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AMN EASIER

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AMN and pregnancy

Hi friends, I am a 37yr old female AMN carrier. I really want to have a child, h...

pioglitazone and adrenomyeloneuropathy

Has anyone tried or have any information on pioglitazone and adrenomyeloneuropat...

Men with AMN

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Neuralgic Pain Worse

I have a baclofen pump and take gabapentin yet my pain in legs is worse than eve...

AMN and sexuality

How do the band members cope with sexual problems? Is it possible to do somethin...

AMN begins abcd1 gen

Hi, I am 30 years old and was diagnosed 1 Year ago with AMN, wrong abcd1 gen and...

Weakness of the anus

Does anyone present have a feeling of spasticity and weakness of the muscles of ...

Pain in the muscles of the back

Can anyone explain why I have had discomfort for years, and sometimes pain and t...

Voice tremors

I am a 60 year old symptomatic female ALD carrier. I have had what has been term...

Stem cell therapy

I seem to recall a set of posts a year or two ago where someone with AMN had dec...
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COwithAMNAdministrator

Minoryx (MIN-102) AAN Talk April 20th

Anyone know what was discussed in this talk and results? I've heard generally po...

Nortriptyline capsules

Hi All, I had an online appointment with my neurologist this week and I mentione...

AMN

Looking for best doctor for Amn . My son is 43. Has addisons. Just now has abno...

fed up

I,m new here, I have sca2 and feeling very angry at the things I cannot do, I ca...

Caffeine for Neuropathy Pain?

In one of my never ending quests to find relief for my daytime fatigue I may hav...

AMN Study for Future Trial

Hey Everyone! ALD Connect is working with a company for a future clinical trial ...

B12 Injections

I have adult-onset AMN and have noticed how tired I am getting. Is anyone else g...

Diet and AMN

I want to ask the group members what kind of diet do you use? Do you eat gluten ...

Vitamin D and ALD

Guys, I have a question - which of you tested for vitamin D? What are your indic...

Min-102

And I have a question - why in the USA, Britain, Germany and Canada, patients re...

ACTH and cortisol

Guys who have high ACTH with normal cortisol? What's going on with our adrenal g...

AMN and libido

Why do men with AMN develop sexual dysfunction? Is it due to spinal cord injury ...

Adrenomyeloneuropathy and adolescence

Why do men with adrenomyeloneuropathy begin to go bald in adolescence, and in ch...

Endocrinology information

I was just tidying up my browser tabs - when they get to be more than about 20, ...
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COwithAMNAdministrator

I got the shot

15 minutes in to the J&J shot. Will update as the time passes on any side effect...

Johnson and Johnson Vaccine

Has anyone had the Johnson and Johnson Covid vaccine yet? Side effects?

What medicines do you all take for fatigue and spasticity?

Hello everybody, first post. Hopefully not the last. I have lived ten years w...

Help

Sorry guys, I don’t really have anyone else to discuss this with. (I can count m...

Covid Vaccine and Addison’s/AMM

How many of you have gotten the vaccine and what have your side effects been lik...

Bladder urgencies

This may be an odd question, but have been wondering lately. I know that we have...
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