Posts - NRAS | HealthUnlocked

NRAS

36,717 members • 45,345 posts

All posts for May 2024

Abatacept problem

I have been started on Abatacept with one lesson in its use. The next one to check I could cope was cancelled three weeks ago and I have not heard from the...

I have been started on Abatacept with one lesson in its use. The next one to che...

Shonkie

•15 days ago

10 Replies

Swollen feet/ankles

Does anyone know if amitriptyline can cause feet and ankles to swell quite badly?I've been on them since last December. Thank you. Many thanks for all your...

Does anyone know if amitriptyline can cause feet and ankles to swell quite badly...

ABwn

•16 days ago

7 Replies

New style methotrexate pens

I used my 1st new injection pen this morning and I can honestly say I found it so much easier than the push button one. You hardly need to press down on it...

I used my 1st new injection pen this morning and I can honestly say I found i...

Bootoo

•16 days ago

17 Replies

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Sleepy Anyone?

Had Covid jab two weeks ago. Since then I have felt very tired. Not waking up before 11am. Usually awake by 9 am until 12 in the evening Now feel like I am...

Had Covid jab two weeks ago. Since then I have felt very tired. Not waking up be...

Green230461

•16 days ago

2 Replies

Awful night sweats and generalised sweating on exertion

Hello All. I know what a wealth of experience and help there is on this forum. I’m on Mtx injections and Hydroxychloroquine for RA. I have been experiencing...

Hello All. I know what a wealth of experience and help there is on this forum. ...

Gillyd62

•16 days ago

29 Replies

Swapping/stopping mtx

Hello, I don’t often post here but I’m feeling very low and need some advice. I’ve had RA since 2012 (diagnosed at 32), I was started on mtx and then...

Hello, I don’t often post here but I’m feeling very low and need some advice. I...

Scooooby

•16 days ago

5 Replies

off topic

Well my husband has just had an email from NHS his cardiologist has said suitable for new heart medication. That is such good news, they’ve got an email going...

Well my husband has just had an email from NHS his cardiologist has said suitabl...

medway-lady

•16 days ago

7 Replies

Any advice

Hi I’ve gone down a very long road of years of pain swelling but Ana negative. Over a year ago I started with pleural effusion bilateral then pericardial...

Hi I’ve gone down a very long road of years of pain swelling but Ana negative. O...

Numptybrain

•16 days ago

8 Replies

Severe pain in Hips

Hello all, I haven’t been on this section for a long time, due to my many other conditions like Rheumatoid Arthritis & newish one, Smouldering Myeloma...

Hello all, I haven’t been on this section for a long time, due to my many other...

Shamrockgirl

•17 days ago

8 Replies

Hay fever!

I am on MTX and COSENTYX I have had hay fever in the past, but not for several years. This weekend I am struggling desperately. Is it safe to take anti...

I am on MTX and COSENTYX I have had hay fever in the past, but not for several y...

Gilliancheche

•17 days ago

8 Replies

Double diagnosis

Hi has anyone on here been diagnosed with both RA and psoriatic arthritis? If so would you mind telling me what drugs you are on? I am seropositive rheumatoid...

Hi has anyone on here been diagnosed with both RA and psoriatic arthritis? If so...

Shelby37

•17 days ago

10 Replies

blue badge update

refused renewal of blue badge. Haven’t got an answer as to why. Not quite sure where to go from here. This decision has caused me severe anxiety. Might try...

refused renewal of blue badge. Haven’t got an answer as to why. Not quite sure...

orange33

•17 days ago

13 Replies

Abatacept shortage

Hi all. I posted a couple of weeks ago that I was going to start Abatacept as the Tocilizumab didn’t work 🙄. My consultant has contacted me to say there is a...

Hi all. I posted a couple of weeks ago that I was going to start Abatacept as th...

Hiphopsix

•18 days ago

13 Replies

Off topic it’s a hard life!

This is the life, after a few months of issues I’m now chilled and relaxed. It’s a warm 26 today and I’m in the shade. I just wanted to say that life doesn’t...

This is the life, after a few months of issues I’m now chilled and relaxed. It’...

medway-lady

•18 days ago

12 Replies

Off Topic new arrival

Good morning lovely people and what a glorious morning it is. I just had to share our newest adoption 'cos she is so beautiful. May I introduce Purdey, a...

Good morning lovely people and what a glorious morning it is. I just had to shar...

Gnarli

•18 days ago

77 Replies

Benepali: Stool side effects

Hi everyone hope your having a nice day, just a quick question if your taking Benepali. Is your stool dark the day after taking the injection? I have only...

Hi everyone hope your having a nice day, just a quick question if your taking B...

Frankiefocus

•18 days ago

7 Replies

vita health group physio? & Simponi question

Hi I have ankylosing spondylitis and inject 100ml of Simponi every 4 weeks, I just had MOHs surgery for skin cancer on my nose. I got an infection so this...

Hi I have ankylosing spondylitis and inject 100ml of Simponi every 4 weeks, I ...

