Posts - AMN EASIER | HealthUnlocked

AMN EASIER

1,312 members • 1,165 posts

All posts for April 2019

Symptomatic Men Conference Call

The call starts in less than 30 minutes!! Please join us for our ALD Connect Community Call for Symptomatic Men! The call will be facilitated by Brian...

The call starts in less than 30 minutes!! Please join us for our ALD Connect Co...

•5 years ago

Gene Therapy and remyelination as a cure

Hello all, A good friend of mine was diagnosed yesterday with AMN. He already started having symptoms two years ago when he couldn't run more than a kilometer,...

Hello all, A good friend of mine was diagnosed yesterday with AMN. He already st...

•5 years ago

An Alarming Fall

One early morning last week on my way to the bathroom, both knees suddenly buckled and I fell to the ground. I had to pull each leg out from under me and then...

One early morning last week on my way to the bathroom, both knees suddenly buckl...

•5 years ago

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Medical Marijuana

I really am not that concerned about the old marihuana, but here is an interesting article from the Guardian about the current lack of prescribing in the UK....

I really am not that concerned about the old marihuana, but here is an interesti...

•5 years ago

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Head Surgery

https://www.bbc.co.uk/programmes/b09m60sk This is a great show. S02E01 shows head surgery, graphic as hell, though I watched it as I ate my dinner, so plainly...

https://www.bbc.co.uk/programmes/b09m60sk This is a great show. S02E01 shows he...

•5 years ago

Spinal electrical stimulation

Housebound Parkinson's patients have movement restored. https://www.bbc.co.uk/news/health-47803496

Housebound Parkinson's patients have movement restored. https://www.bbc....

•5 years ago

Quitting antidepressants

Antidepressants: is there a better way to quit them? https://www.theguardian.com/lifeandstyle/2019/apr/22/antidepressants-is-there-a-better-way-to-quit-them?...

Antidepressants: is there a better way to quit them? https://www.theguardian.co...

•5 years ago

The healing power of bleach

For the love of God, don't do this. 'Church' to offer 'miracle cure' despite FDA warnings against drinking bleach...

For the love of God, don't do this. 'Church' to offer 'miracle cure' despite FDA...

•5 years ago

Nerve conduction

I had a nerve conduction Thursday and my neurologist was puzzled by the outcome. She ended up testing the area around both ankles twice. She said the result...

I had a nerve conduction Thursday and my neurologist was puzzled by the outcome....

•5 years ago

Now I have an overactive bladder?! Oh my!

I am returning from my 6 month visit to Boston for the Min-102 trial. Flight was cancelled due to severe storms and now I'm sitting in Charlotte,NC to connect...

I am returning from my 6 month visit to Boston for the Min-102 trial. Flight wa...

•5 years ago

Gene Therapy Cures Different X-Linked Disease.

Fantastic. Researchers successfully treat babies with 'bubble boy' disease using gene therapy https://amp.usatoday.com/amp/3502388002 How the therapy works...

Fantastic. Researchers successfully treat babies with 'bubble boy' disease usin...

•5 years ago

Nortriptyline

Has anyone taken this medication? My neurologist says when you combine with gabapentin, it helps with the neuropathy pain in feet and legs. I don’t like being...

Has anyone taken this medication? My neurologist says when you combine with gaba...

•5 years ago

Living Through the Sting of Disability and Injury

I subscribe to New Mobility, Life Beyond Wheels, and this article really resonated with me. As I get older, my mobility is more impaired along with fatigue,...

I subscribe to New Mobility, Life Beyond Wheels, and this article really resonat...

•5 years ago

4-AP/Ampyra

I spoke to my neurologist last visit about 4-AP because it has been talked about here sometimes with good success. I just received a call from her office that...

I spoke to my neurologist last visit about 4-AP because it has been talked about...

•5 years ago

Depression

Is depression something that is common in dealing with AMN? It hasn’t been bad until recently, but it has grown to an unhealthy point. I emailed my PCP just...

Is depression something that is common in dealing with AMN? It hasn’t been bad u...

•5 years ago

AMN and spasms

Dear AMN friends, I would like to share a symptom I use to have for quite some time but it is growing, spasms on my legs. Usually I have spams when I am...

Dear AMN friends, I would like to share a symptom I use to have for quite some t...

•5 years ago

Scientists reverse memory decline using electrical pulses

Scientists reverse memory decline using electrical pulses...

Scientists reverse memory decline using electrical pulses...

•5 years ago

Minoryx are expanding

http://www.minoryx.com/minoryx-therapeutics-extends-its-activities-in-belgium/ There's got to be something promising in min102? They've started a trial for...

http://www.minoryx.com/minoryx-therapeutics-extends-its-activities-in-belgium/ ...

•5 years ago

Master List

Name: Karen Gender: Female Age: 57 Country: Norfolk, Virginia, USA Diagnosis: Symptomatic female AMN Addison's Disease: No Genetic Mutation:...

Name: Karen Gender: Female Age: 57 Country: Norfolk, Virginia, USA Diag...

•5 years ago

The Social Media Outlet

I recently noticed a search for AMN on YouTube brings up many videos of myself (along with other content on my YouTube channel, which is lottery/gambling...

I recently noticed a search for AMN on YouTube brings up many videos of myself (...

•5 years ago

Neurology Appointment

Finished a full day at doctors. 11 hours not including 5 hours on the road total. Retook the cosyntropin test because was unsure about a couple of levels. The...

Finished a full day at doctors. 11 hours not including 5 hours on the road total...

•5 years ago

AMN Symptomatic Men Community Support Call

Tuesday, April 30th, 8pm ET/7pm CT: Symptomatic Men Facilitated by Brian Chandler Register here:...

Tuesday, April 30th, 8pm ET/7pm CT: Symptomatic Men Facilitated by Brian Chandle...

•5 years ago

Symptomatic Women Community Support Call

Symptomatic Women Community Support Call by our own JoAnn Locy and Janis Sherwood. Wednesday, April 3rd, 7 p.m. ET/6 P.M. CT: Register Here:...

Symptomatic Women Community Support Call by our own JoAnn Locy and Janis Sherwoo...

•5 years ago

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LessThanRich

ALD Life proposed I come here as it is a support group for people with AMN. Being a severe sufferer for almost 10 years I jumped at the chance to share my...

ALD Life proposed I come here as it is a support group for people with AMN. Bein...

•5 years ago

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At my wits end(sex and anorgasmia related post)

Hello, everyone, I want to consult, amn patients sexual dysf...

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