Rheumatoid arthritis since 1995: Hi,I was diagnosed... - NRAS

NRAS

36,584 members45,195 posts

Rheumatoid arthritis since 1995

Justlucy profile image
10 Replies

Hi,I was diagnosed with ra 1996,been on various drugs over the years,I'm taken methotrexate self injection and rituximab infusion, I've had 2 operations on my feet joints removed and fused,I'm 65 still working which is a struggle,two year ago I was awarded the lower living pip no mobility pip,how do I go on to see if I'm eligible to be accessed again I'm struggling so much everyday to walk and pick things up I'm off work more with fatigue stiffness I've alway tried to not let it get me down ,I hate going to sleep pain on waking up take hour to get going.thank you .x

Written by
Justlucy profile image
Justlucy
To view profiles and participate in discussions please or .
Read more about...
10 Replies
KittyJ profile image
KittyJ

First off have you spoken to your rheumy team as if your RA is not under control/ getting worse you should let them know, maybe your meds need a review? I know that’s not straightforward with rtx.

Have you spoken to your employer about reasonable adjustments at work to help you? NRAS do publications that will advise you on this and what your employer should be doing.

nras.org.uk/product/an-empl...

nras.org.uk/product/i-want-...

With regards to PIP you need to call them and tell them of a change of circumstances but be aware they will look at your whole claim again and it could result in less than you get now. How long is it until review as it might be best to wait until then if it’s not far off. Have a read of this to decide what to do,

gov.uk/pip/change-of-circum...

I hope this helps you. 🤞🏻

welsh12 profile image
welsh12 in reply to KittyJ

Great advice Kitty

Justlucy profile image
Justlucy in reply to KittyJ

Thank you.x

Spanelmad profile image
Spanelmad

You've clearly stated that you feel your condition has changed so all you need to do is call the dwp pip phone line.

Justlucy profile image
Justlucy in reply to Spanelmad

Thank you.x

welsh12 profile image
welsh12

Also if you can get someone who knows how to word your changes for pip do so unfortunately it can be hit and miss even though you clearly sound eligible

Justlucy profile image
Justlucy

@thank you.

BoneyC profile image
BoneyC

I would suggest if you are going to call the DWP, read up about PIP on the Benefits and Work website first.

ExAcc profile image
ExAcc

Make sure you contact them before you reach state retirement age as after that they don't tend to increase your PIP award. Good Luck

KittyJ profile image
KittyJ in reply to ExAcc

Good point ExAcc

You may also like...

Rheumatoid arthritis

Hi everyone I'm a 62 year old and have been diagnosed in September 2014 with RA. I'm taking 20mg of

Rheumatoid arthritis

arthritis for nearly 20 years,I’ve never been a poorly person but since October last year I’ve...

Rheumatoid arthritis

take up to twelve weeks for the medication to work . Even if I had one day without pain would be...

Rheumatoid arthritis

Hi I have had rheumatoid arthritis for 16 years. My hands are the worst affected, has any body any...

Rheumatoid arthritis

Hi everyone I'm at a loss with my GP I rang for a prescription on Friday for my Methotrexate and...