Posts - AMN EASIER | HealthUnlocked

AMN EASIER

1,328 members•1,188 posts

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Pain, spasticity, quack remedies.

Only 10% of non-surgical treatments for back problems kill pain, says review...

monkeybus

•8 days ago

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Pain in arms

Been a while this has been occurring now, I always wrote it off, but lately it's been getting to me. I'll expand. I sleep on my front, always have. Often...

Been a while this has been occurring now, I always wrote it off, but lately it's...

monkeybus

•9 days ago

7 Replies

Sensation?

Does anyone else have their penile sensation reduced so much that you are unable to achieve orgasm? I have not been able to get there for years now and am...

Does anyone else have their penile sensation reduced so much that you are unable...

easygoin1

•18 days ago

6 Replies

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Started saroglitazar today

Summary: I started taking 4 mg saroglitazar before breakfast, I'm optimistic about its efficacy for AMN, and I'm still taking pioglitazone in the evening,...

Summary: I started taking 4 mg saroglitazar before breakfast, I'm optimistic abo...

tetris

•2 months ago

3 Replies

Weight-loss jabs linked to reduced risk of 42 conditions including dementia

https://www.theguardian.com/society/2025/jan/20/weight-loss-jabs-linked-to-reduced-risk-of-42-conditions-including-dementia Yes, I realise these...

https://www.theguardian.com/society/2025/jan/20/weight-loss-jabs-linked-to-reduc...

monkeybus

•2 months ago

6 Replies

New Study: Diet and ALD

Very interesting. At the bottom there’s a link to the table of foods to avoid and foods to eat. https://www.mdpi.com/2072-6643/16/19/3341

Very interesting. At the bottom there’s a link to the table of foods to avoid an...

Djp1989

•3 months ago

13 Replies

Full time work transition

Hi guys. I really love my work, it does wonders for my mental health/purpose. I know alot of us blokes (and ladies) are the same. I am currently managing to...

Hi guys. I really love my work, it does wonders for my mental health/purpose. I...

A7x1823eb

•3 months ago

2 Replies

Night Spasms

Thinking about it, spasms were the first of the annoying as hell symptoms that I experienced. I had abnormal wear on my shoes, used to trip a lot, had sleep...

Thinking about it, spasms were the first of the annoying as hell symptoms that I...

monkeybus

•3 months ago

17 Replies

calf pain when walking

I don't have pain when I'm sitting or sleeping at night, but after I start walking, the pain continues to increase in intensity. I have to sit on a bench and...

I don't have pain when I'm sitting or sleeping at night, but after I start walki...

vinsanity1525

•3 months ago

6 Replies

Has anyone tried high amounts of sulforaphane?

Sulforaphane (SFN) is an antioxidant that is found in cruciferous vegetables like broccoli. I started paying attention to it about a week ago when I started...

Sulforaphane (SFN) is an antioxidant that is found in cruciferous vegetables lik...

tetris

•4 months ago

2 Replies

Citicoline supplement

Does anyone have any experience or knowledge about the benefits of citicoline supplementation on AMN?

Does anyone have any experience or knowledge about the benefits of citicoline su...

vinsanity1525

•4 months ago

2 Replies

Started pioglitazone today

Why: We know that leriglitazone/MIN-102 is effective at slowing the progression of AMN and greatly reducing the risk of cerebral involvement, but unless I'm...

Why: We know that leriglitazone/MIN-102 is effective at slowing the progression ...

tetris

•4 months ago

13 Replies

ALD vaccine

A technology for treating ALD has appeared in our country; there are no analogues in the world. They take stem cells, make a vaccine and inject it into the...

A technology for treating ALD has appeared in our country; there are no analogue...

Intensor

•4 months ago

7 Replies

What form of omega 3 supplement?

I saw that they used the ethyl ester form in a few studies, but some of the doctors I talked to said something like, you can use EPA/DHA supplements in...

I saw that they used the ethyl ester form in a few studies, but some of the doct...

vinsanity1525

•5 months ago

4 Replies

PXL 770

Has everyone here heard about the ALD drug PXL 770? It is undergoing phase II trials and will soon be available for...

Has everyone here heard about the ALD drug PXL 770? It is undergoing phase II tr...

Intensor

•5 months ago

3 Replies

Marijuana

Has anyone used prescription marijuana? There are many papers on its anti-inflammatrory properties and other benefits...

Has anyone used prescription marijuana? There are many papers on its anti-infla...

mariagno

•5 months ago

5 Replies

Sacral neuromodulation

Hi guys, has anyone had sacral neuromodulation fitted? My urologist finally says I could try this but I'm now unsure due to having to have surgery to have this...

Hi guys, has anyone had sacral neuromodulation fitted? My urologist finally says...

jordlee21

•5 months ago

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Nervonic acid

Have anyone tried taking Nervonic Acid? The following article showing benefits from NA...

