Posts - AMN EASIER | HealthUnlocked

AMN EASIER

1,312 members • 1,164 posts

All posts for January 2017

DNA News

Organisms created with synthetic DNA pave way for entirely new life forms...

monkeybus

•7 years ago

1 Reply

Mybetriq?

Has anyone tried this drug to manage urinary urgency or frequency? I have been taking it for three days, and I haven't found it to make much of a difference so...

Has anyone tried this drug to manage urinary urgency or frequency? I have been t...

Aaron98

•7 years ago

9 Replies

Minoryx launch phase 2/3 for new AMN drug

Something else! Not exactly sure what it does because no description in the article (or anywhere else for that matter) but good news nonetheless....

Something else! Not exactly sure what it does because no description in the arti...

wilburlois15

•7 years ago

5 Replies

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Hormones

Had my adrenal glands checked. Cortisol, Aldosterone, Testosterone, all fine, nothing to worry about. A small relief in all this madness. The rapid ACTH test...

Had my adrenal glands checked. Cortisol, Aldosterone, Testosterone, all fine, no...

monkeybus

•7 years ago

23 Replies

cerebral amn

Does anyone with experience with cerebral amn have any tips or knowledge on how to communicate with someone who's lost their speech and vision? It is harder...

Does anyone with experience with cerebral amn have any tips or knowledge on how ...

bioting

•7 years ago

2 Replies

Another diet article, again, nothing to do with our disease.

This is about miracle cancer diets. It mentions the ketogenic diet. Interesting stuff. I'll stick with chemicals for now, at least they work. But since I...

This is about miracle cancer diets. It mentions the ketogenic diet. Interesti...

monkeybus

•7 years ago

4 Replies

This is absolutely nothing to do with our disease but it is definitely something we should explore. Have a read.

I realise some of us are exploring different diets. Paeleo, Wahls, Ketogenic, et al. Have a read of this...... How we ‘fixed’ our diabetic dad – and...

I realise some of us are exploring different diets. Paeleo, Wahls, Ketogenic...

monkeybus

•7 years ago

2 Replies

Otago exercise any good?

I have found a local Otago exercise group and was wondering if anyone had tried it.

I have found a local Otago exercise group and was wondering if anyone had tried ...

Cherie

•7 years ago

3 Replies

Spasticity (Triamcinolone Acetonide)

Triamcinolone Acetonide is a corticosteroid, it's usually sold as a cream for topical treatment. But look at these trials when it is applied intrathecally...

Triamcinolone Acetonide is a corticosteroid, it's usually sold as a cream for ...

monkeybus

•7 years ago

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ALD Patient Portal

A lady on the facebook Female Carriers of ALD page, pointed out the ALD Connect Patient Portal. Fairly new, it's been up since April but I had not come across...

A lady on the facebook Female Carriers of ALD page, pointed out the ALD Connect ...

monmon

•7 years ago

1 Reply

Symptoms? Onset of AMN?

Hello everyone, I'm a 33 year old woman, French, living in Germany. My dad died 12 years ago of ALD (2 brothers of him also died of (undiagnosed) ALD in their...

Hello everyone, I'm a 33 year old woman, French, living in Germany. My dad died...

Sandyyy

•7 years ago

26 Replies

Tauroursodeoxycholic acid

This was a new one on me. I only Googled it because I liked the name. http://link.springer.com/article/10.1007/s00401-016-1655-9 Tauroursodeoxycholic bile...

This was a new one on me. I only Googled it because I liked the name. http://...

monkeybus

•7 years ago

26 Replies

Spasticity (Whole Body Vibration Machine)

I used to go to this department store, they had a load of home exercise equipment, including a vibration machine. At the time, I had shocking Varicose Veins,...

I used to go to this department store, they had a load of home exercise equipmen...

monkeybus

•7 years ago

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Spasticity (Selective Dorsal Rhizotomy)

Was bored last night, Googled "revolutionary spasticity cure". Got this... http://thejupital.com/lottery-winners-pay-for-revolutionary-operation/ I'd never...

Was bored last night, Googled "revolutionary spasticity cure". Got this... http:...

monkeybus

•7 years ago

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At my wits end(sex and anorgasmia related post)

Hello, everyone, I want to consult, amn patients sexual dysf...

AMN and diet

Endocrinology information

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Posts - AMN EASIER | HealthUnlocked

AMN EASIER

All posts for January 2017

DNA News

Mybetriq?

Minoryx launch phase 2/3 for new AMN drug

Hormones

cerebral amn

Another diet article, again, nothing to do with our disease.

This is absolutely nothing to do with our disease but it is definitely something we should explore. Have a read.

Otago exercise any good?

Spasticity (Triamcinolone Acetonide)

ALD Patient Portal

Symptoms? Onset of AMN?

Tauroursodeoxycholic acid

Spasticity (Whole Body Vibration Machine)

Spasticity (Selective Dorsal Rhizotomy)

Search posts

Pinned Posts

Latest poll

Women-only: at what age did your symptoms first become noticeable?

Topics

Archive