Pain in arms

[monkeybus]

Been a while this has been occurring now, I always wrote it off, but lately it's been getting to me. I'll expand.

I sleep on my front, always have. Often than not with my arms under the pillow. But for a while now, I wake up and my arms are killing me.

Up, brush teeth, etc and I have forgotten about it, but of late the pain is lasting all day. All f**king day. I am talking about a brutal, unrelenting agony that emanates from nowhere and covers just about every muscle from shoulder to wrist.

I had a friend who had something similar, he went to hospital, a nurse game him a decent sports massage, she told him how a muscle pain can be as painful as a broken leg. I can believe.

Anyway, I am currently on day 3 of biblical pain, and I tried every pill I have access to, nothing sorts this pain.

An Australian doctor told me how when some folks crash out drunk on the sofa and they have an arm hanging over the edge, pushing on the elbow, you are so comatose drunk that your arm hangs like that for hours. If you weren't so hammered, your body would wake you up and you'd pull your arm in. But the result is you give yourself what the doctor called a "Friday night palsy". And it is irreversible.

What I think is, on account of my legs, I don't move much in my sleep anyway, and then I take Clonazepam before bed and so that zonks me out, and as a result, I get locked into the old on my front, arms under the pillow pose. Maybe.

Whatever, it f**king hurts.

This is mediated somewhat by the fact I have sort of been here before.

About 7 years back, the muscles around my right shoulder blade were in abysmal pain. Towards the end of a shocking week, I tried my TENS device, and it was like magic. As soon as the electricity started to flow, the pain was cut by a decent 90%. I wore those electrodes all day for five days. I waited the pain out, the TENS kept it at bay until it finally departed.

So this morning, I dug out the TENS and taped on the electrodes, two on the upper arm, two on the lower. And it worked. A lovely tingle through my muscles, and the pain is barely noticeable. All I gots to do is sweat it out until my arm rights itself (hopefully).

It is a lot of bother, all the messy gel, electrodes, the flapping wires, etc. Worth it, though. I really have to condition myself to sleep on my back. How can I change the habits of a lifetime?

Is this just me, waking up with the muscle pain?

[Yevgenii]

I don't have arm pain after night sleep, but I do have it during the day. Not so severe, but it makes me feel uncomfortable

[monkeybus in reply to Yevgenii]

I have been getting random arm pains for years now. The neurologist I was seeing at the time put it down to spasticity. Whole body is ratcheting up. I shall call upon 3WheelWonder for a considered, grown-up opinion on this.

[StevenSims]

I’ve had pain in my arm but Dr Engelen told me AMN doesn’t affect upper body! I progressed to a frozen shoulder I’ve had it year now very painful but it’s starting to defrost I still can’t lift my arm sideways but is not so bad now.

All the best

Steve

[monkeybus in reply to StevenSims]

Is this your Dr Engelen?

engelenortho.com/

[StevenSims]

I don’t think that’s him he’s a top dr in Amsterdam I was doing the Advance study there I’m still taking the min102 on compassionate use. I just noticed your pic reminds me of FES I have them on both legs it picks up the toes to save tripping

[quilling]

I am an affected female 64 years old. Started symptoms at 22. I was told way back it would only affect my legs. I began to lose fine motor/writing ability in my 50s. Tremors, head hands. Then difficulties swallowing and speech. Now it is known ALD/AMN does affect the upper body. I sleep on my back or side. My arms ache when I wake hands are asleep even though they are by my side. The feeling gets better as I get moving but less feeling in hands and Reynards hands and purple feet are fun. It is part of the deal. I’m happy to know TENS helped. I need to get one. I’ve had some kill me pain days lately. Funny how I can cut myself and bleed and not feel it but the pain oh yes we feel that!

[monmon]

My mum told all along “no upper body”. Yeh right… Pain, neuropathy, loss of fine motors, the lot. Good luck 🍀🍀🍀