for me anymore. I started with a low...

Hello, I’m starting a treatment with sulfazaline because after of 5 years or tak...

WomanOfFaith

•3 months ago

12 Replies

biologics and Tattoos

Hi all!! I’m on metratrexate 15 ml and going to be starting on Hemira sorry for the spelling🤦🏽‍♀️I have been wondering weather any of to guys have any...

Hi all!! I’m on metratrexate 15 ml and going to be starting on Hemira sorry for...

Mybirthday1975

•3 months ago

15 Replies

Update omeprazole versus Famotodine

Well.. I've tried Famotodine since 1st May 20mg twice a day and 20mg omeprazole every other day to try to wean off it as per GP. I just can't do it! My acid is...

Well.. I've tried Famotodine since 1st May 20mg twice a day and 20mg omeprazole ...

Haz58

•3 months ago

25 Replies

knee Pain help please

I have RA (many years ) and now likely OA also in knees. Can anyone give me some advice on how to help my poor knees! Rheumatology have frankly been quite...

I have RA (many years ) and now likely OA also in knees. Can anyone give me so...

girli1111

•3 months ago

41 Replies

SIMPONI ARIA® (golimumab)

Has anyone received these infusions? Please state both good and bad if you have.

Has anyone received these infusions? Please state both good and bad if you hav...

Nana-8

•3 months ago

2 Replies

toe amputation

Hello everyone! I’m at the end of the road with metatarsal pain and hammer toe. I’ve had toe fusion in the past but toes have just drifted again and they are...

Hello everyone! I’m at the end of the road with metatarsal pain and hammer toe. ...

Cherryblossom12

•3 months ago

3 Replies

a flare up?

after some advice please… I was diagnosed with RA nearly a year ago, but have had symptoms for over 5 years. Am now on methotrexate and salophazine and have...

after some advice please… I was diagnosed with RA nearly a year ago, but have ...

Tealblue2

•3 months ago

19 Replies

Cimzia long term

Hi, I've been on cimzia for over 10 years with no side effects until recently. The last couple of doses have left me nauseous, weak, with a banger of a...

Hi, I've been on cimzia for over 10 years with no side effects until recently. ...

Mags126

•3 months ago

7 Replies

Cool packs

Can anyone recommend good reusable cool packs? I get swelling on both inner wrists, but also aI actually am very sensitive to any weight laying on wrists. ( I...

Can anyone recommend good reusable cool packs? I get swelling on both inner wris...

hazelcats

•3 months ago

9 Replies

More Amazing Research Developments

(Copied from a Thyroid UK post) Found: the dial in the brain that controls the immune system Scientists identify the brain cells that regulate...

(Copied from a Thyroid UK post) Found: the dial in the brain that controls the ...

CallMeSunny

•3 months ago

4 Replies

blue badge

Just want to say thank you very much for the replies concerning my blue badge. Still trying to get my head around this. Once again, thank you for your very...

Just want to say thank you very much for the replies concerning my blue badge. ...

orange33

•3 months ago

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Smelly urine with Methotrexate

I’ve been on the injection for four weeks now and I have really bad smelly urine . Is this a common side effect please ?

I’ve been on the injection for four weeks now and I have really bad smelly urine...

Beachwalk

•3 months ago

17 Replies

Etanercept

Can glaucoma be a side effect of etanercept. I was diagnosed with glaucoma shortly after starting on etanercept in February this year. Maybe the fuzzy eyes...

Can glaucoma be a side effect of etanercept. I was diagnosed with glaucoma shor...

PaliBen13

•3 months ago

4 Replies

Steroid injection and surgery

Hi all , I'm just wondering if anyone knows how long you have to wait after steroid injection in the bottom before having gallbladder removal I've been told...

Hi all , I'm just wondering if anyone knows how long you have to wait after ste...

Trishfrog1

•3 months ago

13 Replies

off topic. Is payment for carers tax deductible?

hi I don’t know where else to find out this information. My friend is a pensioner who pays income tax He is weekly paying a carers bill of approximately...

hi I don’t know where else to find out this information. My friend is a pens...

Jacorandax

•3 months ago

5 Replies

blue badge

can anybody here give me any advice please. Applied for the renewal of my blue badge sent off all the relevant information it came back they need more...

can anybody here give me any advice please. Applied for the renewal of my blue ...

orange33

•3 months ago

23 Replies

Posts - NRAS | HealthUnlocked

NRAS

All posts for May 2024

Benepali: Stool side effects

vita health group physio? & Simponi question

Brainfog while I wait for next rituximab infusion is bothering me. I feel unsteady and forgetful

change of medication and drug provider

Save the date: Friday 24th May, 'Wear Purple for JIA'

Acid reflux

Change to Biosimilar

covid booster (Maderna)

Prednisalone

Button -Free Methotrexate Pen

Mycophenalate mofetil side effect - leg and abdo pain?

Off Topic: Elbow Surgery Waiting List

Thoughts on compression gloves please?

Haz58

How much to wait until sulfazaline works

biologics and Tattoos

Update omeprazole versus Famotodine

knee Pain help please

SIMPONI ARIA® (golimumab)

toe amputation

a flare up?

Cimzia long term

Cool packs

More Amazing Research Developments

blue badge

Smelly urine with Methotrexate

Etanercept

Steroid injection and surgery

off topic. Is payment for carers tax deductible?

blue badge

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