The Pain That Never Stops
SongStream4 days ago
For those who suffer with painful neuropathy, here is an article published in New Mobility that I highly recommend. New Mobility is a magazi...
2 Replies2 Likes
Stress and AMN
deengo6 days ago
When I was diagnosed my neurologist I had a very high stress job, that I loved.
my neurologist was adamant about me going in disability. whi...
monkeybus7 days ago
I was at my GP's yesterday to get some Lyrica. He's always full of ideas on what I should do. He doesn't have a clue about AMN though.
4 Replies2 Likes
Cancer treatment with A m n
gemini2305a month ago
Hi everyone does anyone know if cancer treatment I e chemotherapy would give the same results with a lady carrying the amn/ Ald gene or diff...
Home Office consider allowing cannabis oil prescription for epileptic boy
monkeybusa month ago
Have you been following this in the news? I have to hand it to the Mum. Cannabis oil is the only medicine th...
2 Replies1 Like
Spinal cord stimulator
Aaron98a month ago
I was recently recommended for a spinal cord stimulator (SCS) implant, as I have failed all conservative pain management attempts (both phar...
3 Replies1 Like
MIN102 trial update
wilburlois15a month ago
Last week I had my baseline session for the trial at NHNN in London. This involved a lot of tests: fasting bloods (started at 7:30am), dista...
17 Replies4 Likes
Air compression leg machine
Seifert_09a month ago
So after much research I finally pulled the trigger and bought this product. Now I’m not trying to pitch any one brand I just went with the ...
7 Replies3 Likes
Verapamil - calcium channel blocker for neuropathic pain?
I saw a new pain management specialist today, and was just prescribed Verapamil to potentially help with neuropathic pain. It is a calcium c...
8month old ALD
Rosita52 months ago
My son was diagnosed at 1 month with ALD. His cortisol levels were checked and his HCT keeps going a little higher than the ACT (I hope I am...
Harlech2 months ago
Hi. Looking at having b/tests by blue horizon, using the home visit service. If anyone has used this service we're you able to get early mo...
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Got to keep moving.
monkeybus2 months ago
Groundbreaking research shows that neurological health depends as much on signals sent by the body's large, le...
11 Replies11 Likes
First Time Leg Stiffness
KennyInPA2 months ago
So far on my AMN journey my legs have been fairly manageable with no issues with stiffness or spasms. I've been finding myself waking up a...
Fatigue is kicking my arse!
Seifert_092 months ago
All jokes aside this fatigue thing is really starting to worsen. Now I do take Modafinil but lately it has not had the same effect. I’m here...
monkeybus2 months agoPOPULAR
Just received this email:
Dear Mr Monkeybus,
Our team was informed that you are interested to participate in the above clinical trial.
To be ...
20 Replies1 Like
Hello from a new user!
Cambridge_Chris2 months ago
I am relatively new to the site, and just wanted to say a quick 'hello' to everyone here, and say that I've found it very helpful to look t...
3 Replies3 Likes
Electronic Muscle Stimulation
Modjeskatim2 months ago
I am new to this site so forgive me if this is a topic that has been discussed already. I am interested if anyone has tried Electronic Musc...
Aaron982 months ago
In my continuing quest to find some relief from the intense neuropathic pain in my feet and lower legs, I had been considering acupuncture f...
spalding2 months ago
Suffering with severe lower back pain am struggling to get out of bed in morning when up and moving it eases a bit got MRI tomorrow is this ...
Hello. First Post.
hvaan2 months ago
Just registered on this site, I was given my genetic test result last week and the nurologist then confirmed I had AMN. VLCFA blood test w...
Spasticity (again) , constipation (again), fatigue (always).
It's always the same, much like my posts, but I'll say this again.
About two weeks ago my spasticity was through the roof. Off the scale. ...
12 Replies2 Likes
Addison’s disease AMN and COQ10
Abdallahomari793 months ago
I have addison’s disease since childhood. Is it ok to take COQ10. What dosage would anyone recommend daily. I am over 38 years old now
Botox injections in legs
Aaron983 months ago
Hello all, I hope you are well. This week I saw a neuro-rehabilitation specialist in Seattle for the first time. She wasn't able to give me ...
Laird_Mac3 months agoPOPULAR
I started showing visible signs of AMN when I was 21 and am currently experiencing a constant, stiff aching pain in my legs from mid thigh d...
Carrier of Addisons diease
Hidden3 months ago
Hi my name is Shinae I’m a carrier of addisons diease just would like to know what does this mean do I have the addisons diease or just the ...
Baclofen and AMN
Abdallahomari794 months ago
or is this a sign of AMN deterioration?
AMN AND BACLOFEN WITHDRAWAL
I have terrible aches in my head, I feel like my bones in my brain are aching. Is this related to baclofen. Anyone went through a similar ...
deengo4 months ago
this might be real short notice to get any replies but I'm going to see my neurologist for my (past due) check up. i haven'tseen her since 2...
Flu 2018 sping
nikolahn4 months ago
Three weeks flu. One week out of work. Three weeks with crutches. Not violent but persistent.
Next week hopefully back to fitnessing.
Good news and bad
Aaron984 months agoPOPULAR
I just received my second denial letter from SSDI for disability benefits. The disability attorney that I am working with tells me that this...
22 Replies1 Like
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