European Patient Registry for COVID-19

[RebeccaMB]

Has everyone signed up to the European COVID-19 registry yet? jarproject.org/covid There's an adult version of the survey and one for children (to be completed by parent/carer) and I know that the more of us with RA and other autoimmune conditions take part in the survey, hopefully the quicker we will have some answers to the questions that are on all our minds about how COVID-19 affects those of us with these types of conditions. They also want those without existing conditions to sign-up to help give the full picture so please do encourage friends and family members to do the survey too. It's a collaboration by the Global Rheumatology Alliance, EULAR PARE and many other health professionals and clinicians have been involved in setting the study up. I believe NRAS have already shared on some of their social media channels so apologies if you've already come across it. jarproject.org/covid

[Boxerlady]

Done - let's hope something useful comes out of this mess 🤞

[helixhelix]

Yes, there was a post last week about it too.

[oldtimer]

Thanks for the link.