Do you decline ?!

[Rosco14]

Good Evening you amazingly strong people 😊

So my biggest question, now i have come to terms with this horrible disease ( if i can say that) and am no longer in denial 🙈

Does this condition get worse as you get older? Now i am fully aware as you get older your body needs some extra tlc of course but does this condition deteriorate over time?!

Just so i am prepared 😬

As i sit here and my jaw is locking and feeling so tight. My wrists, legs and knees are throbbing and i can feel a migraine i am so lucky to have found this site.

I can never let lose or say how bad i feel because if i was actually to tell someone my exact pain and how many different types i'm feeling, well lets just say they would think im a hypochondriac 🤣🤣🤣🤣🤣

So thank you to you all because the love i see on this site and positivity is incredible and it is all down to you guys 😘

[Arymretep]

Hi there , I’ve got worse as I’ve got older but i have arthritis too, how are you doing with the 30 mg duloxetine now, you just started it like me, well I’m into my second week and ok so far, my anxiety seems a little less but no help with my pain yet, Early days , It’s good to read the positive posts about it on here is though isnt it.

[Rosco14 in reply to Arymretep]

Yep still on 30mg and I'm so much better then the first week.I can drive and take the kids to school. My head feels a little heavy today though and today I've hd to take pain killers as my head is sore but i am doing alot again.

Arthritis must be sooo painful! My parents have ot in their neck.

Do you take anything else for the pain?

My nervous seemed calmer but today just a constant knot in my stomach 🤷‍♀️

I am going into my second week so lets see 🤞

I said i would give it 2 months and see how it works.

X

[Brighteyedbabe78 in reply to Rosco14]

I started on 60mg duloxetine and noticed a difference in my mood and anxiety after about 2 - 3 weeks. Pain wasn't touched though. Recently increased to 120mg and the pain has decreased dramatically. Not completely but enough that I can enjoy and live my life instead of a miserable existence. Hope it helps you too. I'm also on Dihydrocodeine and Pregabalin for back pain/nerve damage.

[Dizzytwo]

Hi there nice to meet you and welcome to the group 😊 Well I have had fibro now for 40 yrs yep im a golden oldie 65 next week lol

Does it get worse has we get older ummm. Talking from my personal experience I would say slightly. But then I have to factor in other health issues I have got through ageing. I have OA in hands, feet, hips and spine. So need a wheelchair when out of the home. So for me its a combination of the two things and not just fibro.

Some stay the same some get worse some have been known to get better. Theres no real way of knowing how it will effect each individual to be honest imo.

I would say live in the here and now and try not to predict how you will feel in the future. Take care and have a good day xx

Momo

PS I see you have left your post unlocked to this community only for privacy reasons you may want to lock it. Also locked posts tend to get more replies. If you wish to lock your post this link will show you how

healthunlocked.com/fibromya...

[denny_the_wench]

and also to Arymretep

If you are coping with the 1st 2 weeks on Duloxetine then in my experience I'd persevere... I was on 30mg for about 4 months and now have gone up to 60mg for a couple of months... (I kinda feel like I need 45 - lol but they don't seem to do it.) For me it HAS made a good difference - I've been able to get back to yoga practice again, I've lost weight, which is helping the arthritis, which means I can walk more - and so on.... my mood is definitely on the up and I'm MUCH less anxious too. The fibro pains in my back and core of my legs has lessened to the point I've been able to cut down on painkillers dramatically. I still get sensitive skin points and bowel issues vary as they always did - but at least I'm feeling more able to cope with them because other issues seem more "in my control"

I was only formally diagnosed about 3 years or so but looking back with that 20:20 vision we get, I've probably had it since my mid 30's (I'm 61 now). The only thing about getting older is as I've said - it's when everything else is happening all at once, is when it seems unmanageable. Find ways to cope with each specific problem and hopefully all those straws won't mount up on the poor camels back and you'll keep on coping! 🐫🐫🐫🐫 😆

[Arymretep in reply to denny_the_wench]

Thank you Denny that’s very helpful, great that you are taking less painkillers too, I’m only on 20mg as I’m older, at 73 , then probably go up to 40 then 60mg if I need them which I think is the normal dose? Yes it’s the overwhelming feeling that gets me, as I’ve always been able to cope with everything, but I do feel a little less anxious already,

[Rosco14 in reply to Arymretep]

I think that has been the hardest thing for me. I've always coped never felt stuff was to much and everyone around me my whole lofe has said i should have had numerous break downs by now and how do i cope carrying so much stress.I was always proud i was a coper and when anxiety and stress couldn't come out emotionally (because i thought i was fine 🤣) i think my body decided enough is enough.

So im learning the hard way that it is okay not to cope with everything and put a smile on.

[Arymretep in reply to Rosco14]

Very true, I was a carer for my parents for many years and like you just carried on even though I wasn’t well, that’s what we do, and it comes out in other ways , it’s a hard lesson but I think it applies to a lot of people with fybro, but we we are never too old to learn 😘

[Rosco14 in reply to Arymretep]

You amazing and appreciate the experience you've had.I think i carryed to much and my back broke. Denial is a hard one to get over x

[Brighteyedbabe78 in reply to Rosco14]

Holding on to so much stress and emotional pain is classed as trauma which can trigger Fibromyalgia and co-conditions. It's OK to finally give in to the trauma and try to heal the body and brain. Even the experts don't know what a lot of the brain does so don't focus on what caused you to feel this way. Concentrate in understanding the condition and know that you're not alone and there are things that you can do to help yourself. Good luck!

[Makie-Uppie]

Yes seems to get worse with time and then you have the wonderful decay that comes with advancing years as the icing on the cake, ooooh me piles are aching!

[Kitten-whiskers]

Good afternoon Rosco, Welcome to the forum, thats a really good question and I guess the answer would be differen't for everyone but in my experience - No it does not get worse as you get older, I have had to work hard and keep up doing differen't things to ensure I do not go back to how ill I used to be - such a world of difference and i continue to improve

Best wishes

Debs

[Lucyloo67]

I’ve had fibromyalgia for 14 years now mines definitely got worse. I also have several other conditions that now have crept in too. The hardest part of me was learning my limitations and I probably still haven’t learnt them completely. Good luck.

[dinkic]

Not sure I really have come to terms with it, most of the time I accept it and do the best I can but sometimes it gets to me (15 years living with it). I try when I am having a bad day/week that it is not always like this and that good days/weeks will return. Sorry if it is not all positive but think the truth is important. Wednesday for me was a horror because I overdid it on Tuesday but today is better. I tend to feel better when the sun is shining and its not too hot or cold. I am sure that as a strong individual you will get through the bad times, and look forward to the good. The people on this site are friendly, informative and kind but we also need to be realistic, stick with the group it will help. Good Luck and take care of yourself it is hard to be selfish but sometimes you need to be. Hugs

[JayCeon]

My "fibro experience" is I'm able to slightly improve it, month for month, like Debs / Kitten-whiskers sez by careful pacing, learning and minimizing triggers, a lot of self-treatment and the treatments that are right for me, self-care (or as dinkic self-deprecatingly jokes "selfishness"). But apart from that I've been in a continual full flare for coming up to 2 years, which wdnt allow me to work at all if I didn't do all this. Not getting worse.