Posts - AMN EASIER | HealthUnlocked

AMN EASIER

1,328 members•1,190 posts

All posts for May 2016

4-ap- anyone tried it?

Hi Just wondering whether anyone has tried 4-ap? If so how did you find it? Benefits/side effects. Is it available on prescription? Thanks in advance

Hi Just wondering whether anyone has tried 4-ap? If so how did you find it? Bene...

Hidden

•9 years ago

38 Replies

ALD

My mother is a carrier of ALD and she is starting to experience numbness in her left leg, she is worried about it being the start of parilization. Is there any...

My mother is a carrier of ALD and she is starting to experience numbness in her ...

Pine_Knot

•9 years ago

5 Replies

B12

I'm a female carrier with 2 boys who have ALD. After being checked out for my carrier status I was started on B12 injections which I have every 4 months....

I'm a female carrier with 2 boys who have ALD. After being checked out for my c...

Hopeforthefuture

•9 years ago

4 Replies

Want to take advantage of all our features? Just log in!

Acid Reflux

Do any men with AMN have problems with acid reflux and do you know if it is related to the disease? Thanks for any thoughts.

Do any men with AMN have problems with acid reflux and do you know if it is rela...

cdp71

•9 years ago

6 Replies

AMN Easier

Thanks so much everyone! This site has been so much of a blessing. The photo is of me and my wife. She has been a great support.

Thanks so much everyone! This site has been so much of a blessing. The photo is ...

Pine_Knot

•9 years ago

2 Replies

Modafinil

Has anyone tried the drug for fatigue? Does it work, what is the dosage, and can you get it in the US?

Has anyone tried the drug for fatigue? Does it work, what is the dosage, and can...

Pine_Knot

•9 years ago

2 Replies

AMN Cerebral

Does anyone have any experience with AMN with cerebral involvement?

bioting

•9 years ago

14 Replies

Tens unit

I can tell a difference after one session with the tens unit in my spasticity. Thanks for your information.

I can tell a difference after one session with the tens unit in my spasticity. T...

Pine_Knot

•9 years ago

5 Replies

Final call for the ALD/AMN Community Weekend!

AMN-ers please be aware that the weekend gathering on 27-29 May in Lndon is as much for you as It is for families affected as a result of having an ALD child....

AMN-ers please be aware that the weekend gathering on 27-29 May in Lndon is as ...

COwithAMN

Administrator•9 years ago

Be the first to reply

Tenz unit

I had a tenz unit delivered today. I hope it helps with my legs. If anyone has any information about what settings work best would you please let me know.

I had a tenz unit delivered today. I hope it helps with my legs. If anyone has a...

Pine_Knot

•9 years ago

2 Replies

Learning to cope!

I have been very active most of my life. I'm now in a wheel chair most of the time. It's all I can stand most of the time. I don't feel like I can talk to...

I have been very active most of my life. I'm now in a wheel chair most of the ti...

Pine_Knot

•9 years ago

7 Replies

Adrenal/Addisons in females.

I have just been diagnosed with Adrenal insufficiency - 300nmol/l and am now on 10mg,5mg,5mg of hydrocortisone. Luckily I have had regular checks for the past...

I have just been diagnosed with Adrenal insufficiency - 300nmol/l and am now on ...

Cherie

•9 years ago

7 Replies

Some good news

I had my annual meeting with my AMN/ALD doctor a couple of weeks ago. Not a lot to say to be fair, and clearly there isn't an awful lot they can say...

I had my annual meeting with my AMN/ALD doctor a couple of weeks ago. Not a lot ...

wilburlois15

•9 years ago

5 Replies

Adrenal fatigue

Folks, this is very interesting. https://www.drlam.com/blog/pantethine-pantothenic-acid/1235/ Pantothenic acid is vitamin B5. Pantethine is Pantethine...

Folks, this is very interesting. https://www.drlam.com/blog/pantethine-pantothen...

monkeybus

•9 years ago

Be the first to reply

Search posts

Pinned Posts

See all

At my wits end(sex and anorgasmia related post)

Hello, everyone, I want to consult, amn patients sexual dysf...

AMN and diet

Endocrinology information

Latest poll

See all polls

Women-only: at what age did your symptoms first become noticeable?

Vote

Topics

All posts(29)

VLCFA (12)

All things AMN EASIER(11)

Addison's(6)

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.

Posts - AMN EASIER | HealthUnlocked

AMN EASIER

All posts for May 2016

4-ap- anyone tried it?

ALD

B12

Acid Reflux

AMN Easier

Modafinil

AMN Cerebral

Tens unit

Final call for the ALD/AMN Community Weekend!

Tenz unit

Learning to cope!

Adrenal/Addisons in females.

Some good news

Adrenal fatigue

Search posts

Pinned Posts

Latest poll

Women-only: at what age did your symptoms first become noticeable?

Topics

Archive