Posts - AMN EASIER | HealthUnlocked

AMN EASIER

1,312 members • 1,164 posts

All posts for April 2020

My doctor told me to prepare for the ALD gene therapy trial

My doctor told me to prepare for the ALD gene therapy trial, The first is called, the second is amn, I'm looking forward to it. I want to know that if the...

My doctor told me to prepare for the ALD gene therapy trial, The first is called...

•4 years ago

How can I help my student with leoukodystrophy?

Hi, I would like to know how can i help a student with leukodystrophy, he is 13 years old he is not taking any treatment. he is sometimes aggressive, it seems...

Hi, I would like to know how can i help a student with leukodystrophy, he is 13 ...

•4 years ago

From ALD Connect: Symptomatic Women Community Call 4/27

Symptomatic Women: April 27th @ 7:00 PM EST facilitated by Emma Hayes. Ladies, register here:...

Symptomatic Women: April 27th @ 7:00 PM EST facilitated by Emma Hayes. Ladies, r...

•4 years ago

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From ALD Connect: AMN Community Call April 28

AMN Men: April 28th @ 5:00 PM EST facilitated by Tim Maguire and Justin D'Agostino. Register here:...

AMN Men: April 28th @ 5:00 PM EST facilitated by Tim Maguire and Justin D'Agosti...

•4 years ago

Should AMN be considered an X-linked dominant disorder?

AMN affects both men and women, but men have it more severe and at a younger age. ALD should have X-CALD, XDAMN, and X-Adrenal Insufficiency....

AMN affects both men and women, but men have it more severe and at a younger age...

•4 years ago

Hi, how amn affects erectile dysfunction,

Hi, how amn affects erectile dysfunction, Is it adrenal insufficiency or sphincter disorder, or is it testicular invasion, or is it central nerve conduction...

Hi, how amn affects erectile dysfunction, Is it adrenal insufficiency or sphinct...

•4 years ago

Check your car battery!

Caught me out a few days ago. Car has been sitting on the drive untouched for over 3 weeks thanks to lockdown and no school runs. Was going to drop off a...

Caught me out a few days ago. Car has been sitting on the drive untouched for ov...

•4 years ago

Fatigue

I am well aware that many AMN-ers suffer from extreme fatigue, especially the ladies among us. Recent postings have focused on it. All this discussion made me...

I am well aware that many AMN-ers suffer from extreme fatigue, especially the la...

Administrator•4 years ago

Hello, everyone, I want to consult, amn patients sexual dysfunction, what is a good solution

Hello, everyone, I want to consult, amn patients sexual dysfunction, what is a good solution

Hello, everyone, I want to consult, amn patients sexual dysfunction, what is a g...

•4 years ago

Does eating foods that have good amounts of oleic acid lower the molarity of VLCFAS in our blood and our body?

I eat avocados almost every day and We know that avocados have good amounts of oleic acid. I also eat a low-fat diet. I found this online and tell me what you...

I eat avocados almost every day and We know that avocados have good amounts of o...

•4 years ago

Chronic fatigue for ladies with AMN/ALD

Hello, I'm new here, I'm a woman with AMN/ALD and my history is complex so I'll go into that another time. For now I have just two questions, I'm 64 and have...

Hello, I'm new here, I'm a woman with AMN/ALD and my history is complex so I'll ...

•4 years ago

What are the other names of Adrenomyeloneuropathy?

I have 2 other names of AMN. It is Adrenomyelopathy and Adrenomyelodystrophy. Can anyone search for other names of AMN that I do not know?

I have 2 other names of AMN. It is Adrenomyelopathy and Adrenomyelodystrophy. Ca...

•4 years ago

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At my wits end(sex and anorgasmia related post)

Hello, everyone, I want to consult, amn patients sexual dysf...

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