Posts - AMN EASIER | HealthUnlocked

AMN EASIER

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Citicoline supplement

Does anyone have any experience or knowledge about the benefits of citicoline supplementation on AMN?

Does anyone have any experience or knowledge about the benefits of citicoline su...

vinsanity1525

•1 day ago

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Started pioglitazone today

Why: We know that leriglitazone/MIN-102 is effective at slowing the progression of AMN and greatly reducing the risk of cerebral involvement, but unless I'm...

Why: We know that leriglitazone/MIN-102 is effective at slowing the progression ...

tetris

•4 days ago

2 Replies

ALD vaccine

A technology for treating ALD has appeared in our country; there are no analogues in the world. They take stem cells, make a vaccine and inject it into the...

A technology for treating ALD has appeared in our country; there are no analogue...

Intensor

•5 days ago

5 Replies

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What form of omega 3 supplement?

I saw that they used the ethyl ester form in a few studies, but some of the doctors I talked to said something like, you can use EPA/DHA supplements in...

I saw that they used the ethyl ester form in a few studies, but some of the doct...

vinsanity1525

•9 days ago

4 Replies

PXL 770

Has everyone here heard about the ALD drug PXL 770? It is undergoing phase II trials and will soon be available for...

Has everyone here heard about the ALD drug PXL 770? It is undergoing phase II tr...

Intensor

•9 days ago

2 Replies

Marijuana

Has anyone used prescription marijuana? There are many papers on its anti-inflammatrory properties and other benefits...

Has anyone used prescription marijuana? There are many papers on its anti-infla...

mariagno

•20 days ago

5 Replies

Sacral neuromodulation

Hi guys, has anyone had sacral neuromodulation fitted? My urologist finally says I could try this but I'm now unsure due to having to have surgery to have this...

Hi guys, has anyone had sacral neuromodulation fitted? My urologist finally says...

jordlee21

•22 days ago

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Nervonic acid

Have anyone tried taking Nervonic Acid? The following article showing benefits from NA...

Have anyone tried taking Nervonic Acid? The following article showing benefits f...

Yevgenii

•2 months ago

17 Replies

Peripheral Neuropathy

Hello everyone!!! I think I have been dealing with peripheral neuropathic pain. There’s not a medicine yet that has helped with this pain. Anyone else...

Hello everyone!!! I think I have been dealing with peripheral neuropathic pain. ...

TravisWharam

•2 months ago

10 Replies

Dalfampridine (Ampyra)

I was wondering if anybody with ALD/AMN in the UK was using Dalfampridine (Ampyra) to help with walking? I believe that it was initially an MS drug but it is...

I was wondering if anybody with ALD/AMN in the UK was using Dalfampridine (Ampyr...

Mash69

•3 months ago

1 Reply

Some good news again from Minoryx.com 😊🎉 🎊

https://www.minoryx.com/media/leriglitazone_halts_disease_progression_in_adult_patients_with_early_cerebral_adrenoleukodystrophy_in_compassionate-use_study_publ

https://www.minoryx.com/media/leriglitazone_halts_disease_progression_in_adult_p...

Yhen

•5 months ago

2 Replies

AMN and sense of smell

I really want to know how our illness affects our sense of smell? Neurodegenerative diseases such as Parkinson's and Alzheimer's are known to damage the sense...

I really want to know how our illness affects our sense of smell? Neurodegenerat...

Intensor

•5 months ago

14 Replies

How is your skin?

I recall folks posting about skin issues and AMN a few years back, or did they? Never mind try this for size. Been going on for months and months now, When...

I recall folks posting about skin issues and AMN a few years back, or did they?...

monkeybus

•7 months ago

12 Replies

crickets….

how is the community doing? Anything new and exciting or happy and sad?🤷‍♂️😊

how is the community doing? Anything new and exciting or happy and sad?🤷‍♂️...

3WheelWonder

•7 months ago

9 Replies

Amnmac

Just starting to tick my hands are painful Just had a scan for arthritis she said to me do you have park decei. I don't think I have why. Am I...

Just starting to tick my hands are painful Just had a scan for arthritis she ...

Amnmac

•8 months ago

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Stem cell transplant

Hello, Has anyone woth AMN here ever had a stem cell transplant as a result of a diagnoses involving cerebral involvement? Please tell all! Is it a viable...

Hello, Has anyone woth AMN here ever had a stem cell transplant as a result of a...

