Posts - NRAS | HealthUnlocked

NRAS

36,607 members • 45,226 posts

All posts for March 2024

does everyone take methotrexate?

hi all, I’ve been having a bit of a rough ride with RA recently, i don’t seem to be able to get my condition under very good control unless I take...

hi all, I’ve been having a bit of a rough ride with RA recently, i don’t seem t...

Claire32

•2 months ago

23 Replies

Comfortable bike saddle?

I have just gone back to cycling using an E-bike. It has taken me over a year to get the bike set up right for me. An ongoing problem is pain in the base of my...

I have just gone back to cycling using an E-bike. It has taken me over a year to...

Nonnas

•2 months ago

10 Replies

RA and vibrating feet feeling

I have a vibration feeling in feet getting constant very annoying worse after walking but at rest too and some balance issues. I don't feel the RA is too bad...

I have a vibration feeling in feet getting constant very annoying worse after wa...

welsh12

•2 months ago

16 Replies

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Rheumatology second opinion appointment

Hello everyone, so my husband had his second opinion with another NHS rheumatologist yesterday (same hospital), and I'd really appreciate people's thoughts on...

Hello everyone, so my husband had his second opinion with another NHS rheumatolo...

RosyrosyD

•2 months ago

52 Replies

Tinnitus now whooshing and pulsating

Whooshing along with heartbeat/pulse. It’s intermittent but happening quite often. NHS says to contact GP and ask for an urgent appointment for pulsating...

Whooshing along with heartbeat/pulse. It’s intermittent but happening quite ofte...

Brushwork

•2 months ago

20 Replies

Flare Ups - Winter

Just a bit of a moan or rant but : does anyone else get worse pain in Winter - especially now at the end of the season in March I’ve been dieting to lose...

Just a bit of a moan or rant but : does anyone else get worse pain in Winter - e...

TheBoys

•2 months ago

12 Replies

Request for advice looking for possible new diagnosis

Hi, this is my first time back on the forum after a few years break just bimbling along whilst struggling as we all do. But I've really hit a wall. I've also...

Hi, this is my first time back on the forum after a few years break just bimblin...

Wispymisty

•2 months ago

6 Replies

Happy International Women's Day

Happy International Women's Day to all my NRAS forum friends and staff. What a robust, pragmatic and sometimes just plain 'silly' bunch we are. You make me...

Happy International Women's Day to all my NRAS forum friends and staff. What a r...

Mmrr

•2 months ago

10 Replies

Prednisolone and constipation

I believe prednisolone is now causing my constipation. I have used Lactulose in the past. Any info or tips gratefully received. Thanks in advance.

I believe prednisolone is now causing my constipation. I have used Lactulose in...

SALI

•2 months ago

29 Replies

'Helpline' number - so this doesn't happen again

Diagnosed with Sjorgens July 2023 and I started hydroxychloroquine in August 2023. I was told to have monthly blood tests and they would see me in February...

Diagnosed with Sjorgens July 2023 and I started hydroxychloroquine in August 202...

Quinni

•2 months ago

28 Replies

Infusions

Biological withdrawn because of cancer. Steriods not controlling swelling. Consultant may consider infusions every 6 months Big BUT dependant on oncology...

Biological withdrawn because of cancer. Steriods not controlling swelling. Cons...

SALI

•2 months ago

8 Replies

ongoing health issues

As many of you know, I had foot surgery 4 weeks ago. Unfortunately, the wound isn’t healing well, so I’m now 6 weeks off my MTX and benepali. On Sunday at 1am...

As many of you know, I had foot surgery 4 weeks ago. Unfortunately, the wound is...

Runrig01

•2 months ago

38 Replies

Finally got my Neurosurgeon appointment!

Hi all, Well after waiting almost a year, I saw the neurosurgeons at Sheffield Royal Hallamshire. The consultant offered me some bleak options, have cervical...

Hi all, Well after waiting almost a year, I saw the neurosurgeons at Sheffield ...

Kati66

•2 months ago

17 Replies

Benepali side effects

Hi Everyone,I'm back here again after my previous 8 months with Methotrexate proved unsuccessful. Having seen a fabulous Rheumatologist specialist I was put...

Hi Everyone,I'm back here again after my previous 8 months with Methotrexate pro...

cyprusmum

•2 months ago

15 Replies

shift work

Hi all, so glad I found this group.Diagnosed 10 years ago and have always worked night shifts, I’m now being told I must work 12 hour days (7-7.30)as well even...

Hi all, so glad I found this group.Diagnosed 10 years ago and have always worked...

Nitenurse63

•2 months ago

4 Replies

KNEE SURGERY?

High folks, went to see my consultant a few days ago, asked when I was getting my 1st surgery and we discovered I am NOT on the waiting list. This is...

High folks, went to see my consultant a few days ago, asked when I was getting m...

Ritaritis

•2 months ago

6 Replies

Off topic - New grandson!

