Tysabri

[Bkboo]

Ok went to my Tysabri infusion, my next dose is at the end of the month....its been about 2 weeks. First few days I was very tired. This is now the second time on Tysabri. The first time was about 6 years ago. I went off it because of levels (JC). Now. I am on it every 6 weeks. Yesterday struggled a bit with cognition. its better today....

[jimeka]

What is the reason you are back on it? Blessings Jimeka 🤗

[Bkboo in reply to jimeka]

Jimeka... Gilenya started having breathing issues, went on Ocrevus and felt bad now trying Tysarbri again every 6 weeks...

[jimeka in reply to Bkboo]

I hope that you have pleasant results on Tysarbri keep us posted, blessings Jimeka 🤗

[Kenu]

Good for you! I did great on Tysabri for seven years till cancer ♋️ and had to go off😞. Hope it works out 👍🙏🐾🐾 Ken

[greaterexp]

I hope it works beautifully with no problems!

[Jazzihorsecat]

Be very, very careful, according to Ann Boroch in her book, "Healing Multiple Sclerosis", researched by many, many Health Experts, there have been over 20 deaths now on icky 💉Tysabri, because of false negatives in (JCV) tests...be very careful...😣 k...

Just caring, Jazzy 🌹💜

[Bkboo in reply to Jazzihorsecat]

hmmm..these meds are scary

[JTZES]

Tysabri is the best on the market for stopping further progression of the disease. It also tops the list of reported cases of PML. With you being JVC positive make sure you follow up properly.

Most DMT'S have the chance of causing PML but with a lot less risk.

You have my prayers that things go well.

[Bkboo]

Boy that's scary PML shesh….that's what made me hesitant to do it again. Seems nothing is really a plus as far as meds go...my doctor always tells me I need to be on something...

[Bkboo in reply to Bkboo]

well its a plus when it keeps progression down! but that's always my thoughts...is it or no?

[kandykone1]

How’s it been going on it?

[Bkboo in reply to kandykone1]

I don't feel any different

[Bkboo in reply to Bkboo]

my hair was thinning but Dr stated in most likely stress, not sure...drugs affect each person so differently though...

[kandykone1 in reply to Bkboo]

I’m starting it on Friday!

[Bkboo]

great!