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NRAS

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All posts for February 2014

How frequently do people still trying to find a suitable treatment see their Consultant?

Is a 9 month wait to see your consultant usual practice because most consultants have a very heavy case load and the nurses lead the clinics or are other...

Is a 9 month wait to see your consultant usual practice because most consultants...

sash1985

•11 years ago

19 Replies

Weight loss on Leflonomide

Can anyone tell me wot causes weight loss on Leflunomide. Is it just the side effects of possible sickness and diarrhoea. Due to start this on Monday. Also...

Can anyone tell me wot causes weight loss on Leflunomide. Is it just the side ef...

Megan2005

•11 years ago

22 Replies

Are there any on-line rheumatology department review sites?

I've just moved to a different area and been given the choice of two different health authorities to handle my RA and treatment, Pinderfields or Chapel...

I've just moved to a different area and been given the choice of two different h...

Dogrose

•11 years ago

8 Replies

Want to take advantage of all our features? Just log in!

hi all feel rubbish

The follow on to my last post was dad came home when all care people were in place. He came home late on Tuesday night after my sister fetched him due to no...

The follow on to my last post was dad came home when all care people were in pla...

fastball

•11 years ago

8 Replies

Happy Valentines Day

Sending lots of love to all you lovely people on this site ....not been on too much but doesn't mean I don't think about you all - have a nice weekend Claire xx

Sending lots of love to all you lovely people on this site ....not been on too m...

claireyj

•11 years ago

3 Replies

Sorry everyone, but just need a moan !!

I have had a nasty flare up about a month ago and was put on predinisone and have just been to see my consultant (so I thought !) but I saw a very young lady...

I have had a nasty flare up about a month ago and was put on predinisone and ha...

nellysgran

•11 years ago

10 Replies

Well I certainly wasn't expecting to be offered a place on a drugs trial at my hospital appointment!!!

So, some of you know my story but if you're new here, a brief summary ... After having symptoms for over 2 years I was finally diagnosed with RA last summer...

So, some of you know my story but if you're new here, a brief summary ... After...

Rosie_rabbit

•11 years ago

26 Replies

Foot/ankle fusion when knee replacement also likely soon. Anyone had both done (not at the same time!)?

Hi all -I have looming on the horizon a possible triple foot fusion on my right foot. I also have decrepit knees and have been advised I will need knee...

Hi all -I have looming on the horizon a possible triple foot fusion on my right ...

Pands

•11 years ago

5 Replies

Does anyone else feel like they are spending their lives on the phone to their GP and in the queue at the chemists?

I get my prescriptions from my GP and the most he will prescribe is 28 days at a time on repeat (a month to them but not in my reality). I have just had to beg...

I get my prescriptions from my GP and the most he will prescribe is 28 days at a...

sash1985

•11 years ago

10 Replies

NRAS Group Meetings W/C 17th February 2014

Dear All Please find details below of the NRAS groups meetings taking place next week: NRAS Group Meetings—Week Commencing 17th February 2014 Plymouth NRAS...

Dear All Please find details below of the NRAS groups meetings taking place nex...

Kim-NRAS

NRAS•11 years ago

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WFW round 1~

well I have been to the cardiologist and I have Wolff Parkinson White syndrome where the heart creates extra electrical pathways so I am off for an op on the...

well I have been to the cardiologist and I have Wolff Parkinson White syndrome w...

Someonesmother

•11 years ago

13 Replies

fed up

Hi all just really annoyed with my doctor went to see him about my very swollen ankle that I have had for three months its got really painful so much so its...

Hi all just really annoyed with my doctor went to see him about my very swollen ...

Bazzypants

•11 years ago

15 Replies

Derma fillers

I have just been watching a programme we had taped about piercing problems. Anyway a girl on there had derma fillers put into her feet to give padding when she...

I have just been watching a programme we had taped about piercing problems. Anyw...

sallyeb

•11 years ago

11 Replies

Just been told I have to have a double knee replacement but will not be able to restart Rituximab for 9 months. Also have MSSA.

I haven't been on this site for nearly a year now as after 4 cycles of Rituximab I thought I was starting to get to grips with how to cope with this awful RA....

I haven't been on this site for nearly a year now as after 4 cycles of Rituximab...

HarleySue

•11 years ago

6 Replies

Knee replacement

Has anyone had or heard of injecting a fluid into the knee instead of a replacement?

Has anyone had or heard of injecting a fluid into the knee instead of a replacem...

Hidden

•11 years ago

9 Replies

Surgery & MTX!

3 days knee replacement & a day post MTX is not a great combination!!! Feeling yuck!

3 days knee replacement & a day post MTX is not a great combination!!! Feeling ...

Hidden

•11 years ago

6 Replies

Feeling guilty not groovy

Been feeling a bit better last couple of weeks but okay I am whacked, exhausted and really don't want to move. Ok it's probably fatigue as I have been forcing...

Been feeling a bit better last couple of weeks but okay I am whacked, exhausted ...

allanah

•11 years ago

23 Replies

I have lupus and think fibromyalgia too how do you know which one is flaring up?

lulu618

•11 years ago

3 Replies

Anyone had a quickish response with Rituximab?

