Walk a mile in my shoes

[Bruton]

I'm 56 years old. And yes i know there are always people worse off than me in the world. But Ive certainly had my fair share of trauma over the years. And major surgery, so pleanty of reasons for fibro to develop. Ive become very fond of the saying "walk.a mile in my shoes".

i dont want people to fully understand, just accept and empathise.

Maybe now with so many poor people devoloping long covid, with an enormous ammount of similarities, to fibro; people may start to have a better understanding of fibro.

There are millions of new miles being walked

[Hazel_Angelstar Administrator FMA UK Staff]

I think just having someone who makes the attempt to understand your journey and those miles you have walked, makes such a difference. Yes = we are all different and my mile will be completely different from your mile ..... but we are all walking it together

[Lucyloo67]

Hi, I have thought exactly the same they were quick to recognise long Covid and yet all the grief fibromyalgia suffers have had for years and years totally confuses me. Not just fibromyalgia suffers a lot with people with similar conditions and illnesses too. I’m hoping it’ll be a wake up call all round let’s see what happens. X

[Lizzo30]

Trouble is though many such as myself will not be able to prove they have long covid because often the test will come up negative , my family all got covid in various forms from my youngest daughter who got it from her flat mates at university last November or December, half of the students in her flat tested positive for covid but my daughter didn't , yet we all have it , I had what I thought was stomach flu back in February for 3 months and didn't link it to covid at the time , also I tested negative for covid, now it has returned and is slightly different this time , I don't expect to get diagnosed with long covid yet I realise now that is what I have

[Bruton in reply to Lizzo30]

I have no idea how they test for long covid, the best ive managed is highly likely fibro. With me doing all the research. Because i was tired of being madebto feel like a hypochondriact and time waster. Ive learnt, at last , to listen to my body and how i feel. The label is exactly that. Take care, good luck