change of medication and drug provider

[Knittinggirl]

hello my nhs trust is changing my medication from Hyrimoz to Yuflyma and provider from Sciensus to Personal Homecare Pharmacy Sciensus has worked well for me and I wondered if anyone has had experience of Personal Homecare Pharmacy thanks

[Hezekiah]

I confess I've not come across Personal Homecare Pharmacy before. A quick Google shows they do not seem to be evaluated on Trustpilot, but there are a few review comments here

speedtest.fastbase.com/leic...

Unfortunately, it's a very mixed bag, so may not be of much use to you.

[Knittinggirl in reply to Hezekiah]

Thanks for the reply I did google the company but never thought to look at reviews 🥴 I’ll wait and see what happens and hope it’s ok!! 😊

[pammi2]

i am about to change to yuflyma but scared to, any advise

[Knittinggirl in reply to pammi2]

Hi Pammi2 I’ve not been given the new drug yet but was originally on Humira and changed to Hymiroz with no problems the ingredients are supposed to be the same just cheaper so more people can benefit according to my health authority! Will keep an eye on things and use nurse helpline and write to consultant who doesn’t seem to have email! If things change! So keep an open mind and try not to worry easier said than done but give it a try and report problems concerns to your consultant! I’m still waiting for my welcome pack take care x

[pammi2]

hi there , i been on enbrel for 10 years but not working now and I am sure i was going to be put o Humira but been sent Yuflyma, which is a version of Humira, I keep seeing the 142 list of side effects on the Yuflyma leaflet and it is putting me off, I emailed the nurses and called them yesterday, no reply

[Knittinggirl in reply to pammi2]

Everyone reacts differently to drugs and the side effects all have to be listed Personally Humira was my life saver try getting in touch with the nurse again or can you speak to someone at NRSA for support? Wish you well x

[pammi2]

thanks i have spoken to rhuemy yesterday and he basically said, i need to take this one as it has the same side effects as enbrel and if i dont i have risk of heart failure and cancers which is the bigger risk?? anyway i have taken it, lets see

[Knittinggirl]

oh Pammi doesn’t sound much of a choice but if enbrel has been working then hopefully so will the new drug fingers crossed it does so try and be positive I tend to only read the first few side effects as my mind dwells on things too much !! Take care and good luck xx

[pammi2]

well its only been a few days since taking the injection and OMG the pain in my hands / palms / finger joints, under my feet and my ankles is unbearabel, it is worse than before, is this normal while chaning iinection from entercept to yuflyma ?

[KittyJ in reply to pammi2]

Until your med starts to work then of course your pain and inflammation can get worse as your RA isn’t controlled, hopefully it won’t be too long before it starts to work. 🤞🏻

[pammi2 in reply to KittyJ]

i have never in 15 years had this much pain in this many areas deep inside my palms feet and hand joints,like i have been hammered to death and have broken every bone in my hands and feet

[Knittinggirl]

oh dear pammi that sounds awful can you get in touch with the nurse or doctor? Can you take any pain relief in the meantime? Did you get a welcome pack for the change that might have some helpful information? Sorry not to be much help ☹️

[pammi2]

i did get a welcome pack but my hands are bad at moment and it is more depressing to read as when i opened upthe eafelet i counted the 142 side effects so dont want o read any more i have emailed the nurse, if she bothers to come back to me

[Knittinggirl in reply to pammi2]

Oh dear sorry that I can’t offer any help other than sympathy not much help but hopefully this will pass and the nurse may help you could also try the support people on NRAS try and stay positive easy for someone else to say I know but can you binge watch on tv or listen to some music to take your mind off the pain! Of course we know to move too !!!! Take care will be thinking about you xx

[Knittinggirl in reply to pammi2]

Hi pammi how are you getting on has the pain eased?

[pammi2 in reply to Knittinggirl]

thanks for asking but toay myfingers and hands and palms are stiff as hell

[Knittinggirl in reply to pammi2]

Hi pammi was just wondering how you are? Hope the pain has eased 😊

[pammi2 in reply to Knittinggirl]

you want to know

my hands are so bad i want to chop them off

my left hand right finger was th eonly finger wiht NO ra, it NOW has RA.

i have new nodule on left thumb

my rihgt fourth digit feels locked

sometimes my fingertips go cold

i am opening cupbards with teatowels

i had neuroma on right foot oad i now feel something in left foot pad

i cant straighten my fingers or lay themflat

i have ugly hands that are thorbbing painful and stiff

i contacted the rhuematology HE SAID I HAVE TO PERSAVER AND GIVE IT 3-6 months for injection to work, i have taken twie not noticed an miniscle of difference

i contacted RA nurses who are supposed to be your dupport two days ago NO REPLy

I contacted my GP who has referred me to hand person, sent me a letter referral to choose hospital, when to choose it it said 19 weeks251 days waiting list then it said NO appointments availabe

so basically NO ONe Cares and in the mean time I am beeing crippled permantely

but thank you for asking

[KittyJ in reply to pammi2]

These meds can take a while to work and we do have to persevere because there’s no quick fix so I’d go back to your GP and ask for some help until they start to work, they can help you, push for it 🤞🏻

[pammi2 in reply to KittyJ]

that is my gps help to see someone who deals with hands 251 days waiting list bu tno appointments

[KittyJ in reply to pammi2]

But your GP can help you with pain meds etc while you wait is what I meant.

[pammi2 in reply to KittyJ]

yes paracetomol ibubpropehn co codamol, you can take what yu like that is not the solution , i also noticed last few days my fingers going a bit blue like lack of blood getting there gp said could be side effect of new injection yuflyma

[TheBoys]

hi

I am in the same position as you and wanted to ask how your experience with personal home care/yuflyma is going?

I am very worried and unhappy about being changed over

Paul

[Knittinggirl in reply to TheBoys]

Hi Paul bit annoyed about the change of drugs too but hope the drugs works the same ! Personal care have so far been very good with phone calls to arrange delivery etc it’s a pen not syringe but they offered a virtual nurse but I’m hoping to follow the video instructions! The delivery arrived as promised with the drugs sharp box and welcome pack and the driver took the old sharps bin! However I’ve not yet used the drug due to inject on Monday Will let you know how it goes 🥴 !

[TheBoys in reply to Knittinggirl]

Ahh that sounds promising.

Hope it goes well with the injection!