Posts - My MSAA Community | HealthUnlocked

My MSAA Community

9,019 members • 20,711 posts

All posts for June 2018

Hi

Hi avent been on awhile they had me do a whole new name im still packing getting ready to move..not easy pack a little be sick few days gonna try n get on here...

Hi avent been on awhile they had me do a whole new name im still packing getting...

Lisahiatt

•6 years ago

4 Replies

Neuropsychological Testing

I am scheduled for my first time next month. They said it would take 4-5 hours. I don't do anything for 4-5 hours except sleep. I am more disturbed about what...

I am scheduled for my first time next month. They said it would take 4-5 hours. ...

CalfeeChick

CommunityAmbassador•6 years ago

17 Replies

New to MS

To all the Newbies, we are all here for you. No, we're not doctors that I know of, but we share having the MS disease. Some for short times, some for long...

To all the Newbies, we are all here for you. No, we're not doctors that I know o...

CalfeeChick

CommunityAmbassador•6 years ago

4 Replies

Want to take advantage of all our features? Just log in!

The MS Hug, How does it feel to you?

Before I add the link, what I feel is my MS hug is really only a partial hug and enough to make me want it to be the only hug I ever feel. When I over-do, get...

Before I add the link, what I feel is my MS hug is really only a partial hug and...

CalfeeChick

CommunityAmbassador•6 years ago

9 Replies

Newbies

You really Can do this. Now u r scared and unsure, take as long as u need and cry, I did, I think it took ma months . Get on a Disease Modifying Drug,...

You really Can do this. Now u r scared and unsure, take as long as u need and...

RoyceNewton

•6 years ago

4 Replies

Just a thought for the day.

Okay wild & crazy thought I had last night as I was falling asleep. Is ms in my particular case (yours) a good or a not so good thing? I was honestly in a...

Okay wild & crazy thought I had last night as I was falling asleep. Is ms in my ...

RoyceNewton

•6 years ago

12 Replies

Dancing! 😎😎😎

I've actually had a dance this morning listening to the radio! I haven't had a bit of a boogie for about a year so im a bit gobsmacked in a good way.......go...

I've actually had a dance this morning listening to the radio! I haven't had a b...

janetb1968

•6 years ago

13 Replies

K II got his uke!

Tonight I gave Kevin (K II) the ukulele I have been working on. It gave me such joy to see his face when he was playing it for everyone! He is such a sweet kid...

Tonight I gave Kevin (K II) the ukulele I have been working on. It gave me such ...

CraigS

•6 years ago

9 Replies

very mild MS symptoms: start Ocrevus now or later?

Just diagnosed with MS after a double vision episode and multiple MRIs. I barely have any symptoms, just mild sensations/electric feeling on my knee that I...

Just diagnosed with MS after a double vision episode and multiple MRIs. I barely...

anaishunter

•6 years ago

20 Replies

Hug your kitty day?

Elliot and Lucy hugging each other 😻

erash

•6 years ago

11 Replies

June 4th Hug your cat day!

jimeka This is for you sweetie. My kitty Boston and his play kitty. Can't believe I found the stuffed one in a thrift store. Yes, our sweet kitty gets lots of...

jimeka This is for you sweetie. My kitty Boston and his play kitty. Can't believ...

CalfeeChick

CommunityAmbassador•6 years ago

14 Replies

Heat, MS, Illness what worked for you last year...?

If there are links for cooling vest etc im unsure but are they on the MS site?Your ideas that worked from last year are so helpful to all.Heat is my big...

If there are links for cooling vest etc im unsure but are they on the MS site?Yo...

jackiesj

•6 years ago

18 Replies

Just to be a complete nag today.

Most times I need to be told something many many times before I listen & more before I pay attention so I will say to you gain. ms is here it in your life...

Most times I need to be told something many many times before I listen & more be...

RoyceNewton

•6 years ago

10 Replies

BE ACTIVE IN YOUR ms

Early and ongoing treatment with an FDA- approved therapy can make a difference for people with multiple sclerosis. Learn about your options by talking to your...

Early and ongoing treatment with an FDA- approved therapy can make a difference ...

RoyceNewton

•6 years ago

1 Reply

☀️Let's share our safe summer activities so we can Inspire others with ideas they might not have thought of!🌡🌞

Summer can be hard on many people with MS. Heat intolerance is a big symptom with MS. What safe activities do you do in the summer and still keep yourself safe...

Summer can be hard on many people with MS. Heat intolerance is a big symptom wit...

Fancy1959

•6 years ago

7 Replies

My favorite rose

I wish I knew how to post multiple pictures at once! But here’s my favorite rose in my yard. Most of my roses are so big they are tipping the branches over....

I wish I knew how to post multiple pictures at once! But here’s my favorite ros...

StacyHayward

•6 years ago

11 Replies

When our ugly monster raises it's ugly head!!!

& we want ti scream & pull our hair out at the rootz! Just doo this 1 special thing! W/Love & Blessings to All us warriorz!!💛💙💜❤🙏💐😍😄

& we want ti scream & pull our hair out at the rootz! Just doo this 1 special th...