A7x1823eb

•9 months ago

13 Replies

Minoryx Advance trial over

Hi everyone, I got a letter a few days ago from NHNN London saying they're terminating the MIN-102 trial. This was expected as the trial didn't show any...

Hi everyone, I got a letter a few days ago from NHNN London saying they're term...

wilburlois15

•9 months ago

4 Replies

Swanbio gene therapy study

Anyone know how this study is going? I did a google search and there was something posted a few days ago but you had to buy the report. $500. I’m very...

Anyone know how this study is going? I did a google search and there was someth...

Golfdog3

•9 months ago

3 Replies

Connecting Communities Call 2/25 @ 3pm GMT

ALD Connect and Alex TLC are hosting a community breakout call for phenotypes of ALD this Sunday 2/25 @ 3pm GMT/10am EST. Here in the states I help...

ALD Connect and Alex TLC are hosting a community breakout call for phenotypes of...

KennyInPA

•9 months ago

4 Replies

Arthritis/Ald

Will all the women with ALD have arthritis?? Any relation between both??

AKDS

•9 months ago

5 Replies

Temporary partial vision lost

Hello, I ask one more time the community about a problem I met yesterday and many times ago. Sometimes, I'm having trouble to watch, for example, the screen...

Hello, I ask one more time the community about a problem I met yesterday and ma...

Karukera

•9 months ago

2 Replies

AMN/ Addison

Will all AMN man will have Addison disease?how common it is?? Twitches in full body can be the initial symptom??

Will all AMN man will have Addison disease?how common it is?? Twitches in full b...

AKDS

•9 months ago

3 Replies

Women Seizure ALD

Pregnancy seizures can be the symptom of ALD for women??

AKDS

•9 months ago

3 Replies

Chip implantation

Guys, a man in China had a chip implanted in his head, will anyone then go there to try out the invention?Or will you wait for Neurаlink Musk? “The next stage...

Guys, a man in China had a chip implanted in his head, will anyone then go there...

Intensor

•10 months ago

2 Replies

AMN/Arthritis

Is arthritis can be Symptom of AMN for women?

AKDS

•10 months ago

1 Reply

Urinary tract infection (UTI)

I am with urine catheter last 8 months. From the beginning I am suffering UTI. Main symptom is fever. Hospital intravenous antibiotic is good to stop the...

I am with urine catheter last 8 months. From the beginning I am suffering UTI. M...

nikolahn

•10 months ago

3 Replies

After a fall

hi everyone, I had a fall two weeks ago, I fell off the commode while transferring. I'm in hospital but didn't break anything. But I did have a chest infection...

hi everyone, I had a fall two weeks ago, I fell off the commode while transferri...

Hillary

•10 months ago

6 Replies

Arms involvement

Hello everyone! I would like to aks if anyone here having problems with their arms, hands or fingers? I know that doctors say that AMN affects only lower...

Hello everyone! I would like to aks if anyone here having problems with their ar...

Yevgenii

•10 months ago

20 Replies

Question about the feeling of profond tiredness which can sometimes occurs but in a way instantly

Hello I send this message about a subject which doesn't appear frequently, according to me, in the thread. I'm talking about a sudden feeling of tiredness...

Hello I send this message about a subject which doesn't appear frequently, acco...

Karukera

•10 months ago

2 Replies

Leriglitazone information

Hi all, I'm currently in the process of applying to have my son take part in a paediatric Leriglitazone trial. I can find lots of information about the drug...

Hi all, I'm currently in the process of applying to have my son take part in a ...

TBUK1

•10 months ago

4 Replies

Write a post or ask a question

Posts - AMN EASIER | HealthUnlocked

AMN EASIER

Citicoline supplement

Started pioglitazone today

ALD vaccine

What form of omega 3 supplement?

PXL 770

Marijuana

Sacral neuromodulation

Nervonic acid

Peripheral Neuropathy

Dalfampridine (Ampyra)

Some good news again from Minoryx.com 😊🎉 🎊

AMN and sense of smell

How is your skin?

crickets….

Amnmac

Stem cell transplant

Minoryx Advance trial over

Swanbio gene therapy study

Connecting Communities Call 2/25 @ 3pm GMT

Arthritis/Ald

Temporary partial vision lost

AMN/ Addison

Women Seizure ALD

Chip implantation

AMN/Arthritis

Urinary tract infection (UTI)

After a fall

Arms involvement

Question about the feeling of profond tiredness which can sometimes occurs but in a way instantly

Leriglitazone information

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