Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

59,469 members • 66,515 posts

All posts for June 2021

Just diagonosed after 3 years😞

Hi just been diagnosed w with Fibromyalgia 18 of 18 trigger points painful as hell be good to speak to people we feel the same it's been such a long lonely...

Hi just been diagnosed w with Fibromyalgia 18 of 18 trigger points painful as he...

Doobie44

•3 years ago

7 Replies

Fibro and menopause

Hi, just had it confirmed that I am in perimenopause( no periods for 6 months). My doctor thinks I might have fibro as well, as my symptoms fit and have felt...

Hi, just had it confirmed that I am in perimenopause( no periods for 6 months). ...

madmiddleaged

•3 years ago

8 Replies

Do you decline ?!

Good Evening you amazingly strong people 😊 So my biggest question, now i have come to terms with this horrible disease ( if i can say that) and am no longer...

Good Evening you amazingly strong people 😊 So my biggest question, now i have c...

Rosco14

•3 years ago

15 Replies

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Blood pressure in a flare- is it normal to be up?

Hi all, please can ask your advice? I am recently diagnosed and have been doing ok. Recently l have been anxious and experienced a flare and by chance took my...

Hi all, please can ask your advice? I am recently diagnosed and have been doing ...

Klfah

•3 years ago

2 Replies

Does anyone with Fibro/CFS suffer with annoying skin rashes, particularly when out in the sun?

I have suffered with rashes since my diagnosis and cannot really be in the sun much anymore (even with high SPF) and find this very distressing asnothing seems...

I have suffered with rashes since my diagnosis and cannot really be in the sun m...

Pinkhedgehog

•3 years ago

17 Replies

Fibromyalgia: Is it possible to successfully treat ourselves without pain meds?

Hello peeps: I’m just wondering if there’s anyone out there with fibromyalgia who has treated themselves without pain relief, somehow managed with purely...

Hello peeps: I’m just wondering if there’s anyone out there with fibromyalgia wh...

Kezz15

•3 years ago

30 Replies

DVLA 50% off PIP postal road tax application.

DVLA postal road tax application..told up to 8 weeks to process and cannot use my car if not processed by due tax date!! Has anybody else had this recently? I...

DVLA postal road tax application..told up to 8 weeks to process and cannot use m...

Confused01

•3 years ago

7 Replies

Filling in Benefit Forms PIP, UC50

Hi everyone, I am new here. I have spent 4.5 months filling out my PIP form because none of the questions fit my issues obviously. Plus due to my fatigue and...

Hi everyone, I am new here. I have spent 4.5 months filling out my PIP form beca...

Freedomseeking

•3 years ago

12 Replies

Costocondritis an fibro help !!!

Just been diagnosed with costocondritis an possible fibro is it hereditary its in the family ! I thought I was having heart attack awful pain all new to me...

Just been diagnosed with costocondritis an possible fibro is it hereditary its i...

Traci69

•3 years ago

4 Replies

Do I have Fibro?

Hi, I have been suffering with pain now for months. I am getting tired as not sleeping well. My arms especially feel like the muscles are pulled when I...

Hi, I have been suffering with pain now for months. I am getting tired as not s...

JLouL

•3 years ago

6 Replies

Amiltryptiline

Hi everyone. Just wondering if anyone has had the same. I’ve been on amiltryptiline since the start of the year after previously being on it and coming off...

Hi everyone. Just wondering if anyone has had the same. I’ve been on amiltrypt...

Leo83

•3 years ago

18 Replies

Confused about Fibromyalgia

Hey peeps, (Sorry this is a long post, and I'm sorry if I go on a bit) So, 12 weeks ago I discovered a lump in the side of my neck. Had it for 2 weeks. Felt...

Hey peeps, (Sorry this is a long post, and I'm sorry if I go on a bit) So, 12 we...

Whoami76

•3 years ago

17 Replies

Can anyone please advise me if any research has been made into Fibromyalgia pain and Estrogen levels?

It's just my pain seems to get better, when I am on the pill and obviously I know that pain is on it's own cycle, but can fibromyalgia pain be hormone related?...

It's just my pain seems to get better, when I am on the pill and obviously I kno...

Anth14

•3 years ago

30 Replies

How does g.p help in treating fibromyalgia?

Hi every body , how does the g.p help people with fibromyalgia ?they put me on gabapentin and antidepressants that is all what they do for me. Every time I...

Hi every body , how does the g.p help people with fibromyalgia ?they put me on g...

Farfar

•3 years ago

15 Replies

PIP

Morning all! Has anyone had a Paper hearing for a PIP Tribunal and been successful? Having waited for over a year for a hearing, and then be told i couldn’t...

Morning all! Has anyone had a Paper hearing for a PIP Tribunal and been success...

ZipsPain

•3 years ago

3 Replies

Pregabalin

Hi all A quick question... I was prescribed Pregabalin a few years ago and my prev doctor would give me all my meds in 3 month batches... all good. I then...

Hi all A quick question... I was prescribed Pregabalin a few years ago and my pr...

cartama

•3 years ago

16 Replies

Fibo - jaw pain

Random but does anyone else get jaw pain? X

Rosco14

•3 years ago

22 Replies

Pain clinic course

Hi, hope everyone is well as they can be. I’ve been having a rough patch for quite along time now and I’m about to start a pain clinic course (online and phone...

