Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

59,465 members • 66,510 posts

All posts for February 2022

I’m new too any help on therapy on fibromyalgia would be greatly appreciated.

Hi I’m Marilyn just diagnosed with fibromyalgia yesterday after being diagnosed with polymyalgia rheumatica last nov so I’m feeling a little low because last...

Hi I’m Marilyn just diagnosed with fibromyalgia yesterday after being diagnosed ...

MarilynRose

•2 years ago

3 Replies

I'm new.

I'm new on here. I have ME/CFS and more recently Fibromyalgia and am trying to inform myself on the condition. I see that the symptoms are the same as ME/CFS...

I'm new on here. I have ME/CFS and more recently Fibromyalgia and am trying to i...

Lypsie56

•2 years ago

8 Replies

Misdiagnosed!!

Hi everyone last may I started with leg pain and got worse and my knees then in nov I fell very Ill like flu symptoms pains everywhere my head I did not know...

Hi everyone last may I started with leg pain and got worse and my knees then in ...

MarilynRose

•2 years ago

2 Replies

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4th jab??

I didn't know that there's a 4th jab, I haven't seen it advertised anywhere!

trytobehappytalking

•2 years ago

3 Replies

Help with LDN?

Hi, I was wondering if anyone has any information on LDN? I live in wales uk and was wondering if it is something a regular GP would prescribe? I wanted to ask...

Hi, I was wondering if anyone has any information on LDN? I live in wales uk and...

Naylee

•2 years ago

12 Replies

Hi everyone just joined this group after been diagnosed with fibromyalgia. I am in constant pain and feeling very low.

Any advice how to cope with the pain? I keep trying different painkillers but no use.Which is the best painkiller for it?

Any advice how to cope with the pain? I keep trying different painkillers but no...

Stormno1

•2 years ago

8 Replies

Anyone else having trouble seeing the doctor

Had a epileptic fit 2 weeks ago and the top of my spine hurts and I get stabbing pains also my arms have started hurting and a going numb I went to the...

Had a epileptic fit 2 weeks ago and the top of my spine hurts and I get stabbing...

bunnygirly

•2 years ago

5 Replies

Pain relief

So frustrating for you I totally understand I have tried most things over the past 40 years. As pain comes from our brains most medications for pain will not...

So frustrating for you I totally understand I have tried most things over the pa...

Earworm

•2 years ago

3 Replies

Vegal nerve

Hiya Al you wonderful pain worriors🙏 anyone out there who has had gastric issues or vegal nerve treatment? I have since a child (now 54) severe spine...

Hiya Al you wonderful pain worriors🙏 anyone out there who has had gastric issue...

Earworm

•2 years ago

2 Replies

Itching Fibromyalgia alternative pain relief

Hi all Does anyone know if there has been any further break through for an alternative pain relief med for fibromyalgia- it seems only duloxetine and...

Hi all Does anyone know if there has been any further break through for an alter...

Persianbelle64

•2 years ago

21 Replies

Fibromyalgia

Hi everyone I have fibromyalgia and had a nasty flats up in November I'm still in a lot of pain and am waiting to see a rheumatologist,I have started gong to...

Hi everyone I have fibromyalgia and had a nasty flats up in November I'm still i...

Nuffield

•2 years ago

5 Replies

I'm trying to look after my mum who is 92 years of age

I am trying to look after my mum who is 92 and suffers from macular degeneration and also dementia. I live alone and have no one to support me. I love my mum...

I am trying to look after my mum who is 92 and suffers from macular degeneration...

bonnielass66

•2 years ago

14 Replies

Woolly head

Thanks for all your replies ❤️❤️

Lokilou

•2 years ago

1 Reply

Refused pip.

Just been refused pip is it worth the time and stress of appealing. Been awarded 6points for daily care needs and 4 points for mobility. The gist of my...

Just been refused pip is it worth the time and stress of appealing. Been award...

Mystique23

•2 years ago

51 Replies

Can you help me

Hi today I had a phone call from pip it was to say could I just confirm the date I was in hospital with phnewmonia so I told them. And then they said that’s...

Hi today I had a phone call from pip it was to say could I just confirm the date...

olliebobb

•2 years ago

7 Replies

Pip difficulties

Hi all, I was just wondering whether anyone has had difficulties claiming pip for fibromyalgia and osteoarthritis. I have been refused and I am going through a...

Hi all, I was just wondering whether anyone has had difficulties claiming pip fo...