Thanks for your support over the last few months folks, it has and still is getting me through some dark days. But I'd like to share a moment of light....my...

Thanks for your support over the last few months folks, it has and still is gett...

HeadInASpin

•2 months ago

14 Replies

Rheumatoid arthritis since 1995

Hi,I was diagnosed with ra 1996,been on various drugs over the years,I'm taken methotrexate self injection and rituximab infusion, I've had 2 operations on my...

Hi,I was diagnosed with ra 1996,been on various drugs over the years,I'm taken m...

Justlucy

•2 months ago

10 Replies

Bee venom

I was wondering if any of you lovely people on here has tried bee venom gel for pain relief. I was told about it the other day and have done some research but...

I was wondering if any of you lovely people on here has tried bee venom gel for ...

Purple-rose

•2 months ago

8 Replies

tiredness

I seem to be tired all the time, and fall asleep when I get in from work about 4 pm. Has anyone found a way to alleviate the tiredness.

I seem to be tired all the time, and fall asleep when I get in from work about ...

Toiletseat

•2 months ago

15 Replies

Pain at it's highest level (2)

Thanks so much to everyone who responded to my post 6 days ago, just having someone to hear me was a blessing on it's own. I managed to get to hospital 4 days...

Thanks so much to everyone who responded to my post 6 days ago, just having some...

Nottobad123

•2 months ago

28 Replies

adalimumab

I’ve been taking this Biologic for about six months now alongside high dose methotrexate injections which I have had for a couple of years. Since starting...

I’ve been taking this Biologic for about six months now alongside high dose meth...

Amb1xkr

•2 months ago

8 Replies

Michelle

I started off with PMR 9 years ago and then developed GCA, I'm sure I still have PMR, but Doctor begs to differ, I came off steroids 2 years ago, because I was...

I started off with PMR 9 years ago and then developed GCA, I'm sure I still have...

Healthliving

•2 months ago

11 Replies

Heavy cold

Apologies if this seems quite trivial but I have had a heavy cold for the past 2/3 days which at present is getting worse. Have tested negative for Covid so...

Apologies if this seems quite trivial but I have had a heavy cold for the past 2...

Hightower62

•2 months ago

14 Replies

Leflunamide and hair changes

Hi. I've been on leflunamide now for seven years and for the last few years have noticed my previously straight hair turning very curly in parts. I've just...

Hi. I've been on leflunamide now for seven years and for the last few years have...

Julia31

•2 months ago

15 Replies

RA - flu like symptoms for weeks

Hi, I was diagnosed with RA 8 months ago. I’ve been taking hydroxychloroquine and methotrexate and this has stopped the swelling I previously had in my...

Hi, I was diagnosed with RA 8 months ago. I’ve been taking hydroxychloroquine an...

Posseteria

•2 months ago

16 Replies

Sulphasalazine

Hi Everyone. I have been taking 500mg twice a day for around 18 months. Although medication works reasonably well, with few side effects, I have raised...

Hi Everyone. I have been taking 500mg twice a day for around 18 months. Althou...

RivieraSun

•2 months ago

8 Replies

Memory issues ??

Hi 👋 I havnt posted in a while ,however I have had long standing JCA/RA among the rest that goes with it like MCTD . So after years of intense treatment from...

Hi 👋 I havnt posted in a while ,however I have had long standing JCA/RA among t...

Weemillie

•2 months ago

15 Replies

RA and heart conditions

I am living in a long-term care home for almost a year. Dec 2023 I was sick with flu and in isolation. Jan 2024 I had RSV, given antibiotics, Feb 2024 I...

I am living in a long-term care home for almost a year. Dec 2023 I was sick wit...

Angels-delight

•2 months ago

11 Replies

Hospital

Here I am, back in hospital again, for the same reason as last time. Our ambulance service is good but there aren’t enough of them. Both times I’ve been...

Here I am, back in hospital again, for the same reason as last time. Our ambulan...

helenlw7

•2 months ago

24 Replies

Posts - NRAS | HealthUnlocked

NRAS

All posts for March 2024

does everyone take methotrexate?

Comfortable bike saddle?

RA and vibrating feet feeling

Rheumatology second opinion appointment

Tinnitus now whooshing and pulsating

Flare Ups - Winter

Request for advice looking for possible new diagnosis

Happy International Women's Day

Prednisolone and constipation

'Helpline' number - so this doesn't happen again

Infusions

ongoing health issues

Finally got my Neurosurgeon appointment!

Benepali side effects

shift work

KNEE SURGERY?

Off topic - New grandson!

Rheumatoid arthritis since 1995

Bee venom

tiredness

Pain at it's highest level (2)

adalimumab

Michelle

Heavy cold

Leflunamide and hair changes

RA - flu like symptoms for weeks

Sulphasalazine

Memory issues ??

RA and heart conditions

Hospital

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