RA and vibrating feet feeling

[welsh12]

I have a vibration feeling in feet getting constant very annoying worse after walking but at rest too and some balance issues. I don't feel the RA is too bad at moment bloods ok.Any one have this? Neuropathy? Treatment? I am speaking to Rheumatoid nurse on Tuesday but don't get long on phone so want to be prepared. Wanted to speak to her before GP.I have othodonics in shoes.

[AgedCrone]

Ask your Rheumy nurse if you could try compression socks. I took no notice of them until I recently read an article about them,& I really do think they have helped …especially with the unbalanced feeling you get with neuropathy. Might be a 5 minute wonder..,,but anything not too drastic Is worth a try!

[welsh12 in reply to AgedCrone]

Thanks yes I have some given to me after minor op which were fitted so will try

[pammi2]

Are you on prednisolone ?

[welsh12 in reply to pammi2]

No

[Jimminey]

I have had RA for over 5 years (mainly hands, wrists, shoulders and knees). I had swollen toes for many months but now the swelling is mainly at the base/balls of the toes/top of the feet and the rheumatologist is unsure about whether it is RA or CRPS (complex regional pain syndrome - I think it's RA. I started to notice vibrations in my feet about 4 years ago - at first I thought it was the ground vibrating! I've told my rheumatologist about it and have been to see a vascologist who said at the examination that there didn't seem to be anything wrong with my blood vessels but that he would need to study the results and make a report - which I'm still waiting for after 10 months. So basically still none the wiser and they still vibrate at times, but not all the time - mostly not I think.

[welsh12 in reply to Jimminey]

Thanks I will let you know what they say to me going to raise it.

[welsh12 in reply to Jimminey]

I would follow up on that report

[Tealblue2]

I noticed this first 3 years ago (was told it was linked to covid - but no know differently) I have pain in my foot too, as well a a vibration feeling - but it’s not pantia fasciitis- when I’ve over done the movement and exercise I get it whether moving or at rest. The neurologist thought it was vascular- but said they’d never get to the bottom of it - I’ve used gel insoles in my shoes that sometimes relieves it. Generally I only wear flat supportive shoes now as even a slight heal can cause me issues.

[welsh12 in reply to Tealblue2]

Thanks yes flat shoes. I have insoles and have seen podiatry for advice. I get a sense from posts that rheumatology not too interested in our feet issues. I do feel off balance so probably need things ruled out.

[Impie]

I also have what I call buzzing hands and feet it feels like blood is hot and racing around. I don't always have it and it seems to be present for a few.months and then go again. Worse in hands. Good luck I'll be interested to see what nurse says x

[PianoPlayer11]

Hi . I also get that feeling in the soles of my feet. Like you it’s worse after walking. Sorry I don’t have any suggestions about how to manage it.

[welsh12]

Update after speaking to rheumatoid nurse she had nothing to say about the vibrating so called GP they will only offer the physician associate in 2 weeks bad experience of her. Very poor practice.So no point will wait for gp appointment which they won't leave me book at the moment. Seeing Rheumatology in early April and will have to get assertive!!

[Garnacha]

I know I'm late with this reply 🙄 but I had the same as you, I was referred for neuropathy tests & everything seemed fine but, I was on lefluminode (aswell as other meds) I'd heard that this can cause vibrations & after 2 years decided I'd had enough.

I stopped taking it in June last year & slowly the vibrations stopped, I was worried that my pain would get worse but fingers crossed 🤞 it's the same as before when I was taking lefluminode x

[welsh12 in reply to Garnacha]

Thanks for your reply I am no further on seen rheumatology spoke to nurse and Gp who bat me back and forth. I have seen a lot of posts related to it being a side effects of meds in my case I think it's the hydroxychloroquine not methotrexate. Rheumatology had me on a higher dose than was recommended for my weight and gp wouldn't prescribe at this level. Rheumatology says low pain score so not interested in side effects or something not their specialism. MEDS Hydroxychloroquine only just been lowered and still have vibrating and shaky hands sometimes too. I am keeping an eye on it and will keep raising it. I read an interesting post about blood sugar levels too have had a lot of tests and few issues with Thyroid but Rheumatology dismissed this and said tests must have been mixed up!!! was subclinical then but apparently not now will be changing hospital this year from him. Hope you continue to do well without lefluminode

[Garnacha]

Thank you 😊 my rheumatologist doesn't know I've stopped 🙄 saw him in March last year & had an appointment to see him in September, that got cancelled till December, then cancelled till March & that's also been cancelled until June! Not holding my breath mind 🤣 he wasn't particularly interested in the vibrations either so thought sod it ill give it a go without lefluminode, I'm also on hydroxy, gabapentin, sulfasalazine & etoricoxib.

I'd read that lefluminode can also cause high blood pressure & mine was going up & up so it was another reason I stopped but, even though I'm on 3 blood pressure tablets a day, it hasn't really come down as much as I hoped 🙄

Hope you get some answers soon as I know how annoying vibrations are x

[welsh12]

Oh bless you have a lot going on being cancelled so many times too. Makes my issues look small shame we don't feel listened too my rheumatology when I asked about my vitamins levels was quite sarcastic. I don't think they want to be questioned.