Posts - AMN EASIER | HealthUnlocked

AMN EASIER

1,312 members • 1,163 posts

All posts for June 2015

ALD Connect Patient Portal

For those of you who don't already know, ALD Connect, a non-profit consortium of doctors, pharmaceutical industry, and ALD patients and advocates, launched a...

For those of you who don't already know, ALD Connect, a non-profit consortium of...

bsc78

•9 years ago

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Diagnosed with AMN

Hello My husband is 33. He was diagnosed with Addison's disease when he was 18. We have been married for 13 years and have two boys that are our joy. !...

Hello My husband is 33. He was diagnosed with Addison's disease when he was 18....

campbellkristy

•9 years ago

10 Replies

Lorenzo's Oil

Hello folks. Does anyone here actually take Lorenzo's Oil? My neurologist (who only prescribes an extremely limited set of drugs) says the Very Long Chain...

Hello folks. Does anyone here actually take Lorenzo's Oil? My neurologist (who...

monkeybus

•9 years ago

6 Replies

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Just one more....

Normally I try to be upbeat and positive,but in reality I feel alone,confused and lost as far as the future. Is this normal, or am I doing something wrong?...

Normally I try to be upbeat and positive,but in reality I feel alone,confused an...

Nordek

•9 years ago

7 Replies

Unusual for me...

Hi....yesterday I had my annual MRI. Normally, I manage to sleep throughout the experience. Yesterday, when the pump shut off, my legs started to spasm, jump...

Hi....yesterday I had my annual MRI. Normally, I manage to sleep throughout the ...

Nordek

•9 years ago

1 Reply

Just diagnosed with AMN

I got a letter 4 days ago saying I had a defect in the ABCD1 gene and that this confirmed my diagnosis of AMN. I'm 38 and have had symptoms since at least the...

I got a letter 4 days ago saying I had a defect in the ABCD1 gene and that this ...

wilburlois15

•9 years ago

8 Replies

AMN and me

Hi.....I was diagnosed with AMN eleven years ago when I was 51. I had always been an outdoorsy sporty type person, and went on to be a teacher trained in...

Hi.....I was diagnosed with AMN eleven years ago when I was 51. I had always bee...

Nordek

•9 years ago

13 Replies

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At my wits end(sex and anorgasmia related post)

Hello, everyone, I want to consult, amn patients sexual dysf...

AMN and diet

Endocrinology information

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VLCFA (12)

All things AMN EASIER(9)

Addison's(6)

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Posts - AMN EASIER | HealthUnlocked

AMN EASIER

All posts for June 2015

ALD Connect Patient Portal

Diagnosed with AMN

Lorenzo's Oil

Just one more....

Unusual for me...

Just diagnosed with AMN

AMN and me

Search posts

Pinned Posts

Latest poll

Women-only: at what age did your symptoms first become noticeable?

Topics

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