Posts - AMN EASIER | HealthUnlocked

AMN EASIER

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Voice tremors

I am a 60 year old symptomatic female ALD carrier. I have had what has been term...

Stem cell therapy

I seem to recall a set of posts a year or two ago where someone with AMN had dec...
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COwithAMNAdministrator

Minoryx (MIN-102) AAN Talk April 20th

Anyone know what was discussed in this talk and results? I've heard generally po...
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Nortriptyline capsules

Hi All, I had an online appointment with my neurologist this week and I mentione...

AMN

Looking for best doctor for Amn . My son is 43. Has addisons. Just now has abno...

fed up

I,m new here, I have sca2 and feeling very angry at the things I cannot do, I ca...

Caffeine for Neuropathy Pain?

In one of my never ending quests to find relief for my daytime fatigue I may hav...

AMN Study for Future Trial

Hey Everyone! ALD Connect is working with a company for a future clinical trial ...

B12 Injections

I have adult-onset AMN and have noticed how tired I am getting. Is anyone else g...

Diet and AMN

I want to ask the group members what kind of diet do you use? Do you eat gluten ...

Vitamin D and ALD

Guys, I have a question - which of you tested for vitamin D? What are your indic...

Min-102

And I have a question - why in the USA, Britain, Germany and Canada, patients re...

ACTH and cortisol

Guys who have high ACTH with normal cortisol? What's going on with our adrenal g...

AMN and libido

Why do men with AMN develop sexual dysfunction? Is it due to spinal cord injury ...

Adrenomyeloneuropathy and adolescence

Why do men with adrenomyeloneuropathy begin to go bald in adolescence, and in ch...

Endocrinology information

I was just tidying up my browser tabs - when they get to be more than about 20, ...
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COwithAMNAdministrator

I got the shot

15 minutes in to the J&J shot. Will update as the time passes on any side effect...

Johnson and Johnson Vaccine

Has anyone had the Johnson and Johnson Covid vaccine yet? Side effects?

What medicines do you all take for fatigue and spasticity?

Hello everybody, first post. Hopefully not the last. I have lived ten years w...

Help

Sorry guys, I don’t really have anyone else to discuss this with. (I can count m...

Covid Vaccine and Addison’s/AMM

How many of you have gotten the vaccine and what have your side effects been lik...

Bladder urgencies

This may be an odd question, but have been wondering lately. I know that we have...

Has there been any discussions out there regarding AMN & CRISPR-Cas9 genome editing?

Has there been any discussions out there regarding AMN & CRISPR-Cas9 genome edit...

Hello from the Beneficiary Engagement Officer at Alex TLC 😊

Morning Everyone, I just wanted to introduce myself. My name is Suzanne and I am...

Mustard Seed Oil

I tried it years ago, and just thought about it again. Has anyone tried it as a...

Why only the adrenal glands and spine?

I was wondering if anyone had any insight into this. Why is it that the disease ...

Let's talk about Min-102 results from ALD news.

https://adrenoleukodystrophynews.com/2021/02/03/leriglitazone-improves-motor-fun...

MRI scan

Hi all I’m just after some advice from any other AMN sufferers in the uk, I see ...

MIN-102 results

6 minutes walk - no improvements Brain inflammation - improvements...

Reefer Madness!!!

I'll say right from the start that I don't smoke dope (anymore). I tried it aft...
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