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NRAS

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All posts for June 2015

Opinions needed before Monday please

Hello, I am seeing my GP on Monday and she wants me to start on Pregabalin for nerve pain - I take MTX for my RA. I am pleased that she is taking my...

Hello, I am seeing my GP on Monday and she wants me to start on Pregabalin for ...

StarlightinJuly

•9 years ago

7 Replies

Recording Drs & Hospital Appointments

Hi, Hope everyone's enjoying the warm weather and not in too much pain? I am trying to find out please, can a patient legally record their consultations? I...

Hi, Hope everyone's enjoying the warm weather and not in too much pain? I am try...

chante

•9 years ago

4 Replies

Holiday and my diseases won't give me a break....

Good afternoon everyone. I am down here in Cornwall and my diseases won't give me a break at all. I am tired and exhausted. Hopefully tomorrow will be a better...

Good afternoon everyone. I am down here in Cornwall and my diseases won't give m...

sylvi

•9 years ago

11 Replies

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PIP assessment again!

Hi guys and gals! I receive PIP and after waiting over 30 weeks for the assessment etc I received a letter last August and back payment and my monthly payment...

Hi guys and gals! I receive PIP and after waiting over 30 weeks for the assessme...

Louise09

•9 years ago

6 Replies

cancer treatment and RA

I was recently scanned for a lump on my Lymph node and it was diagnosed a secondary but they couldn't find a primary tumour. It has to be removed together with...

I was recently scanned for a lump on my Lymph node and it was diagnosed a second...

cazpz

•9 years ago

19 Replies

NRAS Group Meetings Next Week

Dear All Please find details of the NRAS Group meetings taking place next week: NRAS Group Meetings—Week Commencing 8th June 2015 Swansea NRAS Group...

Dear All Please find details of the NRAS Group meetings taking place next week:...

Kim-NRAS

NRAS•9 years ago

1 Reply

What is controlled?

II was diagnosed in October with zero-negative RA. I am on mix of methotrexate, planquenil, folic acid and Celebrex. I went to rheumatologist Monday and he...

II was diagnosed in October with zero-negative RA. I am on mix of methotrexate,...

jetttsd

•9 years ago

23 Replies

What is like being "normal"?

Hey everyone, A daft question again:) Sufasalazine has kicked in or at least blood tests show that. However I still have quite puffy knuckles after a working...

Hey everyone, A daft question again:) Sufasalazine has kicked in or at least b...

EasternBunny

•9 years ago

12 Replies

MTX injections

Well had my second injection today, did it mysef and was ok, so now I am able to do these at home. After last week I felt a little nauseous on the Friday, but...

Well had my second injection today, did it mysef and was ok, so now I am able to...

Titchyj

•9 years ago

9 Replies

Injection for osteoporosis

Saw my rheumatologist today and he suggested an injection as I can't tolerate oral Meds. Can anyone give me some information on this?

Saw my rheumatologist today and he suggested an injection as I can't tolerate or...

Marm

•9 years ago

5 Replies

Pip

Pip well good news everyone got my pip😊👍soooo relieved I can't tell u I hope everyone gets the answer they need I was fair shaking opening the letter xx

Pip well good news everyone got my pip😊👍soooo relieved I can't tell u I hope e...

Deejojo

•9 years ago

26 Replies

How stupid am I?

I have been receiving medication through Healthcare at Home for almost four years - humira initially, enbrel now - delivered every four weeks. A month ago I...

I have been receiving medication through Healthcare at Home for almost four year...

patty

•9 years ago

3 Replies

Tocs injections

Hi, hope everyone is well as they can be. I have spoken to someone else here about this, i wanted to know if anybody is having weekly tocilizumab injections? I...

Hi, hope everyone is well as they can be. I have spoken to someone else here abo...

alibromo

•9 years ago

17 Replies

Crook

Haven't been on as I have been pretty crook. Started out as some form of bronchitis and has ended up in severe asthma, possibly due to heart meds I was on...

Haven't been on as I have been pretty crook. Started out as some form of bronchi...

Someonesmother

•9 years ago

14 Replies

Hypoglycaemia and hydroxychloroquine

This might seem a bit of a an odd question, but has anybody on hydroxychloroquine (plaquenil) experienced low blood sugar episodes after eating? I've just seen...

This might seem a bit of a an odd question, but has anybody on hydroxychloroquin...

beckywebb04

•9 years ago

6 Replies

Which biological this time?

Today I was offered the choice of Rituximab infusions or Tocilizumab injections to replace the Cimzia that has stopped being effective after 6 years. Has...

Today I was offered the choice of Rituximab infusions or Tocilizumab injections ...

Alderess

•9 years ago

8 Replies

Interesting bit of info! Thoughts?

