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All posts for October 2019

Researchers at Boston Children's Hospital have now pinpointed the specific helper T cells that cause MS

A promising article I wanted to share. Every day, we as patients and those dedicated to research are always looking for hope!...

A promising article I wanted to share. Every day, we as patients and those dedi...

88Dodgee

•5 years ago

5 Replies

Weird

It's like that. Have a Healthy Day! 🤗💕 J🌠

Jesmcd2

CommunityAmbassador•5 years ago

12 Replies

Reminder about webcast

I'm sure this has already been posted, but I thought I'd post the link as a reminder, mainly because I am so forgetful myself....

I'm sure this has already been posted, but I thought I'd post the link as a remi...

greaterexp

•5 years ago

1 Reply

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No more Tysabri. Now what?

For about 12 years I've been on monthly infusions of Tysabri. Now I've become JC positive and need to switch to another DMT. Has anyone else experienced this...

For about 12 years I've been on monthly infusions of Tysabri. Now I've become JC...

victory37

•5 years ago

6 Replies

Post 534 Some days 6 Sep 2019 corrected

Some days jare ust. Hmm blah or suck, I am not sure which. Some days, are just? I have no idea why. Is it the illness, the fact that I really can not...

Some days jare ust. Hmm blah or suck, I am not sure which. Some days, are ju...

RoyceNewton

•5 years ago

4 Replies

Post 534 Some days 6 Oct 2019

Post 533 It is your, it is always your choice. choice 4 Oct 2019 RoyceNewton t is always your choice. Do "You" remember back in the day when "YOU went out on a...

Post 533 It is your, it is always your choice. choice 4 Oct 2019 RoyceNewton t i...

RoyceNewton

•5 years ago

7 Replies

Yup, mine kinda looks like that!

Does yours? Do you have the back on the shower chair? Do you have the back closer to the shower, or farther away? Inquiring minds want to know!😂🤣 Did you...

Does yours? Do you have the back on the shower chair? Do you have the back close...

Jesmcd2

CommunityAmbassador•5 years ago

8 Replies

4 days!

I got to spend 4 days with my brother and it was wonderful! The best part was opening the door and having both my little brothers there! 💕 I will share that...

I got to spend 4 days with my brother and it was wonderful! The best part was o...

Jesmcd2

CommunityAmbassador•5 years ago

13 Replies

Hope everyone has a Great October 🙏

Went to Pocatello for ten days and visited a whole bunch of friends ! Best trip I have had in years 👍. Also made a football 🏈 game in the mini dome with...

Went to Pocatello for ten days and visited a whole bunch of friends ! Best trip ...

Kenu

•5 years ago

13 Replies

Tysabri

Ok went to my Tysabri infusion, my next dose is at the end of the month....its been about 2 weeks. First few days I was very tired. This is now the second time...

Ok went to my Tysabri infusion, my next dose is at the end of the month....its b...

Bkboo

•5 years ago

15 Replies

Happy 35th Wedding Anniversary

I couldn’t have been given a better gift for our 35th Wedding Anniversary! This anniversary I have my true dream. I will be able to walk with one cane and...

I couldn’t have been given a better gift for our 35th Wedding Anniversary! This...

TonyiaR7

•5 years ago

33 Replies

My mini vacation!

This is the view from my room. I’m here with friends that will be riding 85 to 100 miles tomorrow on their bicycles. I am enjoying peace and quiet. Seeing many...

This is the view from my room. I’m here with friends that will be riding 85 to 1...

CalfeeChick

CommunityAmbassador•5 years ago

13 Replies

Exactly what I was worried about!

I am really torn between freaking out or going to bed and never getting up again. My neuro for the last 3 yrs specializes in MS....and she accepted my old...

I am really torn between freaking out or going to bed and never getting up again...

cassielynn71

•5 years ago

34 Replies

A question for you

G'day, you are a newly or have not got a handle of this illness yet. Is there something that "YOU" would like me to talk about? Do not ask personal...

G'day, you are a newly or have not got a handle of this illness yet. Is there ...

RoyceNewton

•5 years ago

2 Replies

Post 533 It is your, it is always your choice. choice 4 Oct 2019

t is always your choice. Do "You" remember back in the day when "YOU went out on a Friday night, then Saturday night. Yes, I remember those days long ago....

t is always your choice. Do "You" remember back in the day when "YOU went out ...

RoyceNewton

•5 years ago

3 Replies

Filing for disability

I am a chef, that has been my career for over 20 years. I am at the point that I can not work in a kitchen anymore, my body beacause of the MS can not handle...

I am a chef, that has been my career for over 20 years. I am at the point that I...

Angelchef80

•5 years ago

10 Replies

Possible MS ??? About see 3rd neurologist...steady decline since Feb 2019

Hello im not from the UK. But ive searched high and low for answers. Anyone please help and thank u in advance! I had thyroid removed dec 2018 d/t PTC no RAI...

Hello im not from the UK. But ive searched high and low for answers. Anyone plea...

BethanyOxe

•5 years ago

25 Replies

All most cried! You really get me!!!

