Think the topic kind of sums it up. I will try not to swear but my frustration is just so over the top today after a series of phone calls and ‘live chat’ with sciensus and also biologics nurse I just have to let off some steam with people I know understand.
So very shortened version of what’s been going on. On 9th August I was approved by biologics nurse at the rheumatology department for tofacitanib my 1st treatment in almost two years if you can believe that however much I begged pleaded and swallowed short courses of steroids which upset my stomach and gave me gastritis every time. But pandemic and all that I understood that for most of it I would have to put up with it and just manage on painkillers which don’t really help and the RA is rife and debilitating after so long without meds. Anyway back to topic, so jumped through the hoops signed all the forms. Moved house on 13th August made doubly sure my details were updated with EVERYONE so all ok or so I thought. I have a pretty bad antibiotic resistant chest infection atm which isn’t helping my mood or my debility but thought I’d catch up with sciensus as 6 weeks waiting is perhaps long enough or far too long whichever way you look at it. Well have they heard of me NO is my account still open from two years ago when I was taking baricitinib NO do they have details of the new meds either at my new address or my old one NO. All I got was we haven’t received a registration form for you which basically says ring the hospital again for the 3rd or 4th time and they’ll then tell me that they’ve done it and to contact sciensus. So I ask you dear lovely forum people who the hell do I ring ? Who can sort it out ? What sort of crap system is this and when is hell next going to freeze over so I can get some treatment ? After of course yet another two weeks of antibiotics lol.
Phew rant over feel better for offloading but what is a woman supposed to do?
Another little comment is the consent form I signed has a number on it for prescription co-ordinator and guess what the number doesn’t exist so another avenue closed and nurse helpline for biologics isn’t open today and only open for an hour and a half tomorrow so back to the drawing board and redial for no doubt all of the time that they’re supposed to be there.
Sorry promised I’d finished my rant. Hope your day is going better than mine.