LD58

•2 years ago

45 Replies

Thank you for your replies

Thank you all for your replies, I have spoken to my gp she just suggested I googled sleep hygiene.

Thank you all for your replies, I have spoken to my gp she just suggested I goog...

Sturdy

•2 years ago

1 Reply

Medication and useless doctors

Hi all I have just been placed on pregabalin 2x 25mg a day for my fibromyalgia which seems very low for the condition and it is having no effect, all doctor...

Hi all I have just been placed on pregabalin 2x 25mg a day for my fibromyalgia w...

Thom75

•2 years ago

25 Replies

Feeling lonely

Hi all…. Does anyone ever feel lonely sometimes, the feeling that people don’t really know what your going through. Don’t get me wrong I have a really...

Hi all…. Does anyone ever feel lonely sometimes, the feeling that people don’t ...

Dazakella2010

•2 years ago

53 Replies

Brain fog

Struggling so bad with this lately! Honestly I’m having to leave notes around the house to remind me of things. I forget what I’m saying in a middle of a...

Struggling so bad with this lately! Honestly I’m having to leave notes around th...

Gemmaoxo

•2 years ago

13 Replies

Hi Everyone, Have you tried functional medicine to manage fibro? I'd be grateful to have any recommendations of good holistic drs. see below

I watched an episode of Doctor in the House where doctor Chatterjee managed someone's fibro in 6-weeks - I identified with a lot of possible causes of my fibro...

I watched an episode of Doctor in the House where doctor Chatterjee managed some...

inpaino1

•2 years ago

34 Replies

Periods and fibromyalgia

Does fibromyalgia make your period irregular?

Trippys

•2 years ago

5 Replies

Best pain relief please?

Which is the best painkiller for fibro? Thanks x

golly123

•2 years ago

3 Replies

My first post

Hiya Does anyone know if fibromialga is linked or related to parkinsons disease please ? TIA Deb

Hiya Does anyone know if fibromialga is linked or related to parkinsons disease ...

Missdebs

•2 years ago

3 Replies

What medication are fibro people put on?

What medication will I be put on. Or is it to see which works? Thanks.

golly123

•2 years ago

7 Replies

Whalton Centre

Hi thank you all for answering me for some reason im having a bit of trouble replying it will be something i have done im sure 🙂 i live in the...

Hi thank you all for answering me for some reason im having a bit of troub...

Alfie2267

•2 years ago

1 Reply

PIP assessment

Good evening all, Hope you are all well as can be and enjoying your Sunday evening :) I've got my PIP assessment this week and I'm s**ting myself (have no idea...

Good evening all, Hope you are all well as can be and enjoying your Sunday eveni...

FibroLee

•2 years ago

53 Replies

Keto diet and meds

Hi everyone, has anyone done the keto diet and if so did you get on ok? I will be talking to my Dr but just need to know if you got through it OK and if so...

Hi everyone, has anyone done the keto diet and if so did you get on ok? I will b...

Charr53

•2 years ago

9 Replies

Help with Fibromyalgia

Hi all I'm on here trying to help my 27yr old son who has chronic fibromyalgia, he is on 8x 30/500mg Co-codamol a day but struggles terrible of a night with...

Hi all I'm on here trying to help my 27yr old son who has chronic fibromyalgia, ...

Fairytale50

•2 years ago

57 Replies

Any advice?

Hi everyone, I'm new too all this. Currently undergoing tests to determine the cause of my pain for the last 6 years. Rheumatologist has suggested fibromyalgia...

Hi everyone, I'm new too all this. Currently undergoing tests to determine the c...

Racheywoo

•2 years ago

4 Replies

Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

All posts for February 2022

I’m new too any help on therapy on fibromyalgia would be greatly appreciated.

I'm new.

Misdiagnosed!!

4th jab??

Help with LDN?

Hi everyone just joined this group after been diagnosed with fibromyalgia. I am in constant pain and feeling very low.

Anyone else having trouble seeing the doctor

Pain relief

Vegal nerve

Itching Fibromyalgia alternative pain relief

Fibromyalgia

I'm trying to look after my mum who is 92 years of age

Woolly head

Refused pip.

Can you help me

Pip difficulties

Thank you for your replies

Medication and useless doctors

Feeling lonely

Brain fog

Hi Everyone, Have you tried functional medicine to manage fibro? I'd be grateful to have any recommendations of good holistic drs. see below

Periods and fibromyalgia

Best pain relief please?

My first post

What medication are fibro people put on?

Whalton Centre

PIP assessment

Keto diet and meds

Help with Fibromyalgia

Any advice?

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