What Not to Say to a Person with MS By Mitch Sturgeon · September 27, 2019 multiple sclerosis.net/ Made me appreciate my ability to put thoughts to keys.😏

What Not to Say to a Person with MS By Mitch Sturgeon · September 27, 2019 multi...

Fattius

•5 years ago

2 Replies

Post 532What can I do to make today good 3 Oct 2019

Perhaps not me as I am not coming over to your house,but what can "YOU" do to make today a good one? What can your spouse, significant other do to make today...

Perhaps not me as I am not coming over to your house,but what can "YOU" do to ma...

RoyceNewton

•5 years ago

2 Replies

Ocrevus not for me

I have Primary Progressive MS, was on Tysabri and switched to Ocrevus. Have been on Ocrevus for 2 years. Still a steady decline so Neurologist suggested we try...

I have Primary Progressive MS, was on Tysabri and switched to Ocrevus. Have been...

DIsneyQueen

•5 years ago

21 Replies

we better not get sick

it has happened,our local hospitals computer has been hacked for ransom ware,they are not admitting any new patients,they are sending you 70 miles away it has...

it has happened,our local hospitals computer has been hacked for ransom ware,the...

pamgarner

•5 years ago

14 Replies

Post 531 RRms it is not as bad as you imagine 2 Oct 2019

We begin today with our usual notice. I am not a medical professional or therapist of any sort. Nor am I a paid or unpaid spokesman for anybody but me....

We begin today with our usual notice. I am not a medical professional or ther...

RoyceNewton

•5 years ago

10 Replies

Does this happen to anyone else?

My MS has kicked my butt since July. It has caused hives, sickness, and hospitals. Every time I get sick I end up in the hospital for a week because my legs...

My MS has kicked my butt since July. It has caused hives, sickness, and hospital...

mbrooks20

•5 years ago

6 Replies

Angel Ascending

White Winged Dove Ascending. All birds give me HOPE especially when they fly and look so free.

White Winged Dove Ascending. All birds give me HOPE especially when they fly an...

nicoly3467

•5 years ago

9 Replies

Anyone else dealing with this??

Been MIA from here for a year. Actually forgot I joined. 😥But,I'm back with 2 new symptoms. Would LOVE any feedback. I have developed extreme fatigue. Out of...

Been MIA from here for a year. Actually forgot I joined. 😥But,I'm back with 2 n...

Gnugirl

•5 years ago

25 Replies

IV Treatment

Hello! Anyone out there doing IV treatments? My doctor wants me to start on IV treatment but I scared.

Hello! Anyone out there doing IV treatments? My doctor wants me to start on IV...

juju5858

•5 years ago

11 Replies

MSAA Live Webinar

While multiple sclerosis affects all races and ethnicities, minority populations may bear an unequal burden from the disease, including a higher risk of...

While multiple sclerosis affects all races and ethnicities, minority populations...

MSAA_Staff

•5 years ago

3 Replies

Jobs working from home on the phone.

Does anyone know how I can secure a way to earn money from home? Doing surveys doesn't seem the way to accomplish that. Thank you. Leslie

Does anyone know how I can secure a way to earn money from home? Doing surveys d...

lbenmaor

•5 years ago

10 Replies

Post 530 Frustration 1 Oct 2019

Our daily legal notice. I am not an overpaid over trained busy uncaring medical professional. Okay, that was mean but “YOU” get the picture. What I say are...

Our daily legal notice. I am not an overpaid over trained busy uncaring medical ...

RoyceNewton

•5 years ago

4 Replies

Blue Names (and it's not because they are sad!)

Why do some names appear in blue? I thought maybe it meant you were following someone (and I don't mean tailgating! 🚗🚕🚘😋) but when I use the name of those...

Why do some names appear in blue? I thought maybe it meant you were following so...

PWilli

•5 years ago

12 Replies

Posts - My MSAA Community | HealthUnlocked

My MSAA Community

All posts for October 2019

Researchers at Boston Children's Hospital have now pinpointed the specific helper T cells that cause MS

Weird

Reminder about webcast

No more Tysabri. Now what?

Post 534 Some days 6 Sep 2019 corrected

Post 534 Some days 6 Oct 2019

Yup, mine kinda looks like that!

4 days!

Hope everyone has a Great October 🙏

Tysabri

Happy 35th Wedding Anniversary

My mini vacation!

Exactly what I was worried about!

A question for you

Post 533 It is your, it is always your choice. choice 4 Oct 2019

Filing for disability

Possible MS ??? About see 3rd neurologist...steady decline since Feb 2019

All most cried! You really get me!!!

Post 532What can I do to make today good 3 Oct 2019

Ocrevus not for me

we better not get sick

Post 531 RRms it is not as bad as you imagine 2 Oct 2019

Does this happen to anyone else?

Angel Ascending

Anyone else dealing with this??

IV Treatment

MSAA Live Webinar

Jobs working from home on the phone.

Post 530 Frustration 1 Oct 2019

Blue Names (and it's not because they are sad!)

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