Posts - AMN EASIER | HealthUnlocked

AMN EASIER
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Difficulty breathing 24/7 and Chest Discomfort/ Pain, Addison’s Disease, Hypogonadism, Osteoporosis, extremly high ACTH. Need Help, please.

Dear AMN community, first I want to thank the people contributing here, and help...

Women with cerebral ALD/AMN? Male adult transplant ?

Hi everyone. I would like to have your output on the subject, as well as share m...

Beta Blockers for spasticity, clonus, tremors, stress.

Hello everyone. I am currently on an up swing these days. Been taking a lot of ...
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Woman with Amn

I am 58 years old and have been diagnosed with AMN

Nerve Renew

Has anyone tried this branded supplement for their neuropathic pain? It's basica...

Retinal migraines

I have heard them called \"silent migraines\". Just updated my site with a news ...

Bone marrow trans plant is a go!!!

So fam this things is all a go! I am blessed to my have sister as match! I leave...

Has anyone here tried acupuncture or a ketogenic diet to help with their symptoms?

I don’t fully understand this article but I’ve been reading a lot about how a ke...

Anxiousness

I do not do well around crowds; usually I become anxious and nervous about surro...

Please join us for an ALD Connect Community Call: Symptomatic Men 1/27/2020.

The call will be facilitated by Tim Maguire. Please reach out to info@aldconnect...

Dwp phone call on a Sunday

Has anyone else had dwp ring on a Sunday at 8.30am to talk about the pip review ...

High Oleic Peanuts

Have you lot seen this? I don't know if it's genetically modified or not.

Min-102

Here’s some very exciting news:...

ACTH levels getting higher

I've been back in the states for a couple of weeks now. I just got my blood work...

Diet

If it is has now been established that limiting dietary intake of VLCFAs’ is not...

Numbness or tingling

I have been getting a numbness on and off in the bottoms of my feet, but recentl...

Season's Greetings

Dear friends, I hope the year that is ending has been one where newcomers have b...

Very sad mother of a young boy

Hello everybody I am new here. I am a carrier ALD female, I am 32 years old and...

Bone marrow transplant number 2

BONE MARROW TRANS PLANT PART TWO! So its a go At MSGH to receiver a bone marrow ...

Brain Function

Would love any input or suggestions to work on improving comprehension and cogni...

Hot and cold wheater and AMN symptoms

Dear AMN carriers! I would like to share on tought based on a recent experience...

Hello, everyone. How long has the test of min-102 been going on? Have you made any improvement?

Hello, everyone. How long has the test of min-102 been going on? Have you made a...

Exercise Equipment: Sanddune Stepper

Check this out. My personal trainer recommended it to me. Seems great for balanc...

Cell-based Gene Therapy Represents ‘Hope’ for X-ALD Patients, Review Study Suggests

Definitely hopeful for the future of ALD/AMN!...

THIS is ALD too (no more “c” word)

A very interesting and well written article regarding women carriers and ALD....

A new problem for me!

Hi all - I've been falling often in the last 2 weeks. My left leg just goes out ...

MIN-102 trial 72-week update

72 weeks! It's been a long time. Once more back to the Nuffield Ward at NHNN for...

Age

How old were you when you were diagnosed?

New AMN Website

Hello boys and girls. There is a new AMN website up and running. It is very go...

New bloke

G'day all. I'm new to this group and wanted to briefly introduce myself. I fou...
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