Jazzyinco

•6 years ago

18 Replies

Recipes from our Group!

A while back, we tried to gather recipes from our MS members and received a few good ones. But only a few. I'm bad, I have recipes, it's just been a tough...

A while back, we tried to gather recipes from our MS members and received a few ...

CalfeeChick

CommunityAmbassador•6 years ago

6 Replies

To fellow MSers

Has anyone used Amantadine (generic form of Symmetrel) for MS fatigue? My neurologist just prescribed this to me. 1 tsp. daily.

Has anyone used Amantadine (generic form of Symmetrel) for MS fatigue? My neuro...

SalMac1127

•6 years ago

11 Replies

Newly diagnosed oct 2017 at 65 still working. How long before you realize you just can’t do what you used to do.

Still trying to get up at 5 put in a 10 hour day mostly at home on computer but still traveling and calling on customers. Being a sales Mgr directing sales...

Still trying to get up at 5 put in a 10 hour day mostly at home on computer but...

bpriddle

•6 years ago

16 Replies

Date look up?

Is there anyway we can look up someone's post using the date only?

CalfeeChick

CommunityAmbassador•6 years ago

5 Replies

History of MS

jackiesj and I were commenting about genetics today and it made me wonder about the history of MS. Here is what I found to be a genuine article....

jackiesj and I were commenting about genetics today and it made me wonder about ...

CalfeeChick

CommunityAmbassador•6 years ago

10 Replies

This ever Happened to you?

I have been in bed all morning feeling lousy because of allergies and it's gonna be 97 degrees today.. I started to get out my 12:30PM meds and looked to my...

I have been in bed all morning feeling lousy because of allergies and it's gonna...

CalfeeChick

CommunityAmbassador•6 years ago

7 Replies

Really tough one today, sorry.

I believe this applies to us all, newbies and lifers as well. I just ask you to take a minute & think about it, & I do not know my answer yet. On your very...

I believe this applies to us all, newbies and lifers as well. I just ask you t...

RoyceNewton

•6 years ago

23 Replies

June 2018 Artist of the Month

2018 MSAA MS Ability Art Showcase Artist of the Month Maria M-M NY As a child I was influenced by my father a sculptor, painter and art teacher in the NY...

2018 MSAA MS Ability Art Showcase Artist of the Month Maria M-M NY As a child...

CalfeeChick

CommunityAmbassador•6 years ago

2 Replies

Every research on MS should be focused on remyelination

https://www.news-medical.net/news/20141202/Ligand-indazole-chloride-improves-motor-function-study-shows.aspx

https://www.news-medical.net/news/20141202/Ligand-indazole-chloride-improves-mot...

dogdaddy

•6 years ago

6 Replies

Thank you

Somebody posted about DX criteria, I read it and of course lost it, I just wanted to say thank you I am more educated than when I got out of bed this morning,...

Somebody posted about DX criteria, I read it and of course lost it, I just wante...

RoyceNewton

•6 years ago

1 Reply

We Will Never Give Up!

Hey MSer warriorz, this is for us all, with Love❤💜💙😍💐& Prayers & much Blessings of YHVH our Creator& Heavenly Father's True...

Hey MSer warriorz, this is for us all, with Love❤💜💙😍💐& Prayers & much Blessi...

Jazzyinco

•6 years ago

4 Replies

MS/is there genetic testing?Anyone do the ancestor DNA?I got it as a gift.

It is interesting.Looking back also at ancestors and what they were diagnosed is helpful(i take it all a grain of salt)......It also concluded I have a very...

It is interesting.Looking back also at ancestors and what they were diagnosed i...

jackiesj

•6 years ago

12 Replies

2017 McDonald MS Diagnostic Criteria

There is sometimes misinformation on this forum about diagnosing MS. To help people’s understanding, I’ve attached the 2017 McDonald MS Diagnostic Criteria...

There is sometimes misinformation on this forum about diagnosing MS. To help peo...

Raingrrl

•6 years ago

7 Replies

Posts - My MSAA Community | HealthUnlocked

My MSAA Community

All posts for June 2018

Hi

Neuropsychological Testing

New to MS

The MS Hug, How does it feel to you?

Newbies

Just a thought for the day.

Dancing! 😎😎😎

K II got his uke!

very mild MS symptoms: start Ocrevus now or later?

Hug your kitty day?

June 4th Hug your cat day!

Heat, MS, Illness what worked for you last year...?

Just to be a complete nag today.

BE ACTIVE IN YOUR ms

☀️Let's share our safe summer activities so we can Inspire others with ideas they might not have thought of!🌡🌞

My favorite rose

When our ugly monster raises it's ugly head!!!

Recipes from our Group!

To fellow MSers

Newly diagnosed oct 2017 at 65 still working. How long before you realize you just can’t do what you used to do.

Date look up?

History of MS

This ever Happened to you?

Really tough one today, sorry.

June 2018 Artist of the Month

Every research on MS should be focused on remyelination

Thank you

We Will Never Give Up!

MS/is there genetic testing?Anyone do the ancestor DNA?I got it as a gift.

2017 McDonald MS Diagnostic Criteria

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