Before being diagnosed with RA I was diagnosed with IBS 15 years prior. RA started after I had flu and a hideous bout of gastric enteritis (hospitalised) when...

Before being diagnosed with RA I was diagnosed with IBS 15 years prior. RA start...

tamnwill

•9 years ago

7 Replies

Experience of MTX, hydroxy, leflunomide cocktail?

I'm off to see the Rheumatology nurse on Monday. My new consultant wants me on triple therapy but getting there hasn't been straightforward. (Is anything ever...

I'm off to see the Rheumatology nurse on Monday. My new consultant wants me on t...

Livingston

•9 years ago

4 Replies

Confused

Totally lost Seen my rumatoligist today Says maybe i don't have RA as I am not responding to treatment Also there is little inflamation even though I have...

Totally lost Seen my rumatoligist today Says maybe i don't have RA as I am not ...

dobsey

•9 years ago

18 Replies

Starting an Enbrel shot once a week! Anyone have any information about this drug? I can't believe the cost!!

I am starting an Enbrel shot once a week and am looking for any information from others who have tried this treatment. I also have type 1 diabetes and am...

I am starting an Enbrel shot once a week and am looking for any information from...

Linzerbenz

•9 years ago

12 Replies

Good news for our friends down under

Hi, Just a quick note for our Ozzie friends. The website Creakyjoints is starting an Australian based site and you can sign up for their newsletter etc just...

Hi, Just a quick note for our Ozzie friends. The website Creakyjoints is starti...

Ali_H

•9 years ago

1 Reply

Tocilizumab infusions

Hi everyone who has been following my posts. I just wanted to let you know I finally have a date for my first infusion. 9th June, which is next Tuesday. I...

Hi everyone who has been following my posts. I just wanted to let you know I fin...

angel-delight

•9 years ago

26 Replies

Pip

Pip well 3 week today still no decision yet getting fed up now 😞

Deejojo

•9 years ago

10 Replies

Occupational health update

I had an occupational health appointment today. The nurse was very helpful and understanding. I now will get a parking space close to work. I have to contact...

I had an occupational health appointment today. The nurse was very helpful and ...

Jacey15

•9 years ago

6 Replies

Exhausted

Hi guys I I'm on mtx and hydroxyl and folic. I'm becoming increasingly exhausted in the evening come 7 pm my neck knees and general body is aching I've been...

Hi guys I I'm on mtx and hydroxyl and folic. I'm becoming increasingly exhausted...

antibes

•9 years ago

20 Replies

Infliximab

Infusion Hi I had infusion on Friday of lnfliximab. I feel no different my knee is still swollen and painful,hands still very stiff. How long before you start...

Infusion Hi I had infusion on Friday of lnfliximab. I feel no different my knee ...

tich57

•9 years ago

6 Replies

Normal for me!

I always get a printout of my blood test results, as I like to be informed about my body. Today when I read my printout I was amused to see a note the GP must...

I always get a printout of my blood test results, as I like to be informed about...

Kathyk

•9 years ago

6 Replies

Coming off Humira side effects?

I have to come off humira temporarily until my blood pressure is under control. GP trying to find out if Humira is causing it to be high. Does anyone know what...

I have to come off humira temporarily until my blood pressure is under control. ...

bernese1225

•9 years ago

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Humeria

I will be starting humeria injecting very soon. I'm just waiting for the company to call me with a delivery date. Just wondering if anyone can give me positive...

I will be starting humeria injecting very soon. I'm just waiting for the company...

02tkwillx

•9 years ago

10 Replies

Rash !

Hi, I have had a itchy dry rash which comes & goes, but recently has got so bad it's changed . Now when it comes it is very raised red itchy and also turns...

Hi, I have had a itchy dry rash which comes & goes, but recently has got so bad ...

dawnrose123

•9 years ago

2 Replies

Posts - NRAS | HealthUnlocked

NRAS

All posts for June 2015

Opinions needed before Monday please

Recording Drs & Hospital Appointments

Holiday and my diseases won't give me a break....

PIP assessment again!

cancer treatment and RA

NRAS Group Meetings Next Week

What is controlled?

What is like being "normal"?

MTX injections

Injection for osteoporosis

Pip

How stupid am I?

Tocs injections

Crook

Hypoglycaemia and hydroxychloroquine

Which biological this time?

Interesting bit of info! Thoughts?

Experience of MTX, hydroxy, leflunomide cocktail?

Confused

Starting an Enbrel shot once a week! Anyone have any information about this drug? I can't believe the cost!!

Good news for our friends down under

Tocilizumab infusions

Pip

Occupational health update

Exhausted

Infliximab

Normal for me!

Coming off Humira side effects?

Humeria

Rash !

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