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Endometriosis UK

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consultant advise

hello everyone, I have today been referred back to gynae for investigation for pain which may be associated to adhesions around my ureter after previous...

hello everyone, I have today been referred back to gynae for investigation for ...

ScoobyG

•1 month ago

1 Reply

Laparoscopy and bladder /bowel retention

Hello, I'm hoping someone else may have had a similar experience and can offer some advice. I had extensive endo surgery last week, a lot was removed and a...

Hello, I'm hoping someone else may have had a similar experience and can offer s...

Seetheworld

•6 months ago

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pain deep in vagina after peeing

MY STORY hi everyone, So I have stage four endometriosis. Basically all of the organs within my pelvic area ugly together. I’ve had severe period pain since...

MY STORY hi everyone, So I have stage four endometriosis. Basically all of th...

Cavapoochon7

•1 year ago

12 Replies

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frequent UTIs

hello, I have endometriosis and PCOS and am really struggling with frequent UTIs. I have already had 2 in less than a month and require antibiotics every...

hello, I have endometriosis and PCOS and am really struggling with frequent UTIs...

Plum234

•1 year ago

5 Replies

Can’t stop peeing

Having a flare up and get this intermittently during flare ups where I have to pee every 5 minutes. I’m trying to stay hydrated but it’s hard if it just comes...

Having a flare up and get this intermittently during flare ups where I have to p...

Littlebug77

•2 years ago

5 Replies

Bladder problems.Frequent urination.Just been diagnosed as having endometreosis

Has anyone had these bladder problems.I go to the toilet all night.Sometimes 8 times a night.The pressure to go to the toilet is terrible.Sometimes i go to the...

Has anyone had these bladder problems.I go to the toilet all night.Sometimes 8 t...

Rachel20

•2 years ago

24 Replies

Pain urination causes pain

Every morning when I wake up I get the worst pain caused by the build up of peeing. Even after releasing my bladder the pain continues for a couple of hours....

Every morning when I wake up I get the worst pain caused by the build up of peei...

Littlebug77

•2 years ago

6 Replies

Can endo by seen on CT scan?

I had a clear CT scan of my bladder, kidneys and urinary tract. Was wondering if endo is picked up on this type of scan? I have had IC suggested to me as a...

I had a clear CT scan of my bladder, kidneys and urinary tract. Was wondering if...

Hidden

•2 years ago

10 Replies

Betmiga/bladder endo

Has anyone been prescribed betmiga/mirabegron after a laparoscopy and treatment of bladder endo (ovarian and bowel too)? I take it daily and it worked for 2...

Has anyone been prescribed betmiga/mirabegron after a laparoscopy and treatment ...

Jo789

•2 years ago

5 Replies

Has anyone had a cystoscopy and did it hurt?

What's involved in a cystoscopy

Worryme

•3 years ago

10 Replies

Stress causing flare? And bladder endo.

I was wondering how quickly stress can cause endo symptoms and flare ups? I know it’s likely to be very individual but I’ve had a ridiculously stressful day...

I was wondering how quickly stress can cause endo symptoms and flare ups? I know...

Claire_Alexandra

•3 years ago

1 Reply

Drs appointment

Just had the most invalidating consultation with the Dr and feel very frustrated! Told him that whenever I’ve had a drink I feel bad pain and sciatica down my...

Just had the most invalidating consultation with the Dr and feel very frustrated...

Kitkat2020

•3 years ago

7 Replies

Persistent UTI post ovarian cyst and endometriosis removal

Hi there. I'm hoping someone has experienced similar as I'm slowly going in sane! I had pelvic repair surgery last June and since then I haven't been right....

Hi there. I'm hoping someone has experienced similar as I'm slowly going in san...

GILLY242001

•3 years ago

1 Reply

Just sharing my experience of small ovarian cyst

Hi, I'm 58, and while in my late 40's I had a scan and they saw a small ovarian cyst. As I was living on a small Caribbean island at the time, the response was...

Hi, I'm 58, and while in my late 40's I had a scan and they saw a small ovarian ...

Sooky

•3 years ago

1 Reply

Endometriosis of the bladder - what stage is it considered?

Hi everyone. Does anyone happen to know whether all endometriosis of the bladder is classed as the same stage (and if so, which stage is it?) or does it...

Hi everyone. Does anyone happen to know whether all endometriosis of the bladde...

CharlotteE07

•4 years ago

4 Replies

Experience of endo on the bladder?

I had a stay in hospital recently. I had horrendous pain in my back where kidneys are and was struggling to urinate properly. Then in hospital I wasn't able to...

I had a stay in hospital recently. I had horrendous pain in my back where kidney...

SophJaz

•4 years ago

4 Replies

Kidney

Someone please help, I’m at my whits end.... Suffering really bad with kidney infections, I’m on antibiotics but this pain in my flank area is ridiculous. To...

Someone please help, I’m at my whits end.... Suffering really bad with kidney i...

Nikkilouise

•5 years ago

2 Replies

Has anyone else had this issue with the Depo-Provera?

