Posts - AMN EASIER | HealthUnlocked

AMN EASIER

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hericium

hi, someone used fungus hericium? if yes wich kind and wich dose? for how lon...

 Neurostimulator Medtronic.

Has anyone been offered to implant a Medtronic neurostimulator? This is such a s...

Improvements!!

Since I had the Baclofen pump installed my spasticity pretty well has went away....
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trying to have a life after divorce

My wife did file for divorce, just 4 days before our 9th anniversary. Her reaso...

ALD Connect EL-PFDD 7/22/22 - Your Comments Requested!

On July 22, 2022, ALD Connect will host an Externally-Led Patient-Focused Drug D...

Swanbio Gene Therapy Trial

Has anyone researched the swanbio gene therapy trial? Or even began the trial? I...

MIN-102 update: summer 2022

Hi everyone, I am persisting with the min-102 trial and yesterday had my 10th vi...

MRI

My doctor said AMN has caused no brain damage. I am relieved. Thanks for answe...

Min102 trial

Hi I have been taking part in the min102 trial for nearly 3 years , I gave it up...

Do You Have Difficulty Inserting Your Foot Into Leg Openings?

I've been meaning to ask this question for awhile. As some of you know, I have a...

SwanBio

Ciao a tutti, qualcuno di voi ha mai sentito dello studio genetico della SwanBio...

Minoryx Study

Hi Guys! This looks promising!!!...

Dry OAB

Has anyone taken Mirabegron for dry oab? Taken it for a week and although sympt...

AMN progression

Just kind of wondering what everyone's progression was like. I first started hav...

Two new AMN/ALD drug developments?

These passed my way today and look interesting, especially the SwanBio one:...
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Алд34

Здравствуйте, я новичок, брат 34 г болен алд, диагноз поставлен три месяца назад...

Possible adrenal gland removal

I am having Robotic Laparoscopic Nephrectomy on Monday. A mass was found on my l...

Neurological Disease in Females

https://aldconnect.org/wp-content/uploads/2022/05/AAN-poster_female-disease-burd...

Restless leg

https://www.sciencedirect.com/science/article/pii/S138994572200051X

Oxybutynin 5mg.

I have taken Oxybutynin 10mg extended release for years with mixed results. I...

Cerebral version

Hello, Thank you to everyone who has answered my questions. I am sorry to say, I...

Sinemet

Hello everyone, Happy spring wishes. Just curious if anyone has been prescribed...

Do all AMN patients have some brain lesions?

Hello, I always thought that all adult AMN patients have some demyelination in t...

Adult cerebral version

Hello, Does anyone know what percentage of adult patients with AMN eventually g...

Alex TLC General Catch Up: Men with Symptoms

Hi All, We have a general catch up tomorrow, Wednesday 20th April, from 18:00-19...
Partner

Bone marrow transplant

Hello, I am 60 years old. I have been struggling with AMN for over 35 years. I a...

Male Kegel Exercises

Kegel muscles support the pelvic floor and are also part of sexual activity. Y...

Improvement of motor function in patients with AMN

Cruising about for AMN clinical trials, I found this from the 2012 European Leuk...

Exercise Study of Function and Pathology for Women With X-linked Adrenoleukodystrophy

Has this been posted here before? Have it a second time if so. Read afresh if ...

Myrbetriq versus Oxybutynin

I've been taking Myrbetriq for several years to help with urinary symptoms. It's...
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