I’m new too any help on therapy on fibromyalgia would be greatly appreciated.

[MarilynRose]

Hi I’m Marilyn just diagnosed with fibromyalgia yesterday after being diagnosed with polymyalgia rheumatica last nov so I’m feeling a little low because last three months has been a waste of time so now got to wean of steroids until I finish ,then treatment for fibromyalgia.

[Yassytina FMA UK Volunteer]

Hello and welcome, very frustrating for alot of people being lead down one medical path and over time you get diagnosed with something else. I have a combination of FIbro /Cfs /treated sleep apnea, the best way for me is pacing myself as best I can through each day as it can differ and some days better and others a struggle. I do take meds and a lot of members you will read here says it’s trial and error till we get something that suits us or at least can dull Fibro aches and pains. Differently keep on your doctors radar of being seen every couple of weeks until you feel your in a better place with medical help. You will read members posts with lots of advice and helpful tips xx

[Hazel_Angelstar Administrator FMA UK Staff]

Hi and a warm welcome. You will find general information on fibromyalgia at our website fmauk.org and our patient information booklets at fmauk.org/publications

[Lesterthecat]

It’s a bugger isn’t it? Hope you have a helpful and sympathetic GP. Fibro looks like so many other conditions it’s easy to misdiagnose. I was told my joint pain and fatigue was due to degenerative disc disease which I do have. Been struggling on for 10 years no sleep constant pain then suddenly spoke to another GP and she spotted it. Now on amitriptyline which does seem to help. Genuinely had started to think it was all in my head as everyone kept saying I looked so well but felt so crap. They meant well but it makes you feel like a fraud. I’m no whimp- two babies delivered at home no pain relief- so I knew that I was tolerating sometimes overwhelming pain with a rictus grin on my face.

Best policy is tell them everything, keep a diary list everything. Believe it or not it was sending in pics of my hands that swung it- I’ve developed Reynauds in last year which is linked to Fibro. Who knew?!

Just be kind to yourself and kind to those who want to help you.

And keep talking to this lot- they are dead good x