Have anyone tried taking Nervonic Acid? The following article showing benefits f...

Yevgenii

•6 months ago

23 Replies

Peripheral Neuropathy

Hello everyone!!! I think I have been dealing with peripheral neuropathic pain. There’s not a medicine yet that has helped with this pain. Anyone else...

Hello everyone!!! I think I have been dealing with peripheral neuropathic pain. ...

TravisWharam

•7 months ago

10 Replies

Dalfampridine (Ampyra)

I was wondering if anybody with ALD/AMN in the UK was using Dalfampridine (Ampyra) to help with walking? I believe that it was initially an MS drug but it is...

I was wondering if anybody with ALD/AMN in the UK was using Dalfampridine (Ampyr...

Mash69

•7 months ago

1 Reply

Some good news again from Minoryx.com 😊🎉 🎊

https://www.minoryx.com/media/leriglitazone_halts_disease_progression_in_adult_patients_with_early_cerebral_adrenoleukodystrophy_in_compassionate-use_study_publ

https://www.minoryx.com/media/leriglitazone_halts_disease_progression_in_adult_p...

Yhen

•9 months ago

2 Replies

AMN and sense of smell

I really want to know how our illness affects our sense of smell? Neurodegenerative diseases such as Parkinson's and Alzheimer's are known to damage the sense...

I really want to know how our illness affects our sense of smell? Neurodegenerat...

Intensor

•9 months ago

14 Replies

How is your skin?

I recall folks posting about skin issues and AMN a few years back, or did they? Never mind try this for size. Been going on for months and months now, When...

I recall folks posting about skin issues and AMN a few years back, or did they?...

monkeybus

•11 months ago

12 Replies

crickets….

how is the community doing? Anything new and exciting or happy and sad?🤷‍♂️😊

how is the community doing? Anything new and exciting or happy and sad?🤷‍♂️...

3WheelWonder

•11 months ago

9 Replies

Amnmac

Just starting to tick my hands are painful Just had a scan for arthritis she said to me do you have park decei. I don't think I have why. Am I...

Just starting to tick my hands are painful Just had a scan for arthritis she ...

Amnmac

•1 year ago

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Stem cell transplant

Hello, Has anyone woth AMN here ever had a stem cell transplant as a result of a diagnoses involving cerebral involvement? Please tell all! Is it a viable...

Hello, Has anyone woth AMN here ever had a stem cell transplant as a result of a...

A7x1823eb

•1 year ago

12 Replies

Minoryx Advance trial over

Hi everyone, I got a letter a few days ago from NHNN London saying they're terminating the MIN-102 trial. This was expected as the trial didn't show any...

Hi everyone, I got a letter a few days ago from NHNN London saying they're term...

wilburlois15

•1 year ago

4 Replies

Swanbio gene therapy study

Anyone know how this study is going? I did a google search and there was something posted a few days ago but you had to buy the report. $500. I’m very...

Anyone know how this study is going? I did a google search and there was someth...

Golfdog3

•1 year ago

3 Replies

Connecting Communities Call 2/25 @ 3pm GMT

ALD Connect and Alex TLC are hosting a community breakout call for phenotypes of ALD this Sunday 2/25 @ 3pm GMT/10am EST. Here in the states I help...

ALD Connect and Alex TLC are hosting a community breakout call for phenotypes of...

KennyInPA

•1 year ago

4 Replies

Arthritis/Ald

Will all the women with ALD have arthritis?? Any relation between both??

AKDS

•1 year ago

5 Replies

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At my wits end(sex and anorgasmia related post)

Hello, everyone, I want to consult, amn patients sexual dysf...

AMN and diet

Endocrinology information

Latest poll

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Women-only: at what age did your symptoms first become noticeable?

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VLCFA (12)

All things AMN EASIER(10)

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Posts - AMN EASIER | HealthUnlocked

AMN EASIER

Pain, spasticity, quack remedies.

Pain in arms

Sensation?

Started saroglitazar today

Weight-loss jabs linked to reduced risk of 42 conditions including dementia

New Study: Diet and ALD

Full time work transition

Night Spasms

calf pain when walking

Has anyone tried high amounts of sulforaphane?

Citicoline supplement

Started pioglitazone today

ALD vaccine

What form of omega 3 supplement?

PXL 770

Marijuana

Sacral neuromodulation

Nervonic acid

Peripheral Neuropathy

Dalfampridine (Ampyra)

Some good news again from Minoryx.com 😊🎉 🎊

AMN and sense of smell

How is your skin?

crickets….

Amnmac

Stem cell transplant

Minoryx Advance trial over

Swanbio gene therapy study

Connecting Communities Call 2/25 @ 3pm GMT

Arthritis/Ald

Search posts

Pinned Posts

Latest poll

Women-only: at what age did your symptoms first become noticeable?

Topics

Archive