Hi all!
It's been nearly 5 weeks since my first round of Rituximab infusions. I've been feeling ok joint wise, but having terrible fatigue. Doing all I can to listen to my body and combat that though.
Recently I've experienced a flare 'niggling' - if that makes sense to you. I'm getting indications that a flare is looming and trying to break free, but it's not affecting me terribly throughout the day like flares normally do to me. It's mostly morning stiffness in wrists, fingers, elbows and knees, and achy pain in knees and hips throughout the day.
Does this mean that my infusion isn't working? My second lot of infusions aren't until September and I'm not taking anything else. I guess what I'm asking is, have other people found that it's taken more than one round to put their flares to rest, or are my expectations too high this early?
Thank you!
IT took me a good 3/4 months before RTX displayed any positive improvements.....so please just try to carry on with your life without counting the days.
i have been having Infusions since 2016
I really do know what you at going through...I have been there.
RTX now means I have a life ..I am going from 6 monthly to 12 month or longer between infusions.
So try to relax & don't think every ache & pain means RTX is not working. I used to take the odd paracetamol, or Naproxen..or whatever painkiller suits you f I had unexplained niggles.Hang on in there.....,I hope it kicks in for you soon.
I'm afraid Though the fatigue does continue...I find it comes .& goes..,but I'm happy to be mostly painfree after many years of constant pain,stiffness, nausea & bluntly you name it I had it.
Good Luck!
Thank you that's good to know! I think you're right, it's about being patient with it and trusting it will work. Definitely going to line up getting some anti-imflammatories just to keep me going. As i say, I'm not too bothered by the aches and pains as they are right now, it's more just the worry of what it indicates, but trying to be positive and ride it out should help
Glad RTX has worked well for you, i'm staying hopeful x
In some people it take longer to destroy the cells that cause the inflammation....at one point mine depleted too fast & it was really unpleasant, but it sorted itself out,&'now I'm sitting on a beach in the sunshine .....not an ache in sight, & I am not feeling too fatigued after the flight yesterday.
So hang on in there......
Sounds fantastic! that should be me too soon hopefully
x