Hi, hope everyone is well as they can be. I’ve been having a rough patch for qui...

gail76

•3 years ago

16 Replies

Has anyone had lidocaine infusions ?

Hi ! My private pain consultant has suggested the above for pain relief. I have looked it up and know that people have had these but I am wondering if they are...

Hi ! My private pain consultant has suggested the above for pain relief. I have ...

Fificat50

•3 years ago

13 Replies

ADVICE NEEDED. Coming to terms with Fibro-Life. Newly diagnosed- Long-term sufferer 🌻

Hi, I'm new to any Fibro Groups but definitely not new to the condition! I've been going to the doctors about widespread pain and fatigue since I was 9yrs old...

Hi, I'm new to any Fibro Groups but definitely not new to the condition! I've be...

hippieatheart

•3 years ago

20 Replies

Is this what fybro feels like?

Dear all, I have to ask and wonder if anyone can help me. I am new to the Fibromyalgia diagnose. Today and yesterday, i had two really good days, i felt...

Dear all, I have to ask and wonder if anyone can help me. I am new to the Fibrom...

Zee1973

•3 years ago

15 Replies

Before First Big Flareup...

Can I ask those of you you have fibromyalgia a long time to tell me if you think I have had it long before my first flare up this month. Firstly I was in a...

Can I ask those of you you have fibromyalgia a long time to tell me if you think...

Irish-Cow

•3 years ago

12 Replies

New Member - Fibro Sufferer

Hi, Been suffering from Fibro symptoms for over 20 years but only just realised that the condition is Fibro. I suffer from headaches, chest pains, pains...

Hi, Been suffering from Fibro symptoms for over 20 years but only just realised...

bh2021

•3 years ago

11 Replies

Long COVID, ? Actually Fibromyalgia

I have been wondering for quite a while if all the cases we have been hearing about people having Long Covid could perhaps actually be Fibromyalgia. The...

I have been wondering for quite a while if all the cases we have been hearing ab...

Gasbag

•3 years ago

41 Replies

Who should i be seeing?

Hi! I've very recently been diagnosed with Fibromyalgia and I was just wondering what sort of clinicians other Fibromyalgia sufferers see? Ive only seen my GP...

Hi! I've very recently been diagnosed with Fibromyalgia and I was just wonderin...

Zee92

•3 years ago

20 Replies

Barometric pressure, and storms.

I was wondering if the incoming thunderstorms are effecting any 1 else. The barometer is on change, I live on the hampshire coast so are due to be 1 of the...

I was wondering if the incoming thunderstorms are effecting any 1 else. The bar...

Bruton

•3 years ago

24 Replies

Dulpxetine

Hello, I am new to all of this. I denied i had it and over time it has got worse. Just been put on duloxetine and it is day one. I feel dizzy, nausea and so...

Hello, I am new to all of this. I denied i had it and over time it has got wors...

Rosco14

•3 years ago

15 Replies

Back payments for cognitive disorders

Hello everyone, hope you are all enjoying the lovely sunshine. My question is this. I have read that there is currently, back payments of PIP awards being paid...

Hello everyone, hope you are all enjoying the lovely sunshine. My question is th...

Royalname

•3 years ago

4 Replies

Walk a mile in my shoes

I'm 56 years old. And yes i know there are always people worse off than me in the world. But Ive certainly had my fair share of trauma over the years. And...

I'm 56 years old. And yes i know there are always people worse off than me in th...

Bruton

•3 years ago

4 Replies

Pip

I applied for pip 3 months ago using my fibromyalgia I am very Ill and totally uncontrolled. I am in constant pain too. I had a text message saying they had...

I applied for pip 3 months ago using my fibromyalgia I am very Ill and totally u...

debwhit

•3 years ago

39 Replies

Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

All posts for June 2021

Just diagonosed after 3 years😞

Fibro and menopause

Do you decline ?!

Blood pressure in a flare- is it normal to be up?

Does anyone with Fibro/CFS suffer with annoying skin rashes, particularly when out in the sun?

Fibromyalgia: Is it possible to successfully treat ourselves without pain meds?

DVLA 50% off PIP postal road tax application.

Filling in Benefit Forms PIP, UC50

Costocondritis an fibro help !!!

Do I have Fibro?

Amiltryptiline

Confused about Fibromyalgia

Can anyone please advise me if any research has been made into Fibromyalgia pain and Estrogen levels?

How does g.p help in treating fibromyalgia?

PIP

Pregabalin

Fibo - jaw pain

Pain clinic course

Has anyone had lidocaine infusions ?

ADVICE NEEDED. Coming to terms with Fibro-Life. Newly diagnosed- Long-term sufferer 🌻

Is this what fybro feels like?

Before First Big Flareup...

New Member - Fibro Sufferer

Long COVID, ? Actually Fibromyalgia

Who should i be seeing?

Barometric pressure, and storms.

Dulpxetine

Back payments for cognitive disorders

Walk a mile in my shoes

Pip

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