After I had my depo injection, I’ve had a lot of issues with my bladder having to go for a wee loads and in alot of pain? Ive has many wee samples checked and...

After I had my depo injection, I’ve had a lot of issues with my bladder having t...

Dorthy44

•5 years ago

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Bladder problems sending me crazy!

Please, please help. My last endometriosis scan 8 years ago showed endo on my bowel, ovary, uterus and in the uterus wall. I have now had bladder problems...

Please, please help. My last endometriosis scan 8 years ago showed endo on my b...

Staceysm01

•5 years ago

2 Replies

I'm new here! UTI or endo symptoms?

Hi there, my name is Megan and I’m a 22 year old uni student. I’m rather new to this group and it’s honestly so refreshing to read each of your stories and be...

Hi there, my name is Megan and I’m a 22 year old uni student. I’m rather new to ...

Hidden

•5 years ago

15 Replies

Leaking (sorry for the tmi)

Hey girlies, Sorry, this might be a little tmi. I'm a little embarrassed by it if I'm honest. In the last 6 months, I've started to experience leaking...

Hey girlies, Sorry, this might be a little tmi. I'm a little embarrassed by it ...

Mariecomte

•5 years ago

1 Reply

Suspected Endometriosis with bladder issues

Good morning everyone. I am new to this community and could do with some help. I have posted on other forums but they are not specific to endometriosis. I am...

Good morning everyone. I am new to this community and could do with some help. ...

Charley_22

•5 years ago

12 Replies

Zoladex & blood in urine?

Hi all, Just looking for a bit of advice for those who've had zoladex. I've had two injections so far due my third next month for helping with the endo. The...

Hi all, Just looking for a bit of advice for those who've had zoladex. I've ha...

Lydm

•5 years ago

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Endo and water infections

Hi, I was diagnosed with endo after an op in 2012. I had a few problems with periods afterwards and had to have injections or the pill. I had a good 4 years...

Hi, I was diagnosed with endo after an op in 2012. I had a few problems with per...

Pumpkin2008

•5 years ago

6 Replies

Bladder surgery

I have to have surgery to remove a large amount of endo from my bladder they have to obviously give worse case scenario but they have said they could damage my...

I have to have surgery to remove a large amount of endo from my bladder they hav...

Dkb29

•6 years ago

7 Replies

PROSTAP 3DCS INJECTION FOR ENDOMETRIOSIS

HI EVERYONE! PLEASE SOMEBODY HELP ME.. I'VE HAD MY ONLY ONE INJECTION ON 10TH OF APRIL 2018.. AND SOON IT WILL BE 6 MONTHS SINCE, AND I STILL HAVE NO PERIOD.....

HI EVERYONE! PLEASE SOMEBODY HELP ME.. I'VE HAD MY ONLY ONE INJECTION ON 10TH OF...

marta1987

•6 years ago

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Bladder endometriosis? Weird bleeding and pain returned, 4 months post-lap.

This is my first post, but reading other's posts in this community has been so helpful to me over the past few months. Thank you all! After years of menstrual...

This is my first post, but reading other's posts in this community has been so h...

Writecat

•6 years ago

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Bladder

I feel like ever since I really started to experience significant bladder issues they have just not stopped. At this point I almost cant remember what it feels...

I feel like ever since I really started to experience significant bladder issues...

RR21

•6 years ago

5 Replies

UTI/endo on bladder?

The beginning of me finally realising there was something wrong with my body started with having a UTI that didn’t clear with two lots of antibiotics. I...

The beginning of me finally realising there was something wrong with my body sta...

CJessicaD

•6 years ago

12 Replies

UTI symptoms but no infection?

Hi everyone, For the past few months now (maybe since around August/September) I've been getting some symptoms of a UTI, usually every 4 weeks, sometimes I...

Hi everyone, For the past few months now (maybe since around August/September) ...

Dee11

•6 years ago

4 Replies

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Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

Bladder posts

consultant advise

Laparoscopy and bladder /bowel retention

pain deep in vagina after peeing

frequent UTIs

Can’t stop peeing

Bladder problems.Frequent urination.Just been diagnosed as having endometreosis

Pain urination causes pain

Can endo by seen on CT scan?

Betmiga/bladder endo

Has anyone had a cystoscopy and did it hurt?

Stress causing flare? And bladder endo.

Drs appointment

Persistent UTI post ovarian cyst and endometriosis removal

Just sharing my experience of small ovarian cyst

Endometriosis of the bladder - what stage is it considered?

Experience of endo on the bladder?

Kidney

Has anyone else had this issue with the Depo-Provera?

Bladder problems sending me crazy!

I'm new here! UTI or endo symptoms?

Leaking (sorry for the tmi)

Suspected Endometriosis with bladder issues

Zoladex & blood in urine?

Endo and water infections

Bladder surgery

PROSTAP 3DCS INJECTION FOR ENDOMETRIOSIS

Bladder endometriosis? Weird bleeding and pain returned, 4 months post-lap.

Bladder

UTI/endo on bladder?

UTI symptoms but no infection?

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