I say this as I know it is documented as not being such a fast worker due to the way it is administered. I have done some research as to how one receives it...

I say this as I know it is documented as not being such a fast worker due to the...

Neonkitty59

•11 years ago

8 Replies

I am sorry to whine, but my body is not doing well. My legs and feet hurt. My arms, elbows, hands are really aching. And I am exhausted.

I have taken mtx and plaquenil since October,2013. At what point does the doctor decide these aren't working and give me something else? I was taking an...

I have taken mtx and plaquenil since October,2013. At what point does the docto...

shareasmile

•11 years ago

11 Replies

Cough whilst taking Methotrexate

Hi I am new to this, was diagnosed with RA in February 2013 now on Methotrexate due to two other medications making me sick. I have developed a cough over the...

Hi I am new to this, was diagnosed with RA in February 2013 now on Methotrexate ...

Rosielea

•11 years ago

6 Replies

Wrists rash

Hello I am relatively new to rheumatoid arthritis eleven months since being diagnosed .Today I went to see the occupational nurse for the first time .very...

Hello I am relatively new to rheumatoid arthritis eleven months since being diag...

clearasred

•11 years ago

2 Replies

Knee replacement

I've just got out of hospital after having a total knee replacement - not too bad 2 days post op!! I had the other knee replaced 5 years a go - so now have two...

I've just got out of hospital after having a total knee replacement - not too ba...

Hidden

•11 years ago

21 Replies

Does RA have a sense of humour?

Yesterday I saw the very nice rheumatology nurse at Lancaster Royal Infirmary. She was very encouraging; my bloods are good, joints all working, my outlook...

Yesterday I saw the very nice rheumatology nurse at Lancaster Royal Infirmary. ...

Grumpyfell

•11 years ago

9 Replies

Just thought I would share this

Friends are the pillars on your porch. Sometimes they hold you up, sometimes they lean on you, and sometimes it's just enough to know that they are standing by.

Friends are the pillars on your porch. Sometimes they hold you up, sometimes the...

Someonesmother

•11 years ago

13 Replies

Am new to RA, diagnosed last august & seemed to be in remission until I came off my steroids. Now it's flaring up again.

I find the worst bit not being able to sleep..I have quite a stressful, full on job..& I just find it hard..not sleeping :( am on salfazalazine but no steroids...

I find the worst bit not being able to sleep..I have quite a stressful, full on ...

mellymellg

•11 years ago

31 Replies

Numpty!

Hi All. Had one of those annoying nights where I was waking up and thrashing about repeatedly. Knowing I had to get up and go for blood tests and somehow...

Hi All. Had one of those annoying nights where I was waking up and thrashing abo...

mistymeana

•11 years ago

7 Replies

NRAS Roadshow - Elstree 12th March 2014

Do you want to meet others living with RA? Do you want to learn how you can get involved with the work of NRAS? Do you want to make a real difference locally...

Do you want to meet others living with RA? Do you want to learn how you can get...

Hidden

•11 years ago

5 Replies

Research project in Glasgow - Knee OA.

Hi All. As an NRAS Scottish Ambassador I attended four excellent presentations held in the Scottish Parliament last Wednesday evening - organised by Arthritis...

Hi All. As an NRAS Scottish Ambassador I attended four excellent presentations h...

Hidden

•11 years ago

21 Replies

might be offered cimzia but unsure.......

After having 2 high DAS's my rheumy nurse has interviewed me to discuss cimzia. I am already on methotrexate injections and sulphasalazine tablets and because...

After having 2 high DAS's my rheumy nurse has interviewed me to discuss cimzia. ...

tessintrouble

•11 years ago

11 Replies

Posts - NRAS | HealthUnlocked

NRAS

All posts for February 2014

How frequently do people still trying to find a suitable treatment see their Consultant?

Weight loss on Leflonomide

Are there any on-line rheumatology department review sites?

hi all feel rubbish

Happy Valentines Day

Sorry everyone, but just need a moan !!

Well I certainly wasn't expecting to be offered a place on a drugs trial at my hospital appointment!!!

Foot/ankle fusion when knee replacement also likely soon. Anyone had both done (not at the same time!)?

Does anyone else feel like they are spending their lives on the phone to their GP and in the queue at the chemists?

NRAS Group Meetings W/C 17th February 2014

WFW round 1~

fed up

Derma fillers

Just been told I have to have a double knee replacement but will not be able to restart Rituximab for 9 months. Also have MSSA.

Knee replacement

Surgery & MTX!

Feeling guilty not groovy

I have lupus and think fibromyalgia too how do you know which one is flaring up?

Anyone had a quickish response with Rituximab?

I am sorry to whine, but my body is not doing well. My legs and feet hurt. My arms, elbows, hands are really aching. And I am exhausted.

Cough whilst taking Methotrexate

Wrists rash

Knee replacement

Does RA have a sense of humour?

Just thought I would share this

Am new to RA, diagnosed last august & seemed to be in remission until I came off my steroids. Now it's flaring up again.

Numpty!

NRAS Roadshow - Elstree 12th March 2014

Research project in Glasgow - Knee OA.

might be offered cimzia but unsure.......

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