Posts - AMN EASIER | HealthUnlocked

AMN EASIER

1,312 members • 1,164 posts

All posts for November 2020

Recommended High Antioxidants

Here are the antioxidants that may have some effect on oxidant stress in AMN, and they are all safe. Biotin 300 mg /day; and Vitamin D3 dose 50,000 IU...

Here are the antioxidants that may have some effect on oxidant stress in AMN, a...

SongStream

•3 years ago

1 Reply

Have you looked at biotin

https://adrenoleukodystrophynews.com/2020/11/18/high-biotin-doses-restore-nerve-cell-health-ald-mouse-model/ Have you been following this article? The previous...

https://adrenoleukodystrophynews.com/2020/11/18/high-biotin-doses-restore-nerve-...

jayxie

•3 years ago

5 Replies

Anyone have the email address for Dr. Florian Eichler?

Dr. Eichler is at the Massachusetts General Hospital and sat in on an AMN session at the ALD Connect Conference last weekend. He offered to hook me up with...

Dr. Eichler is at the Massachusetts General Hospital and sat in on an AMN sessio...

SongStream

•3 years ago

8 Replies

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Modafinil

I’ve been on 100 mgs. for a little over 2-1/2 months and have begun to notice I’m not feeling as good as I felt when I first started it. For the past few days...

I’ve been on 100 mgs. for a little over 2-1/2 months and have begun to notice I’...

Magnolia209

•3 years ago

4 Replies

I saw Ken, Aaron, and Songstream at ALD connect annual meeting today.

How was your experience with the ALD connect annual meeting today? I attended that conference to see what treatments are for people with ALD/AMN and ask...

How was your experience with the ALD connect annual meeting today? I attended th...

artortega78

•3 years ago

15 Replies

Colorectal botox

Wow, we're hitting on all of the rough topics lately. And that's okay! So, has anyone gotten botox for colorectal symptoms (bowel urgency, spasms, etc.)?...

Wow, we're hitting on all of the rough topics lately. And that's okay! So, has a...

Aaron98

•3 years ago

6 Replies

At my wits end(sex and anorgasmia related post)

Good Afternoon Everybody, I’ve written here before about this but i am simply at my wits end. I like many amn patients have suffered from erectile dysfunction...

Good Afternoon Everybody, I’ve written here before about this but i am simply at...

User2468

•3 years ago

10 Replies

Supreme CBD

Hi guys, a month ago I won some CBD oil from an online competition hosted by a pro boxer. Since taking this I have noticed it has cut my urinary frequency by...

Hi guys, a month ago I won some CBD oil from an online competition hosted by a p...

jordlee21

•3 years ago

11 Replies

Braces and orthos

I’m curious what you guys are using to help you get around. I’ve tried a ton of different braces and custom orthos to help me walk a d get around. One of the...

I’m curious what you guys are using to help you get around. I’ve tried a ton of ...

Coslet

•3 years ago

3 Replies

Baclofen pump

My neurologist has discussed a Baclofen pump is the spasticity keeps increasing. What are e y’all’s thoughts on this. I’m not really for it myself.

My neurologist has discussed a Baclofen pump is the spasticity keeps increasing....

Equinney

•3 years ago

1 Reply

Yoga for AMM

Since being diagnosing AMN two years ago I have been wishing I started yoga 10 years before diagnosis. I didn’t have anything to back up my thinking it just...

Since being diagnosing AMN two years ago I have been wishing I started yoga 10 y...

Coslet

•3 years ago

3 Replies

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At my wits end(sex and anorgasmia related post)

Hello, everyone, I want to consult, amn patients sexual dysf...

AMN and diet

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Posts - AMN EASIER | HealthUnlocked

AMN EASIER

All posts for November 2020

Recommended High Antioxidants

Have you looked at biotin

Anyone have the email address for Dr. Florian Eichler?

Modafinil

I saw Ken, Aaron, and Songstream at ALD connect annual meeting today.

Colorectal botox

At my wits end(sex and anorgasmia related post)

Supreme CBD

Braces and orthos

Baclofen pump

Yoga for AMM

Search posts

Pinned Posts

Latest poll

Women-only: at what age did your symptoms first become noticeable?

Topics

Archive