Km27

•18 days ago

2 Replies

Brainfog while I wait for next rituximab infusion is bothering me. I feel unsteady and forgetful

It seems to be worse these days, even though I'm sleeping a bit better than have been. But while rituximab has been great for me, the irregularity of getting...

It seems to be worse these days, even though I'm sleeping a bit better than have...

cathie

•19 days ago

26 Replies

change of medication and drug provider

hello my nhs trust is changing my medication from Hyrimoz to Yuflyma and provider from Sciensus to Personal Homecare Pharmacy Sciensus has worked well for me...

hello my nhs trust is changing my medication from Hyrimoz to Yuflyma and provide...

Knittinggirl

•19 days ago

2 Replies

Save the date: Friday 24th May, 'Wear Purple for JIA'

Children can get arthritis too... Wear Purple is our annual campaign dedicated to raising awareness and NRAS funds for the benefit of those living with...

Children can get arthritis too... Wear Purple is our annual campaign dedicated ...

Nicola-NRAS

Administrator•20 days ago

2 Replies

Acid reflux

Hello me again! Any one have experience of coping with acid reflux. Over time I have had more symptoms of acid indigestion/reflux. I don't know if this is...

Hello me again! Any one have experience of coping with acid reflux. Over time I ...

Mouseling

•20 days ago

13 Replies

Change to Biosimilar

Hello has any one had experience of their Biological drug being changed to a Biosimilar. My Tocilizimab has just been changed over. I have had two injections...

Hello has any one had experience of their Biological drug being changed to a Bio...

Mouseling

•20 days ago

9 Replies

covid booster (Maderna)

morning all!! I have RA and I’m booked in for my annual covid booster!my concern is that from day one I’ve always had Pfizer vaccine but apparently there not...

morning all!! I have RA and I’m booked in for my annual covid booster!my concer...

Mybirthday1975

•20 days ago

82 Replies

Prednisalone

Rheaumatolgist trying me on different meds for example hydroxychloroquine now sulfasalazine both making me sick and upset stomache ,I believe it is not them...

Rheaumatolgist trying me on different meds for example hydroxychloroquine now su...

Alice70

•20 days ago

8 Replies

Button -Free Methotrexate Pen

About to start with this style of pen.Any tips to make it as comfortable as possible??

About to start with this style of pen.Any tips to make it as comfortable as poss...

13Lab

•20 days ago

28 Replies

Mycophenalate mofetil side effect - leg and abdo pain?

Hi fellow travellers........ I have been on MMF for just over a year. I have constant leg pain that varies from mild to strong with abdominal pain that...

Hi fellow travellers........ I have been on MMF for just over a year. I have...

Autolupus

•21 days ago

6 Replies

Off Topic: Elbow Surgery Waiting List

I've been on the surgery waiting list as a P3 (should be 3 months but backlogs) for 21 weeks (since 12th December) for my left elbow replacement and listed for...

I've been on the surgery waiting list as a P3 (should be 3 months but backlogs) ...

BoneyC

•21 days ago

11 Replies

Thoughts on compression gloves please?

Had a review with my rheumy yesterday. She really is lovely and was most apologetic that, although she has my RA pretty much under control, she couldn't really...

Had a review with my rheumy yesterday. She really is lovely and was most apologe...

DoricQuine55

•21 days ago

38 Replies

Haz58

Hello Haz58, I’m sorry you are having such a rotten time in sorting out the medications which you can tolerate. I could not take Azapriothine or Methotrexate...

Hello Haz58, I’m sorry you are having such a rotten time in sorting out the med...

Katiecatweazel

•21 days ago

4 Replies

How much to wait until sulfazaline works

Hello, I’m starting a treatment with sulfazaline because after of 5 years or taking hidroxicloriquine, it wasn’t work for me anymore. I started with a low...

Hello, I’m starting a treatment with sulfazaline because after of 5 years or tak...

WomanOfFaith

•22 days ago

12 Replies

Posts - NRAS | HealthUnlocked

NRAS

All posts for May 2024

Abatacept problem

Swollen feet/ankles

New style methotrexate pens

Sleepy Anyone?

Awful night sweats and generalised sweating on exertion

Swapping/stopping mtx

off topic

Any advice

Severe pain in Hips

Hay fever!

Double diagnosis

blue badge update

Abatacept shortage

Off topic it’s a hard life!

Off Topic new arrival

Benepali: Stool side effects

vita health group physio? & Simponi question

Brainfog while I wait for next rituximab infusion is bothering me. I feel unsteady and forgetful

change of medication and drug provider

Save the date: Friday 24th May, 'Wear Purple for JIA'

Acid reflux

Change to Biosimilar

covid booster (Maderna)

Prednisalone

Button -Free Methotrexate Pen

Mycophenalate mofetil side effect - leg and abdo pain?

Off Topic: Elbow Surgery Waiting List

Thoughts on compression gloves please?

Haz58

How much to wait until sulfazaline works

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