Posts - AMN EASIER | HealthUnlocked

AMN EASIER

1,326 members•1,186 posts

All posts for May 2019

Life Glider

Hello Folks, When I was seeing my Physiotherapist today for my shoulder I mentioned something about walkers and she told me of a walker her Father had recently...

Hello Folks, When I was seeing my Physiotherapist today for my shoulder I mentio...

easygoin1

•6 years ago

6 Replies

Baclofen side effects

Hi guys, Hope you’re well. I’ve been using Baclofen (a 10MG tablet every night taken with dinner) for close to 2 months now and I’ve begun to become aware of...

Hi guys, Hope you’re well. I’ve been using Baclofen (a 10MG tablet every night t...

mjwellman

•6 years ago

17 Replies

A Daily Stretching Routine Can Help or The Importance of Stretching with AMN

From Harvard Health:...

SongStream

•6 years ago

2 Replies

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Gene therapy marches on.

Boys and girls, have a bang on this - $2.1m Novartis gene therapy to become world's most expensive drug...

Boys and girls, have a bang on this - $2.1m Novartis gene therapy to become wo...

monkeybus

•6 years ago

3 Replies

Eyelid twitching?

I don't like to attribute everything to AMN, because I know that we can experience symptoms that are completely unrelated to it, BUT...for the past several...

I don't like to attribute everything to AMN, because I know that we can experien...

Aaron98

•6 years ago

11 Replies

The Dangers of Sitting (Prolonged, that is)

From Harvard Health: Researchers aren't sure why prolonged sitting has such harmful health consequences. But one possible explanation is that it relaxes your...

From Harvard Health: Researchers aren't sure why prolonged sitting has such harm...

SongStream

•6 years ago

4 Replies

ALD Connect Community Support Call: Cerebral ALD Patients, Families and Caregivers

I realize this is short notice but I received an ALD Connect Announcement regarding their community support telephone conference call for Cerebral ALD...

I realize this is short notice but I received an ALD Connect Announcement regard...

SongStream

•6 years ago

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Constipation

Afternoon! I just wanted to ask what you all do to treat your constipation? I just can’t find a great way of keeping it at bay. I feel like I have to go all...

Afternoon! I just wanted to ask what you all do to treat your constipation? I ju...

Travzw

•6 years ago

28 Replies

More genetic engineering breakthroughs

Cambridge scientists create world’s first living organism with fully redesigned DNA The world’s first living organism that has a fully synthetic and radically...

Cambridge scientists create world’s first living organism with fully redesigned ...

monkeybus

•6 years ago

1 Reply

MIN-102: 1 year (48 week) update

Hi everyone, Last Thursday I went back to NHNN in London for visit 4. The first thing to say is that nurses Erla and Ming have left and Ana was the nurse for...

Hi everyone, Last Thursday I went back to NHNN in London for visit 4. The first ...

wilburlois15

•6 years ago

25 Replies

Limb Transplants

What do you all think of Donald J Trump? You don't have to answer that. I read his tweets religiously. I happen to find him as entertaining as hell, but then...

What do you all think of Donald J Trump? You don't have to answer that. I read ...

monkeybus

•6 years ago

Be the first to reply

Stomach upset?

A strange thing happened just after lunch. Felt very bad. Extreme spasticity in legs and lots of rapid shivering in legs and lower arms. Some Reynaud's in...

A strange thing happened just after lunch. Felt very bad. Extreme spasticity in ...

COwithAMN

Administrator•6 years ago

21 Replies

More Gene Therapy Breakthroughs

Now, here we go. One-off injection may drastically reduce heart attack risk Doctors hope to trial gene therapy on people with rare disorder in next three...

Now, here we go. One-off injection may drastically reduce heart attack risk Doc...

monkeybus

•6 years ago

1 Reply

Spring Is In the Air with a Trike!

I just saw a post on NextDoor, a social networking service for neighborhoods, of someone selling their adult trike. I started googling and came across various...

I just saw a post on NextDoor, a social networking service for neighborhoods, of...

SongStream

•6 years ago

7 Replies

ALD carrier - pregnant with a carrier

Hi all, I am a 33-year-old carrier and have known for just over 10 years that I am a carrier. It has been in our family for as long as I can remember and...

Hi all, I am a 33-year-old carrier and have known for just over 10 years that ...

Leab

•6 years ago

7 Replies

Strength exercises

New here. Do any of you have recommended exercises to help with strengthening for walking?

New here. Do any of you have recommended exercises to help with strengthening ...

BigCat2019

•6 years ago

12 Replies

AMN and marijuana / alcohol

Hello All, A friend of mine got diagnosed with AMN recently, I noticed that when he consumes alcohol or marijuana, the symptoms of spasticity get worse...

Hello All, A friend of mine got diagnosed with AMN recently, I noticed that when...

diderot555

•6 years ago

13 Replies

Have a look at this

My friend was in Japan recently and saw this on TV. http://www.chiba-u.ac.jp/research/coe_gp/result/cfme/result45.html They call it a "walkable chair", they...

My friend was in Japan recently and saw this on TV. http://www.chiba-u.ac.jp/re...

monkeybus

•6 years ago

2 Replies

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At my wits end(sex and anorgasmia related post)

Hello, everyone, I want to consult, amn patients sexual dysf...

AMN and diet

Endocrinology information

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Women-only: at what age did your symptoms first become noticeable?

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Posts - AMN EASIER | HealthUnlocked

AMN EASIER

All posts for May 2019

Life Glider

Baclofen side effects

A Daily Stretching Routine Can Help or The Importance of Stretching with AMN

Gene therapy marches on.

Eyelid twitching?

The Dangers of Sitting (Prolonged, that is)

ALD Connect Community Support Call: Cerebral ALD Patients, Families and Caregivers

Constipation

More genetic engineering breakthroughs

MIN-102: 1 year (48 week) update

Limb Transplants

Stomach upset?

More Gene Therapy Breakthroughs

Spring Is In the Air with a Trike!

ALD carrier - pregnant with a carrier

Strength exercises

AMN and marijuana / alcohol

Have a look at this

Search posts

Pinned Posts

Latest poll

Women-only: at what age did your symptoms first become noticeable?

Topics

Archive